Jump to content
RemedySpot.com
Sign in to follow this  
Guest guest

Re:liver sarcoid

Rate this topic

Recommended Posts

Guest guest

Hi Pomy,

I’ve had extensive liver involvement. They

diagnosed mine (I actually have a color photo of it) when I had my gall bladder

taken out two years ago. The surgeon took the picture and gave it to me. It

had Sarc white nodules all over it and they said it obviously was full of them

also. It looks like a big pink blob with white polka dots! LOL

They’ve always been able to see if my sarc is back in the liver and other

organs by doing a special CT scan. You might ask about that. If you

don’t like steroids and you have what is considered to be a severe case

of sarc, some insurance will pay for the Remicade infusions. My United

Health Care paid, right away. I started doing methotrexate injections

along with Remicade infusions almost 2 years ago. I had Sarc in just

about every place it can possibly be. The Remicade seems to have put the

Sarc at bay. There is no sign of it anywhere right now. My

rheumatologist is starting to wean me off of it, because he wants to see if it

will return. I refused to do steroids as I’m very prone to diabetes

(had it during all pregnancies and family history of it) and also gained 50

pounds from I.V. solumedrol. Lucky for me, my insurance agreed I

was a rare case of Sarcoidosis that needed all the help I could get and paid

for the Remicade no questions asked. I hope you can find what is

happening and if it’s your liver or not.

Diane in Texas

Share this post


Link to post
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
Sign in to follow this  

×
×
  • Create New...