Re: hi- Amy

[Guest guest]

Hi good to hear from you! Happy Easter!

You are doing great with what you are doing. It seems that we can only do what is in front of us. The schools are the hardest to know where to place our children. There is so many things we have to decide on for aspies. Meds or not, what is best discipline, the right foods ect. I try to read all the articles and advice, like should I put on a gluten-free or dairy free diet. When I brought info about to family or friends, they all looked at me or ridiculed me for what I was doing for him. They did not believe all this stuff. They just would say his behavior was a discipline problem. It is so nice to have this group and others like me going through the same thing.

Today had a great day, he stayed with my mother whom is 80, and his sis who is 27: (they live together), she had her two children whom are in foster care, so much I know- so anyway, he did fantastic! We don't leave him with anyone ever! So it was a great gift. I finally had to start having a strict schedule, consistancy, listening to his needs ect, it makes it all smoother in long run. When caos or unexpected things happen, I go to plan B: prayer, patience, deligate, we always have a backpack and lunchkit ready, fast & easy foods to fix, say no to some things, and reward ourselves. Isn't perfect but it what works for us so far, tomorrow may change!hehe. Lots of hugs, kisses, tickles, from mom! Keep me posted have a wonderful night!

From: Carlene Standley <treasuretrash48>Subject: Re: ( ) hi- Carlene Date: Friday, April 2, 2010, 2:06 AM

Hi Amy,

Well, basicly the exact same thing, he would scream and hit himself, throw something or try to hit someone,. We had taken a parenting class at our church when he was a baby. It basicly went out the window with some things, the discipline was tough. We went to a counselor at his school, at our church, he went to a treatment center for evals, and had to be on meds. There were times I screamed, yelled, cried, prayed ect. Tried to get help from family, friends, school ect. No one seamed to want to or know how. So finally he was at school and had a major meltdown! he hit a kid in face with a notebook, luckily not serious; when I was called, he was standing in office yelling out I want to hurt myself! Then we got help!! It has been a long road but he is finally more balance and have alot of tools to work with. I got alot info from a community center and ARC, I read books, researched on internet, made lots of calls. Sorry if I am rambling

on. I hope I have helped a little, my prayers are with you. What have you done so far?

From: Amy <amym321 (DOT) com> Sent: Thu, April 1, 2010 6:40:50 PMSubject: Re: ( ) hi- Carlene

Thank you for your response...it has been a really hard day. He recently has been having episodes like if I put the trash can in the wrong place it is a meltdown, today we went to the car wash usually he doesn't care which one but today he went into full meltdown and panic because it wasn't the same one. I actually had to drive to usual one to just get him to calm down and breathe. It was awful. The last couple of days I have let him play at the playground at the school after school for a 1/2 hour today we didnt have time and he melted down. I felt so out of control of how to handle it. It was awful. Some days it is so trying and he is only 5. They say at his special school he is making huge progress on social skills and even on the playground there is a particular little girl that is a year younger and he keeps trying to hold her hand and then gets mad and yells at her if she doesn't let him. How do you handle that kind of stuff? This is all new to

me and I am so confused and tired to be honest. He didn't have school 2 days this week and it wiped me out.

Any advice would be awesome! What did you go through when your child was 5?

Thanks,

Amy

From: Carlene Standley <treasuretrash48>Subject: Re: ( ) hi Date: Monday, March 29, 2010, 11:24 PM

Hi Amy, I'm kinda new too. But I can completely understand where you are. My son is 10. He was diagnosed Autistic, ADHD, OCD, Developmentaly Delayed. I also felt completely stunned, confused, lost ect. But that was 4 yrs ago. Today I do still feel confused when it comes to the diagnoses and how smart he is. He talks, reads, draws, and can get so inthrolled in a subject that he could teach a class! And yet the same as you, he does not have any social skills, or have a best friend, play video games, or understand daily skills ect. So I started researching, reading, counseling with others, anything about these subjects. Nobody in my family would believe or yet alone accept the diagnoses. It took doctors, teachers, counselors, and prayers for them all to be on the same page.

He is on meds, not by choice, but he had several really bad episodes, and meltdowns at school and in public. Today he can function normally in our family and home, participate in all activities that work for him, do chores, take care of his needs but with constant supervision. But what I can tell you is don't give up, there is hope, research, get other support, and this group is very helpful. Sorry for talking so much. I am just happy to help.

From: Amy <amym321 (DOT) com> Sent: Mon, March 29, 2010 10:32:56 PMSubject: ( ) hi

Hi there! I have been reading these posts for some time now, but never replied.

Today we received the report from the neuropsychologist in regards to our son's Cognitive issues. He is 5 and also has CSWS, ADHD, OCD and then they are on the fence whether or not he is PDD-NOS or Aspergers. It was really difficult today to hear that he is so bright, but his ADHD gets in the way that he can't grasp any from of complexity. It is really strange how he can play the Nintendo DS so well, but not grasp some very common things. Does this sound familiar to anyone else?

Thanks for any help you can provide...

Amy