Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Children with apraxia MUST have speech therapy. Apraxia is a motor planning disorder -- usually associated with speech -- called Developmental Apraxia of Speech (DAS) or Childhood Apraxia of Speech (CAS). There are several articles at the Apraxia-kids website that you can access and take to an IEP regarding the necessity of 1:1 speech therapy, and the length, and the frequency necessary for children with apraxia to recover. Imagine not being able to walk and being told that just being in a classroom full of kids who walk will help your child learn to walk. It's ridiculous. The child with apraxia needs frequent 1:1 ST in order to gain improvement. Practice, practice, practice. And then they forget how to say it the next day. And they practice, practice, practice. a > > Dear , > It is so nice to have all kinds of professionals here and a speech pathologist > just completes this group. > My son 3.6 has qualified and is on waiting list for EIBT and mean while we are > trying to place him in an autism classroom and get the school to provide > speech therapy. However, The school district insist that they use discrete > trials and their program is language based and they do 2.5 hours of one on one > and 2.5 hours group activity and he says getting a speech therapist is not > beneficial because it interrupts Keyon's program and confuse him more. > My son is just newly naming objects and rapidly adding to his repertoire of > words (started about 3-4 weeks ago). However, he is really does have > difficulty with regulating his oral motor and I don't think ABA would be so > helpful for that. > Any suggestion as weather I should stick my ground and insist on speech > therapy or do they really have a legitimate point? > Thank you > Haleh > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 After a couple of years of reading on apraxia and on autism - and knowing that there are many with strong opinions on this - I will confess that if I had only a certain amount of $ to spend and it was intended to treat a child's apraxia, I would not spend that money on speech therapy. I would spend it on biomedical testing and supplements. I would look into the child's digestion, the child's fatty acid transport and the child's amino acid levels at barest minimum. In fact that is sort of what I did. My child had no expressive intelligible speech at 31 months (though her receptive was always not only on target but precocious) and a gross motor delay and it all looked and smelled like " apraxia " . By 34 months she had age appropriate speech. By 36 months we were getting compliments on her articulation. I have sunk a lot of money into biomed and not one dime into OT or SLP. I am not saying that this is right for everyone. Many many kids would benefit from both (and why not use all resources available). But I really do believe that biomed gets to the " root " ; and I have a few internet buddies from an apraxia board that were able to drop their SLPs as soon as they got serious with biomed. Take care, Josie Re: Apraxia--Haleh Children with apraxia MUST have speech therapy. Apraxia is a motor planning disorder -- usually associated with speech -- called Developmental Apraxia of Speech (DAS) or Childhood Apraxia of Speech (CAS). There are several articles at the Apraxia-kids website that you can access and take to an IEP regarding the necessity of 1:1 speech therapy, and the length, and the frequency necessary for children with apraxia to recover. Imagine not being able to walk and being told that just being in a classroom full of kids who walk will help your child learn to walk. It's ridiculous. The child with apraxia needs frequent 1:1 ST in order to gain improvement. Practice, practice, practice. And then they forget how to say it the next day. And they practice, practice, practice. a --- In , haleh niazmand _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Hi, the SLP again - I can't agree w/ you more, in my very first post I said that there was a huge biomed component. Straight speech tx alone can be like pouring water over a stone - nothing is absorbed. I am praying for the biomed solution (and leaving no stone unturned) but what works for others (the CLO, folic acid, bethanechol, MB12) have not flipped that magic switch for us. We are looking at gut healing via meds (for severe bowel disease), yeast (preserve free flucanazole) and probiotics (currently on probio gold and three lac - looking to add more probiotics after this round of die off and Houston Enzymes). If you can think of anything that I may be missing - please let me know.... :-) Jenn Josie Lecraw <josie.nelson@...> wrote: After a couple of years of reading on apraxia and on autism - and knowing that there are many with strong opinions on this - I will confess that if I had only a certain amount of $ to spend and it was intended to treat a child's apraxia, I would not spend that money on speech therapy. I would spend it on biomedical testing and supplements. I would look into the child's digestion, the child's fatty acid transport and the child's amino acid levels at barest minimum. In fact that is sort of what I did. My child had no expressive intelligible speech at 31 months (though her receptive was always not only on target but precocious) and a gross motor delay and it all looked and smelled like " apraxia " . By 34 months she had age appropriate speech. By 36 months we were getting compliments on her articulation. I have sunk a lot of money into biomed and not one dime into OT or SLP. I am not saying that this is right for everyone. Many many kids would benefit from both (and why not use all resources available). But I really do believe that biomed gets to the " root " ; and I have a few internet buddies from an apraxia board that were able to drop their SLPs as soon as they got serious with biomed. Take care, Josie Re: Apraxia--Haleh Children with apraxia MUST have speech therapy. Apraxia is a motor planning disorder -- usually associated with speech -- called Developmental Apraxia of Speech (DAS) or Childhood Apraxia of Speech (CAS). There are several articles at the Apraxia-kids website that you can access and take to an IEP regarding the necessity of 1:1 speech therapy, and the length, and the frequency necessary for children with apraxia to recover. Imagine not being able to walk and being told that just being in a classroom full of kids who walk will help your child learn to walk. It's ridiculous. The child with apraxia needs frequent 1:1 ST in order to gain improvement. Practice, practice, practice. And then they forget how to say it the next day. And they practice, practice, practice. a --- In , haleh niazmand _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Hey the SLP!! More SLPs should be like you!! Another one just yesterday discouraged a friend of mine from adding CLO for her daughter b/c she wasn't " really " delayed by the books (but is articulating less well than her twin). This child has other soft signs that everyone here would recognize. Anyway, to answer your question I would say: 1) The enzymes will likely help more than you had ever imagined 2) Have a plasma amino acid test run 3) Have an Essential fatty acid test run 4) Check the detox pathways (have an OAT test run) - not just B12 markers but glutathione levels and COQ10 and etc I think many of these kids have fatty acid metabolism problems and adding the fish oil can give short bursts but can actually ADD to oxidative stress over the long haul if not balanced properly (I have a load of material on this but not time to post right now). I think as Kathy E has said on numerous occasions the diet (GFCF with or without enzymes) can help too. I know we saw improvement when we tackled this bit. But the biggest piece (though I think they were all critical together) around here was the custom amino acid supplement Dr. Cave added after the plasma amino acid test. I remember sitting down with the Metametrix Intepretive Guide and getting a big " WOW " and beginning to understand just how MANY of them might impact my daughter's gross motor and overall strength and articulation. Made me think that EVERY child with apraxic tendencies should have the plasma amino acid test run, have their fatty acid metabolism checked and do a trial of GFCF (and/or enzymes - we can do gluten with enzymes but not dairy). My child used to conk out at the playground and not be able to manage some of the climbing things and ran more slowly than the others. This is just not true any longer. Take care, Josie Re: Apraxia--Haleh Children with apraxia MUST have speech therapy. Apraxia is a motor planning disorder -- usually associated with speech -- called Developmental Apraxia of Speech (DAS) or Childhood Apraxia of Speech (CAS). There are several articles at the Apraxia-kids website that you can access and take to an IEP regarding the necessity of 1:1 speech therapy, and the length, and the frequency necessary for children with apraxia to recover. Imagine not being able to walk and being told that just being in a classroom full of kids who walk will help your child learn to walk. It's ridiculous. The child with apraxia needs frequent 1:1 ST in order to gain improvement. Practice, practice, practice. And then they forget how to say it the next day. And they practice, practice, practice. a --- In , haleh niazmand _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Thank you Josie, I have put all my money on biomed with great result and now I am trying to get the School Districts money and health insurance company's money on Speech therapy. They don't like to pay for anything if they are not forced to. Haleh --- Josie Lecraw <josie.nelson@...> wrote: > After a couple of years of reading on apraxia and on autism - and knowing > that there are many with strong opinions on this - I will confess that if I > had only a certain amount of $ to spend and it was intended to treat a > child's apraxia, I would not spend that money on speech therapy. I would > spend it on biomedical testing and supplements. I would look into the > child's digestion, the child's fatty acid transport and the child's amino > acid levels at barest minimum. In fact that is sort of what I did. My > child had no expressive intelligible speech at 31 months (though her > receptive was always not only on target but precocious) and a gross motor > delay and it all looked and smelled like " apraxia " . By 34 months she had > age appropriate speech. By 36 months we were getting compliments on her > articulation. I have sunk a lot of money into biomed and not one dime into > OT or SLP. I am not saying that this is right for everyone. Many many kids > would benefit from both (and why not use all resources available). But I > really do believe that biomed gets to the " root " ; and I have a few internet > buddies from an apraxia board that were able to drop their SLPs as soon as > they got serious with biomed. > > > > Take care, > > Josie > > > > Re: Apraxia--Haleh > > > > Children with apraxia MUST have speech therapy. Apraxia is a motor > planning disorder -- usually associated with speech -- called > Developmental Apraxia of Speech (DAS) or Childhood Apraxia of Speech > (CAS). > There are several articles at the Apraxia-kids website that you can > access and take to an IEP regarding the necessity of 1:1 speech > therapy, and the length, and the frequency necessary for children > with apraxia to recover. Imagine not being able to walk and being > told that just being in a classroom full of kids who walk will help > your child learn to walk. It's ridiculous. The child with apraxia > needs frequent 1:1 ST in order to gain improvement. Practice, > practice, practice. And then they forget how to say it the next day. > And they practice, practice, practice. > a > --- In , haleh niazmand > > > > _____ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Amino Acids deficiency especially Taurine and Tryptophan can cause difficulty in speech development. Tryptophan because the child with huge social anxiety won't even try to talk or practice publicly. This was our experience. Best, Haleh --- Meade <jenniferdmeade@...> wrote: > Hi, the SLP again - I can't agree w/ you more, in my very first > post I said that there was a huge biomed component. Straight speech tx > alone can be like pouring water over a stone - nothing is absorbed. I am > praying for the biomed solution (and leaving no stone unturned) but what > works for others (the CLO, folic acid, bethanechol, MB12) have not flipped > that magic switch for us. We are looking at gut healing via meds (for severe > bowel disease), yeast (preserve free flucanazole) and probiotics (currently > on probio gold and three lac - looking to add more probiotics after this > round of die off and Houston Enzymes). If you can think of anything that I > may be missing - please let me know.... :-) Jenn > > Josie Lecraw <josie.nelson@...> wrote: After a couple of > years of reading on apraxia and on autism - and knowing > that there are many with strong opinions on this - I will confess that if I > had only a certain amount of $ to spend and it was intended to treat a > child's apraxia, I would not spend that money on speech therapy. I would > spend it on biomedical testing and supplements. I would look into the > child's digestion, the child's fatty acid transport and the child's amino > acid levels at barest minimum. In fact that is sort of what I did. My > child had no expressive intelligible speech at 31 months (though her > receptive was always not only on target but precocious) and a gross motor > delay and it all looked and smelled like " apraxia " . By 34 months she had > age appropriate speech. By 36 months we were getting compliments on her > articulation. I have sunk a lot of money into biomed and not one dime into > OT or SLP. I am not saying that this is right for everyone. Many many kids > would benefit from both (and why not use all resources available). But I > really do believe that biomed gets to the " root " ; and I have a few internet > buddies from an apraxia board that were able to drop their SLPs as soon as > they got serious with biomed. > > > > Take care, > > Josie > > > > Re: Apraxia--Haleh > > > > Children with apraxia MUST have speech therapy. Apraxia is a motor > planning disorder -- usually associated with speech -- called > Developmental Apraxia of Speech (DAS) or Childhood Apraxia of Speech > (CAS). > There are several articles at the Apraxia-kids website that you can > access and take to an IEP regarding the necessity of 1:1 speech > therapy, and the length, and the frequency necessary for children > with apraxia to recover. Imagine not being able to walk and being > told that just being in a classroom full of kids who walk will help > your child learn to walk. It's ridiculous. The child with apraxia > needs frequent 1:1 ST in order to gain improvement. Practice, > practice, practice. And then they forget how to say it the next day. > And they practice, practice, practice. > a > --- In , haleh niazmand > > > > _____ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Jenn, you didn't mention ProEFA...it was like magic for my grandson. CLO doesn't necessarily replace it because of the ratios. Peace, Kathy E. On Mar 24, 2006, at 2:33 PM, Meade wrote: > Hi, the SLP again - I can't agree w/ you more, in my very > first post I said that there was a huge biomed component. Straight > speech tx alone can be like pouring water over a stone - nothing is > absorbed. I am praying for the biomed solution (and leaving no > stone unturned) but what works for others (the CLO, folic acid, > bethanechol, MB12) have not flipped that magic switch for us. We > are looking at gut healing via meds (for severe bowel disease), > yeast (preserve free flucanazole) and probiotics (currently on > probio gold and three lac - looking to add more probiotics after > this round of die off and Houston Enzymes). If you can think of > anything that I may be missing - please let me know.... :-) Jenn > > Josie Lecraw <josie.nelson@...> wrote: After a > couple of years of reading on apraxia and on autism - and knowing > that there are many with strong opinions on this - I will confess > that if I > had only a certain amount of $ to spend and it was intended to treat a > child's apraxia, I would not spend that money on speech therapy. I > would > spend it on biomedical testing and supplements. I would look into the > child's digestion, the child's fatty acid transport and the child's > amino > acid levels at barest minimum. In fact that is sort of what I > did. My > child had no expressive intelligible speech at 31 months (though her > receptive was always not only on target but precocious) and a gross > motor > delay and it all looked and smelled like " apraxia " . By 34 months > she had > age appropriate speech. By 36 months we were getting compliments > on her > articulation. I have sunk a lot of money into biomed and not one > dime into > OT or SLP. I am not saying that this is right for everyone. Many > many kids > would benefit from both (and why not use all resources available). > But I > really do believe that biomed gets to the " root " ; and I have a few > internet > buddies from an apraxia board that were able to drop their SLPs as > soon as > they got serious with biomed. > > > > Take care, > > Josie > > > > Re: Apraxia--Haleh > > > > Children with apraxia MUST have speech therapy. Apraxia is a motor > planning disorder -- usually associated with speech -- called > Developmental Apraxia of Speech (DAS) or Childhood Apraxia of Speech > (CAS). > There are several articles at the Apraxia-kids website that you can > access and take to an IEP regarding the necessity of 1:1 speech > therapy, and the length, and the frequency necessary for children > with apraxia to recover. Imagine not being able to walk and being > told that just being in a classroom full of kids who walk will help > your child learn to walk. It's ridiculous. The child with apraxia > needs frequent 1:1 ST in order to gain improvement. Practice, > practice, practice. And then they forget how to say it the next day. > And they practice, practice, practice. > a > --- In , haleh niazmand > > > > _____ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 > > After a couple of years of reading on apraxia and on autism - and knowing > that there are many with strong opinions on this - I will confess that if I > had only a certain amount of $ to spend and it was intended to treat a > child's apraxia, I would not spend that money on speech therapy. I would > spend it on biomedical testing and supplements. My son's improvements came 99% with biomedical. Once I addressed something that was impeding his development, he would then make progress on his own, like a typical kid, until he reached the end of the reason for that biomedical issue. He would basically stop making progress, despite educational/therapy interventions, until I addressed the next biomedical issue. So bottom line, for my son therapies were almost pointless, until the biomedical was addressed. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 I second that opinion with Benny. Every major breakthrough, starting with the ProEFA and the speech, came from a biomedical intervention. Peace, Kathy E. On Mar 25, 2006, at 1:22 PM, danasview wrote: > > > > > After a couple of years of reading on apraxia and on autism - and > knowing > > that there are many with strong opinions on this - I will confess > that if I > > had only a certain amount of $ to spend and it was intended to > treat a > > child's apraxia, I would not spend that money on speech therapy. I > would > > spend it on biomedical testing and supplements. > > > My son's improvements came 99% with biomedical. Once I addressed > something that was impeding his development, he would then make > progress on his own, like a typical kid, until he reached the end of > the reason for that biomedical issue. He would basically stop making > progress, despite educational/therapy interventions, until I addressed > the next biomedical issue. > > So bottom line, for my son therapies were almost pointless, until the > biomedical was addressed. > > Dana > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 --- Kathleen Eickwort <Kathleen_E@...> wrote: > I second that opinion with Benny. Every major breakthrough, starting > with the ProEFA and the speech, came from a biomedical intervention. > > Peace, > Kathy E. > On Mar 25, 2006, at 1:22 PM, danasview wrote: > > > > > > > > > After a couple of years of reading on apraxia and on autism - and > > knowing > > > that there are many with strong opinions on this - I will confess > > that if I > > > had only a certain amount of $ to spend and it was intended to > > treat a > > > child's apraxia, I would not spend that money on speech therapy. I > > would > > > spend it on biomedical testing and supplements. > > > > > > My son's improvements came 99% with biomedical. Once I addressed > > something that was impeding his development, he would then make > > progress on his own, like a typical kid, until he reached the end of > > the reason for that biomedical issue. He would basically stop making > > progress, despite educational/therapy interventions, until I addressed > > the next biomedical issue. > > > > So bottom line, for my son therapies were almost pointless, until the > > biomedical was addressed. > > > > Dana > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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