Re: Question for Janice

[Guest guest]

Dana,

I believe that casien removal was an enormous benefit BUT... I have heard from

various specialists that I trust that organic Goats products are okay. The

casien is different, apparently. Of course, the taste of goat simply grosses us

out!

This is what I do: I bought some kefir grains from The Happy Herbalist and am

now in the Kefir making business! I think the site is happyherbalist.com I

make up my morning health shake of ALL the healthy stuff: Newly added is the

Berry Greens, Kefir (made with coconut water..... I am now experimenting making

it with juice which seems to be working well), powdered vitamin C (to combat

that chronic constipation), frozen berries, a little juice and honey to taste.

I blend it up and serve with the daily supplements.

Note that with the kefir, you need to use very small amounts in the beginning

since it will cause a tummy ache. Go slow and work up.

I started initially with the probiotics and really attribute my child's healing

to this magical stuff. It is no good getting it at your local nutrition store

as they simply don't carry the probiotics which have therapeutic doses. In

addition, if it's not in the refridgerator, it is garbage and don't even look at

it. I currently use VSL #3 probiotics which is a super-strength probiotic with

250 billion live bacteria specifically designed for people with colitis & IBS.

I ordered it from Spectrum supplements (www.spectrumsupplements.com) and use the

capsule form (not the powered). This stuff is pricey! (Isn't everything?) It

was recommended on a Autism Audio Lecture from Great Plains Lab. Note that this

probiotic has small amounts of casien in it but apparently Kirkman Labs also has

a high quality probiotic with no casien. We haven't had any issues with the

casien in this product and Mark has been able to handle it.

The next thing that I'm going to try is fermented foods.... when I get the time!

I am a real crazy woman these days and just have too many things on my 'to-do

list' to be fermenting in the kitchen just yet. BUT, apparently fermented foods

work wonders on our childrens' tummies.

The Enviro doc said something that made sense to me. He said for a baby to be

so allergic to milk in this fashion so young is indicative of a deeper problem

inside the system. We need to find out what that deeper problem is and get to

the root of it. But, we start with healing the tummy which is where the milk

has done damage....

In addition to all of this, I ensure that Mark takes a digestive enzyme with

everything that he eats (almost). I let really, really small snacks go. We

have recently added back gluten to our diet (2nd try) and he 'seems' to be able

to tolerate it now with the use of the enzymes from Huston Nutraceuticals (love

the stuff). There have been no constipation issues or tummy aches etc. I be

sure to only test him when he is at home. At school this week, I kept him GFCF.

I am just experimenting with this at this time and will reverse my opinion if I

see ANY regression.

So.... essential items for our milk intolerant babies as I see it are: kefir

drink (work up slowly), a high quality probiotic, high quality digestive enzymes

taken with all food.

You all remember 2 months ago when I was ripping my hair out over Marks bowel

issues; this combo seems to have done the trick.... for now.

Next item that I am working on is: (Ta DAAAA) GAS! and acid-reflux! The kid

is currently a farting/burping machine. (oh, will it never end)!

Janice

[sPAM] [ ] Question for Janice

Janice,

Thank you for all you have shared about what has helped your son. I really

feel the speech apraxia and dyspraxia are holding my two boys back more than the

autism at this point. We have been SCD for over a year now. I know that they are

allergic to cow dairy but have continued to give them goat milk yogurt (that is

the only dairy they receive) to get some good probiotics in them. You have

mentioned that you guys are completely casein free and that has been a help in

the health of your son's ears. Do you think it would be in our benefit to just

go completely off of all dairy including the goat yogurt? What do you give your

son for probiotics?

I enjoy reading your posts and really appreciate all that you have to share

regarding the listening program and working so hard to keep your son's ears

healthy.

Thanks,

Dana

and Garrett, 3 years old as of Mar 24

SCD One Year!!!!!

Celiac, ASD, Speech and Motor Apraxia, sensory processing disorder

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

[Guest guest]

Vitamin C for chronic constipation????? Tell me more.

>

> Dana,

>

> I believe that casien removal was an enormous benefit BUT... I have

heard from various specialists that I trust that organic Goats

products are okay. The casien is different, apparently. Of course,

the taste of goat simply grosses us out!

>

> This is what I do: I bought some kefir grains from The Happy

Herbalist and am now in the Kefir making business! I think the site

is happyherbalist.com I make up my morning health shake of ALL the

healthy stuff: Newly added is the Berry Greens, Kefir (made with

coconut water..... I am now experimenting making it with juice which

seems to be working well), powdered vitamin C (to combat that chronic

constipation), frozen berries, a little juice and honey to taste. I

blend it up and serve with the daily supplements.

>

> Note that with the kefir, you need to use very small amounts in the

beginning since it will cause a tummy ache. Go slow and work up.

>

> I started initially with the probiotics and really attribute my

child's healing to this magical stuff. It is no good getting it at

your local nutrition store as they simply don't carry the probiotics

which have therapeutic doses. In addition, if it's not in the

refridgerator, it is garbage and don't even look at it. I currently

use VSL #3 probiotics which is a super-strength probiotic with 250

billion live bacteria specifically designed for people with colitis &

IBS. I ordered it from Spectrum supplements

(www.spectrumsupplements.com) and use the capsule form (not the

powered). This stuff is pricey! (Isn't everything?) It was

recommended on a Autism Audio Lecture from Great Plains Lab. Note

that this probiotic has small amounts of casien in it but apparently

Kirkman Labs also has a high quality probiotic with no casien. We

haven't had any issues with the casien in this product and Mark has

been able to handle it.

>

> The next thing that I'm going to try is fermented foods.... when I

get the time! I am a real crazy woman these days and just have too

many things on my 'to-do list' to be fermenting in the kitchen just

yet. BUT, apparently fermented foods work wonders on our childrens'

tummies.

>

> The Enviro doc said something that made sense to me. He said for a

baby to be so allergic to milk in this fashion so young is indicative

of a deeper problem inside the system. We need to find out what that

deeper problem is and get to the root of it. But, we start with

healing the tummy which is where the milk has done damage....

>

> In addition to all of this, I ensure that Mark takes a digestive

enzyme with everything that he eats (almost). I let really, really

small snacks go. We have recently added back gluten to our diet (2nd

try) and he 'seems' to be able to tolerate it now with the use of the

enzymes from Huston Nutraceuticals (love the stuff). There have been

no constipation issues or tummy aches etc. I be sure to only test

him when he is at home. At school this week, I kept him GFCF. I am

just experimenting with this at this time and will reverse my opinion

if I see ANY regression.

>

> So.... essential items for our milk intolerant babies as I see it

are: kefir drink (work up slowly), a high quality probiotic, high

quality digestive enzymes taken with all food.

>

> You all remember 2 months ago when I was ripping my hair out over

Marks bowel issues; this combo seems to have done the trick.... for

now.

>

> Next item that I am working on is: (Ta DAAAA) GAS! and acid-

reflux! The kid is currently a farting/burping machine. (oh, will

it never end)!

>

> Janice

> [sPAM] [ ] Question for Janice

>

>

>

> Janice,

>

> Thank you for all you have shared about what has helped your son.

I really feel the speech apraxia and dyspraxia are holding my two

boys back more than the autism at this point. We have been SCD for

over a year now. I know that they are allergic to cow dairy but have

continued to give them goat milk yogurt (that is the only dairy they

receive) to get some good probiotics in them. You have mentioned that

you guys are completely casein free and that has been a help in the

health of your son's ears. Do you think it would be in our benefit to

just go completely off of all dairy including the goat yogurt? What

do you give your son for probiotics?

>

> I enjoy reading your posts and really appreciate all that you

have to share regarding the listening program and working so hard to

keep your son's ears healthy.

>

> Thanks,

>

> Dana

> and Garrett, 3 years old as of Mar 24

> SCD One Year!!!!!

> Celiac, ASD, Speech and Motor Apraxia, sensory processing disorder

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>