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Re: great results with aloe vera juice

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This sounds great and definately worth a try. Can I ask what mutations for

the CF gene your two and a half year old son has.

Best wishes

Lucinda Fleming-, son Dylan 22 months with cf from Durham in the UK

Reply-To: cfparents

To: cfparents >

Subject: great results with aloe vera juice

Date: Thu, 9 Jan 2003 22:17:32 -0600

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice:

Meals and snacks -- Creon 10 (2-3 capsules)

with Pediasure -- Creon 10 (3 capsules)

Even on this he still had really mushy bowel movements and still pretty

frequent

After using the aloe vera juice. He is 2 /12 years old and drinks about 3-5

ounces per day. We waited for 3 weeks before we started reducing enzymes and

here is his current intake:

Snacks -- no enzymes or 1 Creon 5

Meals -- 1 Creon 5 or 1 Creon 10

with Pediasure -- 1 Creon 10

Now he has solid, well-formed bowel movements and 1 or 2 per day and not in

the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response.

Just wanted to share the good news.

Thanks,

Amy

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Hi Amy,

I would like to know how do you process the juice? Is there any

tricks to make it? I can imagine my child refussing to drink

something non-sweet. Any receip?

Thank you very much in advance,

Lucas.

Santiago´s father w/CF 2 years (Today is his 2nd birthday)

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Lucas,

Happy Birthday to your little boy.

We buy the juice already processed I guess. We just mix it with other juices to

improve the taste, such as cranberry juice, apple juice or orange juice. I have

also heard that you can mix it in foods and things if your child won't drink it

but we haven't looked into those options b/c he has been willing to drink it so

far. We talked to him about how it will help his belly feel better and he won't

have to take as many enzymes, etc. I think involving the child in the decision

even at a very early age is really important in helping them be more compliant

to the treatment.

Hope this helps.

Amy

Re: great results with aloe vera juice

Hi Amy,

I would like to know how do you process the juice? Is there any

tricks to make it? I can imagine my child refussing to drink

something non-sweet. Any receip?

Thank you very much in advance,

Lucas.

Santiago´s father w/CF 2 years (Today is his 2nd birthday)

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Share on other sites

Lucas,

Happy Birthday to your little boy.

We buy the juice already processed I guess. We just mix it with other juices to

improve the taste, such as cranberry juice, apple juice or orange juice. I have

also heard that you can mix it in foods and things if your child won't drink it

but we haven't looked into those options b/c he has been willing to drink it so

far. We talked to him about how it will help his belly feel better and he won't

have to take as many enzymes, etc. I think involving the child in the decision

even at a very early age is really important in helping them be more compliant

to the treatment.

Hope this helps.

Amy

Re: great results with aloe vera juice

Hi Amy,

I would like to know how do you process the juice? Is there any

tricks to make it? I can imagine my child refussing to drink

something non-sweet. Any receip?

Thank you very much in advance,

Lucas.

Santiago´s father w/CF 2 years (Today is his 2nd birthday)

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Share on other sites

Lucas,

Happy Birthday to your little boy.

We buy the juice already processed I guess. We just mix it with other juices to

improve the taste, such as cranberry juice, apple juice or orange juice. I have

also heard that you can mix it in foods and things if your child won't drink it

but we haven't looked into those options b/c he has been willing to drink it so

far. We talked to him about how it will help his belly feel better and he won't

have to take as many enzymes, etc. I think involving the child in the decision

even at a very early age is really important in helping them be more compliant

to the treatment.

Hope this helps.

Amy

Re: great results with aloe vera juice

Hi Amy,

I would like to know how do you process the juice? Is there any

tricks to make it? I can imagine my child refussing to drink

something non-sweet. Any receip?

Thank you very much in advance,

Lucas.

Santiago´s father w/CF 2 years (Today is his 2nd birthday)

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Hi Amy,

congrats to the great results!! And don't be disappointed about your docs

reactions. They haven't told you to stop the aloe very juice and

unfortunately you can't ask for more at this point. It has been the same

with GSH or Crataegus. Whenever an alternative idea comes up, docs won't

jump on the bandwagon, regardless of the results they see in one or two

patients. And since someone comes up with a new idea all the time and since

a lot of that may be just coincidence or snake oil, it's okay that the docs

stay neutral at first.

I think it was a good idea to mention it here. Should others try it too and

should there be significant positive results too then the docs will listen.

But we have to be patient.

Peace

Torsten, dad of Fiona 5wcf

e-mail: torstenkrafft@...

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Hi Amy,

congrats to the great results!! And don't be disappointed about your docs

reactions. They haven't told you to stop the aloe very juice and

unfortunately you can't ask for more at this point. It has been the same

with GSH or Crataegus. Whenever an alternative idea comes up, docs won't

jump on the bandwagon, regardless of the results they see in one or two

patients. And since someone comes up with a new idea all the time and since

a lot of that may be just coincidence or snake oil, it's okay that the docs

stay neutral at first.

I think it was a good idea to mention it here. Should others try it too and

should there be significant positive results too then the docs will listen.

But we have to be patient.

Peace

Torsten, dad of Fiona 5wcf

e-mail: torstenkrafft@...

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