Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 if you're out there.. (and anyone else who wants to answer too!) How do you feel about the IGG tests in general? We chose not to do one last year b/c my daughter was a picky eater and we knew she was leaky anyway and we were using all 3 HNI enzymes (and not GFCF) This year w/annual follow-up with Dr. Cave we chose to do one. Still on enzymes (didn't stop for the test) and this year a MUCH broader diet. Of 90 items, she only showed trouble with three really but she showed BIG trouble. EGGS and CASEIN were all reactive at +5 (severe - over 1000 where ref is 800 and above) and banana was a +3 Would this indicate to you or to anyone out there that these are probably also IGE reactions for her? We've never done an IGE. In some ways it doesn't matter b/c its clear that I need to remove those whatever they are! Maybe some day we can go back to infractions with bday cakes or something but I think she has probably eaten her last omelet poor kid! The sad part is I have been feeding her eggs and yoghurt (not too much else dairy - she drinks rice milk) for a looooonnnnnng time, apparently poisoning her. Our other tests (plasma amino acids and OAT) did show signs of lingering inflammation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 I am not but we just got the result of IgG and IgE last week. My son showed large number of IgG in 1s 2s and 3s to several items while his IgE was only to a single item, egg white. So to answer you from our experience, no they are just indicator of different type of immune responses (IgE immediate or within few hours and IgG being delayed and can take as much as 4 days to manifest) and IgE and IgG responses to foods don't necessarily overlap. Best of luck with the food issues, Haleh --- Josie Lecraw <josie.nelson@...> wrote: > if you're out there.. (and anyone else who wants to answer too!) > > > > How do you feel about the IGG tests in general? > > > > We chose not to do one last year b/c my daughter was a picky eater and we > knew she was leaky anyway and we were using all 3 HNI enzymes (and not GFCF) > > > > This year w/annual follow-up with Dr. Cave we chose to do one. Still on > enzymes (didn't stop for the test) and this year a MUCH broader diet. Of 90 > items, she only showed trouble with three really but she showed BIG trouble. > EGGS and CASEIN were all reactive at +5 (severe - over 1000 where ref is 800 > and above) and banana was a +3 > > > > Would this indicate to you or to anyone out there that these are probably > also IGE reactions for her? We've never done an IGE. > > > > In some ways it doesn't matter b/c its clear that I need to remove those > whatever they are! Maybe some day we can go back to infractions with bday > cakes or something but I think she has probably eaten her last omelet poor > kid! > > > > The sad part is I have been feeding her eggs and yoghurt (not too much else > dairy - she drinks rice milk) for a looooonnnnnng time, apparently poisoning > her. Our other tests (plasma amino acids and OAT) did show signs of > lingering inflammation. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Hi Haleh: Thanks for your answer! My question was actually different though. When there are a lot of IGG reactions, as you mentioned your son's test has, that is definitely indicative of leaky gut. We don't have that anymore (at least with enzymes - we did not test without enzymes). In theory anyway, enzymes should be able to take care of the IGG reactions (recognizing of course that no theory is perfect!). I 'suspect' this is what happened to us. For example, I know my daughter reacts to gluten; and I know there are a few other things she eats so frequently that would likely show up as IGG, but enzymes seem to have 'covered' them. What I am interested in is the most severe reactions, the +5. Our test was 'interesting' in that we showed up with ZERO problems or reactions EXCEPT +5 reactions to all dairy (milk, casein, etc) and both forms of egg (ie white and yolk); and those +5 reactions were in the 1000 range where 800 begins the cut-off for " severe " (so they are very severe). This suggests to me - particularly because there were no other reactions on the test - that she might have a " real " allergy to those items. I know I have heard talk about how enzymes cannot help 'real' allergy. My daughter has barely had a single teeny bite of food in almost two years that did not contain all three Houston enzymes. I just think it is interesting that the reaction to those items is sooooooooooo strong. And she was eating those items (with enzymes) and, as I have written here before, functioning normally. So at least behaviorally these reactions manifested very very subtly. But of course they have not been at all good for her body and we have already removed them and will follow her progress. Best, Josie Re: IGG tests - I am not but we just got the result of IgG and IgE last week. My son showed large number of IgG in 1s 2s and 3s to several items while his IgE was only to a single item, egg white. So to answer you from our experience, no they are just indicator of different type of immune responses (IgE immediate or within few hours and IgG being delayed and can take as much as 4 days to manifest) and IgE and IgG responses to foods don't necessarily overlap. Best of luck with the food issues, Haleh --- Josie Lecraw <josie.nelson@...> wrote: > if you're out there.. (and anyone else who wants to answer too!) > > > > How do you feel about the IGG tests in general? > > > > We chose not to do one last year b/c my daughter was a picky eater and we > knew she was leaky anyway and we were using all 3 HNI enzymes (and not GFCF) > > > > This year w/annual follow-up with Dr. Cave we chose to do one. Still on > enzymes (didn't stop for the test) and this year a MUCH broader diet. Of 90 > items, she only showed trouble with three really but she showed BIG trouble. > EGGS and CASEIN were all reactive at +5 (severe - over 1000 where ref is 800 > and above) and banana was a +3 > > > > Would this indicate to you or to anyone out there that these are probably > also IGE reactions for her? We've never done an IGE. > > > > In some ways it doesn't matter b/c its clear that I need to remove those > whatever they are! Maybe some day we can go back to infractions with bday > cakes or something but I think she has probably eaten her last omelet poor > kid! > > > > The sad part is I have been feeding her eggs and yoghurt (not too much else > dairy - she drinks rice milk) for a looooonnnnnng time, apparently poisoning > her. Our other tests (plasma amino acids and OAT) did show signs of > lingering inflammation. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 > When there are a lot of IGG reactions, as you mentioned your son's test has, > that is definitely indicative of leaky gut. We don't have that anymore (at > least with enzymes - we did not test without enzymes). I believe IgG is the immune response to food and not necessarily addressed with enzymes as there are other immune responses beyond digestions. Strangely, my son stool test indicated that he does not digest meats properly while his IgG for meat products were all 0. > In theory anyway, enzymes should be able to take care of the IGG reactions > (recognizing of course that no theory is perfect!). I 'suspect' this is > what happened to us. For example, I know my daughter reacts to gluten; and > I know there are a few other things she eats so frequently that would likely > show up as IGG, but enzymes seem to have 'covered' them. My son has a borderline IgG to gluten (200) and non to any milk products but we really benefited greatly from GFCF diet. However, although his tests were done 4 1/2 months after we removed casien and gluten, IgA for casien was a bit high on his immunoscience lab result and his IgA for DDP were really high meaning his leaky gut is actually caused by his immune system attacking his gut and not necessarily food intolerance. > What I am interested in is the most severe reactions, the +5. Our test was > 'interesting' in that we showed up with ZERO problems or reactions EXCEPT +5 > reactions to all dairy (milk, casein, etc) and both forms of egg (ie white > and yolk); and those +5 reactions were in the 1000 range where 800 begins > the cut-off for " severe " (so they are very severe). Real allergy was explain to me by the lab nutritionist as what reads in IgE (immediate immune response) and IgG was described as food sensitivity (delayed response) and though Keyon's highest scores for IgG were for nuts and soy, they did not show up as IgE (true allergy). However she insisted that I shall remove at least for three months any thing with the score above 215. That would be totally daunting so I am going to remove everything over 300 but reduce greatly anything over 215 with enzymes hoping it helps. I can only imagine that your daughter would benefit greatly from removing 1000+ items. > This suggests to me - particularly because there were no other reactions on > the test - that she might have a " real " allergy to those items. I know I > have heard talk about how enzymes cannot help 'real' allergy. My > daughter has barely had a single teeny bite of food in almost two years that > did not contain all three Houston enzymes. I just think it is interesting > that the reaction to those items is sooooooooooo strong. It is very possible that she also has real allergy to dairy. I think it is all a matter of semantics to call them allergy or sensitivity. If a person is terribly reactive to a food, it still a problem food even if the reaction takes a couple of days to manifest. > And she was eating those items (with enzymes) and, as I have written here > before, functioning normally. So at least behaviorally these reactions > manifested very very subtly. But of course they have not been at all good > for her body and we have already removed them and will follow her progress. Even if she has had no behavioral problem, the problem food can have other immune responses like frequent cold symptoms, stuffiness or skin rash or in many other ways. The fact is that he immune system becomes inappropriately reactive to something in he body that isn't a real pathogen. At least this is my understanding. Best of luck to your daughter and you. Haleh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 It is very possible that she also has real allergy to dairy. I think it is all a matter of semantics to call them allergy or sensitivity. If a person is terribly reactive to a food, it still a problem food even if the reaction takes a couple of days to manifest. * ----Yes and no. IGG reactions can, at least in theory, diminish or disappear over time as gut healing occurs/ the immune system is strengthened, etc etc. I know you will find others on this board who have had the experience of enzymes taking care of IGG reactions. I saw when you posted your son's results and the number of things he is currently reactive to and I am assuming that, as you remove these items and introduce others he can currently tolerate, that your goal is to heal his gut (and his overall immune functioning) to a degree that some of these foods are no longer problematic for him (quite apart from whether you use enzymes to help him digest them)! * On the other hand, I have never read anything that would lead me to believe an IGE reaction could disappear, you know? Those are generally lifetime responses. * ----BTW, we did benefit slightly from the GFCF diet when first we tried it. But we benefited leaps and bounds over that when we added enzymes with gluten - and so it seemed - limited dairy like organic yoghurt (she never drank cow milk or ate much cheese or etc). Things continued to improve rapidly. Would they have been even better if I had known about the severity of her IGG reaction? I have no idea. I am simply glad we have clarity on the dairy issue. But again, we are lucky to be dealing with very subtle issues here. > And she was eating those items (with enzymes) and, as I have written here > before, functioning normally. So at least behaviorally these reactions > manifested very very subtly. But of course they have not been at all good > for her body and we have already removed them and will follow her progress. Even if she has had no behavioral problem, the problem food can have other immune responses like frequent cold symptoms, stuffiness or skin rash or in many other ways. The fact is that he immune system becomes inappropriately reactive to something in he body that isn't a real pathogen. At least this is my understanding. ------Yes Haleh. I understand very well the sort of manifestations an allergic response can take. When I say she was not responsive I mean very specifically that I was looking very very closely. She does not have seasonal allergies. She is not puffy or stuffy. She has no rashes. Her stools were perfect. She sleeps well. She had none of about a hundred different things I was carefully scrutinizing her for - the way we all scrutinize our children with the best tools we have at our disposal. On the other hand, recent tests did indicate residual immune issues and inflammation so there were factors at work. And now, several days into our new life with no eggs and no dairy, I do see subtle, VERY subtle changes. Take care, Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Josie, You and your daughter are really very lucky that in spite of high score, her reactions were minimal. Ours seems the opposite. Responses are very pronounced although the scores are not so. We tried the enzymes before the diet and good improvements but in our case, removal of food in addition to enzymes has been more successful by a long shot. I would have loved to have such great response to enzymes alone but no such luck and even with the diet and 4 types of enzymes (all three Houstons and Kirkman's carb digest), the gut is leaky and poops mushy, but he has no gut or brain inflammation. I think our kids systems are as mysterious as they are. Have you checked into NAET or other allergy elimination methods. Are allergies really for life or as lets say metals get out and the autoimmune normalizes, allergies can be eliminated as well. Also Keyon's dr used Alletess lab for the IgG for 90 food and IgE for twelve which includes caw's milk. I know the IgE part was quite inexpensive, lets say about $50. Here is their website: http://www.foodallergy.com Best, Haleh --- Josie Lecraw <josie.nelson@...> wrote: > > It is very possible that she also has real allergy to dairy. I think it is > all > a matter of semantics to call them allergy or sensitivity. If a person is > terribly reactive to a food, it still a problem food even if the reaction > takes a couple of days to manifest. > > * ----Yes and no. IGG reactions can, at least in theory, diminish or > disappear over time as gut healing occurs/ the immune system is > strengthened, etc etc. I know you will find others on this board who have > had the experience of enzymes taking care of IGG reactions. I saw when you > posted your son's results and the number of things he is currently reactive > to and I am assuming that, as you remove these items and introduce others he > can currently tolerate, that your goal is to heal his gut (and his overall > immune functioning) to a degree that some of these foods are no longer > problematic for him (quite apart from whether you use enzymes to help him > digest them)! > > * On the other hand, I have never read anything that would lead me to > believe an IGE reaction could disappear, you know? Those are generally > lifetime responses. > > * ----BTW, we did benefit slightly from the GFCF diet when first we > tried it. But we benefited leaps and bounds over that when we added enzymes > with gluten - and so it seemed - limited dairy like organic yoghurt (she > never drank cow milk or ate much cheese or etc). Things continued to > improve rapidly. Would they have been even better if I had known about the > severity of her IGG reaction? I have no idea. I am simply glad we have > clarity on the dairy issue. But again, we are lucky to be dealing with very > subtle issues here. > > > And she was eating those items (with enzymes) and, as I have written here > > before, functioning normally. So at least behaviorally these reactions > > manifested very very subtly. But of course they have not been at all good > > for her body and we have already removed them and will follow her > progress. > > Even if she has had no behavioral problem, the problem food can have other > immune responses like frequent cold symptoms, stuffiness or skin rash or in > many other ways. The fact is that he immune system becomes inappropriately > reactive to something in he body that isn't a real pathogen. At least this > is > my understanding. > > ------Yes Haleh. I understand very well the sort of manifestations an > allergic response can take. When I say she was not responsive I mean very > specifically that I was looking very very closely. She does not have > seasonal allergies. She is not puffy or stuffy. She has no rashes. Her > stools were perfect. She sleeps well. She had none of about a hundred > different things I was carefully scrutinizing her for - the way we all > scrutinize our children with the best tools we have at our disposal. On the > other hand, recent tests did indicate residual immune issues and > inflammation so there were factors at work. And now, several days into our > new life with no eggs and no dairy, I do see subtle, VERY subtle changes. > > > > Take care, > > Josie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Haleh: Yes, I used NAET before my daughter was born and actually used it for her when she was an infant once I figured out there were so few things I could eat while nursing her. I had an acupuncturist at the time who did NAET and also helped me identify things I could eat - he was terrific. We have also used Bio-set. I guess I personally don't think these methods " stick " very well when metals are an issue, but I think they can be helpful. I think these issues really need a multi-pronged attack. I know I am lucky my daughter responded to enzymes instead of just diet or enzymes alone; and I know how lucky I am that she is doing well. Sometimes I just wait for the other shoe to drop. I am full of amalgams and have relevant auto-immune in my family - but I never gave Tylenol, she only had antibiotics during my labor (and one time after that), I weaned her from breast milk to Rice Milk (added yoghurt later but that is another story), did not fully vaccinate her (though I regret the 3 she got), and etc etc. We got lucky with some of those decisions we made early on - and we STILL came so close to disaster with this little girl. For the record or for anyone new to the whole process, I will say that some of the things I think have helped us the most so far (She is 3 yrs 9 months) are: - Acupuncturist who helped me figure out how to nurse her (she was born with a bad gut) and also did NAET - Nutritionist who understood biochemistry and also did kinesiology; gave me similar advice to what DAN doc ultimately gave me once we got one later on - 8 million late nights on the internet with helpful parents and reading as much as I could get my hands on - Attending a DAN conference early on (listening to Webcasts as well) - Regular chiropractic adjustments to strengthen immune system - 's book, Houston enzymes, gut support such as probiotics and Nystatin - DAN testing advice and supplements from Dr. Cave, a doctor we really love Take care Haleh, Josie Have you checked into NAET or other allergy elimination methods. Are allergies really for life or as lets say metals get out and the autoimmune normalizes, allergies can be eliminated as well. Also Keyon's dr used Alletess lab for the IgG for 90 food and IgE for twelve which includes caw's milk. I know the IgE part was quite inexpensive, lets say about $50. Here is their website: http://www.foodallergy.com Best, Haleh --- Josie Lecraw <josie.nelson@...> wrote: > > It is very possible that she also has real allergy to dairy. I think it is > all > a matter of semantics to call them allergy or sensitivity. If a person is > terribly reactive to a food, it still a problem food even if the reaction > takes a couple of days to manifest. > > * ----Yes and no. IGG reactions can, at least in theory, diminish or > disappear over time as gut healing occurs/ the immune system is > strengthened, etc etc. I know you will find others on this board who have > had the experience of enzymes taking care of IGG reactions. I saw when you > posted your son's results and the number of things he is currently reactive > to and I am assuming that, as you remove these items and introduce others he > can currently tolerate, that your goal is to heal his gut (and his overall > immune functioning) to a degree that some of these foods are no longer > problematic for him (quite apart from whether you use enzymes to help him > digest them)! > > * On the other hand, I have never read anything that would lead me to > believe an IGE reaction could disappear, you know? Those are generally > lifetime responses. > > * ----BTW, we did benefit slightly from the GFCF diet when first we > tried it. But we benefited leaps and bounds over that when we added enzymes > with gluten - and so it seemed - limited dairy like organic yoghurt (she > never drank cow milk or ate much cheese or etc). Things continued to > improve rapidly. Would they have been even better if I had known about the > severity of her IGG reaction? I have no idea. I am simply glad we have > clarity on the dairy issue. But again, we are lucky to be dealing with very > subtle issues here. > > > And she was eating those items (with enzymes) and, as I have written here > > before, functioning normally. So at least behaviorally these reactions > > manifested very very subtly. But of course they have not been at all good > > for her body and we have already removed them and will follow her > progress. > > Even if she has had no behavioral problem, the problem food can have other > immune responses like frequent cold symptoms, stuffiness or skin rash or in > many other ways. The fact is that he immune system becomes inappropriately > reactive to something in he body that isn't a real pathogen. At least this > is > my understanding. > > ------Yes Haleh. I understand very well the sort of manifestations an > allergic response can take. When I say she was not responsive I mean very > specifically that I was looking very very closely. She does not have > seasonal allergies. She is not puffy or stuffy. She has no rashes. Her > stools were perfect. She sleeps well. She had none of about a hundred > different things I was carefully scrutinizing her for - the way we all > scrutinize our children with the best tools we have at our disposal. On the > other hand, recent tests did indicate residual immune issues and > inflammation so there were factors at work. And now, several days into our > new life with no eggs and no dairy, I do see subtle, VERY subtle changes. > > > > Take care, > > Josie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Josie, Thank you for the email. I do hope that you find a good mercury-free dentist and remove your amalgams. I am in that process right now which is quite involved. I have been mineral supplementing for a while and last week we took one out to see how I tolerate it and now I have seven more to go. I should be without them by the end of march. I am certain what you did early on has been perhaps what prevented your daughter from the disaster that some of us tackling. My son got all his vaccines but they were thimerosal free. One thing I don't know though is that my labor was induced with petosen(sp?) and got an epidural. I wonder if there was thimerosal in those shots. My health did take a turn for the worse after having Keyon. I wonder what all contributed. One, is years of reckless practices as an artist/(painting, sculpting, welding and installation), two, a genetic susceptibility for low detox, three, living in old warehouse districts (the so called arts district were pollution is the highest, four, dental amalgams and finally, a very high fish diet. So, my poor child coming from a low methylating gene pool (his father is bipolar) had no opportunity to be neurotypical. Things are going so much better now though and the improvement has been steady. The changes though incremental are piling up fast. We are getting closer to chelation if all goes well in the next rounds of testing. I just ordered a new probiotic everyone is raving about in another group. It is called VSL #3. I will keep the group posted on this one as if this work for Keyon half as well as people report, I would call it a miracle. Please do consider removing your amalgams if you can afford it. most mercury-free dentist accept dental insurance. We have to protect our own health as much as our children so we can be there for them full force and besides who could argue against living healthier. Best, Haleh --- Josie Lecraw <josie.nelson@...> wrote: > Haleh: > > > > Yes, I used NAET before my daughter was born and actually used it for her > when she was an infant once I figured out there were so few things I could > eat while nursing her. I had an acupuncturist at the time who did NAET and > also helped me identify things I could eat - he was terrific. We have also > used Bio-set. I guess I personally don't think these methods " stick " very > well when metals are an issue, but I think they can be helpful. I think > these issues really need a multi-pronged attack. > > > > I know I am lucky my daughter responded to enzymes instead of just diet or > enzymes alone; and I know how lucky I am that she is doing well. Sometimes > I just wait for the other shoe to drop. I am full of amalgams and have > relevant auto-immune in my family - but I never gave Tylenol, she only had > antibiotics during my labor (and one time after that), I weaned her from > breast milk to Rice Milk (added yoghurt later but that is another story), > did not fully vaccinate her (though I regret the 3 she got), and etc etc. > We got lucky with some of those decisions we made early on - and we STILL > came so close to disaster with this little girl. > > > > For the record or for anyone new to the whole process, I will say that some > of the things I think have helped us the most so far (She is 3 yrs 9 months) > are: > > - Acupuncturist who helped me figure out how to nurse her (she was > born with a bad gut) and also did NAET > > - Nutritionist who understood biochemistry and also did > kinesiology; gave me similar advice to what DAN doc ultimately gave me once > we got one later on > > - 8 million late nights on the internet with helpful parents and > reading as much as I could get my hands on > > - Attending a DAN conference early on (listening to Webcasts as > well) > > - Regular chiropractic adjustments to strengthen immune system > > - 's book, Houston enzymes, gut support such as probiotics and > Nystatin > > - DAN testing advice and supplements from Dr. Cave, a doctor we > really love > > > > Take care Haleh, > > Josie > > > > > > > Have you checked into NAET or other allergy elimination methods. Are > allergies > really for life or as lets say metals get out and the autoimmune normalizes, > allergies can be eliminated as well. > Also Keyon's dr used Alletess lab for the IgG for 90 food and IgE for twelve > which includes caw's milk. I know the IgE part was quite inexpensive, lets > say > about $50. > Here is their website: > http://www.foodallergy.com > Best, > Haleh > > --- Josie Lecraw <josie.nelson@...> wrote: > > > > > It is very possible that she also has real allergy to dairy. I think it is > > all > > a matter of semantics to call them allergy or sensitivity. If a person is > > terribly reactive to a food, it still a problem food even if the reaction > > takes a couple of days to manifest. > > > > * ----Yes and no. IGG reactions can, at least in theory, diminish or > > disappear over time as gut healing occurs/ the immune system is > > strengthened, etc etc. I know you will find others on this board who have > > had the experience of enzymes taking care of IGG reactions. I saw when > you > > posted your son's results and the number of things he is currently > reactive > > to and I am assuming that, as you remove these items and introduce others > he > > can currently tolerate, that your goal is to heal his gut (and his overall > > immune functioning) to a degree that some of these foods are no longer > > problematic for him (quite apart from whether you use enzymes to help him > > digest them)! > > > > * On the other hand, I have never read anything that would lead me to > > believe an IGE reaction could disappear, you know? Those are generally > > lifetime responses. > > > > * ----BTW, we did benefit slightly from the GFCF diet when first we > > tried it. But we benefited leaps and bounds over that when we added > enzymes > > with gluten - and so it seemed - limited dairy like organic yoghurt (she > > never drank cow milk or ate much cheese or etc). Things continued to > > improve rapidly. Would they have been even better if I had known about > the > > severity of her IGG reaction? I have no idea. I am simply glad we have > > clarity on the dairy issue. But again, we are lucky to be dealing with > very > > subtle issues here. > > > > > And she was eating those items (with enzymes) and, as I have written > here > > > before, functioning normally. So at least behaviorally these reactions > > > manifested very very subtly. But of course they have not been at all > good > > > for her body and we have already removed them and will follow her > > progress. > > > > Even if she has had no behavioral problem, the problem food can have other > > immune responses like frequent cold symptoms, stuffiness or skin rash or > in > > many other ways. The fact is that he immune system becomes inappropriately > > reactive to something in he body that isn't a real pathogen. At least this > > is > > my understanding. > > > > ------Yes Haleh. I understand very well the sort of manifestations an > > allergic response can take. When I say she was not responsive I mean very > > specifically that I was looking very very closely. She does not have > > seasonal allergies. She is not puffy or stuffy. She has no rashes. Her > > stools were perfect. She sleeps well. She had none of about a hundred > > different things I was carefully scrutinizing her for - the way we all > > scrutinize our children with the best tools we have at our disposal. On > the > > other hand, recent tests did indicate residual immune issues and > > inflammation so there were factors at work. And now, several days into > our > > new life with no eggs and no dairy, I do see subtle, VERY subtle changes. > > > > > > > > Take care, > > > > Josie > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Josie, Thank you for the email. I do hope that you find a good mercury-free dentist and remove your amalgams. I am in that process right now which is quite involved. ----Good luck with your amalgam removal Haleh. That is terrific you have begun this stage in the healing. Personally I worry about what happens 6 months out more than I worry about the immediate aftermath of the exposures (assuming a good dentist and the right protocols in place of course). This is a part of Andy Cutler's book I found quite interesting where he talks about how the organs begin to dump metals after the " day to day " exposures are minimized and people who stop chelating too soon become sick. This was in fact the experience of a friend of mine with no known health problems (and 3 healthy girls she had nursed long term) who had her amalgams removed by a mainstream dentist who didn't know what he was doing (and she didn't really either). Six months later she came up with all sorts of problems later diagnosed as Epstein Barr. I know you will keep vigilant as you continue the process and perhaps chelate yourself. I envy you that process actually. I would love to be able to chelate myself before I chelated my daughter so as to have a better understanding of the burden it will place body/her little self. -------As for me, yes, I do have a good fluoride free mercury free dentist, and a plan in place but I have written many times on this site about how I am currently nursing my second baby, an apparently healthy 9 month old boy. I obviously cannot have them removed until I stop nursing and after much research and consultation I believe he is much better off with my milk than without it. I was pregnant with him before I knew just HOW bad the amalgams are. I supplemented throughout the pregnancy and for the nursing (and have written about that here as well). I even was fortunate enough to have my mineral levels checked to make sure I was taking enough selenium. My anti-oxidant status is relatively good in spite of the fillings and, again, I was lucky to have the support I did during the pregnancy - and the freedom to have a home birth to minimize any interventions. Both Dr. Cave and a nutritionist have helped in this process and everyone is satisfied that his development is normal so far. Actually, some here might be interested in my dentist's website. He has a lot of useful information http://www.evergreen8.com/ One thing I don't know though is that my labor was induced with petosen(sp?) and got an epidural. I wonder if there was thimerosal in those shots. ----Pitocin and epidural do not contain thimerosol though they do contain other preservatives that aren't terrific. There are definitely those who believe pitocin contributes certain risks of autism. It has to do with the unnatural oxytocin. There was recently a discussion about this on autism treatment and you can pull it up easily if you missed it. There is also some research (I don't have it handy - Google if interested or if you havent seen it you may already have I kow you follow these things) that pitocin and epidural contribute to thyroid shifts in some mothers. Of course antibiotics in labor don't help the baby either if you happened to need those; and the baby's spine can be subluxated during the birth which doesn't help either. And leaky gut in the mom. There are so many different factors that contribute. Most of us had no opportunity to even know what our risk factors were. That is the real crime I suppose; and that is why we all spend so much time trying to share what knowledge we accumulate alog the way - in hopes that it will help someone else. I am glad your son has begun to improve. I know you are early in this journey and also that he is still young and that is very fortunate and bodes well for his future. Josie My health did take a turn for the worse after having Keyon. I wonder what all contributed. One, is years of reckless practices as an artist/(painting, sculpting, welding and installation), two, a genetic susceptibility for low detox, three, living in old warehouse districts (the so called arts district were pollution is the highest, four, dental amalgams and finally, a very high fish diet. So, my poor child coming from a low methylating gene pool (his father is bipolar) had no opportunity to be neurotypical. Things are going so much better now though and the improvement has been steady. The changes though incremental are piling up fast. We are getting closer to chelation if all goes well in the next rounds of testing. I just ordered a new probiotic everyone is raving about in another group. It is called VSL #3. I will keep the group posted on this one as if this work for Keyon half as well as people report, I would call it a miracle. Please do consider removing your amalgams if you can afford it. most mercury-free dentist accept dental insurance. We have to protect our own health as much as our children so we can be there for them full force and besides who could argue against living healthier. Best, Haleh --- Josie Lecraw <josie.nelson@...> wrote: > Haleh: > > > > Yes, I used NAET before my daughter was born and actually used it for her > when she was an infant once I figured out there were so few things I could > eat while nursing her. I had an acupuncturist at the time who did NAET and > also helped me identify things I could eat - he was terrific. We have also > used Bio-set. I guess I personally don't think these methods " stick " very > well when metals are an issue, but I think they can be helpful. I think > these issues really need a multi-pronged attack. > > > > I know I am lucky my daughter responded to enzymes instead of just diet or > enzymes alone; and I know how lucky I am that she is doing well. Sometimes > I just wait for the other shoe to drop. I am full of amalgams and have > relevant auto-immune in my family - but I never gave Tylenol, she only had > antibiotics during my labor (and one time after that), I weaned her from > breast milk to Rice Milk (added yoghurt later but that is another story), > did not fully vaccinate her (though I regret the 3 she got), and etc etc. > We got lucky with some of those decisions we made early on - and we STILL > came so close to disaster with this little girl. > > > > For the record or for anyone new to the whole process, I will say that some > of the things I think have helped us the most so far (She is 3 yrs 9 months) > are: > > - Acupuncturist who helped me figure out how to nurse her (she was > born with a bad gut) and also did NAET > > - Nutritionist who understood biochemistry and also did > kinesiology; gave me similar advice to what DAN doc ultimately gave me once > we got one later on > > - 8 million late nights on the internet with helpful parents and > reading as much as I could get my hands on > > - Attending a DAN conference early on (listening to Webcasts as > well) > > - Regular chiropractic adjustments to strengthen immune system > > - 's book, Houston enzymes, gut support such as probiotics and > Nystatin > > - DAN testing advice and supplements from Dr. Cave, a doctor we > really love > > > > Take care Haleh, > > Josie > > > > > > > Have you checked into NAET or other allergy elimination methods. Are > allergies > really for life or as lets say metals get out and the autoimmune normalizes, > allergies can be eliminated as well. > Also Keyon's dr used Alletess lab for the IgG for 90 food and IgE for twelve > which includes caw's milk. I know the IgE part was quite inexpensive, lets > say > about $50. > Here is their website: > http://www.foodallergy.com > Best, > Haleh > > --- Josie Lecraw <josie.nelson@...> wrote: > > > > > It is very possible that she also has real allergy to dairy. I think it is > > all > > a matter of semantics to call them allergy or sensitivity. If a person is > > terribly reactive to a food, it still a problem food even if the reaction > > takes a couple of days to manifest. > > > > * ----Yes and no. IGG reactions can, at least in theory, diminish or > > disappear over time as gut healing occurs/ the immune system is > > strengthened, etc etc. I know you will find others on this board who have > > had the experience of enzymes taking care of IGG reactions. I saw when > you > > posted your son's results and the number of things he is currently > reactive > > to and I am assuming that, as you remove these items and introduce others > he > > can currently tolerate, that your goal is to heal his gut (and his overall > > immune functioning) to a degree that some of these foods are no longer > > problematic for him (quite apart from whether you use enzymes to help him > > digest them)! > > > > * On the other hand, I have never read anything that would lead me to > > believe an IGE reaction could disappear, you know? Those are generally > > lifetime responses. > > > > * ----BTW, we did benefit slightly from the GFCF diet when first we > > tried it. But we benefited leaps and bounds over that when we added > enzymes > > with gluten - and so it seemed - limited dairy like organic yoghurt (she > > never drank cow milk or ate much cheese or etc). Things continued to > > improve rapidly. Would they have been even better if I had known about > the > > severity of her IGG reaction? I have no idea. I am simply glad we have > > clarity on the dairy issue. But again, we are lucky to be dealing with > very > > subtle issues here. > > > > > And she was eating those items (with enzymes) and, as I have written > here > > > before, functioning normally. So at least behaviorally these reactions > > > manifested very very subtly. But of course they have not been at all > good > > > for her body and we have already removed them and will follow her > > progress. > > > > Even if she has had no behavioral problem, the problem food can have other > > immune responses like frequent cold symptoms, stuffiness or skin rash or > in > > many other ways. The fact is that he immune system becomes inappropriately > > reactive to something in he body that isn't a real pathogen. At least this > > is > > my understanding. > > > > ------Yes Haleh. I understand very well the sort of manifestations an > > allergic response can take. When I say she was not responsive I mean very > > specifically that I was looking very very closely. She does not have > > seasonal allergies. She is not puffy or stuffy. She has no rashes. Her > > stools were perfect. She sleeps well. She had none of about a hundred > > different things I was carefully scrutinizing her for - the way we all > > scrutinize our children with the best tools we have at our disposal. On > the > > other hand, recent tests did indicate residual immune issues and > > inflammation so there were factors at work. And now, several days into > our > > new life with no eggs and no dairy, I do see subtle, VERY subtle changes. > > > > > > > > Take care, > > > > Josie > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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