Re: Top research universities on Aspergers

[Guest guest]

I'd try joining the ABMD (Autism Biomedical Discussion group for parents and

professionals) group and ask the same question.

A lot of these kids have complex allergy/gut issues playing a role, and the

biomed people are focused on attacking it from that route. Also, a good DAN

(Defeat Autism Now) Dr might be a good route to take. I would certainly want to

find a highly recommended DAN doctor and have them see him. My impression is

that the DAN doctors and not the Universities are at the cutting edge from an

Autism perspective, but the Universities will have the specialists best able to

diagnose the physical disorder causing these other symptoms, so I'm not sure the

University needs to specialize in Autism to be helpful. I could be wrong

though.

-

>

> Hello,

> We've been introduced to a new symptom with my son (Dylan, 14) and it's really

making me think there has to be some sort of additional explanation for the

collection of issues he has. I keep hoping to find that missing piece to the

puzzle, but I never do. The latest symptom appears to be either vitiligo or

something similar. He has a section of his forehead that starts about in the

middle and moves over through part of his eyebrow and ends at the top of his

right cheek. His skin in this area is a lighter color and some of the hair in

his eyebrow is also starting to turn white. When I did some research online, I

saw that children with vitiligo are also more likely to have auto-immune

disorders. Dylan has never been diagnosed w/ those, but there is something about

his internal sensitivity (allergies, asthma when younger, excema, reflux,

occasional migraines, digestive problems) and his external sensitivities

(lights, sounds, pressure, textures, etc...) when combined with this latest,

where the body starts to attack melanin that just seems to have to be

interrelated in some way. After we see a dermatologist next week, I'd really

like to get some genetic testing done and/or see an auto-immune disorder and/or

an Aspergers Syndrome research facility somewhere and see if there has been any

work done with anything related to what Dylan's experiencing. Any ideas about

which universities might specialize in Autism/Aspergers/Auto-Immune Disorders?

Any thoughts on this?

>

> Thanks!

>

[Guest guest]

Where do you live? Boston's Children's Hospital is a great

center, Yale in CT has a famous Autism Center. Kennedy Krieger

is Baltimore has specialities in very specific autism areas.

The genetic test is a very good starting point at a major

center. Another good center for genetics would be in NYC at

one of the children's hospitals or Philidephia's Children's

Hospital. Boston Children's hospital too.

Pam

>

> Hello,

> We've been introduced to a new symptom with my son (Dylan, 14) and it's really

making me think there has to be some sort of additional explanation for the

collection of issues he has. I keep hoping to find that missing piece to the

puzzle, but I never do. The latest symptom appears to be either vitiligo or

something similar. He has a section of his forehead that starts about in the

middle and moves over through part of his eyebrow and ends at the top of his

right cheek. His skin in this area is a lighter color and some of the hair in

his eyebrow is also starting to turn white. When I did some research online, I

saw that children with vitiligo are also more likely to have auto-immune

disorders. Dylan has never been diagnosed w/ those, but there is something about

his internal sensitivity (allergies, asthma when younger, excema, reflux,

occasional migraines, digestive problems) and his external sensitivities

(lights, sounds, pressure, textures, etc...) when combined with this latest,

where the body starts to attack melanin that just seems to have to be

interrelated in some way. After we see a dermatologist next week, I'd really

like to get some genetic testing done and/or see an auto-immune disorder and/or

an Aspergers Syndrome research facility somewhere and see if there has been any

work done with anything related to what Dylan's experiencing. Any ideas about

which universities might specialize in Autism/Aspergers/Auto-Immune Disorders?

Any thoughts on this?

>

> Thanks!

>

[Guest guest]

Might have Lyme Induced Autism like my daughter. Here's some info

for you:

http://www.lymeinducedautism.com/symptomchecklist.html

BorreliaMultipleInfectionsAndAutism/

Take care!

On 11/18/2010 12:31 AM, wrote:

Hello,

We've been introduced to a new symptom with my son (Dylan,

14) and it's really making me think there has to be some

sort of additional explanation for the collection of

issues he has. I keep hoping to find that missing piece to

the puzzle, but I never do. The latest symptom appears to

be either vitiligo or something similar. He has a section

of his forehead that starts about in the middle and moves

over through part of his eyebrow and ends at the top of

his right cheek. His skin in this area is a lighter color

and some of the hair in his eyebrow is also starting to

turn white. When I did some research online, I saw that

children with vitiligo are also more likely to have

auto-immune disorders. Dylan has never been diagnosed w/

those, but there is something about his internal

sensitivity (allergies, asthma when younger, excema,

reflux, occasional migraines, digestive problems) and his

external sensitivities (lights, sounds, pressure,

textures, etc...) when combined with this latest, where

the body starts to attack melanin that just seems to have

to be interrelated in some way. After we see a

dermatologist next week, I'd really like to get some

genetic testing done and/or see an auto-immune disorder

and/or an Aspergers Syndrome research facility somewhere

and see if there has been any work done with anything

related to what Dylan's experiencing. Any ideas about

which universities might specialize in

Autism/Aspergers/Auto-Immune Disorders? Any thoughts on

this?

Thanks!