Re: HELP! daughter is regressing

[Guest guest]

Hi Jen

Yeast often proliferates to fill a void. Are you giving any probiotics to

re-populate the gut?

Also, " destructive " at our house is bad bacteria.

Good luck

HELP!--I am going . I am stuck, and looking for advice from all you

great moms out there... please help!

jEN

[Guest guest]

We kept treating for yeast, and our problem turned out to be more bacterially

based...clostridia to be exact. Treating so much for the yeast lets bacteria get

a foothold. The aggression, running out in traffic, no stranger danger, no fear

of danger at all really says bacteria to me.

You can test for bacteria with Genova Diagnostics (our DAN should be familiar)

but some things we've used include:

Vancocin (prescription antibiotic...very strong)

Olive leaf extract

Sac Boulardii (pre-biotic)

VSL3-DS (VERY strong probiotic). This was a prescription.

Biocidin (this is expensive but was recommended to us...we didn't do this one

yet)

Pre and Probiotics can be hidden in smoothies. OLE is kinda stinky and might be

difficult to hide.

I would also suggest a brushing protocol and lots of massages and epsom salt

baths. When a child gets all tensed up and aggressive like this, it becomes a

bit of a vicious cycle. For my son, the supplements/medication didn't work until

his body calmed down enough to handle them. Make sure your child is pooping

pooping pooping. Consider magnesium or oxypowder to make sure to keep things

moving out of her digestive system. Epsom salt baths can help to get the toxins

you're killing with the yeast protocol too.

It is HARD. We were housebound for 18 months with this sort of behavior. It

takes you to the breaking point. Hang in there!!

Sara

[Guest guest]

> This child is so defiant, nuts, impulsive and destructive again, she screams

all the time, gets constant yeast infections, and is up all night long days at

a time.

If you think it is yeast, try increasing the GSE, maybe increase biotin. There

were times when my son needed 20mg biotin 3x per day as well as 4 tablets GSE 3x

per day.

Sometimes my son's bad bacteria symptoms were the same as the yeast symptoms.

If you think it might have migrated to bad bacteria, try dropping the GSE and

add OLE or OoO.

> HELP!--I am going out of my mind...This has all gone downhill massively in the

last 8 weeks,

What has happened that is new? Any new supps or medications you added? Or

removed? Did you move to a new house, new school? Anything like this?

Dana

[Guest guest]

> I have mentioned in the past that my daughter has this ethiopian look to her

> right after she eats anything. with or without her supplements or enzymes.

> skinny legs and big bloated belly. We call her watermelon belly.

At my house, this was yeast or supplement intolerance. Fats were especially

prone to cause this, until I started mito cocktail.

>>I would love to give her the oil of oregano, or Caprylic

> acid-- but she has a horrible gag reflux, and she jsut cannot swallow

> capsules yet. So how do I get it in her,

Rub it on her feet at night and then put socks on.

>>We went thru this 3 month stage of

> wedded bliss.--she was wonderful and I would just sit and cry to watch her

> play on the floor with her dolls. Something we had never seen before. and

> then 1 day it just started all over again. the mean temper tantrums,

> screaming at me, the hitting and defiance- especially full moon, it

> quadruples.

Definitely consider a parasite cleanse.

Keep a journal. Write down each day, what foods, supps, medications, behaviors,

sleep patterns, bms, everything. See if you start noticing correlations.

Dana

[Guest guest]

There is rice and coconut yogurt if she can handle those.

OAT is an Organic Acid Test. Urine Test that will tell you about yeast and

bacteria issues, oxalate issues, vitamin and mineral deficiencies.

Oil of Oregano. can she eat italian food? Sprinkle the capsule in tomato sauce

or sloppy joes. Can also give the drops in a very strong juice (it does taste

nasty) Try cranberry or Pomegranete. That might work with the walnut as well.

Lauricidin may be somethig to try for yeast. Very small tablets (look like

wax). Not chewable, but maybe she can swallow those.

Does your daughter have sensory integration issues? SIT might help with gag

reflex.

Karla

> > >>

> > >> OKay, out of sheer desperation, I just don't know where to turn. OUr

> > >> 6 yr old daughter--PDD-nos, ADHd, ketotic hypoglycemic, multiple food

> > >> allergies. She is on GFCFEF dye free diet for over 2 years now.

> > >>

> > >> Takes magnesium calm 3 times a day with trienza, 3 drops gse, 3x day,

> > >> biotin 1000, Vit C, b complex, b-3, Takes candidase and virastop

> > >> everynight in double doses iwth activated charcoal about 45 minutes

> > after

> > >> that.

> > >> We went thru a major yeast detox' in the last two weeks as hopes of

> > >> getting it out, USING CANDIDASE 3 TIMES A DAY DURING THE DAY---where

> > we

> > >> dropped the b's, but kept the c's to try and keep the virals from

> > >> raising. And she got very croupy and stuffed up.

> > >>

> > >> This child is so defiant, nuts, impulsive and destructive again, she

> > >> screams all the time, gets constant yeast infections, and is up all

> > >> night long days at a time. She runs out in traffics, runs awa y from

> > us

> > >> in stores and has absolutely no stranger danger. We are prisoners in

> > our

> > >> own home, as we just cannot take her anywhere, due ot the safety and

> > >> destruction factor--- We have been treating the yeast heavily for the

> > >> last 18 months. And every answer I see on here is Yeast, YEast,

> > >> YEast---She gets no artificial flavors, dyes, or process foods. I

> > >> don't know what else to do. I have read and followed all of Dana's

> > pages

> > >> for yeast, and her behavior is just getting worse---she is having

> > >> trouble at school now, where she never did before. She is very hyper,

> > >> wil not sit still , keeps interrupting the teacher, and keeps

> > touching,

> > >> licking, kissing other kids and complete strangers. She has this thing

> > >> for pulling up her shirt and pointing to her breasts to complete

> > >> strangers

> > > in the stores. She knows she is not supposed to do it, and it she knows

> > > it is a major no, no and right now, she does everything to the worst

> > > issue. I swear just to get a rise out of me...

> > >>

> > >> HELP!--I am going out of my mind...This has all gone downhill

> > massively

> > >> in the last 8 weeks, and I don't know what else to do....Our Dan has

> > >> advised us against going to great plains for yeast test or anything

> > else,

> > >> since everything they do comes back positive----And their tests are

> > >> questionable. I am stuck, and looking for advice from all you great

> > >> moms out there... please help!

> > >>

> > >> jEN

> > >>

> > >>

[Guest guest]

You have gotten a lot of great input already, but I agree with the theory it

might be bacteria that took hold after all the yeast die off. Aggressiveness,

defiance, brain fog, impulsivity, constipation all were bacteria related in my

house. Plus phenols can cause this reaction with my ASD son and grapefruit seed

extract is phenolic. He's on TriEnza too, but anytime I give him food high in

phenols, I add in a No-Phenol enzyme for extra measure, because the amount of

No-Phenol in TriEnza is not enough for him.

Is she allergic to corn? Most vitamin C is made from corn. My ADHD son is

allergic to corn and we give him lots of Vit C, but it's Twinlabs' Allergy C, no

corn.

Biocidin has been wonderful for us to treat bacteria, plus S. Boulardii in the

probiotic. Does she take zinc? It will help with the gut healing she needs.

Can I recommend if you haven't already, get your older son into a therapy group

for siblings with ASD...my 10 yr old son needed it and his little brother is

high-functioning. Also, remember to give yourself a break too, with your

husband...as you know, ASD is hard on marriages and siblings. Us moms work so

hard and put our kids needs first, we forget to take care of ourselves. I'm

guilty of it too. I wish you patience and deep breaths...this journey you and

your family are on is difficult. Keep the faith!

Joanne

www.healingautismandadhd.wordpress.com

>

> Takes magnesium calm 3 times a day with trienza, 3 drops gse, 3x day, biotin

1000, Vit C, b complex, b-3, Takes candidase and virastop everynight in double

doses iwth activated charcoal about 45 minutes after that.

> We went thru a major yeast detox' in the last two weeks as hopes of getting

it out, USING CANDIDASE 3 TIMES A DAY DURING THE DAY---where we dropped the

b's, but kept the c's to try and keep the virals from raising. And she got very

croupy and stuffed up.

>

> This child is so defiant, nuts, impulsive and destructive again, she screams

all the time, gets constant yeast infections, and is up all night long days at

a time. She runs out in traffics, runs awa y from us in stores and has

absolutely no stranger danger. We are prisoners in our own home, as we just

cannot take her anywhere, due ot the safety and destruction factor--- We have

been treating the yeast heavily for the last 18 months. And every answer I see

on here is Yeast, YEast, YEast---She gets no artificial flavors, dyes, or

process foods. I don't know what else to do. I have read and followed all

of Dana's pages for yeast, and her behavior is just getting worse---she is

having trouble at school now, where she never did before. She is very hyper,

wil not sit still , keeps interrupting the teacher, and keeps touching,

licking, kissing other kids and complete strangers. She has this thing for

pulling up her shirt and pointing to her breasts to complete strangers in the

stores. She knows she is not supposed to do it, and it she knows it is a major

no, no and right now, she does everything to the worst issue. I swear just to

get a rise out of me...

>

> HELP!--I am going out of my mind...This has all gone downhill massively in the

last 8 weeks, and I don't know what else to do....Our Dan has advised us

against going to great plains for yeast test or anything else, since everything

they do comes back positive----And their tests are questionable. I am stuck,

and looking for advice from all you great moms out there... please help!

>

> jEN

>

>

[Guest guest]

You have gotten a lot of great input already, but I agree with the theory it

might be bacteria that took hold after all the yeast die off. Aggressiveness,

defiance, brain fog, impulsivity, constipation all were bacteria related in my

house. Plus phenols can cause this reaction with my ASD son and grapefruit seed

extract is phenolic. He's on TriEnza too, but anytime I give him food high in

phenols, I add in a No-Phenol enzyme for extra measure, because the amount of

No-Phenol in TriEnza is not enough for him.

Is she allergic to corn? Most vitamin C is made from corn. My ADHD son is

allergic to corn and we give him lots of Vit C, but it's Twinlabs' Allergy C, no

corn.

Biocidin has been wonderful for us to treat bacteria, plus S. Boulardii in the

probiotic. Does she take zinc? It will help with the gut healing she needs.

Can I recommend if you haven't already, get your older son into a therapy group

for siblings with ASD...my 10 yr old son needed it and his little brother is

high-functioning. Also, remember to give yourself a break too, with your

husband...as you know, ASD is hard on marriages and siblings. Us moms work so

hard and put our kids needs first, we forget to take care of ourselves. I'm

guilty of it too. I wish you patience and deep breaths...this journey you and

your family are on is difficult. Keep the faith!

Joanne

www.healingautismandadhd.wordpress.com

> We went thru a major yeast detox' in the last two weeks as hopes of getting

it out,

> This child is so defiant, nuts, impulsive and destructive again, she screams

all the time, gets constant yeast infections, and is up all night long days at

a time. annot take her anywhere, due ot the safety and destruction factor---

We have been treating the yeast heavily for the last 18 months. She is very

hyper, wil not sit still

>

[Guest guest]

If there is a Whole Foods, they usually have both kinds there. Our Safeway

carries the coconut yogurt (So Delicious Brand). Not a real fan of the rice

yogurt, but the coconut yogurt is good. Not sure of other places.

Your DAN! can order an OAT or you can order it online from Great Plains Lab,

http://www.greatplainslaboratory.com/ (they may require a Docs signature now) or

Direct Labs, https://www.directlabs.com/.

Oil of Oregano is potent stuff. Wont work with just one dose (sorry). And as

it tastes nasty on its own, putting it in a saucy food would be a good option.

Dana mentions rubbing it on the feet and putting socks on. That may be a better

option. Just giving you ideas.

Lauricidin can be bought OTC. Found in coconut oil and has

anti-viral/fungal/bacterial properties.

My son doesnt have sensory issues with regard to texture, but does have auditory

issues and hyposensitivity and Sensory Integration therapy has been a big help.

Karla

> > > >>

> > > >> OKay, out of sheer desperation, I just don't know where to turn. OUr

> > > >> 6 yr old daughter--PDD-nos, ADHd, ketotic hypoglycemic, multiple

> food

> > > >> allergies. She is on GFCFEF dye free diet for over 2 years now.

> > > >>

> > > >> Takes magnesium calm 3 times a day with trienza, 3 drops gse, 3x

> day,

> > > >> biotin 1000, Vit C, b complex, b-3, Takes candidase and virastop

> > > >> everynight in double doses iwth activated charcoal about 45 minutes

> > > after

> > > >> that.

> > > >> We went thru a major yeast detox' in the last two weeks as hopes of

> > > >> getting it out, USING CANDIDASE 3 TIMES A DAY DURING THE DAY---where

>

> > > we

> > > >> dropped the b's, but kept the c's to try and keep the virals from

> > > >> raising. And she got very croupy and stuffed up.

> > > >>

> > > >> This child is so defiant, nuts, impulsive and destructive again, she

> > > >> screams all the time, gets constant yeast infections, and is up all

> > > >> night long days at a time. She runs out in traffics, runs awa y from

>

> > > us

> > > >> in stores and has absolutely no stranger danger. We are prisoners in

>

> > > our

> > > >> own home, as we just cannot take her anywhere, due ot the safety and

> > > >> destruction factor--- We have been treating the yeast heavily for

> the

> > > >> last 18 months. And every answer I see on here is Yeast, YEast,

> > > >> YEast---She gets no artificial flavors, dyes, or process foods. I

> > > >> don't know what else to do. I have read and followed all of Dana's

> > > pages

> > > >> for yeast, and her behavior is just getting worse---she is having

> > > >> trouble at school now, where she never did before. She is very

> hyper,

> > > >> wil not sit still , keeps interrupting the teacher, and keeps

> > > touching,

> > > >> licking, kissing other kids and complete strangers. She has this

> thing

> > > >> for pulling up her shirt and pointing to her breasts to complete

> > > >> strangers

> > > > in the stores. She knows she is not supposed to do it, and it she

> knows

> > > > it is a major no, no and right now, she does everything to the worst

> > > > issue. I swear just to get a rise out of me...

> > > >>

> > > >> HELP!--I am going out of my mind...This has all gone downhill

> > > massively

> > > >> in the last 8 weeks, and I don't know what else to do....Our Dan has

> > > >> advised us against going to great plains for yeast test or anything

> > > else,

> > > >> since everything they do comes back positive----And their tests are

> > > >> questionable. I am stuck, and looking for advice from all you great

> > > >> moms out there... please help!

> > > >>

> > > >> jEN

> > > >>

> > > >>

[Guest guest]

> I think a lot has to do with this parasites. I have been reading a lot

> about it, since she has such issues around full moon. But I will work on

> the OOO, and OLE.on the feet Are they both for bacteria?

OoO helps with bacteria and yeast. OLE helps with bacteria and viruses.

Dana

[Guest guest]

I agree that it sounds like bacteria.

re: bacteria Most docs agree that she needs to have a BM every day if not 2 x

per day to keep bacteria moving out. Can you add more magnesium on any day that

she does not have a BM?

I have to ask -- any thoughts of Strep or PANDAS? for us it is that time of

year, often March/April are the worst after multiple exposures at school and

with many of the behaviors you describe.

Can I suggest that you add strep tracking to your data collection. We track it

along with full moons -- it's good to know Y or N if there is a corresponding

reaction to either.

>

> No nothing new. I have been emailing about this for over a year. She has

> this cyclical stuff that keeps happening and then there is the almost

> honeymoon period of bliss, where she is wonderful and then all of a sudden,

> ti rears it's ugly head. And right now it has been going downhill for about

> the last 8 weeks. Just total defiance, hitting and running away, just

> nasty back talk attitude--throwing things, and just cannot focus one bit.

> Going from item to item in a matter of 30 seconds....

>

> I think a lot has to do with this parasites. I have been reading a lot

> about it, since she has such issues around full moon. But I will work on

> the OOO, and OLE.on the feet Are they both for bacteria?

> Thanks for your advice.

> Jen

>

> Re: HELP! daughter is regressing

>

> > This child is so defiant, nuts, impulsive and destructive again, she

> screams all the time, gets constant yeast infections, and is up all night

> long days at a time.

>

>

> If you think it is yeast, try increasing the GSE, maybe increase biotin.

> There were times when my son needed 20mg biotin 3x per day as well as 4

> tablets GSE 3x per day.

>

> Sometimes my son's bad bacteria symptoms were the same as the yeast

> symptoms. If you think it might have migrated to bad bacteria, try dropping

> the GSE and add OLE or OoO.

>

>

> > HELP!--I am going out of my mind...This has all gone downhill massively in

> the last 8 weeks,

>

>

> What has happened that is new? Any new supps or medications you added? Or

> removed? Did you move to a new house, new school? Anything like this?

>

> Dana

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

PANDAS, any sense of whether it might be PANDAS.

> >>

> >> No nothing new. I have been emailing about this for over a year. She

> >> has

> >> this cyclical stuff that keeps happening and then there is the almost

> >> honeymoon period of bliss, where she is wonderful and then all of a

> >> sudden,

> >> ti rears it's ugly head. And right now it has been going downhill for

> >> about

> >> the last 8 weeks. Just total defiance, hitting and running away, just

> >> nasty back talk attitude--throwing things, and just cannot focus one

> >> bit.

> >> Going from item to item in a matter of 30 seconds....

> >>

> >> I think a lot has to do with this parasites. I have been reading a lot

> >> about it, since she has such issues around full moon. But I will work on

> >> the OOO, and OLE.on the feet Are they both for bacteria?

> >> Thanks for your advice.

> >> Jen

> >>

> >> Re: HELP! daughter is regressing

> >>

> >> > This child is so defiant, nuts, impulsive and destructive again, she

> >> screams all the time, gets constant yeast infections, and is up all

> >> night

> >> long days at a time.

> >>

> >>

> >> If you think it is yeast, try increasing the GSE, maybe increase biotin.

> >> There were times when my son needed 20mg biotin 3x per day as well as 4

> >> tablets GSE 3x per day.

> >>

> >> Sometimes my son's bad bacteria symptoms were the same as the yeast

> >> symptoms. If you think it might have migrated to bad bacteria, try

> >> dropping

> >> the GSE and add OLE or OoO.

> >>

> >>

> >> > HELP!--I am going out of my mind...This has all gone downhill massively

> >> > in

> >> the last 8 weeks,

> >>

> >>

> >> What has happened that is new? Any new supps or medications you added?

> >> Or

> >> removed? Did you move to a new house, new school? Anything like this?

> >>

> >> Dana

> >>

> >>

> >>

> >>

> >> ------------------------------------

> >>

> >>

[Guest guest]

Here is my favorite site on PANDAS: http://e-pandas.com/

You can certainly check for it...it's a blood draw, which are always difficult

for us, but worth it. Ask for ASO and DNASE levels. A throat culture is not

important and will not diagnose PANDAS on its own.

PANDAS is cyclical, and certainly difficult behavior can be part of it, but does

she have any unusual anxiety, OCD symptoms, tics, weird movements (flailing type

stuff), or fear of doing something " wrong " or bad.

We have found that our 's recovery is very much a roller coaster. It's not a

straight path to healing. We have regressions for seeminly unknown reasons too.

People use the " peeling back the onion " analogy, which has been true for us.

It's multiple layers of complex biochemistry. Frustrating and maddening, but

true for us.

Our son has the types of behavior you describe most often with bacteria issues.

Nasty, nasty clostridia.

Sara

> > >

> > >> No nothing new. I have been emailing about this for over a year. She

has this cyclical stuff that keeps happening and then there is the almost

honeymoon period of bliss, where she is wonderful and then all of a sudden, ti

rears it's ugly head.

[Guest guest]

Sara,

I would be interested in knowing what steps you've taken towards your son's

recovery of PANDAS. We recently saw Dr. K in Chicago and has diagnosed our son

with PANDAS. ASO and DNASE were high back in Nov. after having strep in Sept.

His behaviors are very cyclical too. He also has a tic and some OCD and anxiety

issues. Dr. K wants to do a steroid burst the next time he has a major increase

in symptoms. If he responds to the steroid burst, the next step would be IVIG.

My son also recently had an OATs test and clostridia showed positive. What do

you use for this?

Thanks,

Lana

>

> > > >> No nothing new. I have been emailing about this for over a year. She

has this cyclical stuff that keeps happening and then there is the almost

honeymoon period of bliss, where she is wonderful and then all of a sudden, ti

rears it's ugly head.

>

[Guest guest]

I'm joining this thread late, but wanted to say that mag citrate does little to

alleviate constipation for my DD. Magnesium oxide and Vitamin C (ascorbic acid)

produces a stool or two daily.

>

> she is on and off with constipation--takes 1tsp of Gillhams magnesium

> calm powder 3 times a day. And she sometimes goes 3 days without going.

> but then she will go a week and go everyday. IT is on and off.

> JEn

[Guest guest]

I use 500 mg of ascorbic acid powder from NOW, but Vitamin Shoppe (VS)and others

have powder forms as well. Or you can get veggie caps which you can open and mix

in her juice. Bulk powders are more cost effective.

The mag oxide I use is from VS in 160 mg veggie caps. I just ordered that in

powder form as well from NOW.

I give these together throughout the day until her stool reaches the right

consistency. I give an extra dose when she gets something which contains

calcium.

>

> thankyou for saying that, she takes 2 rounded tsps of the magnesium calm

> daily, and it doesn't produce every day, sometimes only every 2. But our

> issue is we cannot get her to swallow capsules. Due you have a Vit

> C(ascorbic acid) that is a chewable or liquid that can be added to juice

> etc?

[Guest guest]

the ascorbic is tart and easily mixable in a beverage or applesauce. The

magnesium oxide is best given in a syringe. It's not like the natural calm which

dissolve completely. Kind of chalky and doesn't dissolve well. It doesn't have

an offensive taste, just doesn't mix well with foods.

>

> do any of these have bitter taste? or easily mixable or dissolve..

> ----- Original Message -----