Re: thyroid, Terri

[Guest guest]

Terri,

I hope you find some kind of treatment that works. When you said the rheumy is going to "let you have" the injection of Prednisone.. like that's a treat to have.

I do not remember did you try Imuran? or Cellcept ?

lots of hugs and blessings

Hey Guys,Is the thyroid suseptible to sarcoid. I am still having lots ofnegative blood tests and MRI's but the vitamin D and thyroid are off. Iam starting up with this new rheumatologist and my first visit shebrought up the fact that one idiot thought it was in my head and alsosaid that I looked healthy as a horse. Doesn't bode well for me doesit?I am trying not to get upset; I am seeing her next week. She doesn'tknow that I know the MRI's just showed arthritis. Another doc let itslip (they were not aware I had not received the results yet) during avisit. She is going to let me have a prednisone IM injection but shewill discuss treatment with me next week.Please say a prayer for me that there will be some type of resolution. I have accepted the fact that I will not be able to get Cytoxan anymorebut there has got to be something out there for me. I had evenentertained the idea during the cytoxan treatment that I may be able togo back to work or to school. That is out now....Well, thanks for listening guys. I really appreciate it.Terri G.

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[Guest guest]

,

I did try Imuran. I had a very low white count and my lft's were going

up so I had to come off. The new rheumy did talk a little about

cellcept. The injection will be stop gap. I do worry about the effects

on my bones with the steriods since I have been on it off and on for so

long. I had a bone scan last year and even though it was normal, I did

have some loss in the hips.

Thanks so much for caring. I am seeing my therapist tomorrow and I am

glad. I am so upset with what is going on that I could just scream. I

just can't go through this crap again.

Terri G.

>

> Terri,

> I hope you find some kind of treatment that works. When you said the

rheumy is going to " let you have " the injection of Prednisone.. like

that's a treat to have.

> I do not remember did you try Imuran? or Cellcept ?

> lots of hugs and blessings

>

>

>

>

>

> In a message dated 09/17/08 18:07:29 Eastern Daylight Time,

mosaicgirl1@... writes:

>

> Hey Guys,

>

> Is the thyroid suseptible to sarcoid. I am still having lots of

> negative blood tests and MRI's but the vitamin D and thyroid are off.

I

> am starting up with this new rheumatologist and my first visit she

> brought up the fact that one idiot thought it was in my head and also

> said that I looked healthy as a horse. Doesn't bode well for me does

> it?

>

> I am trying not to get upset; I am seeing her next week. She doesn't

> know that I know the MRI's just showed arthritis. Another doc let it

> slip (they were not aware I had not received the results yet) during a

> visit. She is going to let me have a prednisone IM injection but she

> will discuss treatment with me next week.

>

> Please say a prayer for me that there will be some type of resolution.

> I have accepted the fact that I will not be able to get Cytoxan

anymore

> but there has got to be something out there for me. I had even

> entertained the idea during the cytoxan treatment that I may be able

to

> go back to work or to school. That is out now....

>

> Well, thanks for listening guys. I really appreciate it.

>

> Terri G.

>