Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Hi Lori I lurk here a lot, and love reading about my life written by other people - there's nothing like experience in common to make one feel less alone. In answer to your question, yes it's sometimes incredibly lonely. I'm a single parent with little family support, and sometimes it feels like everyone is going out of their way NOT to understand how my beautiul son's condition impacts his life and my life. When his nursery school first suggested that he may have some issues (which I'd known but chosen to ignore) I was devestated, and went through a very bad period of depression. The thought of my beautiful, perfect little boy struggling, being different, not having the 'normal' future I'd dreamed for him, was unbearable. I'm also going through the selection process to become an Anglican priest, and 's Asperger's/HFA seemed to be an end to pursuing this heart-felt calling. Today, of course, it turns out that nothing is quite as I thought it would be. My is just the same dear little boy he always was. He's so bright, very loving, hilariously funny, charming, and simply fabulous. There will be heartbreaks along the way, no doubt, but for now he's just my quirky little boy (he's 4). I should be starting my training next year for the priesthood. I work full- time, goes to his childminder and to nursery school. As long as I focus on what's happening right now, and deal with future problems as and when they arise, I think we'll be okay. I do worry sometimes, but what will that do? God made my little boy perfect, for whatever He has planned for him. And if other people have a problem with my boy, and don't understand, then I'm happy to educate them . If they don't want to know, then usually we don't want to know them. Go to ballgames - go anywhere your nephew wants to go. We live in a society that should be mature enough to be inclusive - and if that society has problems with being inclusive, maybe part of our job is to teach them how. Take your rightful place, don't ever be ashamed because your nephew is different. Please, feel free to quote all this back to me when I have a rant on a bad day . BTW, I work in a school and see a lot of kids who obviously have some sort of ASD - having my own autistic child has really opened my eyes to how to try and help them... and it really works. God bless <>< > > My question is: do you guys feel lonely having a child like this? I am raising my 7 yr old aspie nephew and his 3 yr old sister. I have 3 children of my own, who are much older and I have felt like people whom I thought I was close to are now shunning me. I am no longer able to go the places I used to go, such as ballgames etc. Do any of you belong to a support group besides this one? > This group is really great and thanks in advance! > Lori > > > > --------------------------------- > How low will we go? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Good for you, . I wish you all the best in your studies.You are going to be a wonderful,kind, understanding priest.I DO know God doesn't make mistakes so he wanted all these children like this for a reason. Maybe to teach the rest of the world kindness, patience, FAITH, compassion, etc. Toni ( ) Re: caretakers depression Hi Lori I lurk here a lot, and love reading about my life written by other people - there's nothing like experience in common to make one feel less alone. In answer to your question, yes it's sometimes incredibly lonely. I'm a single parent with little family support, and sometimes it feels like everyone is going out of their way NOT to understand how my beautiul son's condition impacts his life and my life. When his nursery school first suggested that he may have some issues (which I'd known but chosen to ignore) I was devestated, and went through a very bad period of depression. The thought of my beautiful, perfect little boy struggling, being different, not having the 'normal' future I'd dreamed for him, was unbearable. I'm also going through the selection process to become an Anglican priest, and 's Asperger's/HFA seemed to be an end to pursuing this heart-felt calling. Today, of course, it turns out that nothing is quite as I thought it would be. My is just the same dear little boy he always was. He's so bright, very loving, hilariously funny, charming, and simply fabulous. There will be heartbreaks along the way, no doubt, but for now he's just my quirky little boy (he's 4). I should be starting my training next year for the priesthood. I work full- time, goes to his childminder and to nursery school. As long as I focus on what's happening right now, and deal with future problems as and when they arise, I think we'll be okay. I do worry sometimes, but what will that do? God made my little boy perfect, for whatever He has planned for him. And if other people have a problem with my boy, and don't understand, then I'm happy to educate them . If they don't want to know, then usually we don't want to know them. Go to ballgames - go anywhere your nephew wants to go. We live in a society that should be mature enough to be inclusive - and if that society has problems with being inclusive, maybe part of our job is to teach them how. Take your rightful place, don't ever be ashamed because your nephew is different. Please, feel free to quote all this back to me when I have a rant on a bad day . BTW, I work in a school and see a lot of kids who obviously have some sort of ASD - having my own autistic child has really opened my eyes to how to try and help them... and it really works. God bless <>< > > My question is: do you guys feel lonely having a child like this? I am raising my 7 yr old aspie nephew and his 3 yr old sister. I have 3 children of my own, who are much older and I have felt like people whom I thought I was close to are now shunning me. I am no longer able to go the places I used to go, such as ballgames etc. Do any of you belong to a support group besides this one? > This group is really great and thanks in advance! > Lori > > > > --------------------------------- > How low will we go? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 I agree with this sentiment wholeheartedly - there's has to be a reason for AS and the way my kids love maths and science I wouldn't be surprised if God sent these brainy little professors down to save the planet! --- Toni <kbtoni@...> wrote: > Good for you, . I wish you all the best in your > studies.You are going to be a wonderful,kind, > understanding priest.I DO know God doesn't make > mistakes so he wanted all these children like this > for a reason. Maybe to teach the rest of the world > kindness, patience, FAITH, compassion, etc. > Toni > ( ) Re: caretakers > depression > > > Hi Lori > > I lurk here a lot, and love reading about my life > written by other > people - there's nothing like experience in common > to make one feel > less alone. > > In answer to your question, yes it's sometimes > incredibly lonely. > I'm a single parent with little family support, > and sometimes it > feels like everyone is going out of their way NOT > to understand how > my beautiul son's condition impacts his life and > my life. When his > nursery school first suggested that he may have > some issues (which > I'd known but chosen to ignore) I was devestated, > and went through a > very bad period of depression. The thought of my > beautiful, > perfect little boy struggling, being different, > not having > the 'normal' future I'd dreamed for him, was > unbearable. I'm also > going through the selection process to become an > Anglican priest, > and 's Asperger's/HFA seemed to be an end > to pursuing this > heart-felt calling. > > Today, of course, it turns out that nothing is > quite as I thought it > would be. My is just the same dear little > boy he always > was. He's so bright, very loving, hilariously > funny, charming, and > simply fabulous. There will be heartbreaks along > the way, no doubt, > but for now he's just my quirky little boy (he's > 4). I should be > starting my training next year for the priesthood. > I work full- > time, goes to his childminder and to > nursery school. As > long as I focus on what's happening right now, and > deal with future > problems as and when they arise, I think we'll be > okay. > > I do worry sometimes, but what will that do? God > made my little boy > perfect, for whatever He has planned for him. And > if other people > have a problem with my boy, and don't understand, > then I'm happy to > educate them . If they don't want to know, then > usually we don't > want to know them. Go to ballgames - go anywhere > your nephew wants > to go. We live in a society that should be mature > enough to be > inclusive - and if that society has problems with > being inclusive, > maybe part of our job is to teach them how. Take > your rightful > place, don't ever be ashamed because your nephew > is different. > > Please, feel free to quote all this back to me > when I have a rant on > a bad day . > > BTW, I work in a school and see a lot of kids who > obviously have > some sort of ASD - having my own autistic child > has really opened my > eyes to how to try and help them... and it really > works. > > God bless > > > <>< > > > > > > My question is: do you guys feel lonely having a > child > like this? I am raising my 7 yr old aspie nephew > and his 3 yr old > sister. I have 3 children of my own, who are much > older and I have > felt like people whom I thought I was close to are > now shunning me. > I am no longer able to go the places I used to go, > such as ballgames > etc. Do any of you belong to a support group > besides this one? > > This group is really great and thanks in > advance! > > Lori > > > > > > > > --------------------------------- > > How low will we go? Check out Messenger's > low PC-to-Phone > call rates. > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 AMEN -- Re: ( ) Re: caretakers depression Good for you, . I wish you all the best in your studies.You are going to be a wonderful,kind, understanding priest.I DO know God doesn't make mistakes so he wanted all these children like this for a reason. Maybe to teach the rest of the world kindness, patience, FAITH, compassion, etc. Toni ( ) Re: caretakers depression Hi Lori I lurk here a lot, and love reading about my life written by other people - there's nothing like experience in common to make one feel less alone. In answer to your question, yes it's sometimes incredibly lonely. I'm a single parent with little family support, and sometimes it feels like everyone is going out of their way NOT to understand how my beautiul son's condition impacts his life and my life. When his nursery school first suggested that he may have some issues (which I'd known but chosen to ignore) I was devestated, and went through a very bad period of depression. The thought of my beautiful, perfect little boy struggling, being different, not having the 'normal' future I'd dreamed for him, was unbearable. I'm also going through the selection process to become an Anglican priest, and 's Asperger's/HFA seemed to be an end to pursuing this heart-felt calling. Today, of course, it turns out that nothing is quite as I thought it would be. My is just the same dear little boy he always was. He's so bright, very loving, hilariously funny, charming, and simply fabulous. There will be heartbreaks along the way, no doubt, but for now he's just my quirky little boy (he's 4). I should be starting my training next year for the priesthood. I work full- time, goes to his childminder and to nursery school. As long as I focus on what's happening right now, and deal with future problems as and when they arise, I think we'll be okay. I do worry sometimes, but what will that do? God made my little boy perfect, for whatever He has planned for him. And if other people have a problem with my boy, and don't understand, then I'm happy to educate them . If they don't want to know, then usually we don't want to know them. Go to ballgames - go anywhere your nephew wants to go. We live in a society that should be mature enough to be inclusive - and if that society has problems with being inclusive, maybe part of our job is to teach them how. Take your rightful place, don't ever be ashamed because your nephew is different. Please, feel free to quote all this back to me when I have a rant on a bad day . BTW, I work in a school and see a lot of kids who obviously have some sort of ASD - having my own autistic child has really opened my eyes to how to try and help them... and it really works. God bless <>< > > My question is: do you guys feel lonely having a child like this? I am raising my 7 yr old aspie nephew and his 3 yr old sister. I have 3 children of my own, who are much older and I have felt like people whom I thought I was close to are now shunning me. I am no longer able to go the places I used to go, such as ballgames etc. Do any of you belong to a support group besides this one? > This group is really great and thanks in advance! > Lori > > > > --------------------------------- > How low will we go? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 a.. I like the way you think. > > > > > > My question is: do you guys feel lonely having a > > child > > like this? I am raising my 7 yr old aspie nephew > > and his 3 yr old > > sister. I have 3 children of my own, who are much > > older and I have > > felt like people whom I thought I was close to are > > now shunning me. > > I am no longer able to go the places I used to go, > > such as ballgames > > etc. Do any of you belong to a support group > > besides this one? > > > This group is really great and thanks in > > advance! > > > Lori > > > > > > > > > > > > --------------------------------- > > > How low will we go? Check out Messenger's > > low PC-to-Phone > > call rates. > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Lori, Depression is something that my husband and I understand all to well. After our sons diagnosis we both bottomed out about the same time. I still take prozac everyday (since '01). Use every outing with your nephew as a way to educate the community about autism and AS. The more he is exposed to the community he may begin to rise to the occasion and behave appropriately. My son has been taught appropriate responses and behaviors through social stories and be told repeatedly what to do. Sometimes he does sound scripted but I can handle that. All the best, Jill " He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. " Is. 40:29-31 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Thank you so much for your response. I needed to hear " I understand " I appreciate your scripture. Sitting in Sunday school class last week, I lost it. We were talking about blessings and have always felt very blessed to have this child, but on Sunday I was almost angry. I have felt lately that I don't know if I can handle any more blessings. Your scripture really hit home and tells me I am not focusing on things above and only on myself. God Bless Lori Steve & Jill Meyers <jmeyers@...> wrote: Lori, Depression is something that my husband and I understand all to well. After our sons diagnosis we both bottomed out about the same time. I still take prozac everyday (since '01). Use every outing with your nephew as a way to educate the community about autism and AS. The more he is exposed to the community he may begin to rise to the occasion and behave appropriately. My son has been taught appropriate responses and behaviors through social stories and be told repeatedly what to do. Sometimes he does sound scripted but I can handle that. All the best, Jill " He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. " Is. 40:29-31 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Have you all heard of www.childrenofdestiny.org ? I signed up for their daily prayer and I can not tell how many times the exact scripture I needed was in that email. Re: ( ) Re: caretakers depression Thank you so much for your response. I needed to hear " I understand " I appreciate your scripture. Sitting in Sunday school class last week, I lost it. We were talking about blessings and have always felt very blessed to have this child, but on Sunday I was almost angry. I have felt lately that I don't know if I can handle any more blessings. Your scripture really hit home and tells me I am not focusing on things above and only on myself. God Bless Lori Steve & Jill Meyers <jmeyers@...> wrote: Lori, Depression is something that my husband and I understand all to well. After our sons diagnosis we both bottomed out about the same time. I still take prozac everyday (since '01). Use every outing with your nephew as a way to educate the community about autism and AS. The more he is exposed to the community he may begin to rise to the occasion and behave appropriately. My son has been taught appropriate responses and behaviors through social stories and be told repeatedly what to do. Sometimes he does sound scripted but I can handle that. All the best, Jill " He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. " Is. 40:29-31 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 Thanks, I signed up today. Amazing the way God does that so that it fits everyone that reads it!! Toni Re: ( ) Re: caretakers depression Thank you so much for your response. I needed to hear " I understand " I appreciate your scripture. Sitting in Sunday school class last week, I lost it. We were talking about blessings and have always felt very blessed to have this child, but on Sunday I was almost angry. I have felt lately that I don't know if I can handle any more blessings. Your scripture really hit home and tells me I am not focusing on things above and only on myself. God Bless Lori Steve & Jill Meyers <jmeyers@...> wrote: Lori, Depression is something that my husband and I understand all to well. After our sons diagnosis we both bottomed out about the same time. I still take prozac everyday (since '01). Use every outing with your nephew as a way to educate the community about autism and AS. The more he is exposed to the community he may begin to rise to the occasion and behave appropriately. My son has been taught appropriate responses and behaviors through social stories and be told repeatedly what to do. Sometimes he does sound scripted but I can handle that. All the best, Jill " He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. " Is. 40:29-31 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 So funny, I signed up after I read this one and as I was about to have a melt down myself, I went online to email my son's learning center teacher and the only email I'd gotten was the daily prayer. Is that a sign or what?! Toni <kbtoni@...> wrote: Thanks, I signed up today. Amazing the way God does that so that it fits everyone that reads it!! Toni Re: ( ) Re: caretakers depression Thank you so much for your response. I needed to hear " I understand " I appreciate your scripture. Sitting in Sunday school class last week, I lost it. We were talking about blessings and have always felt very blessed to have this child, but on Sunday I was almost angry. I have felt lately that I don't know if I can handle any more blessings. Your scripture really hit home and tells me I am not focusing on things above and only on myself. God Bless Lori Steve & Jill Meyers <jmeyers@...> wrote: Lori, Depression is something that my husband and I understand all to well. After our sons diagnosis we both bottomed out about the same time. I still take prozac everyday (since '01). Use every outing with your nephew as a way to educate the community about autism and AS. The more he is exposed to the community he may begin to rise to the occasion and behave appropriately. My son has been taught appropriate responses and behaviors through social stories and be told repeatedly what to do. Sometimes he does sound scripted but I can handle that. All the best, Jill " He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. " Is. 40:29-31 Quote Link to comment Share on other sites More sharing options...
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