Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Thank you for your response...it has been a really hard day. He recently has been having episodes like if I put the trash can in the wrong place it is a meltdown, today we went to the car wash usually he doesn't care which one but today he went into full meltdown and panic because it wasn't the same one. I actually had to drive to usual one to just get him to calm down and breathe. It was awful. The last couple of days I have let him play at the playground at the school after school for a 1/2 hour today we didnt have time and he melted down. I felt so out of control of how to handle it. It was awful. Some days it is so trying and he is only 5. They say at his special school he is making huge progress on social skills and even on the playground there is a particular little girl that is a year younger and he keeps trying to hold her hand and then gets mad and yells at her if she doesn't let him. How do you handle that kind of stuff? This is all new to me and I am so confused and tired to be honest. He didn't have school 2 days this week and it wiped me out. Any advice would be awesome! What did you go through when your child was 5? Thanks, Amy From: Carlene Standley <treasuretrash48@...>Subject: Re: ( ) hi Date: Monday, March 29, 2010, 11:24 PM Hi Amy, I'm kinda new too. But I can completely understand where you are. My son is 10. He was diagnosed Autistic, ADHD, OCD, Developmentaly Delayed. I also felt completely stunned, confused, lost ect. But that was 4 yrs ago. Today I do still feel confused when it comes to the diagnoses and how smart he is. He talks, reads, draws, and can get so inthrolled in a subject that he could teach a class! And yet the same as you, he does not have any social skills, or have a best friend, play video games, or understand daily skills ect. So I started researching, reading, counseling with others, anything about these subjects. Nobody in my family would believe or yet alone accept the diagnoses. It took doctors, teachers, counselors, and prayers for them all to be on the same page. He is on meds, not by choice, but he had several really bad episodes, and meltdowns at school and in public. Today he can function normally in our family and home, participate in all activities that work for him, do chores, take care of his needs but with constant supervision. But what I can tell you is don't give up, there is hope, research, get other support, and this group is very helpful. Sorry for talking so much. I am just happy to help. From: Amy <amym321 (DOT) com> Sent: Mon, March 29, 2010 10:32:56 PMSubject: ( ) hi Hi there! I have been reading these posts for some time now, but never replied. Today we received the report from the neuropsychologist in regards to our son's Cognitive issues. He is 5 and also has CSWS, ADHD, OCD and then they are on the fence whether or not he is PDD-NOS or Aspergers. It was really difficult today to hear that he is so bright, but his ADHD gets in the way that he can't grasp any from of complexity. It is really strange how he can play the Nintendo DS so well, but not grasp some very common things. Does this sound familiar to anyone else? Thanks for any help you can provide... Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 When my son was 3 or 4, he used to flip out when I went to the gas station and didn't order the " blue " gas, blue being his absolute favorite color. I ordered the green (regular), and not blue (premium). He went ballistic every time, but eventually he found something else that interested him and now he doesn't care what I get. It's just a phase and a temporary fixation usually. BTW, at the time I lived in NJ, where you are not allowed to pump your own gas, and it's a lot less expensive than other states. Sweet! > > Thank you for your response...it has been a really hard day. He recently has been having episodes like if I put the trash can in the wrong place it is a meltdown, today we went to the car wash usually he doesn't care which one but today he went into full meltdown and panic because it wasn't the same one. I actually had to drive to usual one to just get him to calm down and breathe. It was awful. The last couple of days I have let him play at the playground at the school after school for a 1/2 hour today we didnt have time and he melted down. I felt so out of control of how to handle it. It was awful. Some days it is so trying and he is only 5. They say at his special school he is making huge progress on social skills and even on the playground there is a particular little girl that is a year younger and he keeps trying to hold her hand and then gets mad and yells at her if she doesn't let him. How do you handle that kind of stuff? This is all new to me > and I am so confused and tired to be honest. He didn't have school 2 days this week and it wiped me out. >  > Any advice would be awesome! What did you go through when your child was 5? >  > Thanks, >  > Amy > > > > > From: Carlene Standley <treasuretrash48@...> > Subject: Re: ( ) hi > > Date: Monday, March 29, 2010, 11:24 PM > > >  > > > > > > Hi Amy, I'm kinda new too. But I can completely understand where you are. My son is 10. He was diagnosed Autistic, ADHD, OCD, Developmentaly Delayed. I also felt completely stunned, confused, lost ect. But that was 4 yrs ago. Today I do still feel confused when it comes to the diagnoses and how smart he is. He talks, reads, draws, and can get so inthrolled in a subject that he could teach a class! And yet the same as you, he does not have any social skills, or have a best friend, play video games, or understand daily skills ect. So I started researching, reading, counseling with others, anything about these subjects. Nobody in my family would believe or yet alone accept the diagnoses. It took doctors, teachers, counselors, and prayers for them all to be on the same page. > He is on meds, not by choice, but he had several really bad episodes, and meltdowns at school and in public. Today he can function normally in our family and home, participate in all activities that work for him, do chores, take care of his needs but with constant supervision. But what I can tell you is don't give up, there is hope, research, get other support, and this group is very helpful. Sorry for talking so much. I am just happy to help. > > > > > > From: Amy <amym321 (DOT) com> > > Sent: Mon, March 29, 2010 10:32:56 PM > Subject: ( ) hi > >  > > > > > > > Hi there! I have been reading these posts for some time now, but never replied. > Today we received the report from the neuropsychologist in regards to our son's Cognitive issues. He is 5 and also has CSWS, ADHD, OCD and then they are on the fence whether or not he is PDD-NOS or Aspergers. It was really difficult today to hear that he is so bright, but his ADHD gets in the way that he can't grasp any from of complexity. It is really strange how he can play the Nintendo DS so well, but not grasp some very common things. Does this sound familiar to anyone else? >  > Thanks for any help you can provide... >  > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Hi Amy, Well, basicly the exact same thing, he would scream and hit himself, throw something or try to hit someone,. We had taken a parenting class at our church when he was a baby. It basicly went out the window with some things, the discipline was tough. We went to a counselor at his school, at our church, he went to a treatment center for evals, and had to be on meds. There were times I screamed, yelled, cried, prayed ect. Tried to get help from family, friends, school ect. No one seamed to want to or know how. So finally he was at school and had a major meltdown! he hit a kid in face with a notebook, luckily not serious; when I was called, he was standing in office yelling out I want to hurt myself! Then we got help!! It has been a long road but he is finally more balance and have alot of tools to work with. I got alot info from a community center and ARC, I read books, researched on internet, made lots of calls. Sorry if I am rambling on. I hope I have helped a little, my prayers are with you. What have you done so far? From: Amy <amym321@...> Sent: Thu, April 1, 2010 6:40:50 PMSubject: Re: ( ) hi- Carlene Thank you for your response...it has been a really hard day. He recently has been having episodes like if I put the trash can in the wrong place it is a meltdown, today we went to the car wash usually he doesn't care which one but today he went into full meltdown and panic because it wasn't the same one. I actually had to drive to usual one to just get him to calm down and breathe. It was awful. The last couple of days I have let him play at the playground at the school after school for a 1/2 hour today we didnt have time and he melted down. I felt so out of control of how to handle it. It was awful. Some days it is so trying and he is only 5. They say at his special school he is making huge progress on social skills and even on the playground there is a particular little girl that is a year younger and he keeps trying to hold her hand and then gets mad and yells at her if she doesn't let him. How do you handle that kind of stuff? This is all new to me and I am so confused and tired to be honest. He didn't have school 2 days this week and it wiped me out. Any advice would be awesome! What did you go through when your child was 5? Thanks, Amy From: Carlene Standley <treasuretrash48>Subject: Re: ( ) hi Date: Monday, March 29, 2010, 11:24 PM Hi Amy, I'm kinda new too. But I can completely understand where you are. My son is 10. He was diagnosed Autistic, ADHD, OCD, Developmentaly Delayed. I also felt completely stunned, confused, lost ect. But that was 4 yrs ago. Today I do still feel confused when it comes to the diagnoses and how smart he is. He talks, reads, draws, and can get so inthrolled in a subject that he could teach a class! And yet the same as you, he does not have any social skills, or have a best friend, play video games, or understand daily skills ect. So I started researching, reading, counseling with others, anything about these subjects. Nobody in my family would believe or yet alone accept the diagnoses. It took doctors, teachers, counselors, and prayers for them all to be on the same page. He is on meds, not by choice, but he had several really bad episodes, and meltdowns at school and in public. Today he can function normally in our family and home, participate in all activities that work for him, do chores, take care of his needs but with constant supervision. But what I can tell you is don't give up, there is hope, research, get other support, and this group is very helpful. Sorry for talking so much. I am just happy to help. From: Amy <amym321 (DOT) com> Sent: Mon, March 29, 2010 10:32:56 PMSubject: ( ) hi Hi there! I have been reading these posts for some time now, but never replied. Today we received the report from the neuropsychologist in regards to our son's Cognitive issues. He is 5 and also has CSWS, ADHD, OCD and then they are on the fence whether or not he is PDD-NOS or Aspergers. It was really difficult today to hear that he is so bright, but his ADHD gets in the way that he can't grasp any from of complexity. It is really strange how he can play the Nintendo DS so well, but not grasp some very common things. Does this sound familiar to anyone else? Thanks for any help you can provide... Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2010 Report Share Posted April 3, 2010 He attends a therapeutic learning center for preschoolers with only 6 children in the classroom. He is doing well in there, he gets one on one time almost everyday with the classroom therapist, but we are just starting out and today has been a challenge. He just seems so bored, and all he wants to do is jump on his bed. He also has pressure sensories and so I think they are out of control as well. He keeps wanting to do things and then when he does them he always looks at me today and says "are you happy now?" I have no idea where that is coming from. It is like everything is my idea and desire not his. He hurt his sister this morning and when I told him to apologize he said it wasnt him of course. But eventually apologized but I dont think he realized at all that she was hurt. He went ahead rambliing as fast as possible about somethign I couldnt' make sense of. He is a great talker and since he has been in the learning center he says hi to everyone. So his social skills are pretty good, but with his CSWS and this you can tell he understands you about 50% of the time. sorry for rambling. It's so nice having the center keep him on routine but I have such a hard time at home. When I tell my family and friends that we have to stay on routine and his bedtime needs to be the same. They just look at me like I am crazy and sometimes make me feel like they think I am making it all up. IT is such a tough road especially since he looks like any other kid. Its when he talks and acts that you see the difference. Thanks, Amy From: Carlene Standley <treasuretrash48@...>Subject: Re: ( ) hi- Carlene Date: Friday, April 2, 2010, 2:06 AM Hi Amy, Well, basicly the exact same thing, he would scream and hit himself, throw something or try to hit someone,. We had taken a parenting class at our church when he was a baby. It basicly went out the window with some things, the discipline was tough. We went to a counselor at his school, at our church, he went to a treatment center for evals, and had to be on meds. There were times I screamed, yelled, cried, prayed ect. Tried to get help from family, friends, school ect. No one seamed to want to or know how. So finally he was at school and had a major meltdown! he hit a kid in face with a notebook, luckily not serious; when I was called, he was standing in office yelling out I want to hurt myself! Then we got help!! It has been a long road but he is finally more balance and have alot of tools to work with. I got alot info from a community center and ARC, I read books, researched on internet, made lots of calls. Sorry if I am rambling on. I hope I have helped a little, my prayers are with you. What have you done so far? From: Amy <amym321 (DOT) com> Sent: Thu, April 1, 2010 6:40:50 PMSubject: Re: ( ) hi- Carlene Thank you for your response...it has been a really hard day. He recently has been having episodes like if I put the trash can in the wrong place it is a meltdown, today we went to the car wash usually he doesn't care which one but today he went into full meltdown and panic because it wasn't the same one. I actually had to drive to usual one to just get him to calm down and breathe. It was awful. The last couple of days I have let him play at the playground at the school after school for a 1/2 hour today we didnt have time and he melted down. I felt so out of control of how to handle it. It was awful. Some days it is so trying and he is only 5. They say at his special school he is making huge progress on social skills and even on the playground there is a particular little girl that is a year younger and he keeps trying to hold her hand and then gets mad and yells at her if she doesn't let him. How do you handle that kind of stuff? This is all new to me and I am so confused and tired to be honest. He didn't have school 2 days this week and it wiped me out. Any advice would be awesome! What did you go through when your child was 5? Thanks, Amy From: Carlene Standley <treasuretrash48>Subject: Re: ( ) hi Date: Monday, March 29, 2010, 11:24 PM Hi Amy, I'm kinda new too. But I can completely understand where you are. My son is 10. He was diagnosed Autistic, ADHD, OCD, Developmentaly Delayed. I also felt completely stunned, confused, lost ect. But that was 4 yrs ago. Today I do still feel confused when it comes to the diagnoses and how smart he is. He talks, reads, draws, and can get so inthrolled in a subject that he could teach a class! And yet the same as you, he does not have any social skills, or have a best friend, play video games, or understand daily skills ect. So I started researching, reading, counseling with others, anything about these subjects. Nobody in my family would believe or yet alone accept the diagnoses. It took doctors, teachers, counselors, and prayers for them all to be on the same page. He is on meds, not by choice, but he had several really bad episodes, and meltdowns at school and in public. Today he can function normally in our family and home, participate in all activities that work for him, do chores, take care of his needs but with constant supervision. But what I can tell you is don't give up, there is hope, research, get other support, and this group is very helpful. Sorry for talking so much. I am just happy to help. From: Amy <amym321 (DOT) com> Sent: Mon, March 29, 2010 10:32:56 PMSubject: ( ) hi Hi there! I have been reading these posts for some time now, but never replied. Today we received the report from the neuropsychologist in regards to our son's Cognitive issues. He is 5 and also has CSWS, ADHD, OCD and then they are on the fence whether or not he is PDD-NOS or Aspergers. It was really difficult today to hear that he is so bright, but his ADHD gets in the way that he can't grasp any from of complexity. It is really strange how he can play the Nintendo DS so well, but not grasp some very common things. Does this sound familiar to anyone else? Thanks for any help you can provide... Amy Quote Link to comment Share on other sites More sharing options...
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