Re: feedback on test results

[Guest guest]

>For the VERY first time, we pulled

> more than trace amounts of Mercury. It's not much, still in the

green at

> .012, but more than we've gotten before.

Well, yay! Maybe you're finally getting to it. Have you seen any

clinical improvement from ALA, or do you think it's because of the

lithium?

> Our son is severely affected by Autism.

> He is seven years old, nonverbal, not potty trained. We've been doing

> biomedical interventions with him for four years.

You are a great mom for hanging in there. Really.

> Any feedback appreciated,

I'd keep going with ALA Andy-style. I'd probably drop the PCA-Rx just

to see if there was any difference. Have you done any antivirals?

Dana is really good at matching supps to specific symptoms. Can you

describe some more how your boy is, what kinds of stuff he does?

Nell

[Guest guest]

Nell,

Thank you for your kindness. This is such an exhausting journey..

physically, emotionally, financially.

We did see some small differences in our son before we added the Lithium

that we feel was due to the Cutler protocol. Just a little more " with it. "

Others would say " something is different with him " but no one could quite

place what that difference was.

We had some limited viral testing done several years ago and nothing

particular stood out. We never did the full Immunoscience panel. We did a

trial of Valtrex within the last year and he was a complete Nonresponder.

After a while, it kicked up yeast and we eventually stopped it.

Our son has verbal stims, visual stims, doesn't use utensils, doesn't

recognize the urge to use the bathroom. He has some very basic sign

language. He has a very self-limited, gluten free diet. When he was

younger, he was super-sensitive to many interventions. He couldn't tolerate

them. Now, he doesn't respond to many interventions. We've done SO many

things over the years. He has been scoped. He never had the MMR. Sleep is

an ongoing issue for him. It seems to be cyclical. Sometimes he sleeps

great, other times he doesn't. We've done the Pfeiffer Protocol, PCA-RX,

TD-DMSA. Our DAN! doc says that our son has been one of her toughest

patients over the years.

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

[Guest guest]

We found melatonin very helpful for sleep and later found out it is a big

antioxidant and part of a detox cycle. Our son began to really turn around

at that point --I thought it was becasue he was getting enough sleep but it

may have been the melatonin too. However, it's not for everyone.

_____

From: [mailto: ]

On Behalf Of Pamela Leigh

Sent: Friday, August 25, 2006 12:20 PM

Subject: [ ] Re: feedback on test results

Nell,

Thank you for your kindness. This is such an exhausting journey..

physically, emotionally, financially.

We did see some small differences in our son before we added the Lithium

that we feel was due to the Cutler protocol. Just a little more " with it. "

Others would say " something is different with him " but no one could quite

place what that difference was.

We had some limited viral testing done several years ago and nothing

particular stood out. We never did the full Immunoscience panel. We did a

trial of Valtrex within the last year and he was a complete Nonresponder.

After a while, it kicked up yeast and we eventually stopped it.

Our son has verbal stims, visual stims, doesn't use utensils, doesn't

recognize the urge to use the bathroom. He has some very basic sign

language. He has a very self-limited, gluten free diet. When he was

younger, he was super-sensitive to many interventions. He couldn't tolerate

them. Now, he doesn't respond to many interventions. We've done SO many

things over the years. He has been scoped. He never had the MMR. Sleep is

an ongoing issue for him. It seems to be cyclical. Sometimes he sleeps

great, other times he doesn't. We've done the Pfeiffer Protocol, PCA-RX,

TD-DMSA. Our DAN! doc says that our son has been one of her toughest

patients over the years.

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

[Guest guest]

I agree, Melatonin was a big hit here. We don't get a punch from it anymore, but

still use it at night.

[ ] Re: feedback on test results

Nell,

Thank you for your kindness. This is such an exhausting journey..

physically, emotionally, financially.

We did see some small differences in our son before we added the Lithium

that we feel was due to the Cutler protocol. Just a little more " with it. "

Others would say " something is different with him " but no one could quite

place what that difference was.

We had some limited viral testing done several years ago and nothing

particular stood out. We never did the full Immunoscience panel. We did a

trial of Valtrex within the last year and he was a complete Nonresponder.

After a while, it kicked up yeast and we eventually stopped it.

Our son has verbal stims, visual stims, doesn't use utensils, doesn't

recognize the urge to use the bathroom. He has some very basic sign

language. He has a very self-limited, gluten free diet. When he was

younger, he was super-sensitive to many interventions. He couldn't tolerate

them. Now, he doesn't respond to many interventions. We've done SO many

things over the years. He has been scoped. He never had the MMR. Sleep is

an ongoing issue for him. It seems to be cyclical. Sometimes he sleeps

great, other times he doesn't. We've done the Pfeiffer Protocol, PCA-RX,

TD-DMSA. Our DAN! doc says that our son has been one of her toughest

patients over the years.

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

[Guest guest]

> We did see some small differences in our son before we added the Lithium

> that we feel was due to the Cutler protocol. Just a little more

" with it. "

> Others would say " something is different with him " but no one could

quite

> place what that difference was.

OK, so that's one thing going right, and it may pay off more as he

gets through more rounds. For a lot of kids the Cutler protocol is

slow slow but steady progress -- not big WOWEE moments, but the kind

of thing where you suddenly realize he's come a long way without your

realizing it.

>

>

> We had some limited viral testing done several years ago and nothing

> particular stood out. We never did the full Immunoscience panel.

We did a

> trial of Valtrex within the last year and he was a complete

Nonresponder.

I'm not saying this for any reason except it worked so well for my son

-- but you could give Virastop a trial, and not bother with the

expensive panel. You'll know with one bottle whether it's going to do

something. Valtrex seems to be really herpes-specific, and there are

certainly a zillion other viruses that can cause trouble.

>

> Our son has verbal stims, visual stims,

You've done CLO, I guess?

> He has a very self-limited, gluten free diet.

How about Houston enzymes? They accomplish things no other brand can,

and some kids do better *with gluten + enzymes. What did the scope show?

>It seems to be cyclical.

That sounds viral, although the nature of autism seems to be ups and

downs too. But maybe that's because of the viral component. I'm

talking in circles.

> Our DAN! doc says that our son has been one of her toughest

> patients over the years.

I think I'd look into NCD too, given Mandi's results with Sam. Why it

works may not be explicable right now, but it does seem to be helping

some other tough nuts.

{{Pam}}

Nell

[Guest guest]

> Our son has been on PCA-RX for about a year and a half and we didn't

want to

> pull it from his regimen. We realize this is going against conventional

> wisdom because PCA-RX contains ALA. Our son is severely affected by

Autism.

> He is seven years old, nonverbal, not potty trained. We've been doing

> biomedical interventions with him for four years. He has proven a very

> tough nut case.

Chelation mostly healed my son's gut, but really did not do much for

his other issues. Before chelation [i used ALA], he tolerated

basically no supplements. At about round 50, he started tolerating

supplements. It was the supplements that healed him.

Which supplements do you give now?

On this page, I wrote what my son needed for language

http://www.danasview.net/issues.htm

Dana

[Guest guest]

> trial of Valtrex within the last year and he was a complete

Nonresponder.

> After a while, it kicked up yeast and we eventually stopped it.

When it started kicking up yeast, that might have been when it was

finally addressing the virus issues. Viral " die off " tends to cause a

lot of yeast.

Anti-virals were key for my son. When I first started OLE [an

anti-viral], it took about 10 months before I noticed much change.

> Our son has verbal stims, visual stims, doesn't use utensils, doesn't

> recognize the urge to use the bathroom. He has some very basic sign

> language.

My son had several of these issues. I wrote what he needed to resolve

them here

http://www.danasview.net/issues.htm

Dana

[Guest guest]

Nell,

We have never tried Virastop. I've heard of it but I'm not sure what it is

or how it works.

Our son takes a very large dose of CLO. He gets four teaspoons a day. It

helps greatly on his visual stims and the " with it " factor.

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

[Guest guest]

Hi Dana,

Right now our tough nut kid gets a compounded multi-vitamin with B-complex,

P5P, C, Vit E, selenium, manganese, calcium, magnesium, zinc, and co-q10.

He also gets extra zinc, Kirkman's Melatonin Plus, lithium orotate,

probiotics, CLO, and Coromega. Also prescription Bethanecol and clonidine

for sleep. Any thoughts?

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

[Guest guest]

> Hi Dana,

> Right now our tough nut kid gets a compounded multi-vitamin with

B-complex,

> P5P,

Because of these two ingredients, be sure to give this in the morning

unless he has adult-version phenol intolerance. Might want to give it

with No-Fenol enzyme.

>> C, Vit E, selenium, manganese, calcium, magnesium, zinc, and co-q10.

Calcium and zinc should be given about 2 hours apart.

Give CoQ10 with fats.

He might need extra magnesium, depending on how much is in this dose.

> He also gets extra zinc, Kirkman's Melatonin Plus, lithium orotate,

> probiotics, CLO, and Coromega. Also prescription Bethanecol and

clonidine

> for sleep. Any thoughts?

Clonidine plus melatonin? That is a lot of sleep help! Consider that

B vitamins tend to cause sleep problems. Also phenol intolerance and

yeast overgrowth

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

Dana