Re: MY LAST AND FINALL Cry FOR HELP!!!! TD-DMSA USERS

[Guest guest]

In a message dated 12/01/2006 23:19:08 GMT Standard Time,

marquisschembri@... writes:

Hi I am not going to use TD-DMSA, For the life of me I am in lost! I

am in tears crying because I am asking for help and no one seems to be

able to give me the amount of dosage they are giving their child, can

someone KINDLY please tell me what are they using every 4 hrs on a

child close to 40 lbs, I don't want anyone telling me to just divide

this a divide that etc. this is no help, I am at this alone her!

>>>we need to know how many mgs of DMSA is in each ml then we can work out

how much 10mg is to start with

Mandi in UK

[Guest guest]

Hi there,

When we began TD-DMSA our son weighed about 42 lbs. His dose for TD-DMSA

was:

Original TD-DMSA strength of compounding was 90mg/ml

4 Hour dose would be .5ml (so 45mg of DMSA every four hours for three

days on, 11 days off)

Hope this is what you are needing... sorry if I have misunderstood what

you are asking below.

" marquisschembri " <marquisschembri@...>

Sent by:

01/12/2006 06:10 PM

Please respond to

To

cc

Subject

[ ] MY LAST AND FINALL Cry FOR HELP!!!! TD-DMSA USERS

Hi I am not going to use TD-DMSA, For the life of me I am in lost! I

am in tears crying because I am asking for help and no one seems to be

able to give me the amount of dosage they are giving their child, can

someone KINDLY please tell me what are they using every 4 hrs on a

child close to 40 lbs, I don't want anyone telling me to just divide

this a divide that etc. this is no help, I am at this alone her! My

math suchs so bad I may be giving my son the wrong dosage I might as

well throw it in the trash!!!!!than do this to him!!!!Anyone using TD-

DMSA on their child that weighs about 40 lbs, what amount should I

start out, that is safe for my son. THANK YOU

=======================================================

[Guest guest]

Well you need an RX for that, what did your doctor tell you? Please do not

use these products unless under a doctors care.

having said that, my son gets td-dmsa. but he is 80 pounds and wearenoton that

kind of schedule, he gets the 3 dose/day for 3 days on, 11 days off.

This list has high volume and this is the first time I have checked in in a

week. So hang in there and just keep posting, so one will reply.

> Hi I am not going to use TD-DMSA, For the life of me I am in lost! I

> am in tears crying because I am asking for help and no one seems to be

> able to give me the amount of dosage they are giving their child, can

> someone KINDLY please tell me what are they using every 4 hrs on a

> child close to 40 lbs, I don't want anyone telling me to just divide

> this a divide that etc. this is no help, I am at this alone her! My

> math suchs so bad I may be giving my son the wrong dosage I might as

> well throw it in the trash!!!!!than do this to him!!!!Anyone using TD-

> DMSA on their child that weighs about 40 lbs, what amount should I

> start out, that is safe for my son. THANK YOU

[Guest guest]

Valentina thanks, when I reread my post it dose sound

pathetic, I must admit. I wrote it during my bad

moment of the day, had a bad day hoping we were

getting our TD-DMSA today and we didn't, but then I

thought might as well because I do not really know

what amount to use to begin with and worried that I

will make another mistake with my dear son who needs

me to help him the best that I can. It sucks when you

are doing this alone!

--- Valentina Scharpf <val999@...> wrote:

---------------------------------

I am not using TD-DMPS, so I cannot help you, but I

just wanted to say that

somebody will answer your message.

Please stop crying.... I am sure somebody will try

again to help you.

I am very sorry you feel so sad because you didn't get

the exact help you

needed. I can assure you this is a very friendly list.

I think people just

didn't know what you needed exactly.

Valentina

> Hi I am not going to use TD-DMSA, For the life of

me I am in lost! I

> am in tears crying because I am asking for help and

no one seems to be

> able to give me the amount of dosage they are giving

their child, can

> someone KINDLY please tell me what are they using

every 4 hrs on a

> child close to 40 lbs, I don't want anyone telling

me to just divide

> this a divide that etc. this is no help, I am at

this alone her! My

> math suchs so bad I may be giving my son the wrong

dosage I might as

> well throw it in the trash!!!!!than do this to

him!!!!Anyone using TD-

> DMSA on their child that weighs about 40 lbs, what

amount should I

> start out, that is safe for my son. THANK YOU

=======================================================

[Guest guest]

You are an angel, thank you, I feel 100% better, and

now finally I am excited to receive our first TD-DMSA

bottle! God Bless

--- angela.shoemaker@... wrote:

---------------------------------

Hi there,

When we began TD-DMSA our son weighed about 42 lbs.

His dose for TD-DMSA

was:

Original TD-DMSA strength of compounding was 90mg/ml

4 Hour dose would be .5ml (so 45mg of DMSA every

four hours for three

days on, 11 days off)

Hope this is what you are needing... sorry if I have

misunderstood what

you are asking below.

" marquisschembri " <marquisschembri@...>

Sent by:

01/12/2006 06:10 PM

Please respond to

To

cc

Subject

[ ] MY LAST AND FINALL Cry FOR HELP!!!!

TD-DMSA USERS

Hi I am not going to use TD-DMSA, For the life of me

I am in lost! I

am in tears crying because I am asking for help and no

one seems to be

able to give me the amount of dosage they are giving

their child, can

someone KINDLY please tell me what are they using

every 4 hrs on a

child close to 40 lbs, I don't want anyone telling me

to just divide

this a divide that etc. this is no help, I am at this

alone her! My

math suchs so bad I may be giving my son the wrong

dosage I might as

well throw it in the trash!!!!!than do this to

him!!!!Anyone using TD-

DMSA on their child that weighs about 40 lbs, what

amount should I

start out, that is safe for my son. THANK YOU

=======================================================

[Guest guest]

I am not using TD-DMPS, so I cannot help you, but I just wanted to say that

somebody will answer your message.

Please stop crying.... I am sure somebody will try again to help you.

I am very sorry you feel so sad because you didn't get the exact help you

needed. I can assure you this is a very friendly list. I think people just

didn't know what you needed exactly.

Valentina

> Hi I am not going to use TD-DMSA, For the life of me I am in lost! I

> am in tears crying because I am asking for help and no one seems to be

> able to give me the amount of dosage they are giving their child, can

> someone KINDLY please tell me what are they using every 4 hrs on a

> child close to 40 lbs, I don't want anyone telling me to just divide

> this a divide that etc. this is no help, I am at this alone her! My

> math suchs so bad I may be giving my son the wrong dosage I might as

> well throw it in the trash!!!!!than do this to him!!!!Anyone using TD-

> DMSA on their child that weighs about 40 lbs, what amount should I

> start out, that is safe for my son. THANK YOU

[Guest guest]

20 drops MAXIMUM dosage every 4 hours. Start at 3-5 drops and GRADUALLY work

your way up. (This is a marathon...not a sprint...go slow)

3 days on & 4 or 11 days off....give minerals everyday.

Suggestion:

Round 1- 3drops

Round 2-5 drops

3-5

4-5

5-8

6-8

7-8

8-8

9-10

10-10

11-10

12-10

At round 16 with TD DMPS I'm still at 1/2 dose and it seems to be

appropriate for my 3.2 yr old 34 pounder....does age & weight have anything

to do with going full dose or staying at 1/2 or lower....don't know...but

its working and we've conquered yeast & constipation ...gonna keep at 1/2

dosage for a while.

I use TD-DMPS but using the calculations at:

http://home.earthlink.net/~moriam/Andy_dose_sched.html#dosage

The above should be the appropriate dosage. 1 drop is usually 1 mg.

MAXIMUM for a child 40 pounds is 20 mg = 20 drops per dosage...... but start

low and bring dosage up...start about 3-5 drops, you'll probably level off

at 13-15 drops tops per dosage

Anyone else feel free to chime in.

PS. Have yeast protocol ready !!! (If you have Kirkmans Yeast Aid...GIVE IT)

Be prepared for constipation around round 3.

*Go to: ATEC

https://www.autismeval.com/ari-atec/

Give yourself an evaluation baseline & do it every few weeks.....Autism

Treatment Evaluation Checklist.

Lillian

fjennings@...

fldofdrms@...

Re: [ ] MY LAST AND FINALL Cry FOR HELP!!!! TD-DMSA

USERS

> , please don't worry about how you sound... on this list we usually

> understand. We've all been there, one way or another. I was just trying to

> calm you down... I really felt sorry for you. Believe me, I felt just like

> you

> and not just once. And I was also alone. And no doctor, and in a different

> country, where nobody that I ever talked to heard about metals being

> involved

> in autism. The only thing I had was this list.

> So I absolutely know how you feel sometimes....

> But don't despair. You're not alone anymore. Now you have us, this list...

> Believe me, some of the people here are just extraordinary.

>

>

> Valentina

>

>

>

>> Valentina thanks, when I reread my post it dose sound

>> pathetic, I must admit. I wrote it during my bad

>> moment of the day, had a bad day hoping we were

>> getting our TD-DMSA today and we didn't, but then I

>> thought might as well because I do not really know

>> what amount to use to begin with and worried that I

>> will make another mistake with my dear son who needs

>> me to help him the best that I can. It sucks when you

>> are doing this alone!

>>

>> --- Valentina Scharpf <val999@...> wrote:

>>

>> ---------------------------------

>> I am not using TD-DMPS, so I cannot help you, but I

>> just wanted to say that

>> somebody will answer your message.

>> Please stop crying.... I am sure somebody will try

>> again to help you.

>> I am very sorry you feel so sad because you didn't get

>> the exact help you

>> needed. I can assure you this is a very friendly list.

>> I think people just

>> didn't know what you needed exactly.

>>

>> Valentina

>>

>> > Hi I am not going to use TD-DMSA, For the life of

>> me I am in lost! I

>> > am in tears crying because I am asking for help and

>> no one seems to be

>> > able to give me the amount of dosage they are giving

>> their child, can

>> > someone KINDLY please tell me what are they using

>> every 4 hrs on a

>> > child close to 40 lbs, I don't want anyone telling

>> me to just divide

>> > this a divide that etc. this is no help, I am at

>> this alone her! My

>> > math suchs so bad I may be giving my son the wrong

>> dosage I might as

>> > well throw it in the trash!!!!!than do this to

>> him!!!!Anyone using TD-

>> > DMSA on their child that weighs about 40 lbs, what

>> amount should I

>> > start out, that is safe for my son. THANK YOU

>>

>> =======================================================

>>

[Guest guest]

, please don't worry about how you sound... on this list we usually

understand. We've all been there, one way or another. I was just trying to

calm you down... I really felt sorry for you. Believe me, I felt just like you

and not just once. And I was also alone. And no doctor, and in a different

country, where nobody that I ever talked to heard about metals being involved

in autism. The only thing I had was this list.

So I absolutely know how you feel sometimes....

But don't despair. You're not alone anymore. Now you have us, this list...

Believe me, some of the people here are just extraordinary.

Valentina

> Valentina thanks, when I reread my post it dose sound

> pathetic, I must admit. I wrote it during my bad

> moment of the day, had a bad day hoping we were

> getting our TD-DMSA today and we didn't, but then I

> thought might as well because I do not really know

> what amount to use to begin with and worried that I

> will make another mistake with my dear son who needs

> me to help him the best that I can. It sucks when you

> are doing this alone!

>

> --- Valentina Scharpf <val999@...> wrote:

>

> ---------------------------------

> I am not using TD-DMPS, so I cannot help you, but I

> just wanted to say that

> somebody will answer your message.

> Please stop crying.... I am sure somebody will try

> again to help you.

> I am very sorry you feel so sad because you didn't get

> the exact help you

> needed. I can assure you this is a very friendly list.

> I think people just

> didn't know what you needed exactly.

>

> Valentina

>

> > Hi I am not going to use TD-DMSA, For the life of

> me I am in lost! I

> > am in tears crying because I am asking for help and

> no one seems to be

> > able to give me the amount of dosage they are giving

> their child, can

> > someone KINDLY please tell me what are they using

> every 4 hrs on a

> > child close to 40 lbs, I don't want anyone telling

> me to just divide

> > this a divide that etc. this is no help, I am at

> this alone her! My

> > math suchs so bad I may be giving my son the wrong

> dosage I might as

> > well throw it in the trash!!!!!than do this to

> him!!!!Anyone using TD-

> > DMSA on their child that weighs about 40 lbs, what

> amount should I

> > start out, that is safe for my son. THANK YOU

>

> =======================================================

>

[Guest guest]

This dose might change if you are not getting your TD-DMSA from Lee

Silsby: my son weighs 45 lbs. My Lee Silsby TD-DMSA contains 200 mgs

DMSA per ml. I give my son .4 ml every 4 hours. That is about 67 mgs

DMSA per dose.

He does very well on this dose. I do not have an overly sensitive

child. He has not had *any* regressions or complications after 12

rounds. Some will say 67 mgs DMSA is way too much for a child that

size. I agree: if you are using oral DMSA. I believe much less DMSA

enters the body through the skin, so doses can safely be higher.

Good luck to you. For us, it is not so big of a deal exactly how much

DMSA he gets, but instead that I give it to him every 4 hours. I

think my son would do well on .3 ml or .5 ml, too.

I agree with : what did your doctor say? Is there a reason why

you don't want to follow his/her recommendation? I am sorry you are

so worried about starting chelation. Hopefully, a successful first

round will calm your nerves.

Pam

>

> Hi I am not going to use TD-DMSA, For the life of me I am in lost!

I

> am in tears crying because I am asking for help and no one seems to

be

> able to give me the amount of dosage they are giving their child,

can

> someone KINDLY please tell me what are they using every 4 hrs on a

> child close to 40 lbs, I don't want anyone telling me to just divide

> this a divide that etc. this is no help, I am at this alone her! My

> math suchs so bad I may be giving my son the wrong dosage I might as

> well throw it in the trash!!!!!than do this to him!!!!Anyone using

TD-

> DMSA on their child that weighs about 40 lbs, what amount should I

> start out, that is safe for my son. THANK YOU

>

[Guest guest]

Hi, go this web forum. You dont even have to join. They are very

good at answering questions as well: www.autismweb.com

>

> Hi there,

>

> When we began TD-DMSA our son weighed about 42 lbs. His dose for

TD-DMSA

> was:

>

> Original TD-DMSA strength of compounding was 90mg/ml

>

> 4 Hour dose would be .5ml (so 45mg of DMSA every four hours for

three

> days on, 11 days off)

>

> Hope this is what you are needing... sorry if I have misunderstood

what

> you are asking below.

>

>

>

>

>

>

>

>

>

> " marquisschembri " <marquisschembri@y...>

> Sent by:

> 01/12/2006 06:10 PM

> Please respond to

>

>

>

> To

>

> cc

>

> Subject

> [ ] MY LAST AND FINALL Cry FOR HELP!!!! TD-DMSA

USERS

>

>

>

>

>

>

> Hi I am not going to use TD-DMSA, For the life of me I am in

lost! I

> am in tears crying because I am asking for help and no one seems

to be

> able to give me the amount of dosage they are giving their child,

can

> someone KINDLY please tell me what are they using every 4 hrs on a

> child close to 40 lbs, I don't want anyone telling me to just

divide

> this a divide that etc. this is no help, I am at this alone her!

My

> math suchs so bad I may be giving my son the wrong dosage I might

as

> well throw it in the trash!!!!!than do this to him!!!!Anyone using

TD-

> DMSA on their child that weighs about 40 lbs, what amount should I

> start out, that is safe for my son. THANK YOU

>

>

>

>

>

> =======================================================

>