Re: Need Advice Dealing With School System

[Guest guest]

Hi ,

Pay no attention to the people behind the curtain. Really doesn't matter what

they think, matters how well you can help your boy. We never tell anybody

anything as we don't consider it any of their business.

And the funny thing is that when you help him recover, other people will swear

up and down that he never had autism, we have run into that mostly from other

people who have asd kids. You also find this idea very prevalent in a lot of

people (not all) whose children were too old to take advantage of biomed, their

perception, not mine.

I used to be among those that thought the idea of recovering an asd kid was a

little crazy. And now the whole world could say it's impossible, but I know

what I have seen here and heard about many times on this board.

I don't waste my limited energy trying to convince people what I know is true.

I would have less time to help our little one or anyone else, and that is what

is important.

And yes, they consider us " the crazy mothers " . But I consider them limited,

close-minded and unlearned, and worried about their job security. They're

probably not losing any sleep over my assessment, so I not going to either.

But the world is changing when New York has changed its definition of autism

from a mental disorder to bioneurological condition, there's hope.

Good luck,

[ ] Need Advice Dealing With School System

Hello Everyone,

We had an evaluation this morning to get my son into their special

public preschool program and everyone agreed that he is autistic. I

didn't tell them that we are doing the biomedical treatments with him.

They warned me of " crazy mothers " that use their kids as guinea pigs to

try to heal their child. She said autism is not treatable and is

certainly not curable. I can only imagine telling them that he is gfcf

and will not be getting anymore vaccinations. I'm trying to continue

the process of evaluations so that when we move to Texas, hopefully,

everything will move a little quicker.

We had an evaluation with a place in Albuquerque a few weeks ago and

after I told them the DAN doctor we were seeing they told me that he

wasn't autistic and we would no longer qualify for their services.

Is this what all of you are running into? Do they all consider us " the

crazy mothers " for trying to do everything in our power to help our

kids?

Thanks,

[Guest guest]

says it perfect with 'pay no attention to the people behind the

curtain'!!!

Yes, for some reason us trying to heal our children is crazy. If it were any

other disorder or disease it wouldn't be so but since doctors say it is

incureable with all their magic pills it must be so according the the 'educated'

public.

You do what you feel is best for your son. I am with you on the diet and

vaccination issues. People who say autism isn't treatable are just not

educated. When I told someone at an evaluation when my son was 3 that I was

going to recover him I was laughed at, seriously. You should see some of the

faces of people when I tell them about the other things we do to reduce toxins

in our home. No toxic chemical cleaners and mostly organic foods. It is weird

to be healthy these days.

Put your energy into your son, Lord knows we need plenty to deal with all that

is on our plates. Many good wishes!

Cochran <Ladyshrink111@...> wrote:

Hi ,

Pay no attention to the people behind the curtain. Really doesn't matter what

they think, matters how well you can help your boy. We never tell anybody

anything as we don't consider it any of their business.

And the funny thing is that when you help him recover, other people will swear

up and down that he never had autism, we have run into that mostly from other

people who have asd kids. You also find this idea very prevalent in a lot of

people (not all) whose children were too old to take advantage of biomed, their

perception, not mine.

I used to be among those that thought the idea of recovering an asd kid was a

little crazy. And now the whole world could say it's impossible, but I know what

I have seen here and heard about many times on this board.

I don't waste my limited energy trying to convince people what I know is true. I

would have less time to help our little one or anyone else, and that is what is

important.

And yes, they consider us " the crazy mothers " . But I consider them limited,

close-minded and unlearned, and worried about their job security. They're

probably not losing any sleep over my assessment, so I not going to either.

But the world is changing when New York has changed its definition of autism

from a mental disorder to bioneurological condition, there's hope.

Good luck,

[ ] Need Advice Dealing With School System

Hello Everyone,

We had an evaluation this morning to get my son into their special

public preschool program and everyone agreed that he is autistic. I

didn't tell them that we are doing the biomedical treatments with him.

They warned me of " crazy mothers " that use their kids as guinea pigs to

try to heal their child. She said autism is not treatable and is

certainly not curable. I can only imagine telling them that he is gfcf

and will not be getting anymore vaccinations. I'm trying to continue

the process of evaluations so that when we move to Texas, hopefully,

everything will move a little quicker.

We had an evaluation with a place in Albuquerque a few weeks ago and

after I told them the DAN doctor we were seeing they told me that he

wasn't autistic and we would no longer qualify for their services.

Is this what all of you are running into? Do they all consider us " the

crazy mothers " for trying to do everything in our power to help our

kids?

Thanks,

[Guest guest]

> We never tell anybody anything as we don't consider it any of their

business.

I do it a little differently. I go ahead and tell many people, doctors

mostly, because I just want to speak the truth of what we're doing and

have them hear it. So for instance when I took n to the

opthamologist, I filled in DMSA on the form asking for what meds he

was on. The doctor asked me about it and clearly thought I was a whack

job. I didn't try to convince him of anything, just stated it like I

was talking about something everyone accepted.

I did the same thing with the endocrinologist I saw. Of course that

ended badly with his telling me my symptoms weren't from hypothyroid

but mental illness. But someday, when people understand all the damage

Hg has done, maybe he'll remember that his patients were telling him

for years and he failed to listen. I guess what I'm saying is, I tell

them but it's a little passive-aggressive. LOL

Nell

[Guest guest]

Well, gee Nell since it turns out so well for you

:-) maybe I will try it. I do know what you mean, but most days I just don't

have the energy to deal with the people who think I am nuts.

We did tell her preschool teacher early on who looked at us like we had just

admitted we were going to abuse her. She said she was surprised with all my

education that I would " fall " for the hoax that anything could ever be done to

improve asd kids.

A year and a half later, at Jordan-'s graduation from preschool she did

seek me out and said although she still didn't believe in chelation and that it

probably didn't improve her, nevertheless, she could not believe she was the

same kid. I asked her what she thought HAD caused the improvement and she said

" sometimes they just snap out of it and start progressing. " Whoosh, right over

her head.

Too bad we did all this work if she was just going to snap out of it.

[ ] Re: Need Advice Dealing With School System

> We never tell anybody anything as we don't consider it any of their

business.

I do it a little differently. I go ahead and tell many people, doctors

mostly, because I just want to speak the truth of what we're doing and

have them hear it. So for instance when I took n to the

opthamologist, I filled in DMSA on the form asking for what meds he

was on. The doctor asked me about it and clearly thought I was a whack

job. I didn't try to convince him of anything, just stated it like I

was talking about something everyone accepted.

I did the same thing with the endocrinologist I saw. Of course that

ended badly with his telling me my symptoms weren't from hypothyroid

but mental illness. But someday, when people understand all the damage

Hg has done, maybe he'll remember that his patients were telling him

for years and he failed to listen. I guess what I'm saying is, I tell

them but it's a little passive-aggressive. LOL

Nell

[Guest guest]

I am so excited about what we have been able to do for our daughter.

I want everybody to know that these kids can be helped. I have a hard

time not talking about it. My daughter is proof that something

wonderful is happening. She is 4 1/2 and has been at a University Lab

Preschool. Biomedical interventions are saving her life. We are

considering starting her in public school. IEP meeting next Wed.

(nervous) Hoping that her IEP goals will be better addressed with

staff that regularly work with kids that have IEPS. We are currently

paying for half of her education and the school system is paying for

the other half. We found an attorney and argued that the program they

wanted to put her in was not a least restrictive environment. We won

our arguement but we still pay for half of her education in a private

setting. Since than we have moved into another school district. This

school district has classrooms where kids who have IEPS can be

integrated with typically developing peers. Our daughter is doing so

well I am concerned that it won't be long and she will not qualify

for services. Before she really regressed AEA dropped her because she

was doing well enough. I don't want her to be dropped before she is

really ready. Approximately three months after she was dropped from

AEA services we sent her to a Pediatric Psychologist and she was

diagnosed with PDD-NOS. They really messed up. She was so sick she

lost almost all of her awareness. I wish we were sticking with the

same team so that the teachers would have an idea of what we have

been threw and what we have overcome. Before we started our daughter

in her current school I informed the school about the biomedical

interventions. Part of the agreement to place her in the program

would mean that she would be getting her supplements. I bring in a

box of supplements each day. Of course we have to have documentation

from medical people we work with regarding what she is supposed to

have. I also provided the school with a copy of Children with

Starving Brains and Enzymes for Autism. I have about three copies of

each book. I will educate whomever. So far my attitude has been that

the school system will be on board or they will see me in their halls

every four hours on my way to adminster supplements to my daughter.

Her not getting her biomedical treatment is not an option. I am nuts.

I am nuts about my daughter.

>

> Hello Everyone,

> We had an evaluation this morning to get my son into their special

> public preschool program and everyone agreed that he is autistic. I

> didn't tell them that we are doing the biomedical treatments with

him.

> They warned me of " crazy mothers " that use their kids as guinea

pigs to

> try to heal their child. She said autism is not treatable and is

> certainly not curable. I can only imagine telling them that he is

gfcf

> and will not be getting anymore vaccinations. I'm trying to

continue

> the process of evaluations so that when we move to Texas,

hopefully,

> everything will move a little quicker.

> We had an evaluation with a place in Albuquerque a few weeks ago

and

> after I told them the DAN doctor we were seeing they told me that

he

> wasn't autistic and we would no longer qualify for their services.

> Is this what all of you are running into? Do they all consider

us " the

> crazy mothers " for trying to do everything in our power to help our

> kids?

> Thanks,

>

[Guest guest]

>

> Well, gee Nell since it turns out so well for you

> :-) maybe I will try it. I do know what you mean, but most days I

just don't have the energy to deal with the people who think I am nuts.

I understand, believe me. Did I ever post this? Pics of my family at

the bottom. Living in a smallish town I wondered whether coming out of

the closet was going to be OK, but I really wanted to support the

article.

http://readthehook.com/stories/2005/04/07/coverGenerationHgIsAutismP.html

>I asked her what she thought HAD caused the improvement and she said

" sometimes they just snap out of it and start progressing. " Whoosh,

right over her head.

Totally maddening. But just think how she's going to feel the next

time that happens, and the next time...it takes some people multiple

experiences to learn, and you did your part:).

Nell

[Guest guest]

Thanks for sharing this, Nell. Your children are adorable.

[ ] Re: Need Advice Dealing With School System

>

> Well, gee Nell since it turns out so well for you

> :-) maybe I will try it. I do know what you mean, but most days I

just don't have the energy to deal with the people who think I am nuts.

I understand, believe me. Did I ever post this? Pics of my family at

the bottom. Living in a smallish town I wondered whether coming out of

the closet was going to be OK, but I really wanted to support the

article.

http://readthehook.com/stories/2005/04/07/coverGenerationHgIsAutismP.html

>I asked her what she thought HAD caused the improvement and she said

" sometimes they just snap out of it and start progressing. " Whoosh,

right over her head.

Totally maddening. But just think how she's going to feel the next

time that happens, and the next time...it takes some people multiple

experiences to learn, and you did your part:).

Nell

[Guest guest]

Yep, crazy mother here too! My was PDD son is now not PDD and only

qualifies for regualar preschool and some therapy during school but

no home support! Ahh...who cares what they think! As long as he is

getting better. You can play crazy and claim he must be " outgrowing

it " !

>

> Hello Everyone,

> We had an evaluation this morning to get my son into their special

> public preschool program and everyone agreed that he is autistic.

I

> didn't tell them that we are doing the biomedical treatments with

him.

> They warned me of " crazy mothers " that use their kids as guinea

pigs to

> try to heal their child. She said autism is not treatable and is

> certainly not curable. I can only imagine telling them that he is

gfcf

> and will not be getting anymore vaccinations. I'm trying to

continue

> the process of evaluations so that when we move to Texas,

hopefully,

> everything will move a little quicker.

> We had an evaluation with a place in Albuquerque a few weeks ago

and

> after I told them the DAN doctor we were seeing they told me that

he

> wasn't autistic and we would no longer qualify for their services.

> Is this what all of you are running into? Do they all consider

us " the

> crazy mothers " for trying to do everything in our power to help

our

> kids?

> Thanks,

>

[Guest guest]

I agree! Beautiful kids. :-)

René

>

> Thanks for sharing this, Nell. Your children are adorable.

>

>

>

>

Did I ever post this? Pics of my family at

> the bottom.

[Guest guest]

Nell thanks for posting this great article and sharing the picture.

You have a lovely family!!

Sheresa

> >

> > Well, gee Nell since it turns out so well for you

> > :-) maybe I will try it. I do know what you mean, but most days I

> just don't have the energy to deal with the people who think I am

nuts.

>

> I understand, believe me. Did I ever post this? Pics of my family at

> the bottom. Living in a smallish town I wondered whether coming out

of

> the closet was going to be OK, but I really wanted to support the

> article.

>

>

http://readthehook.com/stories/2005/04/07/coverGenerationHgIsAutismP.h

tml

>

> >I asked her what she thought HAD caused the improvement and she

said

> " sometimes they just snap out of it and start progressing. " Whoosh,

> right over her head.

>

> Totally maddening. But just think how she's going to feel the next

> time that happens, and the next time...it takes some people multiple

> experiences to learn, and you did your part:).

>

> Nell

>

[Guest guest]

>>she is doing so well that I don't know if she should be in special

ed. anymore. I know she still needs speech therapy but maybe only 2

times a week. Is it better to move them on to regular classes when

they improve?

Hey congrats!

I wrote a page on a similar issue, whether or not to pursue a new dx

once biomedical or other interventions have caused gains for your

child. Hopefully it will help you make your decision

http://www.danasview.net/newdx.htm

Dana