Re: If You Are Considering IV EDTA Chelation / CaEDTA NaEDTA MMWR.pdf

[Guest guest]

As I understand it EDTA period is a non-effectual drum roll. DMSA is a far

better chelator for lead, and it gets some mercury, too! If mercury toxicity is

determined to be the problem DMPS and ALA are the essential chelators.

They are safe provided you administer them on a safe protocol.

[ ] If You Are Considering IV EDTA Chelation / CaEDTA

NaEDTA MMWR.pdf

http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5508a3.htm

For those considering EDTA chelation please take notice; Use Calcium

EDTA only

Many of you already are aware of this but for those who are considering

EDTA chelation this cannot be stressed too strongly: Calcium EDTA is

the right form of EDTA for IV EDTA chelation for children with heavy

metal toxicity. Some doctors who use chelation to decalcify adult heart

patients use a different for of EDTA called disodium EDTA. The purpose

of this form of EDTA is to remove calcium from the body but that is not

what children with heavy metal toxicity are using it for.

The wrong form of EDTA will kill your child, as it did in Pittsburgh

recently, because it deprives the body of calcium and will result in

heart failure. The condition is called hypocalcemia.

Another form of disodium EDTA uses the trade name ENDRATE - this is

used in cancer to deprive tumors of calcium. This too is the wrong form

of EDTA.

You need to use CaEDTA or Calcium EDTA.

Some health practitioners, especially those who do not regularly use

chelation for children are not aware of this.

The CDC MMWR explains all this. The url is above and a pdf of the MMWR

report is attached. The CDC was right to put this information out

there to protect children. It is not a ploy to denigrate chelation.

Most importantly, consult a doctor who knows what he is doing. This

post is not medical advice which I am not competent to give - it is for

informational purposes only.

RJK

[Guest guest]

: Thank you for posting the "MMWR" from the CDC, regarding the confusion between the two forms of EDTA, which are used for different purposes. It all makes sense, when one reads the MMWR, but I do wonder who managed to reduce the information that was contained in that MMWR, to what appeared in some of our newspapers, both in the USA and in Canada. Here is what we ended up with, in "The Toronto Sun": ATLANTA -- A drug that is sometimes used to treat lead poisoning -- and is also believed by some parents to be effective against autism -- caused the deaths of two children last year, the U.S. government said yesterday. One youngster was autistic; the other had lead poisoning. Both were treated with a product called Endrate. Their deaths mark the first documented link between a chelation drug and cardiac arrest in children. ----------------------------------------------------------------------------------------------------------- It took me a bit of time and research on the computer after school, to realize that Endrate is NOT a drug which is supposed to be used to treat lead poisoning. I decided to look into it because I wondered whether this had anything to do with Abubakar Nadama's demise, due to the wrong form of EDTA being used as a chelator for him. Sure enough, it did, and I would have really appreciated it, if our newpapers could have done a more thorough or detailed job of reporting about the use of Endrate as a "chelator", when it was obviously used in error in these cases. I am not a journalist but there is no way, that I could have read the CDC's MMWR and have come up with a "summary" like the one which appeared in my local newspaper. More explanation or clarification would have been in order, especially for the people who will be reading

this short article (if you can even call it that) and have some clue about autism, and may be considering chelation for their children. This bit of lousy reporting reminds me of what our newspapers reported back in May, 2004, when they were all too quick to report that the IOM had found no connections between vaccines and autism. The journalists did not even touch upon the various presentations which were made at the IOM Vaccine Safety Committee hearings on February 9th, 2004. If any of us parents were to listen to the audio and videofiles of what was actually presented, there was considerable material/information/evidence to implicate the role of thimerosal in vaccines as a contributor to autism and other neurological disorders. Yet, it seems like the journalists who were reporting about this meeting, either did not grasp what was going on, or for some reason could not stomach the idea that there may be more to this story than would be

"safe" for them to tell, or for some other reason, decided not to tell it. Perhaps you are correct, ...maybe the CDC is not trying to denigrate chelation. I can understand what was posted in their MMWR, but I wonder what other parents are thinking or wondering about "chelation" , after reading much shorter newspaper articles which were posted about this issue, without the accompanying explanations and/or clarifications. Some "damage control" may be in order here. I hope you don't mind if I pass on the CDC's MMWR, which you provided us with, to the folks who sent me the barebones "article" about Endrate. I don't think they know much about the different types of EDTA...they're more concerned about getting "government-funded" ABA for their kids at school. From what I read recently, I see that getting insurance companies to pay for ABA therapy is becoming an issue in the States, or at

least in one state. Good Luck!! We aren't having much luck with this endeavour here in Canada, not after age 6, anyway. Right now, some folks in our country are trying to get the provincial Ministries of Health and Education to provide ABA services for school-aged children with autism, to children who are now in the school system, some of whom have not had any prior services because they literally spent years, languishing on wait lists for government-funded services. This is going to take some time, considerable time, because our current government has decided to fight these parents, parents of children who have been diagnosed with autism. (And EEEKS, they are probably using our not-so-well-spent tax dollars to do that!...more punishment after the fact, for the rest of us...) AASA Aasa " J. Krakow" <rkrakow@...> wrote: http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5508a3.htmFor those considering EDTA chelation please take notice; Use Calcium EDTA onlyMany of you already are aware of this but for those who are considering EDTA chelation this cannot be stressed too strongly: Calcium EDTA is the right form of EDTA for IV EDTA chelation for children with heavy metal toxicity. Some doctors who use chelation to decalcify adult heart patients use a different for of EDTA called disodium EDTA. The purpose of this form of EDTA is to remove calcium from the body but that is not what children with heavy metal toxicity are using it for.The wrong form of EDTA will kill your child, as it did in Pittsburgh recently, because it deprives the body of calcium and will result in heart failure. The condition is called hypocalcemia.Another form of disodium EDTA uses the

trade name ENDRATE - this is used in cancer to deprive tumors of calcium. This too is the wrong form of EDTA.You need to use CaEDTA or Calcium EDTA.Some health practitioners, especially those who do not regularly use chelation for children are not aware of this.The CDC MMWR explains all this. The url is above and a pdf of the MMWR report is attached. The CDC was right to put this information out there to protect children. It is not a ploy to denigrate chelation.Most importantly, consult a doctor who knows what he is doing. This post is not medical advice which I am not competent to give - it is for informational purposes only.RJK

[Guest guest]

The Toronto Sun should print a correction – their article is either a

product of incompetence or they were misled by someone. Even though the

CDC's MMWR report may be accurate there still exists the possibity that

representatives of the CDC or otherwise connected to the controversy

used the opportunity to put a public relations spin utilizing the

confusion about the chelating agents.

Please use the information as you wish - maybe the Toronto Sun reporter

will be responsible - and embarrassed - enough over his/her bad

reporting to make it right.

By the way, when I state that the CDC is not trying to denigrate

chelation my statement applied to the MMWR report only - there is no

question that elsewhere the CDC has condemned chelation for our

children, and has ridiculed its use.

As you see for yourself, however, the MMWR report appears accurate and

helpful. There is no doubt in my mind that a child somewhere will be

saved because the right information about Endrate and Na2EDTA was

distributed.

On Mar 4, 2006, at 7:43 PM, Aasa wrote:

> :

>  

> Thank you for posting the " MMWR " from the CDC, regarding the confusion

> between the two forms of EDTA, which are used for different purposes.

> It all makes sense, when one reads the MMWR, but I do wonder who

> managed to reduce the information that was contained in that MMWR, to

> what appeared in some of our newspapers, both in the USA and in

> Canada. Here is what we ended up with, in " The Toronto Sun " :

>  

> ATLANTA -- A drug that is sometimes used to treat lead poisoning --

> and is also believed by some parents to be effective against autism --

> caused the deaths of two children last year, the U.S. government said

> yesterday.

> One youngster was autistic; the other had lead poisoning. Both were

> treated with a product called Endrate. Their deaths mark the first

> documented link between a chelation drug and cardiac arrest in

> children.

> -----------------------------------------------------------------------

> ------------------------------------

>  

> It took me a bit of time and research on the computer after school, to

> realize that Endrate is NOT a drug which is supposed to be used to

> treat lead poisoning. I decided to look into it because I wondered

> whether this had anything to do with Abubakar Nadama's demise, due to

> the wrong form of EDTA being used as a chelator for him. Sure enough,

> it did, and I would have really appreciated it, if our newpapers could

> have done a more thorough or detailed job of reporting about the use

> of Endrate as a " chelator " , when it was obviously used in error in

> these cases. I am not a journalist but there is no way, that I could

> have read the CDC's MMWR and have come up with a " summary " like the

> one which appeared in my local newspaper. More explanation or

> clarification would have been in order, especially for the people who

> will be reading this short article (if you can even call it that) and

> have some clue about autism, and may be considering chelation for

> their children.

>  

> This bit of lousy reporting reminds me of what our newspapers reported

> back in May, 2004, when they were all too quick to report that the IOM

> had found no connections between vaccines and autism. The journalists

> did not even touch upon the various presentations which were made at

> the IOM Vaccine Safety Committee hearings on February 9th, 2004. If

> any of us parents were to listen to the audio and videofiles of what

> was actually presented, there was considerable

> material/information/evidence to implicate the role of thimerosal in

> vaccines as a contributor to autism and other neurological disorders.

> Yet, it seems like the journalists who were reporting about this

> meeting, either did not grasp what was going on, or for some reason

> could not stomach the idea that there may be more to this story than

> would be " safe " for them to tell, or for some other reason, decided

> not to tell it. 

>  

> Perhaps you are correct, ...maybe the CDC is not trying to

> denigrate chelation. I can understand what was posted in their MMWR,

> but I wonder what other parents are thinking or wondering about

> " chelation " , after reading much shorter newspaper articles which were

> posted about this issue, without the accompanying explanations and/or

> clarifications.

>  

> Some " damage control " may be in order here. I hope you don't mind if I

> pass on the CDC's MMWR, which you provided us with, to the folks who

> sent me the barebones " article " about Endrate. I don't think they

> know much about the different types of EDTA...they're more concerned

> about getting " government-funded " ABA for their kids at school. From

> what I read recently, I see that getting insurance companies to pay

> for ABA therapy is becoming an issue in the States, or at least in

> one state. Good Luck!! We aren't having much luck with this endeavour

> here in Canada, not after age 6, anyway. Right now, some folks in our

> country are trying to get the provincial Ministries of Health and

> Education to provide ABA services for school-aged children with

> autism, to children who are now in the school system, some of whom

> have not had any prior services because they literally spent years,

> languishing on wait lists for government-funded services. This is

> going to take some time, considerable time, because our current

> government has decided to fight these parents, parents of children who

> have been diagnosed with autism. (And EEEKS, they are probably using

> our not-so-well-spent tax dollars to do that!...more punishment after

> the fact, for the rest of us...)

>  

> AASA

>  

> Aasa 

>

>

> " J. Krakow " <rkrakow@...> wrote:

>>

>>

>> http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5508a3.htm

>>

>> For those considering EDTA chelation please take notice; Use Calcium

>> EDTA only

>>

>> Many of you already are aware of this but for those who are

>> considering

>> EDTA chelation this cannot be stressed too strongly: Calcium EDTA is

>> the right form of EDTA for IV EDTA chelation for children with heavy

>> metal toxicity. Some doctors who use chelation to decalcify adult

>> heart

>> patients use a different for of EDTA called disodium EDTA. The purpose

>> of this form of EDTA is to remove calcium from the body but that is

>> not

>> what children with heavy metal toxicity are using it for.

>>

>> The wrong form of EDTA will kill your child, as it did in Pittsburgh

>> recently, because it deprives the body of calcium and will result in

>> heart failure. The condition is called hypocalcemia.

>>

>> Another form of disodium EDTA uses the trade name ENDRATE - this is

>> used in cancer to deprive tumors of calcium. This too is the wrong

>> form

>> of EDTA.

>>

>> You need to use CaEDTA or Calcium EDTA.

>>

>> Some health practitioners, especially those who do not regularly use

>> chelation for children are not aware of this.

>>

>> The CDC MMWR explains all this. The url is above and a pdf of the MMWR

>> report is attached. The CDC was right to put this information out

>> there to protect children. It is not a ploy to denigrate chelation.

>>

>> Most importantly, consult a doctor who knows what he is doing. This

>> post is not medical advice which I am not competent to give - it is

>> for

>> informational purposes only.

>>

>> RJK

>

>

>

>

[Guest guest]

The people that are doing IV-EDTA are typically doing so because

DMSA and DMPS were ineffective. Also, it seems to be the case that

for some kids on the spectrum, lead not mercury is the primary

culprit. We have gotten much better pulls of lead and mercury from

EDTA than from DMSA, DMPS or ALA.

Darren

>

> As I understand it EDTA period is a non-effectual drum roll. DMSA

is a far better chelator for lead, and it gets some mercury, too! If

mercury toxicity is determined to be the problem DMPS and ALA are

the essential chelators.

>

> They are safe provided you administer them on a safe protocol.

> [ ] If You Are Considering IV EDTA

Chelation / CaEDTA NaEDTA MMWR.pdf

>

>

>

>

> http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5508a3.htm

>

> For those considering EDTA chelation please take notice; Use

Calcium

> EDTA only

>

> Many of you already are aware of this but for those who are

considering

> EDTA chelation this cannot be stressed too strongly: Calcium

EDTA is

> the right form of EDTA for IV EDTA chelation for children with

heavy

> metal toxicity. Some doctors who use chelation to decalcify

adult heart

> patients use a different for of EDTA called disodium EDTA. The

purpose

> of this form of EDTA is to remove calcium from the body but that

is not

> what children with heavy metal toxicity are using it for.

>

> The wrong form of EDTA will kill your child, as it did in

Pittsburgh

> recently, because it deprives the body of calcium and will

result in

> heart failure. The condition is called hypocalcemia.

>

> Another form of disodium EDTA uses the trade name ENDRATE - this

is

> used in cancer to deprive tumors of calcium. This too is the

wrong form

> of EDTA.

>

> You need to use CaEDTA or Calcium EDTA.

>

> Some health practitioners, especially those who do not regularly

use

> chelation for children are not aware of this.

>

> The CDC MMWR explains all this. The url is above and a pdf of

the MMWR

> report is attached. The CDC was right to put this information

out

> there to protect children. It is not a ploy to denigrate

chelation.

>

> Most importantly, consult a doctor who knows what he is doing.

This

> post is not medical advice which I am not competent to give - it

is for

> informational purposes only.

>

> RJK

>

>

>

[Guest guest]

>

> The people that are doing IV-EDTA are typically doing so because

> DMSA and DMPS were ineffective. Also, it seems to be the case that

> for some kids on the spectrum, lead not mercury is the primary

> culprit. We have gotten much better pulls of lead and mercury from

> EDTA than from DMSA, DMPS or ALA.

>

> Darren

>

Please see message #55544.

/message/55544

[Guest guest]

This is something with which I respectfully disagree with Andy.

There are hundreds if not thousands of kids on the spectrum using

EDTA, primarily in TD form. I have yet to hear of any adverse

reactions other than minor skin irritation in a very small number of

kids. Also, I think it is important to keep in mind that there are

different types of EDTA. The calcium form of EDTA, what is used in

the autism world, pulls mercury quite well. Even the CDC has said

it is safe for use by autistic children. The disodium version, what

is used by alternative doctors on adults, does not pull mercury and

would be an unsafe form of chelation for an autistic child. (I

wonder if Andy's comments are foccused on the Na2 form of EDTA?) We

have gotten better pulls of mercury and lead from CaNa2EDTA than

DMSA, DMPS or ALA. The clinical results have also been vastly

better with EDTA. I'm not saying everyone will have these result,

but for my kids, EDTA is a far better (and safe) chelator.

Darren

> >

> > The people that are doing IV-EDTA are typically doing so because

> > DMSA and DMPS were ineffective. Also, it seems to be the case

that

> > for some kids on the spectrum, lead not mercury is the primary

> > culprit. We have gotten much better pulls of lead and mercury

from

> > EDTA than from DMSA, DMPS or ALA.

> >

> > Darren

> >

>

> Please see message #55544.

> /message/55544

>

[Guest guest]

> This is something with which I respectfully disagree with Andy.

I appreciate the people who can simply disagree on things without

having to load a lot of emotion onto it!

> There are hundreds if not thousands of kids on the spectrum using

> EDTA, primarily in TD form. I have yet to hear of any adverse

> reactions other than minor skin irritation in a very small number of

> kids. Also, I think it is important to keep in mind that there are

> different types of EDTA. The calcium form of EDTA, what is used in

> the autism world, pulls mercury quite well. Even the CDC has said

> it is safe for use by autistic children. The disodium version, what

> is used by alternative doctors on adults, does not pull mercury and

> would be an unsafe form of chelation for an autistic child. (I

> wonder if Andy's comments are foccused on the Na2 form of EDTA?) We

> have gotten better pulls of mercury and lead from CaNa2EDTA than

> DMSA, DMPS or ALA. The clinical results have also been vastly

> better with EDTA. I'm not saying everyone will have these result,

> but for my kids, EDTA is a far better (and safe) chelator.

>

> Darren

I am completely familiar with all the forms of EDTA, with what they do

and don't do, etc.

As discussed before, the confusion that occurs due to people not doing

mass balance calculations and not appreciating the different body

compartments, but rather evaluating test results naively is quite high

and can be very misleading.

I guess we will have to agree to disagree, though I am glad to hear

that what you are doing is working for your child. Too many people

seem to get involved in advocacy and being disrespectful of others to

remember that this is all about sick children who deserve to get better.

Andy . . . . .. . . .

[Guest guest]

--- Darren, so are you using the TD form? Have you also tried the

IV? Thanks, Olivia

In , " Darren " <darrenstucker@...> wrote:

>

> This is something with which I respectfully disagree with Andy.

> There are hundreds if not thousands of kids on the spectrum using

> EDTA, primarily in TD form. I have yet to hear of any adverse

> reactions other than minor skin irritation in a very small number

of

> kids. Also, I think it is important to keep in mind that there are

> different types of EDTA. The calcium form of EDTA, what is used in

> the autism world, pulls mercury quite well. Even the CDC has said

> it is safe for use by autistic children. The disodium version,

what

> is used by alternative doctors on adults, does not pull mercury and

> would be an unsafe form of chelation for an autistic child. (I

> wonder if Andy's comments are foccused on the Na2 form of EDTA?)

We

> have gotten better pulls of mercury and lead from CaNa2EDTA than

> DMSA, DMPS or ALA. The clinical results have also been vastly

> better with EDTA. I'm not saying everyone will have these result,

> but for my kids, EDTA is a far better (and safe) chelator.

>

> Darren

>

>

> > >

> > > The people that are doing IV-EDTA are typically doing so

because

> > > DMSA and DMPS were ineffective. Also, it seems to be the case

> that

> > > for some kids on the spectrum, lead not mercury is the primary

> > > culprit. We have gotten much better pulls of lead and mercury

> from

> > > EDTA than from DMSA, DMPS or ALA.

> > >

> > > Darren

> > >

> >

> > Please see message #55544.

> > /message/55544

> >

>

[Guest guest]

We've used EDTA suppositorites (Detoxamin and Hopewell) and are just

starting to do IVs.

> > > >

> > > > The people that are doing IV-EDTA are typically doing so

> because

> > > > DMSA and DMPS were ineffective. Also, it seems to be the

case

> > that

> > > > for some kids on the spectrum, lead not mercury is the

primary

> > > > culprit. We have gotten much better pulls of lead and

mercury

> > from

> > > > EDTA than from DMSA, DMPS or ALA.

> > > >

> > > > Darren

> > > >

> > >

> > > Please see message #55544.

> > > Autism-

Mercury/message/55544

> > >

> >

>