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-,

Thank you so much for your reply. I think it is the time to take

care of myself. I went to the Bariatric Preop Class in Richmond

today, and I really thought it was very informative and there were

lots of inspiring people ready to have the surgery. I changed my

date to Nov. 7, two weeks later than my previous date because I can

connect my timeoff with Thanksgiving vacation. I'm happy about the

change for practical reasons, but I am jealous of the people I met

who are having it within a week.

Pam E.

- In gastric-bypass-support-kaiser-patients ,

MICHELLE URIBE wrote:

> Thank you so much for your kind words. I really hope you dont put

your surgery off for any reason. Ive come to learn in my few years

that you cant be of service to anyone else, if first you dont help

yourself. Im also a pleaser, and have always placed everyone else

before me, but now, its about me.. I hope all goes well for you.

My thoughts and prayers are with you..

>

> granela52 wrote:--

> Hi ,

>

> Welcome. I can relate to all your anxieties,and I really liked

> Robynn's reply. Someone from this group once told me that the

> emotional part of this journey is sometimes harder to adjust to

than

> the physical part. I really should be elated right now because I

> have more than met my preop goal weight,and I have a surgery date

in

> October. However,lately, because of pressures at work I sometimes

> feel like maybe I should put the surgery off for a while, and I

> really don't want to do that. I am so used to thinking about

others

> more than myself, and trying to be the " pleaser " that I have to

stop

> and remember to put myself first for once.

> Pam E.

> - In gastric-bypass-support-kaiser-patients ,

Robynn

> VanPatten wrote:

> > ...

> >

> > Congratulations on taking this brave step. It takes a lot to

get

> to this point. Of course you are anxious...you are worried that

> this surgery, which seems like the final resort...well, maybe it

> won't really work for you. And if that happens, then what? you

> will have exhausted your options.

> >

> > And maybe you are worried about giving up a part of your

> personality. i know, for me...I was worried about giving up the

> joie de vivre of eating and drinking with reckless abandon. You

> know...I mean, I'm the party girl, the hostess with the

> mostest...the woman with passion and gusto...and I was afraid that

I

> would become less of that...that I'd become less energetic. Less

of

> me.

> >

> > And maybe you are worried about letting go of your emotional

> companion...or your " drug " that helps you to cope with the

emotional

> issues in life. i choked down food because I had a lot of anger

> that I was unwilling to acknowledge. i was always an accomodator

> for other people, hiding my own needs and feelings...and then

eating

> to deal with my frustration, or loneliness, or sadness.

> >

> > And I had anxiety about whether I'd be a success or not. Also

> about How I would deal with sexual temptation when I didn't have

my

> fat suit of armour around me. As a survivor of child

> molestation...sometimes that fat around me felt like a protection.

> >

> > Finally...I was nervous about what woul dhappen to my health.

> Would I die? Would I be sick all of the time? Who would I be?

> Would I be able to handle the limitations?

> >

> > OK...so here I am today, after having had the surgery on June

8th

> of this year. I lost 26 lbs. before the surgery. I am now down

60

> more lbs. I weight 175. I am 5'6 " . I have been anemic, and so I

> am more tired than I would like to be, but my body is still

healing,

> and I'm getting better. Other than that, no complications.

> >

> > I want to lose another 40 lbs, but in 20 lbs I will no longer be

> considered overweight. I have gone from morbidly obese to

severely

> obese, to obese to overweight. And soon, I'll be out of that

> category into " NORMAL " . I wore a size 20 pants, and now my size

12

> jeans are too big.

> >

> > I was propositioned in a club by two mid-20 year old Brazilian

> HOTTIES who wanted to er...well, you know. And I'm 41. And I was

> at a club that was filled with beautiful young women. I was able

to

> handle it with grace, and just take it as a compliment. i wasn't

> afraid.

> >

> > I am still me. i just hosted a party at Teatro Zinzanni, and

> played the hostess with gusto, even though I'm anemic and tired,

and

> I couldn't eat as much as others. but, I was able to enjoy what I

> had...and it was enough.

> >

> > I am rarely hungry, and I am not obsessed with food. That's a

big

> relief.

> >

> > The surgery wasn't very painful, and I recovered relatively

> quickly, except for my energy level.

> >

> > The thing is...it's totally worth it. Having a new life...being

> able to go into a REGULAR store, and try on clothes that

fit...well,

> it's fabulous. Having photos taken where you actually look

> great...well, hey. i'll take it. Knowing that I won't be getting

> diabetes and heart disease and cancer and all of those weight

> related diseases...well, that's great. A huge relief.

> >

> > Also, you mentioned not having a child yet. At over 400 lbs.,

you

> probably wouldn't be able to get pregnant. If you did...it would

be

> very dangerous for you and your child. Losing weight will put you

> into a much healthier place...and you'll be able to be a more

> active, involved mother.

> >

> > You'll have a new life.

> >

> > It's worth it. Go for it!!!!

> > You'll do great, and we're here for you.

> >

> > Robynn

> >

> >

> >

> > MICHELLE URIBE wrote:

> > Cheri,

> >

> > Thanks so much for your prayers. Before I found this group, it

> seemed praying was the only thing that was helping me keep on. I

> can already see that this group was a great choice. Thank you so

> much once again.

> >

> > Cheri Ortiz wrote:

> > ,

> >

> > Congratulations on a sucessfull journey thus far. Your new life

> will begin in 7 days.

> >

> > My name is Cheri and I had lap RNY on 9/12. That was the first

> day of my new life. It is very normal to be scared and anxious. I

> was too. What kept me going, was thinking of WHY I was doing this.

> You are so young and haven't even started living yet. When you

loose

> your weight, you will be a new person. You will experience things

> you thought were only for someone else to experience. You will no

> longer have the restrictions placed upon you by your size. I am

> proud you have begun this journey. You CAN and WILL make it

through

> to the end. You will be a new person.

> >

> > I am excited for you and you will find a wonderful support group

> in this site. The people here are understanding and empathetic to

> our plight, as we have all been down the same road. Although I

> usually just lurk on this site, I have learned valuable lessons

from

> its wisdom. You will too.

> >

> > We are with you and will be praying for you on your big day.

> >

> > Cheri

> >

> > LE URIBE wrote:

> > Hello everyone, I just discovered this group, and am thrilled

> about it. I'm 26 yrs old and 460lbs.. Im married with no kids

> yet. My surgery is scheduled for 9/27/05 @ Harbor City Kaiser.

Im

> so scared.. I've been waiting for 2 years and now its 7 days

away,

> and Im scared, anxious, thrilled, all at once. For those of you

> that have had this done, please tell me, how did you deal with

these

> feelings ( if you had them )?? Part of me finally sees a future,

> but another part of me, (I guess the part that still recalls the

> negative past) is scared to imagine anything hopeful too soon..

I'd

> love to hear from anyone with any words of hope.. Thanks..

> >

> >

> >

> >

> > Ciao,

> >

> >

> > Ciao,

> >

> >

> >

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Pam,

The news are great!! Im so glad that you're going for it soon. Im glad you're finally putting you in first place. Take care..granela52 wrote:

-,Thank you so much for your reply. I think it is the time to take care of myself. I went to the Bariatric Preop Class in Richmond today, and I really thought it was very informative and there were lots of inspiring people ready to have the surgery. I changed my date to Nov. 7, two weeks later than my previous date because I can connect my timeoff with Thanksgiving vacation. I'm happy about the change for practical reasons, but I am jealous of the people I met who are having it within a week. Pam E. - In gastric-bypass-support-kaiser-patients , MICHELLE URIBE <mrsuribe1@y...> wrote:> Thank you so much for your kind words. I really hope you dont put your surgery off for any reason. Ive come to learn in my few years that you cant be of service to anyone else, if

first you dont help yourself. Im also a pleaser, and have always placed everyone else before me, but now, its about me.. I hope all goes well for you. My thoughts and prayers are with you..> > granela52 <granela52@y...> wrote:--> Hi ,> > Welcome. I can relate to all your anxieties,and I really liked > Robynn's reply. Someone from this group once told me that the > emotional part of this journey is sometimes harder to adjust to than > the physical part. I really should be elated right now because I > have more than met my preop goal weight,and I have a surgery date in > October. However,lately, because of pressures at work I sometimes > feel like maybe I should put the surgery off for a while, and I > really don't want to do that. I am so used to thinking about others > more than myself, and trying to be the "pleaser" that I

have to stop > and remember to put myself first for once.> Pam E.> - In gastric-bypass-support-kaiser-patients , Robynn > VanPatten <robynnsf@s...> wrote:> > ...> > > > Congratulations on taking this brave step. It takes a lot to get > to this point. Of course you are anxious...you are worried that > this surgery, which seems like the final resort...well, maybe it > won't really work for you. And if that happens, then what? you > will have exhausted your options. > > > > And maybe you are worried about giving up a part of your > personality. i know, for me...I was worried about giving up the > joie de vivre of eating and drinking with reckless abandon. You > know...I mean, I'm the party girl, the hostess with the > mostest...the woman with passion and

gusto...and I was afraid that I > would become less of that...that I'd become less energetic. Less of > me.> > > > And maybe you are worried about letting go of your emotional > companion...or your "drug" that helps you to cope with the emotional > issues in life. i choked down food because I had a lot of anger > that I was unwilling to acknowledge. i was always an accomodator > for other people, hiding my own needs and feelings...and then eating > to deal with my frustration, or loneliness, or sadness.> > > > And I had anxiety about whether I'd be a success or not. Also > about How I would deal with sexual temptation when I didn't have my > fat suit of armour around me. As a survivor of child > molestation...sometimes that fat around me felt like a protection.> > > > Finally...I was

nervous about what woul dhappen to my health. > Would I die? Would I be sick all of the time? Who would I be? > Would I be able to handle the limitations?> > > > OK...so here I am today, after having had the surgery on June 8th > of this year. I lost 26 lbs. before the surgery. I am now down 60 > more lbs. I weight 175. I am 5'6". I have been anemic, and so I > am more tired than I would like to be, but my body is still healing, > and I'm getting better. Other than that, no complications.> > > > I want to lose another 40 lbs, but in 20 lbs I will no longer be > considered overweight. I have gone from morbidly obese to severely > obese, to obese to overweight. And soon, I'll be out of that > category into "NORMAL". I wore a size 20 pants, and now my size 12 > jeans

are too big. > > > > I was propositioned in a club by two mid-20 year old Brazilian > HOTTIES who wanted to er...well, you know. And I'm 41. And I was > at a club that was filled with beautiful young women. I was able to > handle it with grace, and just take it as a compliment. i wasn't > afraid.> > > > I am still me. i just hosted a party at Teatro Zinzanni, and > played the hostess with gusto, even though I'm anemic and tired, and > I couldn't eat as much as others. but, I was able to enjoy what I > had...and it was enough.> > > > I am rarely hungry, and I am not obsessed with food. That's a big > relief. > > > > The surgery wasn't very painful, and I recovered relatively > quickly, except for my energy level.> > > > The thing

is...it's totally worth it. Having a new life...being > able to go into a REGULAR store, and try on clothes that fit...well, > it's fabulous. Having photos taken where you actually look > great...well, hey. i'll take it. Knowing that I won't be getting > diabetes and heart disease and cancer and all of those weight > related diseases...well, that's great. A huge relief.> > > > Also, you mentioned not having a child yet. At over 400 lbs., you > probably wouldn't be able to get pregnant. If you did...it would be > very dangerous for you and your child. Losing weight will put you > into a much healthier place...and you'll be able to be a more > active, involved mother.> > > > You'll have a new life.> > > > It's worth it. Go for it!!!!> > You'll do great, and we're here for

you.> > > > Robynn> > > > > > > > MICHELLE URIBE <mrsuribe1@y...> wrote:> > Cheri,> > > > Thanks so much for your prayers. Before I found this group, it > seemed praying was the only thing that was helping me keep on. I > can already see that this group was a great choice. Thank you so > much once again.> > > > Cheri Ortiz <cherirortiz@y...> wrote:> > ,> > > > Congratulations on a sucessfull journey thus far. Your new life > will begin in 7 days. > > > > My name is Cheri and I had lap RNY on 9/12. That was the first > day of my new life. It is very normal to be scared and anxious. I > was too. What kept me going, was thinking of WHY I was doing this. > You are so young and haven't even started

living yet. When you loose > your weight, you will be a new person. You will experience things > you thought were only for someone else to experience. You will no > longer have the restrictions placed upon you by your size. I am > proud you have begun this journey. You CAN and WILL make it through > to the end. You will be a new person.> > > > I am excited for you and you will find a wonderful support group > in this site. The people here are understanding and empathetic to > our plight, as we have all been down the same road. Although I > usually just lurk on this site, I have learned valuable lessons from > its wisdom. You will too.> > > > We are with you and will be praying for you on your big day.> > > > Cheri> > > > LE URIBE <mrsuribe1@y...> wrote:> > Hello everyone, I just discovered this

group, and am thrilled > about it. I'm 26 yrs old and 460lbs.. Im married with no kids > yet. My surgery is scheduled for 9/27/05 @ Harbor City Kaiser. Im > so scared.. I've been waiting for 2 years and now its 7 days away, > and Im scared, anxious, thrilled, all at once. For those of you > that have had this done, please tell me, how did you deal with these > feelings ( if you had them )?? Part of me finally sees a future, > but another part of me, (I guess the part that still recalls the > negative past) is scared to imagine anything hopeful too soon.. I'd > love to hear from anyone with any words of hope.. Thanks..> > > > > > > > > > Ciao, > > > > > > Ciao, > > > > > >

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Hello all i am new to this group and just wanted to say hello, i have

had neurosarcoidosis for 5 years now and have moved home and the

treatment of my condition is terrible conpaired to what treatment i

was getting before, my new doctor doesnt seem to understand how the

condition affects me and doesnt understand that he has to monitor it

all he does is tell me to do a repeat prescription for the steroids.

I feel so alone.

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Well, you're not alone now. You do need to find a new MD. With NS-- steroids generally don't do what we need them to do. Take them away, and the rebound of the disease intensifies.

We have alot of articles and sites in our ARCHIVES and LINKS- if you scroll down to the bottom section of this email, and every email that comes out-- you'll see the address listed.

We're now over 400 members and it's incredible to see how far we have come-- and how much our MD's are still stuck in the "this will burn itself out-- no worries stage" and in the meantime, we're ending up disabled.

There are so many alternatives-- Imuran, Methotrexate, Arava, Plaquenil-- and the BRM's-- Biological Response Modifiers--Humira, Enbrel, Remicade that are helping some of us. It generally takes a combination of meds-- and the combo that will work for you may be different from what is working for me. Trial and error-- yep-- but by educating yourself- you can get better.

So, tell us a bit more about your symptoms, where you are from etc. We'll see if we can get you into better hands, and go fromthere.

Take care, and welcome to the gang,

Tracie

NS Co-owner/moderator

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Hi Tracie, thank you for letting me know i am not alone.

It started with paralsis of the left side of my face and the doctors

who were great at the time said it was bells palsy but within a week

my whole face was paralised and i was having difficulty breathing so

my doctor sent me to hospital and after 18 days in hospital they said

i had neurosarcoidosis and gave me prednisolone and hydroxychloroquine

and my doctors were great they gave me monthly blood checks to see how

i was doing, but not that i have moved from london to staffordshire

the treatment had dropped considerably, i have had no blood test and

no real check ups.

I suffer from a horrible headache all the time and nothing seems to

work to get rid of it, my right side of my face is weaker than my left

and my eyes are worse as they go blurred at times and my right eyes

had a mind of its own sometimes i cant blink and other times i cant

open it. I feel tired all the time and my joints are now all painful,

I find i cant walk very far and cant stand for very long either.

I just dont know which way to turn as i have asked my doctor to refer

meto the hospital to see a specialist but nothing had happened.

Lorraine

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Tevion,You are not alone. You have joined the best group with people who care. I am relatively new here myself (I think I joined around mid Sept). The moderators of this group are sick too but they help all of us to better understand and get through this disease. Sometimes it is a day to day process. Take care,Beckytevion1965 wrote: Hello all i am new to this group and just wanted to say hello, i have had neurosarcoidosis for 5 years now and have moved home and the treatment of my

condition is terrible conpaired to what treatment i was getting before, my new doctor doesnt seem to understand how the condition affects me and doesnt understand that he has to monitor it all he does is tell me to do a repeat prescription for the steroids. I feel so alone.

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Sherry,Helping others also helps ourselves. I have found so many things to better my health by starting down this road to help my husband. I enjoy it and learning new things. It is my pleasure to putting my thinking cap on, so don't hesitate to ask a question. As you can see, we all jump in if we have a suggestion! AmeliaHusband UC 9 years, SCD 19 monthsLDN 3mgTo: bhide_thehague@...Sent: Fri, January 29, 2010 12:16:54 AMSubject: Hi

Thank you so much for writing back and giving me your thoughts. I didn't find them harsh. This is the kind of info I want. I already felt quite leery about these meds, but in the beginning we were not given a choice and the SCD diet was never mentioned. I've had to investigate a lot of things over the time that my son has been ill (since he was 12), so I have learned to be his advocate-no doubt.I am so glad you are all willing to share your experiences with us newbies. It's SO helpful to get advice from those who have done it and have had success.I feel cautiously optimistic about this. :)Others have said that it doesn't work for everyone, but I can't see what the harm would be in trying. The book makes so much sense to me. I'm sure once I get into this, I have a lot more questions for you. ;)Thanks again, and good health to you and your husband.Sherry

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Sherry,Helping others also helps ourselves. I have found so many things to better my health by starting down this road to help my husband. I enjoy it and learning new things. It is my pleasure to putting my thinking cap on, so don't hesitate to ask a question. As you can see, we all jump in if we have a suggestion! AmeliaHusband UC 9 years, SCD 19 monthsLDN 3mgTo: bhide_thehague@...Sent: Fri, January 29, 2010 12:16:54 AMSubject: Hi

Thank you so much for writing back and giving me your thoughts. I didn't find them harsh. This is the kind of info I want. I already felt quite leery about these meds, but in the beginning we were not given a choice and the SCD diet was never mentioned. I've had to investigate a lot of things over the time that my son has been ill (since he was 12), so I have learned to be his advocate-no doubt.I am so glad you are all willing to share your experiences with us newbies. It's SO helpful to get advice from those who have done it and have had success.I feel cautiously optimistic about this. :)Others have said that it doesn't work for everyone, but I can't see what the harm would be in trying. The book makes so much sense to me. I'm sure once I get into this, I have a lot more questions for you. ;)Thanks again, and good health to you and your husband.Sherry

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