OT What do you do for burn out when there is no help and so many issues.

[Guest guest]

I am in a real mess....there are so many issues going on with my

family...

For some reason we are all dealing with low muscle tone....has

increased over the last year...not sure why.... T

There are 8 of us here...DH is often gone or out of the picture....so

that usually means 7 of us are dealing with the issues (me and 6

kids...7,8,12,21,24 and 25 the 3 older ones are ADD and ADHD with the

two girls having agoraphobic issues also...my oldest son does have

some of those but not as badly as we do) ....there are so many things

going on and it seems that there is no hope or help or way out...the

hope of a vacation....went out the window with a flood that wasn't

covered by insurance did considerable damage to the house and we are

having to fix it to get ready for the winter...people are slow paying

DH so that makes him irritable...and our needs keep on

increasing....we are all GF?CF but hubby....the kids and I seem to be

celiacs and all have a zillion allergies.... Besides

complaining....I am just wondering what you all do when you are up

againist the wall and don't know what to do...the kids are making

headway...but the yeast is terrible and there is no insurance to

help....and I don't know what to do...any ideas would be helpful and

appreciated.

thanks

Ronni

[Guest guest]

Ronni, I wanted to give you a cyber hug. It can be really really

hard when you are dealing with food allergies, and behaviour and

multiple kids. The only tips I have are when it gets to be too much,

stop, take a breath, and think about what is the most important thing

to do right now. Don't worry about anything else except for what to

do at this moment. After that, focus on the next priority. Then, at

the end of the day, I think about how far we have come since you

started your journey. This is all commonsense, I know, but instead

of looking at how far you have to climb up the mountain, just focus

on your next step.

Best,

Leigh anne

>

> I am in a real mess....there are so many issues going on with my

> family...

>

> For some reason we are all dealing with low muscle tone....has

> increased over the last year...not sure why.... T

> There are 8 of us here...DH is often gone or out of the

picture....so

> that usually means 7 of us are dealing with the issues (me and 6

> kids...7,8,12,21,24 and 25 the 3 older ones are ADD and ADHD with

the

> two girls having agoraphobic issues also...my oldest son does have

> some of those but not as badly as we do) ....there are so many

things

> going on and it seems that there is no hope or help or way

out...the

> hope of a vacation....went out the window with a flood that wasn't

> covered by insurance did considerable damage to the house and we

are

> having to fix it to get ready for the winter...people are slow

paying

> DH so that makes him irritable...and our needs keep on

> increasing....we are all GF?CF but hubby....the kids and I seem to

be

> celiacs and all have a zillion allergies.... Besides

> complaining....I am just wondering what you all do when you are up

> againist the wall and don't know what to do...the kids are making

> headway...but the yeast is terrible and there is no insurance to

> help....and I don't know what to do...any ideas would be helpful

and

> appreciated.

>

> thanks

> Ronni

>

[Guest guest]

Hi Ronni

It sounds like you are having the same kind of day that I had

yesterday. I'm so sorry. You think things are going along fine for

a while then it seems that everything falls apart, you can't figure

out what is going on, and there is such a HUGE drain on your budget

(and emotions) that you just don't know how to keep going. Trying

to hold the family in tact can be such a challenge at times when we

are dealing with the issues that we must deal with.

I have 4 children and each of them has their own unique set of issues

and needs that some days I get so overwhelmed with it all I just have

to break down. Never any time for myself, rarely any time for my

husband, NEVER a decent night of sleep to just feel human again.

Constantly in the kitchen fixing some kind of special food that your

kids may or may not eat. Social life is non-existent at this

point. Sometimes it is impossible to even just have a good cry

because you don't want to worry your children with constant tears

that they don't really understand. Of course you already know all

of this so I will not go on and on. Sometimes, it can be helpful

to try to go back thru my daily notes and make sure that everything I

am doing for the children is really benefitting. I have from time

to time dropped certain supplements that were (of course) costing

money and I didn't notice any difference one way or another.

I'm really sorry that I don't have any more practical ideas that will

help you, but just wanted to let you know that I and I'm sure many

others definitely can relate and feel your pain. Hang in there!

Sheresa

>

> I am in a real mess....there are so many issues going on with my

> family...

>

> For some reason we are all dealing with low muscle tone....has

> increased over the last year...not sure why.... T

> There are 8 of us here...DH is often gone or out of the

picture....so

> that usually means 7 of us are dealing with the issues (me and 6

> kids...7,8,12,21,24 and 25 the 3 older ones are ADD and ADHD with

the

> two girls having agoraphobic issues also...my oldest son does have

> some of those but not as badly as we do) ....there are so many

things

> going on and it seems that there is no hope or help or way

out...the

> hope of a vacation....went out the window with a flood that wasn't

> covered by insurance did considerable damage to the house and we

are

> having to fix it to get ready for the winter...people are slow

paying

> DH so that makes him irritable...and our needs keep on

> increasing....we are all GF?CF but hubby....the kids and I seem to

be

> celiacs and all have a zillion allergies.... Besides

> complaining....I am just wondering what you all do when you are up

> againist the wall and don't know what to do...the kids are making

> headway...but the yeast is terrible and there is no insurance to

> help....and I don't know what to do...any ideas would be helpful

and

> appreciated.

>

> thanks

> Ronni

>

[Guest guest]

Have you applied for respite care through your state agency? I just applied and

got approved for 120 hours a year of paid respite (to be used as a babysitter so

I can go and do some things for myself). IL only pays 6.40/hour, but it is well

worth every penny I have to contribute to make up for it to get some time. I

felt guilty for 5 months if I left my child, and after a breakdown, I now know I

must take care of myself to take care of my chidren. I applied through the

Association for Individual Development.

Kersten

sbarron6fun <rsbarron@...> wrote:

Hi Ronni

It sounds like you are having the same kind of day that I had

yesterday. I'm so sorry. You think things are going along fine for

a while then it seems that everything falls apart, you can't figure

out what is going on, and there is such a HUGE drain on your budget

(and emotions) that you just don't know how to keep going. Trying

to hold the family in tact can be such a challenge at times when we

are dealing with the issues that we must deal with.

I have 4 children and each of them has their own unique set of issues

and needs that some days I get so overwhelmed with it all I just have

to break down. Never any time for myself, rarely any time for my

husband, NEVER a decent night of sleep to just feel human again.

Constantly in the kitchen fixing some kind of special food that your

kids may or may not eat. Social life is non-existent at this

point. Sometimes it is impossible to even just have a good cry

because you don't want to worry your children with constant tears

that they don't really understand. Of course you already know all

of this so I will not go on and on. Sometimes, it can be helpful

to try to go back thru my daily notes and make sure that everything I

am doing for the children is really benefitting. I have from time

to time dropped certain supplements that were (of course) costing

money and I didn't notice any difference one way or another.

I'm really sorry that I don't have any more practical ideas that will

help you, but just wanted to let you know that I and I'm sure many

others definitely can relate and feel your pain. Hang in there!

Sheresa

>

> I am in a real mess....there are so many issues going on with my

> family...

>

> For some reason we are all dealing with low muscle tone....has

> increased over the last year...not sure why.... T

> There are 8 of us here...DH is often gone or out of the

picture....so

> that usually means 7 of us are dealing with the issues (me and 6

> kids...7,8,12,21,24 and 25 the 3 older ones are ADD and ADHD with

the

> two girls having agoraphobic issues also...my oldest son does have

> some of those but not as badly as we do) ....there are so many

things

> going on and it seems that there is no hope or help or way

out...the

> hope of a vacation....went out the window with a flood that wasn't

> covered by insurance did considerable damage to the house and we

are

> having to fix it to get ready for the winter...people are slow

paying

> DH so that makes him irritable...and our needs keep on

> increasing....we are all GF?CF but hubby....the kids and I seem to

be

> celiacs and all have a zillion allergies.... Besides

> complaining....I am just wondering what you all do when you are up

> againist the wall and don't know what to do...the kids are making

> headway...but the yeast is terrible and there is no insurance to

> help....and I don't know what to do...any ideas would be helpful

and

> appreciated.

>

> thanks

> Ronni

>

[Guest guest]

--- Thanks so much Leigh Anne....I appreciate your hugg :-)....it has

been a long journey....and there are so many good things...it is just

that it gets sooooooooooo intense sometimes....when the yeast goes

into hyper-drive and I have no idea why or the viruses start coming

and hubby gets sick and angry, or the bills keep coming and it gets

overwhelming....I am trying to focus....the reason that it gets outta

hand is that at my house there are so many things that have to be

done...that I just want to hang it up and crawl in a hole. Sorry,

another hard day here...we tried some corn torillias and they were ok

with enzymes, so tried had some organic popcorn...OMG!!!! no idea why

the difference but it was terrible.

>

> Ronni, I wanted to give you a cyber hug. It can be really really

> hard when you are dealing with food allergies, and behaviour and

> multiple kids. The only tips I have are when it gets to be too

much,

> stop, take a breath, and think about what is the most important

thing

> to do right now. Don't worry about anything else except for what

to

> do at this moment. After that, focus on the next priority. Then,

at

> the end of the day, I think about how far we have come since you

> started your journey. This is all commonsense, I know, but instead

> of looking at how far you have to climb up the mountain, just focus

> on your next step.

> Best,

> Leigh anne

>

>

> >

> > I am in a real mess....there are so many issues going on with my

> > family...

> >

> > For some reason we are all dealing with low muscle tone....has

> > increased over the last year...not sure why.... T

> > There are 8 of us here...DH is often gone or out of the

> picture....so

> > that usually means 7 of us are dealing with the issues (me and 6

> > kids...7,8,12,21,24 and 25 the 3 older ones are ADD and ADHD with

> the

> > two girls having agoraphobic issues also...my oldest son does

have

> > some of those but not as badly as we do) ....there are so many

> things

> > going on and it seems that there is no hope or help or way

> out...the

> > hope of a vacation....went out the window with a flood that

wasn't

> > covered by insurance did considerable damage to the house and we

> are

> > having to fix it to get ready for the winter...people are slow

> paying

> > DH so that makes him irritable...and our needs keep on

> > increasing....we are all GF?CF but hubby....the kids and I seem

to

> be

> > celiacs and all have a zillion allergies.... Besides

> > complaining....I am just wondering what you all do when you are

up

> > againist the wall and don't know what to do...the kids are making

> > headway...but the yeast is terrible and there is no insurance to

> > help....and I don't know what to do...any ideas would be helpful

> and

> > appreciated.

> >

> > thanks

> > Ronni

> >

>

[Guest guest]

Hi Sheresa,

Thanks for posting....it sounds like my house....lol....all stressed

up and nowhere to scream!!!! lol....I guess the hardest part for me

right now is that hubby isn't really a part of this....he pays the

bills but that's about it....so the load is mainly it feels like on

my shoulders...and they just aren't big enough to carry...I keep

praying for strength and it doesn't seem as if I am getting any

help...but I guess I must be...just not seeing it....thanks for

posting, I really appreciate it.

Ronni

> Hi Ronni

> It sounds like you are having the same kind of day that I had

> yesterday. I'm so sorry. You think things are going along fine

for

> a while then it seems that everything falls apart, you can't figure

> out what is going on, and there is such a HUGE drain on your budget

> (and emotions) that you just don't know how to keep going. Trying

> to hold the family in tact can be such a challenge at times when we

> are dealing with the issues that we must deal with.

>

> I have 4 children and each of them has their own unique set of

issues

> and needs that some days I get so overwhelmed with it all I just

have

> to break down. Never any time for myself, rarely any time for my

> husband, NEVER a decent night of sleep to just feel human again.

> Constantly in the kitchen fixing some kind of special food that

your

> kids may or may not eat. Social life is non-existent at this

> point. Sometimes it is impossible to even just have a good cry

> because you don't want to worry your children with constant tears

> that they don't really understand. Of course you already know all

> of this so I will not go on and on. Sometimes, it can be helpful

> to try to go back thru my daily notes and make sure that everything

I

> am doing for the children is really benefitting. I have from time

> to time dropped certain supplements that were (of course) costing

> money and I didn't notice any difference one way or another.

>

> I'm really sorry that I don't have any more practical ideas that

will

> help you, but just wanted to let you know that I and I'm sure many

> others definitely can relate and feel your pain. Hang in there!

>

> Sheresa

>

>

>

>

> >

> > I am in a real mess....there are so many issues going on with my

> > family...

> >

> > For some reason we are all dealing with low muscle tone....has

> > increased over the last year...not sure why.... T

> > There are 8 of us here...DH is often gone or out of the

> picture....so

> > that usually means 7 of us are dealing with the issues (me and 6

> > kids...7,8,12,21,24 and 25 the 3 older ones are ADD and ADHD with

> the

> > two girls having agoraphobic issues also...my oldest son does

have

> > some of those but not as badly as we do) ....there are so many

> things

> > going on and it seems that there is no hope or help or way

> out...the

> > hope of a vacation....went out the window with a flood that

wasn't

> > covered by insurance did considerable damage to the house and we

> are

> > having to fix it to get ready for the winter...people are slow

> paying

> > DH so that makes him irritable...and our needs keep on

> > increasing....we are all GF?CF but hubby....the kids and I seem

to

> be

> > celiacs and all have a zillion allergies.... Besides

> > complaining....I am just wondering what you all do when you are

up

> > againist the wall and don't know what to do...the kids are making

> > headway...but the yeast is terrible and there is no insurance to

> > help....and I don't know what to do...any ideas would be helpful

> and

> > appreciated.

> >

> > thanks

> > Ronni

> >

>

[Guest guest]

Thanks Kersten, I did apply once for help...but then the agency I

tried to get help from was closed due to lack of funds....I guess

what I am looking more for is a vitamin or something I can swallow

and be super mom...I have read so many horrors about respite care

that it frightens me...

Thanks for posting....I do appreciate it

Ronni

> Have you applied for respite care through your state agency? I

just applied and got approved for 120 hours a year of paid respite

(to be used as a babysitter so I can go and do some things for

myself). IL only pays 6.40/hour, but it is well worth every penny I

have to contribute to make up for it to get some time. I felt guilty

for 5 months if I left my child, and after a breakdown, I now know I

must take care of myself to take care of my chidren. I applied

through the Association for Individual Development.

>

> Kersten

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Ronni,

For respite, I usually 'hired' the help. We had a neighbor read a

couple of times per week. One year I only wanted someone who would

ice skate with my child; another to swim; another to roller skate;

play games; shoot baskets, work out in a rec center, do piano etc.

Whatever your children would consider or you would want them to do.

Also some community businesses, let 'disabled' people do activities

free or at a reduced rate - you just need to ask/negotiate. After

some initial disasters with general respite workers, I found that

getting very specific was a big benefit for all of us. The agency

would post the requirements or I would hunt up a college age student

and send them to the agency to go through the screening. Relatives

can also be 'certified' through the agencies here. The pay is better

in our area so that probably helps too.

>

> I have read so many horrors about respite care

> that it frightens me...

> Thanks for posting....I do appreciate it

> Ronni

>

>

> > Have you applied for respite care through your state agency? I

> just applied and got approved for 120 hours a year of paid respite

> (to be used as a babysitter so I can go and do some things for

> myself). IL only pays 6.40/hour, but it is well worth every penny

I

> have to contribute to make up for it to get some time. I felt

guilty

> for 5 months if I left my child, and after a breakdown, I now know

I

> must take care of myself to take care of my chidren. I applied

> through the Association for Individual Development.

> >

> > Kersten

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

>Well I think that in general most of the husbands (not to offend

anyone) don't really understand it all as much as we do since they

haven't done all the research/observation. If we're lucky they

support what we are doing. My husband is very supportive, but would

not have any idea how to mix up a supplement cocktail for one of the

children. And then when things aren't going as good as they should he

does give some constructive criticism. He may just be guessing, but

sometimes he's right on the money and the suggestion is really

helpful!

Anyway, hang in there - tomorrow is a brand new day! Yesterday we got

away and took the kids to the beach. The only supplements I packed

were the HNI enzymes and OLE. The children did great and had so much

fun and it did wonders, wonders, wonders for my mental status just to

get away and not have to mix a bunch of supplements. Perhaps a

similar inexpensive day trip would be helpful for your family.

Sheresa

> Hi Sheresa,

> Thanks for posting....it sounds like my house....lol....all stressed

> up and nowhere to scream!!!! lol....I guess the hardest part for me

> right now is that hubby isn't really a part of this....he pays the

> bills but that's about it....so the load is mainly it feels like on

> my shoulders...and they just aren't big enough to carry...I keep

> praying for strength and it doesn't seem as if I am getting any

> help...but I guess I must be...just not seeing it....thanks for

> posting, I really appreciate it.

>

> Ronni

>

> >