hello and introduction

[Guest guest]

Hi Ticia...I had a spinal fusion at L4-L5,with cage and screws on

August 04.....I hate to say-in my exp. I still have Major pain,and

walk with a bad limp.....I see my Neuro at the end of the month-as

the Pain Mgt. injections have not helped at all..I'm dreading

another surgery,but I think(hope) my Results are not the norm:).I am

41,and if how I feel now when its gonna rain,or bad weather-Im

dreading 65-lol.....Hope it works out well for you!...Dottie

>

> Hello Everyone,

>

> I read a few of the posts already and you all sound so nice. I'm

very

> glad that I search the for spine disorders.

>

> My name is Ticia (sounds like Tisha) and I'm 36 yrs old. We live

in

> Wisconsin. 2 yrs ago I had a discectomy between L4 and L5. That

was

> after more then a year of PT, losing weight and pain killers. It

took

> me forever it seemed to recover from that surgery. (meaning that 8

> months after the surgery I was sure I was going to need a spinal

fusion)

>

> Then it started to get better. Better being the pain went down

from a

> 5/6 all the time pain. To a 3/4 all the time pain with spikes

higher.

> Then it got better and better. So last summer I didn't have

surgery

> because I was at a 2/3 pain level usually with spikes of 8 if I did

> something dumb like sit on the floor, ride in the car for more

then a

> few hours, or twist and lift a kid at the same time (I have 5 kids

and

> watch 2 more)

>

> Now I'm back to thinking about surgery. I've lost 67 lbs total,

and

> work out at the gym (2 to 3 times a week). Still I can't do any of

> those things listed above. I tried to rake yesterday for 15 min.

and

> ended up not being able to move much. I have to take vicitin after

> riding in a car or plane for more then a few hours, I can't really

> " play " with the kids because all I need to do it turn or jerk back

and

> I'm hit with an 8 pain.

>

> But I'm big time scared. My surgeon said that when I couldn't live

> this way any longer he would do the surgery but only I could make

that

> choice. I'm so scared that the pain will be worse after the

surgery.

> That I won't be able to get to the gym or that it won't work and

I'll

> have had the surgery for nothing.

>

> I'm hoping to hear some positive experiencs from people, or to hear

> from people who are trying to make a similar decision. I'm feeling

> very frozen in place.

>

> Thank you in advance and I look forward to getting to know you.

>

> Ticia

>

[Guest guest]

ticia, i am having my fusion on may 22nd. will let you know in 6 months if

i am happy.

marsha

[Guest guest]

Hi.. My name is Lia and my son is Christos.. just turned 15. Pdd/nos hyperlexic.

Years ago.. he was dx on dec 21 1994(merry christmas) . I had a child who was

loving... chased his sister and had pretend play.. he just never got past the

babbling stage. Loss of eye contact and could not point to things. Loved to be

around his sister and her friends.. often imitating..alot what she did with her

friends. But.. he did did not talk.. thomas the tank engine.. disney and barney

were his loves. But... he had tremendous temper tantrums.. mystery rashes...

from age 6 months after exposure to chicken pox and he would continue to get

these rashes up until age 4 years old.. no fevers.. good appetite for the same

thing.. but not sick. He self eliminated all foods at age 3 to just " white

foods " .. primarily ff's.. cheerios. I jumped into the healing the gut.. with

evening primrose oil.. Vance's dari free potato milk and lots of DMG... throwing

in acidophllis and at times when he would take

it.. super nu thera. He went through AIT twice . He had from two weeks of

age... a sudden diahhrea and we switched to prosobee. He would have diahhrea

moreso around 3 years old.. foul smelling and once I started giving him some

supplements.. went through having pale yellow to almost white stool. Tested

through Great plains with Dr. Shaw... showed some problems in long chain fatty

acid absorption. He continued not to eat but only ff's. God only knows what I

did... or was it that he was just hypelexic and deemed to improve? He potty

trained himself in both areas at 3.7 and dressed himself at appropriate age..

including zipping.. buttoning and tying. He has alot of typical features..

BUT... his language suffered while his decoding and obbessive spelling

increased. Try lugging hundreds of plastic letters around and books. To make a

long story short.. I eventually stopped all supplements mostly.. the cost.. and

he was making improvements slowly with language which eventually

became the serious issue. Today... he has empathy but does not get social

situations but tries. He has trouble learning language. I feel there is a VICE

GRIP on his language centers of his brain and I have not yet found what I can do

to help aside from drilling him all day long and in school with language

therapy.. years ago.. after describing him over the phone to temple grandin.. in

her blunt way.. said.. " o.. he is NOT BAD OFF " !! ok.. that gave me so much hope.

BUT... he is increasing but it is a stuggle.. prompting to get him to make

complete sentences and everything is soo concrete.. but I feel he knows it

inside his head but cannot tell me abstractly his thoughts except in the most

concrete way. I have decided to go back on DMG.. EVENING primrose oil and test

his hair. Is it too late for him? I again.. say.. it is like he is within my

" reach " ... He longs to be with typical kids... when his step brothers are around

from college.. he hangs and follows them... he is a

joy at home.. no behaviors at all.. just still loves thomas.. but is branching

out to other interests. He self talks thomas the tank engine and I tell him..'no

thomas talk when we are in school or at the store " ... He loves to vacation and

eat out and is a joy. BUT.. his language and social skills.. he is vunerable and

afraid he will go with a stranger.. not understanding who is bad and who is

good. Maybe he does.. inside.. but does not tell me. I hope this post goes

through this time.. any imput on where to start.. I bought the DMG.. he is a big

kid.. 200 lbs.. how much to give and how often... on OMEGA 3... might help?

thanks for any imput.. Lia .. by the way... I stopped all shots after 2 years

old.. maybe early. i have to rack my brain... no boosters.. he has no fillings

and he eats green vegetables now.. everything.. he eats... I never thought I

would see the day.. he eats steamed green vegetables and lettace.. he still does

not like tomatoes.. but loves black olives..

broccolli.. snow peas.. and this just evolved.. what did I do? or didn't do? I

don't know. He loves to help around the house.. makes his bed on his own...

showers independently since age 12... empties the dishwasher and puts away

groceries.. copies his step brothers whatever they do. but.. he just can't

" shoot the breeze " he tries.. he tries to talk and but it is what he knows..

example..Christos says.. to his step brother.. " jeff, thomas is a good engine "

and jeff is patient and says " yes " .. but christos will do this when the

conversation going on is NOT about thomas.. but it is Christos' way of being

like them.. does this all make sense? the topic is not appropriate but the

desire is passionate to be like the other kids... thanks again.. Lia

__________________________________________________

[Guest guest]

Hello, I would read this paper to get some ideas on areas to learn

about biomedical help.

http://puterakembara.org/rm/Dr_Jepson.pdf

I would also do some reading here - there are little computers that

your son could type out meaningful ideas on

http://www.donnawilliams.net/autismcommunication.0.html? & L=0

http://atto.buffalo.edu/registered/ATBasics/AdaptingComputers/KeyboardOp

tions/portable.php

http://www.officemax.com/max/solutions/product/prodBlock.jsp?

BV_UseBVCookie=yes & prodBlockOID=537131397 & expansionOID=-536906022

http://us.store.gc.palm.com/?

i=1 & t1=Keyboards & u1=t1 & cid=reprise_/Organizer_Keyboard

My 2 cents Ann

[Guest guest]

>>from age 6 months after exposure to chicken pox and he would

continue to get these rashes up until age 4 years old.. no fevers..

good appetite for the same thing.. but not sick.

>>I feel there is a VICE GRIP on his language centers of his brain and

I have not yet found what I can do to help aside from drilling him all

day long and in school with language therapy..

On this page is what my son required for language

http://www.danasview.net/issues.htm

Anti-virals were the most important, and it does sound like your son

might be viral also.

>> He self eliminated all foods at age 3 to just " white foods " ..

My son was required to eat only white foods until the end of ALA

chelation. He tolerated no foods, but with HNI enzymes, he tolerated

white foods until chelation was completed.

>>Tested through Great plains with Dr. Shaw... showed some problems in

long chain fatty acid absorption.

My son did not tolerate fats, until I added mito cocktail and amino

acids, and preloaded with Omega 6. I wrote about it here

http://www.danasview.net/mar05.htm

>>obbessive spelling increased.

This behavior, plus scripting, were eliminated for my son with folic

acid and anti-virals.

>>prompting to get him to make complete sentences and everything is

soo concrete..

Yep, this was my son. Try anti-virals, start with lots of vitamin C,

see if that helps.

>>Is it too late for him?

No

>>he is a

> joy at home.. no behaviors at all.. just still loves thomas.. but

is branching out to other interests. He self talks thomas the tank

engine and I tell him..'no thomas talk when we are in school or at the

store " ...

This was my son before anti-virals. Now to be fair, he needed a LOT

of other interventions, which are written on the page I linked above.

It may just be coincidental that I did anti-virals last, that they

are providing the most improvement. For other kids, fish oil and/or

B12 caused the language explosion, and I did those earlier in

biomedical. But these anti-virals, especially vitamin C, have been

WONDERFUL.

>> He loves to vacation and eat out and is a joy. BUT.. his language

and social skills.. he is vunerable and afraid he will go with a

stranger.. not understanding who is bad and who is good.

My son also. He is almost 11 now, and these issues are going away,

FINALLY. He is at the end of the anti-viral protocol.

Dana

[Guest guest]

hi.. and thanks... just last night.. my son sticks his head out of the bathroom

and asks.. " can I have some soap,please? " ... lololol... he had NO trouble

telling me what he needed... Lia

anncrow49740 <anncrow@...> wrote: Hello, I would read this

paper to get some ideas on areas to learn

about biomedical help.

http://puterakembara.org/rm/Dr_Jepson.pdf

I would also do some reading here - there are little computers that

your son could type out meaningful ideas on

http://www.donnawilliams.net/autismcommunication.0.html? & L=0

http://atto.buffalo.edu/registered/ATBasics/AdaptingComputers/KeyboardOp

tions/portable.php

http://www.officemax.com/max/solutions/product/prodBlock.jsp?

BV_UseBVCookie=yes & prodBlockOID=537131397 & expansionOID=-536906022

http://us.store.gc.palm.com/?

i=1 & t1=Keyboards & u1=t1 & cid=reprise_/Organizer_Keyboard

My 2 cents Ann

__________________________________________________

[Guest guest]

ok.. dana.. spoon feed me... anti virals.. I believe in the health food store? I

am on valtrex for herpes simplex one... for my cornea... how much omega 3?

should I buy the one that is refriderated? thanks.. I will read over your

protocol again.. Lia

danasview <danasview@...> wrote:

>>from age 6 months after exposure to chicken pox and he would

continue to get these rashes up until age 4 years old.. no fevers..

good appetite for the same thing.. but not sick.

>>I feel there is a VICE GRIP on his language centers of his brain and

I have not yet found what I can do to help aside from drilling him all

day long and in school with language therapy..

On this page is what my son required for language

http://www.danasview.net/issues.htm

Anti-virals were the most important, and it does sound like your son

might be viral also.

>> He self eliminated all foods at age 3 to just " white foods " ..

My son was required to eat only white foods until the end of ALA

chelation. He tolerated no foods, but with HNI enzymes, he tolerated

white foods until chelation was completed.

>>Tested through Great plains with Dr. Shaw... showed some problems in

long chain fatty acid absorption.

My son did not tolerate fats, until I added mito cocktail and amino

acids, and preloaded with Omega 6. I wrote about it here

http://www.danasview.net/mar05.htm

>>obbessive spelling increased.

This behavior, plus scripting, were eliminated for my son with folic

acid and anti-virals.

>>prompting to get him to make complete sentences and everything is

soo concrete..

Yep, this was my son. Try anti-virals, start with lots of vitamin C,

see if that helps.

>>Is it too late for him?

No

>>he is a

> joy at home.. no behaviors at all.. just still loves thomas.. but

is branching out to other interests. He self talks thomas the tank

engine and I tell him..'no thomas talk when we are in school or at the

store " ...

This was my son before anti-virals. Now to be fair, he needed a LOT

of other interventions, which are written on the page I linked above.

It may just be coincidental that I did anti-virals last, that they

are providing the most improvement. For other kids, fish oil and/or

B12 caused the language explosion, and I did those earlier in

biomedical. But these anti-virals, especially vitamin C, have been

WONDERFUL.

>> He loves to vacation and eat out and is a joy. BUT.. his language

and social skills.. he is vunerable and afraid he will go with a

stranger.. not understanding who is bad and who is good.

My son also. He is almost 11 now, and these issues are going away,

FINALLY. He is at the end of the anti-viral protocol.

Dana

__________________________________________________

[Guest guest]

DAna.. thank you.. I am going to try anti virals.. I want to add DMG.. he is 200

lbs.. how much and what brands do you recommend? I have a gread store here.. the

vitamin shop that carries tons of brands... I tend to think it is viral... in

the brain.. the exposure to that chicken pox at age 6 months.. h e and his

sister were the only ones out of 15 kids and adults that did not get it. then he

got chicken pox at age 12 and it WAS cchicken pox.. whatever he had the early

years was not this. there is something called herpes derma//// somthing.. on the

skin.. maybe it was this? he is one smart kid... the vice grip must loosen. any

help on dosage and brand would help.. thanks so much.. Lia

danasview <danasview@...> wrote:

>>from age 6 months after exposure to chicken pox and he would

continue to get these rashes up until age 4 years old.. no fevers..

good appetite for the same thing.. but not sick.

>>I feel there is a VICE GRIP on his language centers of his brain and

I have not yet found what I can do to help aside from drilling him all

day long and in school with language therapy..

On this page is what my son required for language

http://www.danasview.net/issues.htm

Anti-virals were the most important, and it does sound like your son

might be viral also.

>> He self eliminated all foods at age 3 to just " white foods " ..

My son was required to eat only white foods until the end of ALA

chelation. He tolerated no foods, but with HNI enzymes, he tolerated

white foods until chelation was completed.

>>Tested through Great plains with Dr. Shaw... showed some problems in

long chain fatty acid absorption.

My son did not tolerate fats, until I added mito cocktail and amino

acids, and preloaded with Omega 6. I wrote about it here

http://www.danasview.net/mar05.htm

>>obbessive spelling increased.

This behavior, plus scripting, were eliminated for my son with folic

acid and anti-virals.

>>prompting to get him to make complete sentences and everything is

soo concrete..

Yep, this was my son. Try anti-virals, start with lots of vitamin C,

see if that helps.

>>Is it too late for him?

No

>>he is a

> joy at home.. no behaviors at all.. just still loves thomas.. but

is branching out to other interests. He self talks thomas the tank

engine and I tell him..'no thomas talk when we are in school or at the

store " ...

This was my son before anti-virals. Now to be fair, he needed a LOT

of other interventions, which are written on the page I linked above.

It may just be coincidental that I did anti-virals last, that they

are providing the most improvement. For other kids, fish oil and/or

B12 caused the language explosion, and I did those earlier in

biomedical. But these anti-virals, especially vitamin C, have been

WONDERFUL.

>> He loves to vacation and eat out and is a joy. BUT.. his language

and social skills.. he is vunerable and afraid he will go with a

stranger.. not understanding who is bad and who is good.

My son also. He is almost 11 now, and these issues are going away,

FINALLY. He is at the end of the anti-viral protocol.

Dana

__________________________________________________

[Guest guest]

Lia, as well as all of the good information on Dana's site, there is

also a very useful file on viral treatments in the " files " section of

this group (look to your left, in the little light blue box). The file

is by " mysuperteach " (Anita Kugelstadt).

take care

Rene

>

> DAna.. thank you.. I am going to try anti virals..

[Guest guest]

> ok.. dana.. spoon feed me... anti virals.. I believe in the health

food store?

That is where I bought mine. Vitamins A and C, Virastop enzyme, olive

leaf extract. Monolaurin is probably available at health food stores,

or you can use Lauricidin, which I think is only available online.

>> I am on valtrex for herpes simplex one... for my cornea...

Valtrex is a common medication rx for kids with virus issues.

I am interested in your comment that it is herpes in your cornea.

Viruses cause loss of language for my son, and visual stims. How is

the virus affecting your cornea?

>>how much omega 3?

My son needed a lot of other supplements first, before he tolerated

Omega 3, but you can try with straight fish oil, see if that is

tolerated. Start low, work up as required.

>> should I buy the one that is refriderated?

Not necessarily. I didn't.

Dana

[Guest guest]

>

> DAna.. thank you.. I am going to try anti virals.. I want to add

DMG.. he is 200 lbs.. how much and what brands do you recommend?

I never used DMG, altho I have used TMG. I bought it at my local

health food store, I don't remember the brand. Just check for

additives and fillers, buy something without many of those.

>>there is something called herpes derma//// somthing.. on the skin..

maybe it was this?

Dermatitis herpetiformis is a skin manifestation of celiac

http://www.celiac.com/index.html

Dana