Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 , Just some thoughts. A DAN doctor wanted us to do GFCF after we had spent alot of time working on yeast. We had drasctically decreased the sugar intake. Sugar, almost any form, is a nightmare as she has alot of yeast. Well, if we had gone GFCF, which I found many of the GFCF food s high in sugar, it would have been a nightmare. We continued ith the enzymes, which are working relatively well for us. If yeast is an issue, you have to watch the GFCF sugar intake. Bridget > > Hi My 5 yr old son has been on GFCF for about 2 weeks and I noticed > that he actually regressed rather than having improvements. He stims > more, stutters more, and withdraws more at social gatherings. I have > read many good things about gfcf but that doesn't seem to be our case. > My son never has any problem with BM before (no BM problem either w/ > gfcf), and he has a PDD-NOS dx. Any idea why gfcf caused regressions > for him? I have tried the houston enzymes before (a month ago) for > about 1 week before putting him on gfcf, and observed the same > regressions back then. Does this mean my son is not a good candidate > for gfcf/enzymes? We did a bounch of tests and are waiting for the > results now. Would appreciate your input. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 , Just some thoughts. A DAN doctor wanted us to do GFCF after we had spent alot of time working on yeast. We had drasctically decreased the sugar intake. Sugar, almost any form, is a nightmare as she has alot of yeast. Well, if we had gone GFCF, which I found many of the GFCF food s high in sugar, it would have been a nightmare. We continued ith the enzymes, which are working relatively well for us. If yeast is an issue, you have to watch the GFCF sugar intake. Bridget > > Hi My 5 yr old son has been on GFCF for about 2 weeks and I noticed > that he actually regressed rather than having improvements. He stims > more, stutters more, and withdraws more at social gatherings. I have > read many good things about gfcf but that doesn't seem to be our case. > My son never has any problem with BM before (no BM problem either w/ > gfcf), and he has a PDD-NOS dx. Any idea why gfcf caused regressions > for him? I have tried the houston enzymes before (a month ago) for > about 1 week before putting him on gfcf, and observed the same > regressions back then. Does this mean my son is not a good candidate > for gfcf/enzymes? We did a bounch of tests and are waiting for the > results now. Would appreciate your input. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 It sounds to me like he is experiencing withdrawal symptoms if he had the same symptoms when you tried enzymes. Many children are " addicted " to casein and/or gluten and initially experience negative symptoms when they are removed from the diet. The w/d symptoms should pass within a few weeks or so and you would begin to see gradual improvements at that time if he is going to benefit from the diet. Most people suggest giving a good trial of 3 months or so before deciding if the diet and/or enzymes are going to be helpful. Sheresa > > Hi My 5 yr old son has been on GFCF for about 2 weeks and I noticed > that he actually regressed rather than having improvements. He stims > more, stutters more, and withdraws more at social gatherings. I have > read many good things about gfcf but that doesn't seem to be our case. > My son never has any problem with BM before (no BM problem either w/ > gfcf), and he has a PDD-NOS dx. Any idea why gfcf caused regressions > for him? I have tried the houston enzymes before (a month ago) for > about 1 week before putting him on gfcf, and observed the same > regressions back then. Does this mean my son is not a good candidate > for gfcf/enzymes? We did a bounch of tests and are waiting for the > results now. Would appreciate your input. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 It could be withdrawl. In that case you can go very slowly with your enzyme dosing. My son is wildly intolerant of rice, legume flours, potatoes, corn starch, and sugar gives him instant yeast. Basically any type of starch on the gfcf diet is worse for him than gluten itself. He is better on enzymes with gluten as his main grain. My daughter on the other hand is gfcf on enzymes, but still needs the enzymes in fairly high doses to not react to things. So even 2 kids in the same family can't eat the same foods...it's very individual for each child. How has your son done his best, historically? I'd start with enzymes and the food plan where you've seen him at his most stable, and when the enzymes are in place, then start adjusting the foods, where you think there might still be problems. Also, don't underestimate the impact of sugar and things like artificial preservatives, colorings, etc. Enzymes don't help with the chemicals in foods, and my kids are more sensitive to those effects (sugar and chemicals) than anything. Amy > > Hi My 5 yr old son has been on GFCF for about 2 weeks and I noticed > that he actually regressed rather than having improvements. He stims > more, stutters more, and withdraws more at social gatherings. I have > read many good things about gfcf but that doesn't seem to be our case. > My son never has any problem with BM before (no BM problem either w/ > gfcf), and he has a PDD-NOS dx. Any idea why gfcf caused regressions > for him? I have tried the houston enzymes before (a month ago) for > about 1 week before putting him on gfcf, and observed the same > regressions back then. Does this mean my son is not a good candidate > for gfcf/enzymes? We did a bounch of tests and are waiting for the > results now. Would appreciate your input. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 > > Hi My 5 yr old son has been on GFCF for about 2 weeks and I noticed > that he actually regressed rather than having improvements. He stims > more, stutters more, and withdraws more at social gatherings. This can be the adjustment period. It can also be that he does not tolerate other foods you are giving him. Soy, corn, and phenols are commonly not tolerated http://www.danasview.net/phenol.htm It can also be the loss of certain nutrients caused by the removal of those foods. Removing milk removes most calcium and also cysteine. Removing gluten removes most B vitamins, selenium, and manganese. So you can add those foods back with enzymes, or supplement those nutrients in other ways. >>I have tried the houston enzymes before (a month ago) for > about 1 week before putting him on gfcf, and observed the same > regressions back then. This sounds like adjustment period. The typical adjustment period is 3-4 weeks. You might want to stick it out for that long, then add supplements. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Andy Cutler has put together a great piece on selecting a diet for your child. It can be found in the autism treatment files. Anne > > > > Hi My 5 yr old son has been on GFCF for about 2 weeks and I noticed > > that he actually regressed rather than having improvements. He > stims > > more, stutters more, and withdraws more at social gatherings. I > have > > read many good things about gfcf but that doesn't seem to be our > case. > > My son never has any problem with BM before (no BM problem either > w/ > > gfcf), and he has a PDD-NOS dx. Any idea why gfcf caused > regressions > > for him? I have tried the houston enzymes before (a month ago) for > > about 1 week before putting him on gfcf, and observed the same > > regressions back then. Does this mean my son is not a good > candidate > > for gfcf/enzymes? We did a bounch of tests and are waiting for the > > results now. Would appreciate your input. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 I'm having trouble finding a file titled " autism treatment " . Can someone tell me what I'm doing wrong? (I'm sure it's me....) Patty Re: regression with GFCF? Andy Cutler has put together a great piece on selecting a diet for your child. It can be found in the autism treatment files. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hi Patty, Is www.autism treatment Is another board. Re: regression with GFCF? > > > Andy Cutler has put together a great piece on selecting a diet for > your child. It can be found in the autism treatment files. > > Anne > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Okay, thanks. I guess that explains it! Re: regression with GFCF? > > > Andy Cutler has put together a great piece on selecting a diet for > your child. It can be found in the autism treatment files. > > Anne > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 > > I'm having trouble finding a file titled " autism treatment " . Can > someone tell > me what I'm doing wrong? (I'm sure it's me....) autism treatment/ Dana Quote Link to comment Share on other sites More sharing options...
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