Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Congratulations! A relationship between the siblings was the greatest and most unexpected gift the enzymes brought us. I remember almost running off the road a few times, too. My son, who will be ten this summer, almost never talked in the car and now he does like anyone would. After almost two years on enzymes and the wonderful changes they brought, it all is still amazing to me. One capsule of No-Fenol is too much for some kids, you can try 1/2 capsule. Also, if he is swallowing the capsules, you can try mixing them in food or drink for consumption at the beginning of the meal to see if that makes a difference - for some it may. > everything feels funny. My body is not like other people's. " Whoa! He has > never verbalized anything like this before. I almost ran off the road. > > Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 Run off the road, hug him, laugh, cry. CELEBRATE. I'm so happy for you. Those moments are wonderful. Congratulations. dosage question I'm starting our third week with J. (4.5 yo) on enzymes, with current dosage 1 cap NF, ZP, and Pep at each meal, and a 1/2 cap of whichever is appropriate for snacks. So far some amazing results, although it's a bit zig-zaggy -- he'll be wonderful, and then fall back into pestering that feels compulsive and a lot of crashing into me and little sister. The dosage seems pretty arbitrary, and I was wondering what you guys use to help figure it out. He's sometimes still having the red ears/cheeks, so I gave more NF --is that the right idea?If he's pestering and aggressive, should I give more of everything? And I wanted to tell this, from this morning...we're in the car, he's explaining to his 2 yo sister that looking into the sun can damage your eyes (that conversation in itself is miraculous). So I said, " When you look near the sun your eyes will squinch up, that's your body telling you to look away. You should listen to what your body tells you. " A pause. Then J from his carseat says, " But my body tells me never to ever do anything, because everything feels funny. My body is not like other people's. " Whoa! He has never verbalized anything like this before. I almost ran off the road. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Welcome to the list. Andy Cutler is a PhD chemist, mercury poisoning survivor, and author of " Amalgam Illness " and " Hair Test Interpreting " . He participates on this list, consults for doctors who are doing chelation, has helped chelate his girlfriend's ASD son and suggests the low, frequent dosing which most of us refer to as " Andy's protocol " . You can read more about it in his books or the FAQs of this list. S S (not a parent, chelating myself, member of this list since shortly after it started) <BR> I am new to this group, spending some time at chelatingkids2. Our son is<BR> 5.5 yrs, and high functioning, with various diagnosis of being/not being<BR> on the edge of PDD-NOS.<BR> <BR> He has been chelating with TD-DMPS,, and now additionally with<BR> TD-ALA/GSH. He also has TD-LDN. He gets B12 shots every three days and<BR> has been on a range of supplements, since October 05.<BR> <BR> The TD-ALA/GSH is 2x a day (cream) and the DMPS was just changed to a 1<BR> x week suppository.<BR> <BR> He is currently suffering from what we assume is called Horns & Tails.<BR> <BR> There has been much talk about how both DMPS and ALA should be<BR> administered much more frequently to match their respective half-lives.<BR> <BR> My question is where are people getting this information? Why would the<BR> docs not have the same information? When I asked my DAN! doc, he stated<BR> that he knows of only one doc in the system who believes in smaller more<BR> frequent dosing.<BR> <BR> <BR> <BR> Any help from more experienced parents?<BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Glad you made it! I think I already wrote you in a private email that you might want to look at the A-M archives at www.onibasu.com. Just click on the box for A-M and run a few searches. I usually search out the topic and include the names (or login ids) of the people I most respect on the list as well. So, for example, a search to find out what Andy thinks about EDTA would look like this: EDTA andrewhallcutler (this won't cover all the old posts because Andy used a different id at that time). Anyway, you get the point. Many people on this list used doctors, including DAN!s, but not all. From what I can tell, members of this list do much of their own (or collective) research and don't rely on doctors to make decisions for and about their kids. IMO, this is a good thing because if Andy is right about how chelators should be dosed to minimize risks, which it seems to me he is, then most of the doctors parents rely on to help them out of the mess we are all in don't know what the heck they are doing (at least as far as chelation goes). Anyway, welcome. Anne > > <BR> > I am new to this group, spending some time at chelatingkids2. Our son is<BR> > 5.5 yrs, and high functioning, with various diagnosis of being/not being<BR> > on the edge of PDD-NOS.<BR> > <BR> > He has been chelating with TD-DMPS,, and now additionally with<BR> > TD-ALA/GSH. He also has TD-LDN. He gets B12 shots every three days and<BR> > has been on a range of supplements, since October 05.<BR> > <BR> > The TD-ALA/GSH is 2x a day (cream) and the DMPS was just changed to a 1<BR> > x week suppository.<BR> > <BR> > He is currently suffering from what we assume is called Horns & Tails.<BR> > <BR> > There has been much talk about how both DMPS and ALA should be<BR> > administered much more frequently to match their respective half- lives.<BR> > <BR> > My question is where are people getting this information? Why would the<BR> > docs not have the same information? When I asked my DAN! doc, he stated<BR> > that he knows of only one doc in the system who believes in smaller more<BR> > frequent dosing.<BR> > <BR> > <BR> > <BR> > Any help from more experienced parents?<BR> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 > There has been much talk about how both DMPS and ALA should be > administered much more frequently to match their respective half-lives. > > My question is where are people getting this information? Here, lol. Although many drugs must be given on the half-life, so it isn't a new or kooky idea. The upside (big!) is that it reduces side effects and the chance of doing further damage. The downside (small!) is that you have to give doses in the middle of the night so it's a PITA. Why would the > docs not have the same information? Well, think of how many docs didn't get the memo about how much thimerosal they were shooting into babies. Doctors, like most people, are slow to accept new info. And without insulting any of our good doctors here, I'd say that doctors are resistant to considering new information (like dosing on the half-life) when it doesn't come from an approved medical source. A PhD chemist? They're not listening. > Any help from more experienced parents? The way I decided which way -- and whether -- to chelate was by reading the parent reports on this and other lists. I gave no credit at all to supposed qualifications (like degrees) but instead paid attention to what was working for parents. More important -- what was NOT working. Other chelation protocols might work very well for some people; the question is, which protocol is the least risky? On other lists and websites I saw way too many reports of regressions, some of which were bone-chilling. Welcome and good luck! Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 I can administer the TD-ALA every 8 hours, but unless I get the doc to change the Rx for DMPS I am stuck with the 1 x week suppository for now I, perhaps naively thought that the DAN! Docs were open minded, that is how they got past the mainstream blockades to believing in what we are doing here. My doc is one of the egg-heads (self proclaimed) that is working towards refining the solutions of this illness. Our son has been acting quite differently for a week or so now. He screams often for no apparent reason. How can one tell if yeast is affecting him? And if so, what are people doing about it? We have Candex. Any suggestions/ comments are appreciated. > > > There has been much talk about how both DMPS and ALA should be > > administered much more frequently to match their respective half-lives. > > > > My question is where are people getting this information? > > Here, lol. Although many drugs must be given on the half-life, so it > isn't a new or kooky idea. The upside (big!) is that it reduces side > effects and the chance of doing further damage. The downside (small!) > is that you have to give doses in the middle of the night so it's a PITA. > > Why would the > > docs not have the same information? > > Well, think of how many docs didn't get the memo about how much > thimerosal they were shooting into babies. Doctors, like most people, > are slow to accept new info. And without insulting any of our good > doctors here, I'd say that doctors are resistant to considering new > information (like dosing on the half-life) when it doesn't come from > an approved medical source. A PhD chemist? They're not listening. > > > Any help from more experienced parents? > > The way I decided which way -- and whether -- to chelate was by > reading the parent reports on this and other lists. I gave no credit > at all to supposed qualifications (like degrees) but instead paid > attention to what was working for parents. More important -- what was > NOT working. Other chelation protocols might work very well for some > people; the question is, which protocol is the least risky? On other > lists and websites I saw way too many reports of regressions, some of > which were bone-chilling. > > Welcome and good luck! > > Nell > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 DAN! doctors are ones who have attended at least one DAN! conference. No requirement that they actually paid attention. S S <BR> I can administer the TD-ALA every 8 hours, but unless I get the doc to<BR> change the Rx for DMPS I am stuck with the 1 x week suppository for now<BR> <BR> I, perhaps naively thought that the DAN! Docs were open minded, that is<BR> how they got past the mainstream blockades to believing in what we are<BR> doing here. My doc is one of the egg-heads (self proclaimed) that is<BR> working towards refining the solutions of this illness.<BR> <BR> Our son has been acting quite differently for a week or so now. He<BR> screams often for no apparent reason. How can one tell if yeast is<BR> affecting him? And if so, what are people doing about it? We have<BR> Candex.<BR> <BR> Any suggestions/ comments are appreciated.<BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 > Our son has been acting quite differently for a week or so now. He > screams often for no apparent reason. How can one tell if yeast is > affecting him? And if so, what are people doing about it? We have > Candex. Yeast info http://www.danasview.net/yeast.htm I have read good things about Candex. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 , You say you give 9 EFA's in 3 doses. Are you using the Pro-EFA (adult size) or the 3-6-9 junior (which are small and half the dosage). It gets a little confusing because of the different forms available now. Thanks! Sena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 We are giving mega doses - yes its the adult size. I think that at some point I may be able to decrease the omega dose now that less should be oxidized " theoretically " with vitamin E. But at the moment I don't want to mess with what is working. -claudia > , > > You say you give 9 EFA's in 3 doses. Are you using the Pro-EFA (adult > size) or the 3-6-9 junior (which are small and half the dosage). It > gets a little confusing because of the different forms available now. > Thanks! Sena > Quote Link to comment Share on other sites More sharing options...
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