Re: Starting enzymes -- have stool test done first

[Guest guest]

You can order any test you want form www.directlabs.com

<http://www.directlabs.com/> - The Comprehensive Digestive Stool Analysis

(CDSA) that most DANS use is listed there.

Honestly for my money if I were going to do any tests before enzymes I might

also want an IGG food allergy panel. It's a blood test but again you can

order it w/o docs orders form www.directlabs.com

<http://www.directlabs.com/> and they send you the kit from DDI (the lab

that most DANs use anyway) and also direct you to the nearest lab to have

the blood drawn. You just need to make sure it is a lab that draws blood

from kids regularly.

Other things I would (and/or did) do without a doctor would be:

- If he tends apraxic I might try Nordic naturals ProEFA in

addition to a small amount of CLO

- Add a probiotic to the mix www.enzymestuff.com

<http://www.enzymestuff.com/> - probiotics page for ideas/brands

- I would (sorry) not bother with Kirkmans enzymes but use Houston

instead www.houstonni.com <http://www.houstonni.com/> (AFP Peptizyde or

Peptizyde for gluten and Casein, No Fenol for phenols and Zyme Prime for

overall digestion. I would also not start with ZP is he is so constipated

b/c that can tighten stools while it is helping foods to be better absorbed

- When you see the DAN in August make sure you get plasma amino

acid test done and essential fatty acid test done (If he tends aprxic I

guarantee you that his aminos and EFAs are all out of whack) and an OAT test

as well (BTW most of these can also be ordered through www.directlabs.com

<http://www.directlabs.com/> for those who want/need this stuff and don't

have DANs). Check out the Metametrix Lab website for explanation of much of

this stuff (Their ION panel is a good deal and comes w/good interpretive

guide)

- If the enzymes help I would still consider removing gluten and

casein one by one to see if there is a difference. The enzymes (Houston not

Kirkman) allow many people to leave GFCF but not everyone can. I made a

long term mistake allowing my daughter to continue eating dairy on the

enzymes b/c we had no (detectable to me) behavioral issues from it (and

stools were fine). IGG blood test later showed SEVERE immune

response/inflammation in response to all forms of dairy.

Josie

Starting enzymes -- have stool test done first

I'm new here -- posted a ? on finding a Dr last week. Son has apraxic

language and SIGNIFICANT constipation since 2 months old. Not

diagnosed as autistic due to not finding a Dr to trust and he is more

apraxic than anything. Second question -- (thanks in advance!) -- I

have ordered Kirkman enzymes and will be starting next week. Should I

order a stool test first so I have the result (without enzymes) before

seeing the DAN Dr in August? He's on Miralax, magnesium and CLO --

otherwise there wouldn't be any stool to test . So which labs work

best for individuals without Drs. Our pediatrician is worthless.

[Guest guest]

I can't imagine getting a blood sample from my son -- it would be

tramatic for him and the phlebotomist! How do they do it? He had a

renal ultrasound and I had to almost sit on him!!!

I was thinking a stool test would be a good start, but I would like

to know what he is truly allergic to. He's not typical - looks very

healthy -- in the 90th to 100th percentile in height, 75th in

weight... so I have doubts on allergies. The constipation had been

his main issue, but now he's showing cognitive delays and apraxia. (I

visited the apraxia group and it sounds like constipation and apraxia

is highly correlated) BUT, he has had cod liver oil, flax oil,

antioxidants, and probiotics and a 50% organic diet since he was VERY

young, so it's possible that it has helped keep the allergies muted.

I give him Nordic Naturals Children's DHA

https://www.nordicnaturals.com/direct/prodsummary.asp?ID=1 -- it easy

he loves them. He gets a single or double dose. That combined with

flax oil should = ProEFA -- or am I missing something?

I eliminated dairy entirely at age 2 1/2 for 6 weeks and saw no

difference in him. The gluten is a little more difficult since he's

only eats in my home 1/2 the time -- hence the reason why I'm trying

enzymes. The other reason is it just makes more sense to me. He

also had his shots at 6 -7 weeks -- which is right when the

constipation started -- I have major mom guilt on that one --

wondering if he's mercury poisoned! I sounds like some of you have

used CLA for mild chelation. My concern is the constipation -- with

Miralax, magnesium and CLO he has a BM every other day. Is chelation

safe for a child that tends to be constipated?

It's frustrating the lack of Drs or ND that know anything about this -

- I am only 5 miles from Bastyr University!

Thank you for your ideas and input -- I'm off to order tests

tomorrow. Not sure about the blood test though -- anyone have any

hints? (He's 45 lbs of STRENGTH)

>

> You can order any test you want form www.directlabs.com

> <http://www.directlabs.com/> - The Comprehensive Digestive Stool

Analysis

> (CDSA) that most DANS use is listed there.

>

>

>

> Honestly for my money if I were going to do any tests before

enzymes I might

> also want an IGG food allergy panel. It's a blood test but again

you can

> order it w/o docs orders form www.directlabs.com

> <http://www.directlabs.com/> and they send you the kit from DDI

(the lab

> that most DANs use anyway) and also direct you to the nearest lab

to have

> the blood drawn. You just need to make sure it is a lab that draws

blood

> from kids regularly.

>

>

>

> Other things I would (and/or did) do without a doctor would be:

>

> - If he tends apraxic I might try Nordic naturals ProEFA in

> addition to a small amount of CLO

>

> - Add a probiotic to the mix www.enzymestuff.com

> <http://www.enzymestuff.com/> - probiotics page for ideas/brands

>

> - I would (sorry) not bother with Kirkmans enzymes but use

Houston

> instead www.houstonni.com <http://www.houstonni.com/> (AFP

Peptizyde or

> Peptizyde for gluten and Casein, No Fenol for phenols and Zyme

Prime for

> overall digestion. I would also not start with ZP is he is so

constipated

> b/c that can tighten stools while it is helping foods to be better

absorbed

>

> - When you see the DAN in August make sure you get plasma

amino

> acid test done and essential fatty acid test done (If he tends

aprxic I

> guarantee you that his aminos and EFAs are all out of whack) and an

OAT test

> as well (BTW most of these can also be ordered through

www.directlabs.com

> <http://www.directlabs.com/> for those who want/need this stuff

and don't

> have DANs). Check out the Metametrix Lab website for explanation of

much of

> this stuff (Their ION panel is a good deal and comes w/good

interpretive

> guide)

>

> - If the enzymes help I would still consider removing

gluten and

> casein one by one to see if there is a difference. The enzymes

(Houston not

> Kirkman) allow many people to leave GFCF but not everyone can. I

made a

> long term mistake allowing my daughter to continue eating dairy on

the

> enzymes b/c we had no (detectable to me) behavioral issues from it

(and

> stools were fine). IGG blood test later showed SEVERE immune

> response/inflammation in response to all forms of dairy.

>

>

>

> Josie

>

>

>

> Starting enzymes -- have stool test done first

>

>

>

> I'm new here -- posted a ? on finding a Dr last week. Son has

apraxic

> language and SIGNIFICANT constipation since 2 months old. Not

> diagnosed as autistic due to not finding a Dr to trust and he is

more

> apraxic than anything. Second question -- (thanks in advance!) -- I

> have ordered Kirkman enzymes and will be starting next week. Should

I

> order a stool test first so I have the result (without enzymes)

before

> seeing the DAN Dr in August? He's on Miralax, magnesium and CLO --

> otherwise there wouldn't be any stool to test . So which labs

work

> best for individuals without Drs. Our pediatrician is worthless.

>

>

>

>

>

>

[Guest guest]

Just wanted to say something regarding the blood work. The DAN practioner we

went to recently wanted to take the bloods on my 4 yr old daughter. She is non

verbal, can be hard to handle at times and we had just went through a 2 hr ov

to boot so tantrums galore. They used what they called a " papoose " . I am a tall

girl so I was pretty sure I could hold her down and keep her soothed as much as

possible. This wonderful papoose thingie, wraps the child in what I called the

burrito position. Like how they taught us to wrap them as newborns. She did not

even move, did not care what they were doing as of much and of course the deep

wrap pressure wound up being soothing to her as well. I was simply AMAZED!

Perhaps there is somthing like that avail for the work up?

HTH

Patti

Starting enzymes -- have stool test done first

>

>

>

> I'm new here -- posted a ? on finding a Dr last week. Son has

apraxic

> language and SIGNIFICANT constipation since 2 months old. Not

> diagnosed as autistic due to not finding a Dr to trust and he is

more

> apraxic than anything. Second question -- (thanks in advance!) -- I

> have ordered Kirkman enzymes and will be starting next week. Should

I

> order a stool test first so I have the result (without enzymes)

before

> seeing the DAN Dr in August? He's on Miralax, magnesium and CLO --

> otherwise there wouldn't be any stool to test . So which labs

work

> best for individuals without Drs. Our pediatrician is worthless.

>

>

>

>

>

>

[Guest guest]

See my comments interspersed!!

Starting enzymes -- have stool test done first

>

>

>

> I'm new here -- posted a ? on finding a Dr last week. Son has

apraxic

> language and SIGNIFICANT constipation since 2 months old. Not

> diagnosed as autistic due to not finding a Dr to trust and he is

more

> apraxic than anything. Second question -- (thanks in advance!) -- I

> have ordered Kirkman enzymes and will be starting next week. Should

I

> order a stool test first so I have the result (without enzymes)

before

> seeing the DAN Dr in August? He's on Miralax, magnesium and CLO --

> otherwise there wouldn't be any stool to test . So which labs

work

> best for individuals without Drs. Our pediatrician is worthless.

>

>

>

>

>

>

[Guest guest]

I can't thank you enough for your replies! I will keep you posted!

You've given me a lot to go on. I just ordered the Enterolab panel --

that'll affect the bills this month! My insurance sucks and my ex-

husband hasn't paid support in over a year -- and I make too much to

qualify for anything. Oh well, I have played the passive game too

long.

> >

> > You can order any test you want form www.directlabs.com

> > <http://www.directla <http://www.directlabs.com/> bs.com/> - The

> Comprehensive Digestive Stool

> Analysis

> > (CDSA) that most DANS use is listed there.

> >

> >

> >

> > Honestly for my money if I were going to do any tests before

> enzymes I might

> > also want an IGG food allergy panel. It's a blood test but again

> you can

> > order it w/o docs orders form www.directlabs.com

> > <http://www.directla <http://www.directlabs.com/> bs.com/> and

they send

> you the kit from DDI

> (the lab

> > that most DANs use anyway) and also direct you to the nearest lab

> to have

> > the blood drawn. You just need to make sure it is a lab that

draws

> blood

> > from kids regularly.

> >

> >

> >

> > Other things I would (and/or did) do without a doctor would be:

> >

> > - If he tends apraxic I might try Nordic naturals ProEFA in

> > addition to a small amount of CLO

> >

> > - Add a probiotic to the mix www.enzymestuff.com

> > <http://www.enzymest <http://www.enzymestuff.com/> uff.com/> -

probiotics

> page for ideas/brands

> >

> > - I would (sorry) not bother with Kirkmans enzymes but use

> Houston

> > instead www.houstonni.com <http://www.houstonn

<http://www.houstonni.com/>

> i.com/> (AFP

> Peptizyde or

> > Peptizyde for gluten and Casein, No Fenol for phenols and Zyme

> Prime for

> > overall digestion. I would also not start with ZP is he is so

> constipated

> > b/c that can tighten stools while it is helping foods to be

better

> absorbed

> >

> > - When you see the DAN in August make sure you get plasma

> amino

> > acid test done and essential fatty acid test done (If he tends

> aprxic I

> > guarantee you that his aminos and EFAs are all out of whack) and

an

> OAT test

> > as well (BTW most of these can also be ordered through

> www.directlabs.com

> > <http://www.directla <http://www.directlabs.com/> bs.com/> for

those who

> want/need this stuff

> and don't

> > have DANs). Check out the Metametrix Lab website for explanation

of

> much of

> > this stuff (Their ION panel is a good deal and comes w/good

> interpretive

> > guide)

> >

> > - If the enzymes help I would still consider removing

> gluten and

> > casein one by one to see if there is a difference. The enzymes

> (Houston not

> > Kirkman) allow many people to leave GFCF but not everyone can. I

> made a

> > long term mistake allowing my daughter to continue eating dairy

on

> the

> > enzymes b/c we had no (detectable to me) behavioral issues from

it

> (and

> > stools were fine). IGG blood test later showed SEVERE immune

> > response/inflammation in response to all forms of dairy.

> >

> >

> >

> > Josie

> >

> >

> >

> > Starting enzymes -- have stool test done first

> >

> >

> >

> > I'm new here -- posted a ? on finding a Dr last week. Son has

> apraxic

> > language and SIGNIFICANT constipation since 2 months old. Not

> > diagnosed as autistic due to not finding a Dr to trust and he is

> more

> > apraxic than anything. Second question -- (thanks in advance!) --

I

> > have ordered Kirkman enzymes and will be starting next week.

Should

> I

> > order a stool test first so I have the result (without enzymes)

> before

> > seeing the DAN Dr in August? He's on Miralax, magnesium and CLO --

> > otherwise there wouldn't be any stool to test . So which labs

> work

> > best for individuals without Drs. Our pediatrician is worthless.

> >

> >

> >

> >

> >

> >

[Guest guest]

That sounds great. I've seen the contraption they use for pediatric

Xrays -- looks like a torture device! But the deep pressure might

work for him -- he responds well to the weighted vest -- well about

half the time, that is

> >

> > You can order any test you want form www.directlabs.com

> > <http://www.directlabs.com/> - The Comprehensive Digestive

Stool

> Analysis

> > (CDSA) that most DANS use is listed there.

> >

> >

> >

> > Honestly for my money if I were going to do any tests before

> enzymes I might

> > also want an IGG food allergy panel. It's a blood test but

again

> you can

> > order it w/o docs orders form www.directlabs.com

> > <http://www.directlabs.com/> and they send you the kit from DDI

> (the lab

> > that most DANs use anyway) and also direct you to the nearest

lab

> to have

> > the blood drawn. You just need to make sure it is a lab that

draws

> blood

> > from kids regularly.

> >

> >

> >

> > Other things I would (and/or did) do without a doctor would be:

> >

> > - If he tends apraxic I might try Nordic naturals ProEFA in

> > addition to a small amount of CLO

> >

> > - Add a probiotic to the mix www.enzymestuff.com

> > <http://www.enzymestuff.com/> - probiotics page for ideas/brands

> >

> > - I would (sorry) not bother with Kirkmans enzymes but use

> Houston

> > instead www.houstonni.com <http://www.houstonni.com/> (AFP

> Peptizyde or

> > Peptizyde for gluten and Casein, No Fenol for phenols and Zyme

> Prime for

> > overall digestion. I would also not start with ZP is he is so

> constipated

> > b/c that can tighten stools while it is helping foods to be

better

> absorbed

> >

> > - When you see the DAN in August make sure you get plasma

> amino

> > acid test done and essential fatty acid test done (If he tends

> aprxic I

> > guarantee you that his aminos and EFAs are all out of whack)

and an

> OAT test

> > as well (BTW most of these can also be ordered through

> www.directlabs.com

> > <http://www.directlabs.com/> for those who want/need this stuff

> and don't

> > have DANs). Check out the Metametrix Lab website for

explanation of

> much of

> > this stuff (Their ION panel is a good deal and comes w/good

> interpretive

> > guide)

> >

> > - If the enzymes help I would still consider removing

> gluten and

> > casein one by one to see if there is a difference. The enzymes

> (Houston not

> > Kirkman) allow many people to leave GFCF but not everyone can.

I

> made a

> > long term mistake allowing my daughter to continue eating dairy

on

> the

> > enzymes b/c we had no (detectable to me) behavioral issues from

it

> (and

> > stools were fine). IGG blood test later showed SEVERE immune

> > response/inflammation in response to all forms of dairy.

> >

> >

> >

> > Josie

> >

> >

> >

> > Starting enzymes -- have stool test done

first

> >

> >

> >

> > I'm new here -- posted a ? on finding a Dr last week. Son has

> apraxic

> > language and SIGNIFICANT constipation since 2 months old. Not

> > diagnosed as autistic due to not finding a Dr to trust and he

is

> more

> > apraxic than anything. Second question -- (thanks in advance!) -

- I

> > have ordered Kirkman enzymes and will be starting next week.

Should

> I

> > order a stool test first so I have the result (without enzymes)

> before

> > seeing the DAN Dr in August? He's on Miralax, magnesium and

CLO --

> > otherwise there wouldn't be any stool to test . So which labs

> work

> > best for individuals without Drs. Our pediatrician is worthless.

> >

> >

> >

> >

> >

> >

[Guest guest]

I sent a reply (with lots of thanks) but it didn't post. THANK YOU

so much, I started the ball rolling with Enterolab.

> >

> > You can order any test you want form www.directlabs.com

> > <http://www.directla <http://www.directlabs.com/> bs.com/> - The

> Comprehensive Digestive Stool

> Analysis

> > (CDSA) that most DANS use is listed there.

> >

> >

> >

> > Honestly for my money if I were going to do any tests before

> enzymes I might

> > also want an IGG food allergy panel. It's a blood test but again

> you can

> > order it w/o docs orders form www.directlabs.com

> > <http://www.directla <http://www.directlabs.com/> bs.com/> and

they send

> you the kit from DDI

> (the lab

> > that most DANs use anyway) and also direct you to the nearest lab

> to have

> > the blood drawn. You just need to make sure it is a lab that

draws

> blood

> > from kids regularly.

> >

> >

> >

> > Other things I would (and/or did) do without a doctor would be:

> >

> > - If he tends apraxic I might try Nordic naturals ProEFA in

> > addition to a small amount of CLO

> >

> > - Add a probiotic to the mix www.enzymestuff.com

> > <http://www.enzymest <http://www.enzymestuff.com/> uff.com/> -

probiotics

> page for ideas/brands

> >

> > - I would (sorry) not bother with Kirkmans enzymes but use

> Houston

> > instead www.houstonni.com <http://www.houstonn

<http://www.houstonni.com/>

> i.com/> (AFP

> Peptizyde or

> > Peptizyde for gluten and Casein, No Fenol for phenols and Zyme

> Prime for

> > overall digestion. I would also not start with ZP is he is so

> constipated

> > b/c that can tighten stools while it is helping foods to be

better

> absorbed

> >

> > - When you see the DAN in August make sure you get plasma

> amino

> > acid test done and essential fatty acid test done (If he tends

> aprxic I

> > guarantee you that his aminos and EFAs are all out of whack) and

an

> OAT test

> > as well (BTW most of these can also be ordered through

> www.directlabs.com

> > <http://www.directla <http://www.directlabs.com/> bs.com/> for

those who

> want/need this stuff

> and don't

> > have DANs). Check out the Metametrix Lab website for explanation

of

> much of

> > this stuff (Their ION panel is a good deal and comes w/good

> interpretive

> > guide)

> >

> > - If the enzymes help I would still consider removing

> gluten and

> > casein one by one to see if there is a difference. The enzymes

> (Houston not

> > Kirkman) allow many people to leave GFCF but not everyone can. I

> made a

> > long term mistake allowing my daughter to continue eating dairy

on

> the

> > enzymes b/c we had no (detectable to me) behavioral issues from

it

> (and

> > stools were fine). IGG blood test later showed SEVERE immune

> > response/inflammation in response to all forms of dairy.

> >

> >

> >

> > Josie

> >

> >

> >

> > Starting enzymes -- have stool test done first

> >

> >

> >

> > I'm new here -- posted a ? on finding a Dr last week. Son has

> apraxic

> > language and SIGNIFICANT constipation since 2 months old. Not

> > diagnosed as autistic due to not finding a Dr to trust and he is

> more

> > apraxic than anything. Second question -- (thanks in advance!) --

I

> > have ordered Kirkman enzymes and will be starting next week.

Should

> I

> > order a stool test first so I have the result (without enzymes)

> before

> > seeing the DAN Dr in August? He's on Miralax, magnesium and CLO --

> > otherwise there wouldn't be any stool to test . So which labs

> work

> > best for individuals without Drs. Our pediatrician is worthless.

> >

> >

> >

> >

> >

> >

[Guest guest]

>

> I'm new here -- posted a ? on finding a Dr last week. Son has apraxic

> language and SIGNIFICANT constipation since 2 months old.

Constipation info

http://www.danasview.net/constip.htm

>>He's on Miralax, magnesium and CLO --

Miralax info

http://www.danasview.net/miralax.htm

For my son, CLO and other EFAs were VERY constipating until the EFA

deficiency was eliminated. I had to give a LOT of magnesium.

Dana

[Guest guest]

We just saw a pediatric gastroenterologist at CHOP on Friday, and she

said we needed to stop the enzymes for three to five days for one

particular stool analysis. Otherwise, they alter the results. If you

order your own tests, ask them what your child can and cannot be

taking before collecting the samples. Otherwise, you can start

enzymes, then stop them temporarily if the DAN orders a test that

requires that. Also, there is an alternate version of the test which

does not require supension of the enzymes, but apparently it is

dramatically more expensive.

Regarding cognitive problems and apraxia -- that's hard to measure

while the apraxia is in full-force. When we had our son evaluated,

the team recommended a self-contained special education preschool. We

rejected this as not appropriate, so he was put in an integrated

classroom instead. Cut to a year later -- his speech still needs

help, but tests as age appropriate, and his IQ tests in the superior

range. Quite a relief, to be sure. I'm not saying ignore obvious

problems, but be aware that apraxia makes it so hard for these kids to

show what they know.

Regarding blood work -- a talented phlebotomist can draw blood

painlessly even from a child, but you don't get to pick who does the

job at the lab. Some things in life are necessary but just stink, and

this is probably going to be on that list. The fewer times the

better, so when you go test for everything you can think of! Keep in

mind that DAN's and other docs often put kids on meds or supplements

that require regular blood tests to monitor blood levels, liver

function, etc., so this process may be a regular feature of your

medical life for some time.

in NJ

>

> I'm new here -- posted a ? on finding a Dr last week. Son has

apraxic

> language and SIGNIFICANT constipation since 2 months old. Not

> diagnosed as autistic due to not finding a Dr to trust and he is

more

> apraxic than anything. Second question -- (thanks in advance!) -- I

> have ordered Kirkman enzymes and will be starting next week. Should

I

> order a stool test first so I have the result (without enzymes)

before

> seeing the DAN Dr in August? He's on Miralax, magnesium and CLO --

> otherwise there wouldn't be any stool to test . So which labs

work

> best for individuals without Drs. Our pediatrician is worthless.

>