Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 HI, I posted about this already. But my son's DAN! dr. said to give my 50lb. son 100mg every 4 hours. I chose not to do that. Well, she also says she wants a toxic metals urine test done after each round of chelation. And I talked to another mom and she said that was crazy because her dr. only has her do the test every 2 months. Do you think this testing after every round of chelation is necessary? Will testing this often show any better results than testing every 2 months? And she said nothing about a urine challenage either... And we're to see her once a year now. I don't know. I just want to hear what your child's DAN! dr's do. Thanks, Trish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 In a message dated 24/06/2006 09:48:27 GMT Daylight Time, SueLandes@... writes: Do you think this testing after every round of chelation is necessary? Will testing this often show any better results than testing every 2 months? And she said nothing about a urine challenage either... And we're to see her once a year now. I don't know. >>>I don't think output testing is required at all - its expensive and hit and miss - you never know whether you got the 'right' sample. I just want to hear what your child's DAN! dr's do. >>he does what I tell him to do LOL Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Trish, Just my 2 cents. We do DMSA @ 50 mg every 4 hours on the 3/11 day schedule for a 120 lb child. Urine tox tests are done every 3-4 months. This was every 2 months in the beginning, but we've been at this for 20 months now. We just changed to phone consults every 3 months with alternating visits for blood draws, etc. every 6 months. We did do an initial challenge test at the start, but I have read since that this could have caused serious redistribution issues. Thankfully, it was wonderful for us because we had a different child immediately due to the amount of lead/mercury we pulled (lead off the charts). We are seeing amazing results. Good luck, Sue [Norton AntiSpam] [ ] chelation protocol HI, I posted about this already. But my son's DAN! dr. said to give my 50lb. son 100mg every 4 hours. I chose not to do that. Well, she also says she wants a toxic metals urine test done after each round of chelation. And I talked to another mom and she said that was crazy because her dr. only has her do the test every 2 months. Do you think this testing after every round of chelation is necessary? Will testing this often show any better results than testing every 2 months? And she said nothing about a urine challenage either... And we're to see her once a year now. I don't know. I just want to hear what your child's DAN! dr's do. Thanks, Trish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 > > HI, I posted about this already. But my son's DAN! dr. said to give my > 50lb. son 100mg every 4 hours. I chose not to do that. Well, she also > says she wants a toxic metals urine test done after each round of > chelation. And I talked to another mom and she said that was crazy > because her dr. only has her do the test every 2 months. Do you think > this testing after every round of chelation is necessary? Will testing > this often show any better results than testing every 2 months? IMO it's purely a money issue. You're not going to find anything out that will change treatment decisions by testing that often. I tested once in 2.5 years, saw low levels of many metals coming out which is what low/slow clelation is supposed to do, and that was that. Observing how your child does, physically and behaviorall and emotionally, will be a better indication of whether the treatments you're doing are working. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 So, when and why do you do the urine challenges? Forgive me for asking the same questions over and over. I'm a very thorough person and want to make sure things are done the right way. As far as my son's Dan dr.... I don't have a lot of choices, she's my only choice as far as Dan doctors go here. Plus, my son has medicaid and that pays for all this. I would like to be able to pay for it all out of pocket myself but we just can't do it right now. She does not know that i'm only giving him 25mg. I'm just hoping and praying that we'll pull enough metals so no questions are asks or no " let's up the dosage " or something crazy like that happens. Maybe I am just a little too paranoid. I like the mom that said her Dan doctor does what she tells him to do! I need one of those but unfortunately this Dan is pretty set in her ways it seems. Trish > > > > HI, I posted about this already. But my son's DAN! dr. said to give > my > > 50lb. son 100mg every 4 hours. I chose not to do that. Well, she also > > says she wants a toxic metals urine test done after each round of > > chelation. And I talked to another mom and she said that was crazy > > because her dr. only has her do the test every 2 months. Do you think > > this testing after every round of chelation is necessary? Will > testing > > this often show any better results than testing every 2 months? > > IMO it's purely a money issue. You're not going to find anything out > that will change treatment decisions by testing that often. I tested > once in 2.5 years, saw low levels of many metals coming out which is > what low/slow clelation is supposed to do, and that was that. Observing > how your child does, physically and behaviorall and emotionally, will > be a better indication of whether the treatments you're doing are > working. > > Nell > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Don't do a challenge. The single, high dose of chelator poses a high risk of redistribution and the info you would get is not particularly helpful. Keep in mind that having medicaid pay to make him worse is not in your best interest. If the DAN! doc insists on doing a challenge, just do a regular cycle (1/8-1/2 mg/lb every 4 hours day and night for three days in a row), and take a urine sample during that (others can suggest the best timing). S S <p>So, when and why do you do the urine challenges? Forgive me for <br> asking the same questions over and over. I'm a very thorough person <br> and want to make sure things are done the right way. <br> As far as my son's Dan dr.... I don't have a lot of choices, she's <br> my only choice as far as Dan doctors go here. Plus, my son has <br> medicaid and that pays for all this. I would like to be able to pay <br> for it all out of pocket myself but we just can't do it right now. <br> She does not know that i'm only giving him 25mg. I'm just hoping and <br> praying that we'll pull enough metals so no questions are asks or <br> no " let's up the dosage " or something crazy like that happens. Maybe <br> I am just a little too paranoid.<br> <br> I like the mom that said her Dan doctor does what she tells him to <br> do! I need one of those but unfortunately this Dan is pretty set in <br> her ways it seems.<br> <br> Trish<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 Hi Betsy, The mg dosing is reasonable but the timing is odd. I would use 25 mgs DMSA every 4 hours instead of every 6 and go 3 days on/4 off. Andy's protocol says it is important to take at least as many days OFF as on; this doc has it backwards. Many go every other week for the first few rounds. ALA should be taken every 3-4 hours. I would also only take 25 mgs of that, too. The reason not to use ALA right away can be to make sure DMSA is tolerated without adding in any other new supps to complicate matters. Unless your child has recent mercury exposure, using ALA is OK. Many use ALA alone; I did (for myself). Forget about the cilantro. Too unpredictable and potentially dangerous. Nobody really knows how this works so you can't provide any type of controlled/safe protocol. Forget about the GSH, in my opinion. It doesn't help raise intracellular glutathione levels and (in our case) can make your child miserable. My son had extreme stomach cramps and diarrhea from glutathione drops. One of the worst supps I've ever tried. Go for raising glutathione levels in another way... perhaps through using precursors or Vit C and alpha lipoic acid. Where are the minerals? I see molybdenum but nothing else. You can certainly take minerals while chelating. It is incorrect to say DMSA will just chelate the minerals away. Many kids do poorly if they DON'T take minerals while chelating. Some do the opposite. Probiotics are good. Essential Fatty Acids, too (fish oil). Liver support with milk thistle or other liver support products might make tolerating DMSA easier. I'm sure others will offer their assessment of your proposed protocol. My only other suggestion is to start with a lower dose of both DMSA/ALA since 25 mgs is the upper end of the recommended range if you are going by Andy's 1/4-1/2 mg per lb advice. Perhaps with 12.5 mgs? Good luck. Pam > > I just got back from meeting with my son's DAN and got his chelation > protocol and wanted to check this out before I get started because > it doesn't seem quite right. My son is 5 1/2 years old and 40 lbs. > and he is recommending the following: > > 1. DMSA 25 mg - two capsules every 6 hours (three times) for 4 days > on, 3 days off, for 3 weeks, then nothing for the fourth week of the > month. Then repeat the cycle for another total four weeks. > > 2. ALA 50 mg 2-3x/day > > 3. Essential GSH - 1/2 tsp 2x/day during chelation > > 4. Cilantro tincture - one dropper on days that DMSA is not given > > 5. Molybdenum - 1000 mcg 2x/day on days that DMSA is not given > > We have not done chelation before now and I thought that at least > initially you shouldn't do ALA with DMSA. I also thought the dosing > schedule per Andy Cutler was different from what he is giving me. > Has anyone ever seen this schedule or used it? Does the dosing seem > too high? I don't have a problem starting lower and moving up in > dosage, but want to check with others that have " been there and done > that " first. > > Thanks for the input. Betsy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 Pam, Thanks for the input. My son is already taking lots of supplements including Minerall from Kirkman and 2200 mg of Vitamin C each day. We are also taking a probiotic and are adding CLO. Do we keep giving all the supplements every day even during chelation? Are there any to avoid during chelation? Betsy > > > > I just got back from meeting with my son's DAN and got his > chelation > > protocol and wanted to check this out before I get started because > > it doesn't seem quite right. My son is 5 1/2 years old and 40 lbs. > > and he is recommending the following: > > > > 1. DMSA 25 mg - two capsules every 6 hours (three times) for 4 > days > > on, 3 days off, for 3 weeks, then nothing for the fourth week of > the > > month. Then repeat the cycle for another total four weeks. > > > > 2. ALA 50 mg 2-3x/day > > > > 3. Essential GSH - 1/2 tsp 2x/day during chelation > > > > 4. Cilantro tincture - one dropper on days that DMSA is not given > > > > 5. Molybdenum - 1000 mcg 2x/day on days that DMSA is not given > > > > We have not done chelation before now and I thought that at least > > initially you shouldn't do ALA with DMSA. I also thought the > dosing > > schedule per Andy Cutler was different from what he is giving me. > > Has anyone ever seen this schedule or used it? Does the dosing > seem > > too high? I don't have a problem starting lower and moving up in > > dosage, but want to check with others that have " been there and > done > > that " first. > > > > Thanks for the input. Betsy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 , Thanks. Is there a way to get lower dosages than the 25 mg capsules that I currently have for the DMSA? I haven't gotten the ALA yet, but I guess I will need low doses of that as well. I know I have seen it at a really good vegetarian health food store here in town, so I will check, but not the DMSA. I know I can break up the capsule, but won't know for sure the dosage that way. We currently have my son on lots of supplements so I guess I will keep giving him those on both on and off days. What glutathione precursors are needed? I wonder why the DAN recommends the GSH? My son's last potential exposure to anything would have been in late October 2006 when he got the measles and tetnus vaccines,(No reactions to them initially, but of course this time ended up in the ER) so I think it has been long enough to give him the ALA. Is there anything else I need to know? I am starting to get a little anxious and excited at the same time because I know this will help him, but don't want to screw this up either. Betsy > > I just got back from meeting with my son's DAN and got his chelation > protocol and wanted to check this out before I get started because > it doesn't seem quite right. My son is 5 1/2 years old and 40 lbs. > and he is recommending the following: > > 1. DMSA 25 mg - two capsules every 6 hours (three times) for 4 days > on, 3 days off, for 3 weeks, then nothing for the fourth week of the > month. Then repeat the cycle for another total four weeks. > > *1/8-1/2 mg per lb, so 5-20 mg for your son, every 4 ours day and night for 3 days on (2.6 is ok if he's in school full-time), as many off, repeat. > > 2. ALA 50 mg 2-3x/day > > *Again 1/8-1/2 mg per lb, so 5-20 mg for your son, every 3 hours during the day, every 4 at night, 3 days on and at least as many off. When dosing both ALA and DMSA it's much easier to give both on the ALA schedule to keep things straight. > > 3. Essential GSH - 1/2 tsp 2x/day during chelation > > *Glutathione is problematic for many people. They need glutathione precursors not the glutathione itself according to Andy. > > 4. Cilantro tincture - one dropper on days that DMSA is not given > > *Bad idea because nobody knows proper dosing for cilantro. > > 5. Molybdenum - 1000 mcg 2x/day on days that DMSA is not given > > *Andy recommends doing whatever supps you're giving on both " on " and " off " days. > > We have not done chelation before now and I thought that at least > initially you shouldn't do ALA with DMSA. > > *Depends on what you're trying to chelate and when the individual's most recent known new exposure (thimerosal-containing vaccine or amalgam removal) to mercury occurred. > I also thought the dosing > schedule per Andy Cutler was different from what he is giving me. > Has anyone ever seen this schedule or used it? Does the dosing seem > too high? > > *Yes > > I don't have a problem starting lower and moving up in > dosage, but want to check with others that have " been there and done > that " first. > > *Don't plan to move up to beyond 1/2 mg per lb. and do it slowly. > > Thanks for the input. Betsy > > > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 You can buy empty capsule at most Health Food Stores and divide the contents of the capsules you have. Approxiamting the dose when splitting the capsules is close enough. A 25 mg cap divided in two would be 12.5 and half of that would be 6.25. I don't remember off the top of my head what the glutathione precursors are, someone else hear will probably chime in or you may be able to do a archives search for info on that. You'll do fine. You're in the right place. S S <p>, Thanks. Is there a way to get lower dosages than the 25 mg <br> capsules that I currently have for the DMSA? I haven't gotten the <br> ALA yet, but I guess I will need low doses of that as well. I know <br> I have seen it at a really good vegetarian health food store here in <br> town, so I will check, but not the DMSA. I know I can break up the <br> capsule, but won't know for sure the dosage that way. We currently <br> have my son on lots of supplements so I guess I will keep giving him <br> those on both on and off days. What glutathione precursors are <br> needed? I wonder why the DAN recommends the GSH? My son's last <br> potential exposure to anything would have been in late October 2006 <br> when he got the measles and tetnus vaccines,(No reactions to them <br> initially, but of course this time ended up in the ER) so I think it <br> has been long enough to give him the ALA. Is there anything else I <br> need to know? I am starting to get a little anxious and excited at <br> the same time because I know this will help him, but don't want to <br> screw this up either.<br> <br> Betsy<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 I give all supplements on chelation days, too. I also use Minerall. You might want to take a look at that bottle and supplement certain minerals like magnesium, calcium and zinc. Pam > > > > > > I just got back from meeting with my son's DAN and got his > > chelation > > > protocol and wanted to check this out before I get started > because > > > it doesn't seem quite right. My son is 5 1/2 years old and 40 > lbs. > > > and he is recommending the following: > > > > > > 1. DMSA 25 mg - two capsules every 6 hours (three times) for 4 > > days > > > on, 3 days off, for 3 weeks, then nothing for the fourth week of > > the > > > month. Then repeat the cycle for another total four weeks. > > > > > > 2. ALA 50 mg 2-3x/day > > > > > > 3. Essential GSH - 1/2 tsp 2x/day during chelation > > > > > > 4. Cilantro tincture - one dropper on days that DMSA is not > given > > > > > > 5. Molybdenum - 1000 mcg 2x/day on days that DMSA is not given > > > > > > We have not done chelation before now and I thought that at > least > > > initially you shouldn't do ALA with DMSA. I also thought the > > dosing > > > schedule per Andy Cutler was different from what he is giving > me. > > > Has anyone ever seen this schedule or used it? Does the dosing > > seem > > > too high? I don't have a problem starting lower and moving up > in > > > dosage, but want to check with others that have " been there and > > done > > > that " first. > > > > > > Thanks for the input. Betsy > > > > > > Quote Link to comment Share on other sites More sharing options...
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