Re: anything to help low muscle tone besides OT??

[Guest guest]

Have has been to the developmental ped or neuro?

Low tone can be a sign of other issues that have traits that mimic autism.

Low tone can be helped by using carnitor, a prescription amino.

-GA

anything to help low muscle tone besides OT??

> We are working on 's (6 yrs) low muscle tone and his OT told us

> yesterday it is neurological (brain sends messages to the muscles) and

> he will have this for life. I'm getting a list of physical exercises to

> do at home, but is there something else that can help him?

> Thanks so much,

> Christy

>

>

>

>

>

>

[Guest guest]

Christy,

My non asd child had hypotonia and PT was the best intervention to help

this. HBOT is known to help with muscle tone, but isn't cheap! I have read

some parents using creatine as a supplement. Research it though. When you

purchase it... it is in the body building section.... go figure!

Jackie---

> We are working on 's (6 yrs) low muscle tone and his OT told us

> yesterday it is neurological (brain sends messages to the muscles) and

> he will have this for life. I'm getting a list of physical exercises to

> do at home, but is there something else that can help him?

> Thanks so much,

> Christy

[Guest guest]

Creatine only helps if your child has mito or a metabolic disease that

disrupts production, flow or excretion.. Creatine for folks who do not have

mito just helps muscles retain water, thereby making them look bigger.

-GA

Re: anything to help low muscle tone besides OT??

> Christy,

> My non asd child had hypotonia and PT was the best intervention to help

> this. HBOT is known to help with muscle tone, but isn't cheap! I have

> read

> some parents using creatine as a supplement. Research it though. When

> you

> purchase it... it is in the body building section.... go figure!

>

> Jackie---

>

>> We are working on 's (6 yrs) low muscle tone and his OT told us

>> yesterday it is neurological (brain sends messages to the muscles) and

>> he will have this for life. I'm getting a list of physical exercises to

>> do at home, but is there something else that can help him?

>> Thanks so much,

>> Christy

>

>

>

>

>

>

[Guest guest]

>

> We are working on 's (6 yrs) low muscle tone and his OT told us

> yesterday it is neurological (brain sends messages to the muscles) and

> he will have this for life. I'm getting a list of physical exercises

to

> do at home, but is there something else that can help him?

acetyl-l-carnitine and vitamin B1 helped my son.

[Guest guest]

>

> We are working on 's (6 yrs) low muscle tone and his OT told us

> yesterday it is neurological (brain sends messages to the muscles) and

> he will have this for life. I'm getting a list of physical exercises to

> do at home, but is there something else that can help him?

My #1 had severely low muscle tone, but now he is almost stronger than

I am. I use a general amino acid supplement for him, and added

carnitine, plus mB12 helps also. Adding EFAs plus mito cocktail also

helped. He is still skinny, but no longer weak.

Dana

[Guest guest]

If there is any chance your child has a mito disorder, stay away from

HBOT. It can be extremely dangerous for kids with mito.

B.

>

> Christy,

> My non asd child had hypotonia and PT was the best intervention to help

> this. HBOT is known to help with muscle tone, but isn't cheap! I

have read

> some parents using creatine as a supplement. Research it though.

When you

> purchase it... it is in the body building section.... go figure!

>

> Jackie---

>

> > We are working on 's (6 yrs) low muscle tone and his OT told us

> > yesterday it is neurological (brain sends messages to the muscles) and

> > he will have this for life. I'm getting a list of physical

exercises to

> > do at home, but is there something else that can help him?

> > Thanks so much,

> > Christy

>

[Guest guest]

- How can you tell if your child has a " mito disorder " ? What

are the signs you should look for?

Thanks in advance.

Martha

> >

> > Christy,

> > My non asd child had hypotonia and PT was the best intervention

to help

> > this. HBOT is known to help with muscle tone, but isn't cheap!

I

> have read

> > some parents using creatine as a supplement. Research it

though.

> When you

> > purchase it... it is in the body building section.... go figure!

> >

> > Jackie---

> >

> > > We are working on 's (6 yrs) low muscle tone and his OT

told us

> > > yesterday it is neurological (brain sends messages to the

muscles) and

> > > he will have this for life. I'm getting a list of physical

> exercises to

> > > do at home, but is there something else that can help him?

> > > Thanks so much,

> > > Christy

> >

>

[Guest guest]

>

> - How can you tell if your child has a " mito disorder " ? What

> are the signs you should look for?

I am not , but I determined that my son had mito issues because

he did not tolerate any EFAs, they caused him to become mean and

aggressive. And giving milk with enzymes worked well except it caused

excessive ear wax. Both of those problems were eliminated when I

addressed his mito issues. I wrote the details here

http://www.danasview.net/mar05.htm

Dana

[Guest guest]

>>>I'm getting a list of physical exercises to do at home, but is there

something else that can help him?> Thanks so much,

You got some great replies already, but wanted to kick in that

sometimes this can be helped by more protein in the diet along with

protease enzymes to digest the protein, in general. Low muscle tone can

be a symptom of protein deficiency.

.

[Guest guest]

My son is 3-3/4 and has mild hypotonia. In addition to OT, we do

hippotherapy, which we feel has been very beneficial. It is

sometimes referred to as therapeutic horseback riding, but that is

actually something different. It is basically therapy using the

horse as a tool. He rides without a saddle in many positions:

forward, backward sidways left and right, even on his belly. There

is a lot of stopping and starting and changing directions, which I

think is when the muscles receive the most input. It may be covered

by insurance, depending on who does it. Our is done by a PT and

billed as such. It is $70/session here in NJ.

Also, " The Out-of-Sync Child Has Fun " has lots of fun stuff to do at

home. Look under vestibular and proprioceptive senses sections.

And thanks for asking this question, as I have found the other

answers to be quite informative. I have had a much harder time

getting answers on hypotonia than on other issues. Most children

who are hypotonic are severe (floppy baby, etc.), and that is what

is targeted by most sites. Doesn't really apply to us, or to you

guys...

You might also want to most your question on the

group, as mild hypotonia is a soft sign of apraxia and there

should be lots of people with info. there.

>

> We are working on 's (6 yrs) low muscle tone and his OT told us

> yesterday it is neurological (brain sends messages to the muscles)

and

> he will have this for life. I'm getting a list of physical

exercises to

> do at home, but is there something else that can help him?

> Thanks so much,

> Christy

>

[Guest guest]

I've been giving my daughter creatine and it seems to be helping. I

give a pretty low dose. Her handwriting is better and she seems more

coordinated. I'm wondering how much I can give her. Rae

-- In , " bigcheech91 "

<bigcheech91@...> wrote:

>

> My son is 3-3/4 and has mild hypotonia. In addition to OT, we do

> hippotherapy, which we feel has been very beneficial. It is

> sometimes referred to as therapeutic horseback riding, but that is

> actually something different. It is basically therapy using the

> horse as a tool. He rides without a saddle in many positions:

> forward, backward sidways left and right, even on his belly. There

> is a lot of stopping and starting and changing directions, which I

> think is when the muscles receive the most input. It may be

covered

> by insurance, depending on who does it. Our is done by a PT and

> billed as such. It is $70/session here in NJ.

>

> Also, " The Out-of-Sync Child Has Fun " has lots of fun stuff to do

at

> home. Look under vestibular and proprioceptive senses sections.

>

> And thanks for asking this question, as I have found the other

> answers to be quite informative. I have had a much harder time

> getting answers on hypotonia than on other issues. Most children

> who are hypotonic are severe (floppy baby, etc.), and that is what

> is targeted by most sites. Doesn't really apply to us, or to you

> guys...

>

> You might also want to most your question on the

> group, as mild hypotonia is a soft sign of apraxia and there

> should be lots of people with info. there.

>

>

>

>

> >

> > We are working on 's (6 yrs) low muscle tone and his OT told

us

> > yesterday it is neurological (brain sends messages to the

muscles)

> and

> > he will have this for life. I'm getting a list of physical

> exercises to

> > do at home, but is there something else that can help him?

> > Thanks so much,

> > Christy

> >

>