Re: great results with aloe vera juice

[Guest guest]

Amy

1. How old is you son? You said 2 or 12? Or 2 1/2? sorry...

2. Do you know his mutations?

3. What is Pediasure????

4. What kind of juice is it? 100% or less? Any sugar, preservatives,

etc? Additional vitamins in the juice?

Maia

Oh and 5. I'm really happy to hear about your son

> Hi to all! Just wanted to post about some really great results that

we have had using aloe vera juice for our son with cf. We read about

the benefits to the digestive system from aloe vera juice and decided

to try it. Here is our son's enzyme intake prior to using aloe vera

juice:

>

> Meals and snacks -- Creon 10 (2-3 capsules)

> with Pediasure -- Creon 10 (3 capsules)

> Even on this he still had really mushy bowel movements and still

pretty frequent

>

> After using the aloe vera juice. He is 2 /12 years old and drinks

about 3-5 ounces per day. We waited for 3 weeks before we started

reducing enzymes and here is his current intake:

>

> Snacks -- no enzymes or 1 Creon 5

> Meals -- 1 Creon 5 or 1 Creon 10

> with Pediasure -- 1 Creon 10

> Now he has solid, well-formed bowel movements and 1 or 2 per day

and not in the large amounts as before.

>

> We have just been really amazed at such drastic results, but

obviously very happy about it. We didnt' tell our doctor we were

trying this until we knew if it worked. We just emailed him today and

will probably hear back tomorrow. It will be interesting to get his

response.

>

> Just wanted to share the good news.

>

> Thanks,

>

> Amy

[Guest guest]

Amy

1. How old is you son? You said 2 or 12? Or 2 1/2? sorry...

2. Do you know his mutations?

3. What is Pediasure????

4. What kind of juice is it? 100% or less? Any sugar, preservatives,

etc? Additional vitamins in the juice?

Maia

Oh and 5. I'm really happy to hear about your son

> Hi to all! Just wanted to post about some really great results that

we have had using aloe vera juice for our son with cf. We read about

the benefits to the digestive system from aloe vera juice and decided

to try it. Here is our son's enzyme intake prior to using aloe vera

juice:

>

> Meals and snacks -- Creon 10 (2-3 capsules)

> with Pediasure -- Creon 10 (3 capsules)

> Even on this he still had really mushy bowel movements and still

pretty frequent

>

> After using the aloe vera juice. He is 2 /12 years old and drinks

about 3-5 ounces per day. We waited for 3 weeks before we started

reducing enzymes and here is his current intake:

>

> Snacks -- no enzymes or 1 Creon 5

> Meals -- 1 Creon 5 or 1 Creon 10

> with Pediasure -- 1 Creon 10

> Now he has solid, well-formed bowel movements and 1 or 2 per day

and not in the large amounts as before.

>

> We have just been really amazed at such drastic results, but

obviously very happy about it. We didnt' tell our doctor we were

trying this until we knew if it worked. We just emailed him today and

will probably hear back tomorrow. It will be interesting to get his

response.

>

> Just wanted to share the good news.

>

> Thanks,

>

> Amy

[Guest guest]

that most surely is SUPER news, Maybe all should ask their own docs&

nutritionist about this. See what many of them have to say..........Maybe

some others will say " TRY IT " -cant hurt......I sure hope this continues.

PILLS-----PILLS-----maybe some of it can be cut down for all . Thanks for

dong your own trails & sharing you results. We all do know that what is

great for one, might not be for all-------OR it might just help some, BUT,

it is worth the trail.. Bless you,

LOVE & HUGS,

GrandmomBEv

great results with aloe vera juice

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice: Meals and snacks --

Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3 capsules) Even on this

he still had really mushy bowel movements and still pretty frequent After

using the aloe vera juice. He is 2 /12 years old and drinks about 3-5 ounces

per day. We waited for 3 weeks before we started reducing enzymes and here

is his current intake: Snacks -- no enzymes or 1 Creon 5 Meals -- 1 Creon

5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid, well-formed

bowel movements and 1 or 2 per day and not in the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response. Just wanted to share

the good news. Thanks, Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

that most surely is SUPER news, Maybe all should ask their own docs&

nutritionist about this. See what many of them have to say..........Maybe

some others will say " TRY IT " -cant hurt......I sure hope this continues.

PILLS-----PILLS-----maybe some of it can be cut down for all . Thanks for

dong your own trails & sharing you results. We all do know that what is

great for one, might not be for all-------OR it might just help some, BUT,

it is worth the trail.. Bless you,

LOVE & HUGS,

GrandmomBEv

great results with aloe vera juice

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice: Meals and snacks --

Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3 capsules) Even on this

he still had really mushy bowel movements and still pretty frequent After

using the aloe vera juice. He is 2 /12 years old and drinks about 3-5 ounces

per day. We waited for 3 weeks before we started reducing enzymes and here

is his current intake: Snacks -- no enzymes or 1 Creon 5 Meals -- 1 Creon

5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid, well-formed

bowel movements and 1 or 2 per day and not in the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response. Just wanted to share

the good news. Thanks, Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

gosh my fingers sure make it look like I cant spell. ????????? Anyway, it is

a test to see if you all can read too:):hehehe

LOVE YA,

GrandmomBEV

great results with aloe vera juice

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice: Meals and snacks --

Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3 capsules) Even on this

he still had really mushy bowel movements and still pretty frequent After

using the aloe vera juice. He is 2 /12 years old and drinks about 3-5 ounces

per day. We waited for 3 weeks before we started reducing enzymes and here

is his current intake: Snacks -- no enzymes or 1 Creon 5 Meals -- 1 Creon

5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid, well-formed

bowel movements and 1 or 2 per day and not in the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response. Just wanted to share

the good news. Thanks, Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

gosh my fingers sure make it look like I cant spell. ????????? Anyway, it is

a test to see if you all can read too:):hehehe

LOVE YA,

GrandmomBEV

great results with aloe vera juice

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice: Meals and snacks --

Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3 capsules) Even on this

he still had really mushy bowel movements and still pretty frequent After

using the aloe vera juice. He is 2 /12 years old and drinks about 3-5 ounces

per day. We waited for 3 weeks before we started reducing enzymes and here

is his current intake: Snacks -- no enzymes or 1 Creon 5 Meals -- 1 Creon

5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid, well-formed

bowel movements and 1 or 2 per day and not in the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response. Just wanted to share

the good news. Thanks, Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

I think most Dr.'s and nurses know just the medical field. When something

natural comes around that may help they are just sceptical. I think it is all

a part of their training. I too have been disappointed before of the lack of

excitement from the medical community when discussing alternative treatments.

Don't let it discourage you if it is right for you and yours.

mom of 19yowcf

[Guest guest]

I think most Dr.'s and nurses know just the medical field. When something

natural comes around that may help they are just sceptical. I think it is all

a part of their training. I too have been disappointed before of the lack of

excitement from the medical community when discussing alternative treatments.

Don't let it discourage you if it is right for you and yours.

mom of 19yowcf

[Guest guest]

I think most Dr.'s and nurses know just the medical field. When something

natural comes around that may help they are just sceptical. I think it is all

a part of their training. I too have been disappointed before of the lack of

excitement from the medical community when discussing alternative treatments.

Don't let it discourage you if it is right for you and yours.

mom of 19yowcf

[Guest guest]

1. My son is 2 1/2 years old

2. He is double deltaf508

3. Pediasure is a supplement like ensure used for nutrition and weight gain. He

doesn't really need pediasure anymore. He did when he was around 14 months old,

but even after the doctor suggested taking him off of it, he still wants it. He

loves to drink one with his breakfast every morning. I figure it is healthy for

him so I haven't bothered trying to get him to quit drinking it.

4. It is 100% juice with no sugar. Maybe some preservatives -- not sure on that

one. There are no additional vitamins in the juice either, just straight aloe

vera basically and something that thins it into more of a liquid instead of gel.

I mix his with other juice, usually cranberry juice, sometimes apple juice if I

am out of cranberry. And I use 100% of those also.

Here is the response from our doctor's office --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I was kind of disappointed. They didn't sound very excited. I wanted them to

jump up and down in amazement. LOL

Hope this helps,

Amy

Amy

1. How old is you son? You said 2 or 12? Or 2 1/2? sorry...

2. Do you know his mutations?

3. What is Pediasure????

4. What kind of juice is it? 100% or less? Any sugar, preservatives,

etc? Additional vitamins in the juice?

Maia

Oh and 5. I'm really happy to hear about your son

> Hi to all! Just wanted to post about some really great results that

we have had using aloe vera juice for our son with cf. We read about

the benefits to the digestive system from aloe vera juice and decided

to try it. Here is our son's enzyme intake prior to using aloe vera

juice:

>

> Meals and snacks -- Creon 10 (2-3 capsules)

> with Pediasure -- Creon 10 (3 capsules)

> Even on this he still had really mushy bowel movements and still

pretty frequent

>

> After using the aloe vera juice. He is 2 /12 years old and drinks

about 3-5 ounces per day. We waited for 3 weeks before we started

reducing enzymes and here is his current intake:

>

> Snacks -- no enzymes or 1 Creon 5

> Meals -- 1 Creon 5 or 1 Creon 10

> with Pediasure -- 1 Creon 10

> Now he has solid, well-formed bowel movements and 1 or 2 per day

and not in the large amounts as before.

>

> We have just been really amazed at such drastic results, but

obviously very happy about it. We didnt' tell our doctor we were

trying this until we knew if it worked. We just emailed him today and

will probably hear back tomorrow. It will be interesting to get his

response.

>

> Just wanted to share the good news.

>

> Thanks,

>

> Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

1. My son is 2 1/2 years old

2. He is double deltaf508

3. Pediasure is a supplement like ensure used for nutrition and weight gain. He

doesn't really need pediasure anymore. He did when he was around 14 months old,

but even after the doctor suggested taking him off of it, he still wants it. He

loves to drink one with his breakfast every morning. I figure it is healthy for

him so I haven't bothered trying to get him to quit drinking it.

4. It is 100% juice with no sugar. Maybe some preservatives -- not sure on that

one. There are no additional vitamins in the juice either, just straight aloe

vera basically and something that thins it into more of a liquid instead of gel.

I mix his with other juice, usually cranberry juice, sometimes apple juice if I

am out of cranberry. And I use 100% of those also.

Here is the response from our doctor's office --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I was kind of disappointed. They didn't sound very excited. I wanted them to

jump up and down in amazement. LOL

Hope this helps,

Amy

Amy

1. How old is you son? You said 2 or 12? Or 2 1/2? sorry...

2. Do you know his mutations?

3. What is Pediasure????

4. What kind of juice is it? 100% or less? Any sugar, preservatives,

etc? Additional vitamins in the juice?

Maia

Oh and 5. I'm really happy to hear about your son

> Hi to all! Just wanted to post about some really great results that

we have had using aloe vera juice for our son with cf. We read about

the benefits to the digestive system from aloe vera juice and decided

to try it. Here is our son's enzyme intake prior to using aloe vera

juice:

>

> Meals and snacks -- Creon 10 (2-3 capsules)

> with Pediasure -- Creon 10 (3 capsules)

> Even on this he still had really mushy bowel movements and still

pretty frequent

>

> After using the aloe vera juice. He is 2 /12 years old and drinks

about 3-5 ounces per day. We waited for 3 weeks before we started

reducing enzymes and here is his current intake:

>

> Snacks -- no enzymes or 1 Creon 5

> Meals -- 1 Creon 5 or 1 Creon 10

> with Pediasure -- 1 Creon 10

> Now he has solid, well-formed bowel movements and 1 or 2 per day

and not in the large amounts as before.

>

> We have just been really amazed at such drastic results, but

obviously very happy about it. We didnt' tell our doctor we were

trying this until we knew if it worked. We just emailed him today and

will probably hear back tomorrow. It will be interesting to get his

response.

>

> Just wanted to share the good news.

>

> Thanks,

>

> Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

1. My son is 2 1/2 years old

2. He is double deltaf508

3. Pediasure is a supplement like ensure used for nutrition and weight gain. He

doesn't really need pediasure anymore. He did when he was around 14 months old,

but even after the doctor suggested taking him off of it, he still wants it. He

loves to drink one with his breakfast every morning. I figure it is healthy for

him so I haven't bothered trying to get him to quit drinking it.

4. It is 100% juice with no sugar. Maybe some preservatives -- not sure on that

one. There are no additional vitamins in the juice either, just straight aloe

vera basically and something that thins it into more of a liquid instead of gel.

I mix his with other juice, usually cranberry juice, sometimes apple juice if I

am out of cranberry. And I use 100% of those also.

Here is the response from our doctor's office --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I was kind of disappointed. They didn't sound very excited. I wanted them to

jump up and down in amazement. LOL

Hope this helps,

Amy

Amy

1. How old is you son? You said 2 or 12? Or 2 1/2? sorry...

2. Do you know his mutations?

3. What is Pediasure????

4. What kind of juice is it? 100% or less? Any sugar, preservatives,

etc? Additional vitamins in the juice?

Maia

Oh and 5. I'm really happy to hear about your son

> Hi to all! Just wanted to post about some really great results that

we have had using aloe vera juice for our son with cf. We read about

the benefits to the digestive system from aloe vera juice and decided

to try it. Here is our son's enzyme intake prior to using aloe vera

juice:

>

> Meals and snacks -- Creon 10 (2-3 capsules)

> with Pediasure -- Creon 10 (3 capsules)

> Even on this he still had really mushy bowel movements and still

pretty frequent

>

> After using the aloe vera juice. He is 2 /12 years old and drinks

about 3-5 ounces per day. We waited for 3 weeks before we started

reducing enzymes and here is his current intake:

>

> Snacks -- no enzymes or 1 Creon 5

> Meals -- 1 Creon 5 or 1 Creon 10

> with Pediasure -- 1 Creon 10

> Now he has solid, well-formed bowel movements and 1 or 2 per day

and not in the large amounts as before.

>

> We have just been really amazed at such drastic results, but

obviously very happy about it. We didnt' tell our doctor we were

trying this until we knew if it worked. We just emailed him today and

will probably hear back tomorrow. It will be interesting to get his

response.

>

> Just wanted to share the good news.

>

> Thanks,

>

> Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Thanks to all of you who were excited to hear about Tristan. I am disappointed

with our clinic response. At the Iowa City Clinic I talked to one of the nurses.

Here was her response --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I guess I was hoping for more than " very interesting "

Also at our local clinic, the nurse didn't sound impressed in the least bit. in

fact she sounded sceptical and more or less cautioned us to be careful and as

long as we know what to look for if it is not working b/c " some of that stuff

works for awhile you know " and also you could tell she didn't want us telling

anybody b/c she repeated more than once that just b/c it works for him doesn't

mean it would work for other people with cf and specifically mentioned the names

of some of the other children in our area who use the clinic.

It is just frustrating. I would expect them to be more happy to hear that we

have found something that helps so significantly.

Anyway, thanks again for all your encouragement. Otherwise, I would have been

bummed.

Amy

4 great results with aloe vera juice

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice: Meals and snacks --

Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3 capsules) Even on this

he still had really mushy bowel movements and still pretty frequent After

using the aloe vera juice. He is 2 /12 years old and drinks about 3-5 ounces

per day. We waited for 3 weeks before we started reducing enzymes and here

is his current intake: Snacks -- no enzymes or 1 Creon 5 Meals -- 1 Creon

5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid, well-formed

bowel movements and 1 or 2 per day and not in the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response. Just wanted to share

the good news. Thanks, Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Thanks to all of you who were excited to hear about Tristan. I am disappointed

with our clinic response. At the Iowa City Clinic I talked to one of the nurses.

Here was her response --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I guess I was hoping for more than " very interesting "

Also at our local clinic, the nurse didn't sound impressed in the least bit. in

fact she sounded sceptical and more or less cautioned us to be careful and as

long as we know what to look for if it is not working b/c " some of that stuff

works for awhile you know " and also you could tell she didn't want us telling

anybody b/c she repeated more than once that just b/c it works for him doesn't

mean it would work for other people with cf and specifically mentioned the names

of some of the other children in our area who use the clinic.

It is just frustrating. I would expect them to be more happy to hear that we

have found something that helps so significantly.

Anyway, thanks again for all your encouragement. Otherwise, I would have been

bummed.

Amy

4 great results with aloe vera juice

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice: Meals and snacks --

Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3 capsules) Even on this

he still had really mushy bowel movements and still pretty frequent After

using the aloe vera juice. He is 2 /12 years old and drinks about 3-5 ounces

per day. We waited for 3 weeks before we started reducing enzymes and here

is his current intake: Snacks -- no enzymes or 1 Creon 5 Meals -- 1 Creon

5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid, well-formed

bowel movements and 1 or 2 per day and not in the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response. Just wanted to share

the good news. Thanks, Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Thanks to all of you who were excited to hear about Tristan. I am disappointed

with our clinic response. At the Iowa City Clinic I talked to one of the nurses.

Here was her response --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I guess I was hoping for more than " very interesting "

Also at our local clinic, the nurse didn't sound impressed in the least bit. in

fact she sounded sceptical and more or less cautioned us to be careful and as

long as we know what to look for if it is not working b/c " some of that stuff

works for awhile you know " and also you could tell she didn't want us telling

anybody b/c she repeated more than once that just b/c it works for him doesn't

mean it would work for other people with cf and specifically mentioned the names

of some of the other children in our area who use the clinic.

It is just frustrating. I would expect them to be more happy to hear that we

have found something that helps so significantly.

Anyway, thanks again for all your encouragement. Otherwise, I would have been

bummed.

Amy

4 great results with aloe vera juice

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice: Meals and snacks --

Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3 capsules) Even on this

he still had really mushy bowel movements and still pretty frequent After

using the aloe vera juice. He is 2 /12 years old and drinks about 3-5 ounces

per day. We waited for 3 weeks before we started reducing enzymes and here

is his current intake: Snacks -- no enzymes or 1 Creon 5 Meals -- 1 Creon

5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid, well-formed

bowel movements and 1 or 2 per day and not in the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response. Just wanted to share

the good news. Thanks, Amy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Amy,

I'm sorry you were disappointed by the clinic's response. Basically, my

doctor has told us flat out that he can't support anything that doesn't

have a double-blind randomized trial behind it. Whatever. Anyway, we do

several alternative things, crataegus supplements being the main one,

and when I showed the doctor everything, all the papers that support its

use, the jar of tablets, and 's sitting right in front of him, not

culturing a thing, perfectly healthy, jumping up on the growth curve,

and he just shrugs and says, " can't hurt. " Hmph. At least you got double

exclamation points, LOL.

I am so happy that the aloe vera is working for your son...Jake is

almost 2/5 and also double df508. I am thinking about trying the aloe

vera juice with him. Of course he just decided he much prefers chocolate

milk to juice. ;-)

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

RE: Re: great results with aloe vera juice

1. My son is 2 1/2 years old

2. He is double deltaf508

3. Pediasure is a supplement like ensure used for nutrition and weight

gain. He doesn't really need pediasure anymore. He did when he was

around 14 months old, but even after the doctor suggested taking him off

of it, he still wants it. He loves to drink one with his breakfast every

morning. I figure it is healthy for him so I haven't bothered trying to

get him to quit drinking it.

4. It is 100% juice with no sugar. Maybe some preservatives -- not sure

on that one. There are no additional vitamins in the juice either, just

straight aloe vera basically and something that thins it into more of a

liquid instead of gel. I mix his with other juice, usually cranberry

juice, sometimes apple juice if I am out of cranberry. And I use 100% of

those also.

Here is the response from our doctor's office --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I was kind of disappointed. They didn't sound very excited. I wanted

them to jump up and down in amazement. LOL

Hope this helps,

Amy

[Guest guest]

Amy,

I'm sorry you were disappointed by the clinic's response. Basically, my

doctor has told us flat out that he can't support anything that doesn't

have a double-blind randomized trial behind it. Whatever. Anyway, we do

several alternative things, crataegus supplements being the main one,

and when I showed the doctor everything, all the papers that support its

use, the jar of tablets, and 's sitting right in front of him, not

culturing a thing, perfectly healthy, jumping up on the growth curve,

and he just shrugs and says, " can't hurt. " Hmph. At least you got double

exclamation points, LOL.

I am so happy that the aloe vera is working for your son...Jake is

almost 2/5 and also double df508. I am thinking about trying the aloe

vera juice with him. Of course he just decided he much prefers chocolate

milk to juice. ;-)

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

RE: Re: great results with aloe vera juice

1. My son is 2 1/2 years old

2. He is double deltaf508

3. Pediasure is a supplement like ensure used for nutrition and weight

gain. He doesn't really need pediasure anymore. He did when he was

around 14 months old, but even after the doctor suggested taking him off

of it, he still wants it. He loves to drink one with his breakfast every

morning. I figure it is healthy for him so I haven't bothered trying to

get him to quit drinking it.

4. It is 100% juice with no sugar. Maybe some preservatives -- not sure

on that one. There are no additional vitamins in the juice either, just

straight aloe vera basically and something that thins it into more of a

liquid instead of gel. I mix his with other juice, usually cranberry

juice, sometimes apple juice if I am out of cranberry. And I use 100% of

those also.

Here is the response from our doctor's office --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I was kind of disappointed. They didn't sound very excited. I wanted

them to jump up and down in amazement. LOL

Hope this helps,

Amy

[Guest guest]

Amy,

I'm sorry you were disappointed by the clinic's response. Basically, my

doctor has told us flat out that he can't support anything that doesn't

have a double-blind randomized trial behind it. Whatever. Anyway, we do

several alternative things, crataegus supplements being the main one,

and when I showed the doctor everything, all the papers that support its

use, the jar of tablets, and 's sitting right in front of him, not

culturing a thing, perfectly healthy, jumping up on the growth curve,

and he just shrugs and says, " can't hurt. " Hmph. At least you got double

exclamation points, LOL.

I am so happy that the aloe vera is working for your son...Jake is

almost 2/5 and also double df508. I am thinking about trying the aloe

vera juice with him. Of course he just decided he much prefers chocolate

milk to juice. ;-)

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

RE: Re: great results with aloe vera juice

1. My son is 2 1/2 years old

2. He is double deltaf508

3. Pediasure is a supplement like ensure used for nutrition and weight

gain. He doesn't really need pediasure anymore. He did when he was

around 14 months old, but even after the doctor suggested taking him off

of it, he still wants it. He loves to drink one with his breakfast every

morning. I figure it is healthy for him so I haven't bothered trying to

get him to quit drinking it.

4. It is 100% juice with no sugar. Maybe some preservatives -- not sure

on that one. There are no additional vitamins in the juice either, just

straight aloe vera basically and something that thins it into more of a

liquid instead of gel. I mix his with other juice, usually cranberry

juice, sometimes apple juice if I am out of cranberry. And I use 100% of

those also.

Here is the response from our doctor's office --

Very interesting!!

I'll share with Dr. W and with the dietician.

The telling factor will be his long term growth.

See you in the spring!!

Beth

I was kind of disappointed. They didn't sound very excited. I wanted

them to jump up and down in amazement. LOL

Hope this helps,

Amy

[Guest guest]

In a message dated 1/10/2003 3:36:15 PM Central Standard Time,

hiamy@... writes:

>

> Thanks to all of you who were excited to hear about Tristan. I am

> disappointed with our clinic response. At the Iowa City Clinic I talked to

> one of the nurses. Here was her response --

> Very interesting!!

> I'll share with Dr. W and with the dietician.

> The telling factor will be his long term growth.

> See you in the spring!!

> Beth

>

> I guess I was hoping for more than " very interesting "

>

> Also at our local clinic, the nurse didn't sound impressed in the least

> bit. in fact she sounded sceptical and more or less cautioned us to be

> careful and as long as we know what to look for if it is not working b/c

> " some of that stuff works for awhile you know " and also you could tell she

> didn't want us telling anybody b/c she repeated more than once that just

> b/c it works for him doesn't mean it would work for other people with cf

> and specifically mentioned the names of some of the other children in our

> area who use the clinic.

>

> It is just frustrating. I would expect them to be more happy to hear that

> we have found something that helps so significantly.

>

> Anyway, thanks again for all your encouragement. Otherwise, I would have

> been bummed.

>

> Amy

Amy,

We go to the Iowa City clinic too!! I will have to quiz Beth about this and

see what her thought are on this. I will have to tell her that I read about

it. Deb A

[Guest guest]

In a message dated 1/10/2003 3:36:15 PM Central Standard Time,

hiamy@... writes:

>

> Thanks to all of you who were excited to hear about Tristan. I am

> disappointed with our clinic response. At the Iowa City Clinic I talked to

> one of the nurses. Here was her response --

> Very interesting!!

> I'll share with Dr. W and with the dietician.

> The telling factor will be his long term growth.

> See you in the spring!!

> Beth

>

> I guess I was hoping for more than " very interesting "

>

> Also at our local clinic, the nurse didn't sound impressed in the least

> bit. in fact she sounded sceptical and more or less cautioned us to be

> careful and as long as we know what to look for if it is not working b/c

> " some of that stuff works for awhile you know " and also you could tell she

> didn't want us telling anybody b/c she repeated more than once that just

> b/c it works for him doesn't mean it would work for other people with cf

> and specifically mentioned the names of some of the other children in our

> area who use the clinic.

>

> It is just frustrating. I would expect them to be more happy to hear that

> we have found something that helps so significantly.

>

> Anyway, thanks again for all your encouragement. Otherwise, I would have

> been bummed.

>

> Amy

Amy,

We go to the Iowa City clinic too!! I will have to quiz Beth about this and

see what her thought are on this. I will have to tell her that I read about

it. Deb A

[Guest guest]

So do you take this aloe vera juice just right before they eat? And how

much

do they drink? Deb A

[Guest guest]

So do you take this aloe vera juice just right before they eat? And how

much

do they drink? Deb A

[Guest guest]

Hi Amy,

I beleive that's why we're here... We were all searching for

validation when we follow our hearts and the results work, or need an

understanding shoulder to cry on when our hearts are breaking under

the strain.

I'm not at all surprised at the lukewarm response you got from the

nurses. It's not the first time and won't be the last.

But I'm so excited for your good results!

I just ordered some Mannatech products last Sunday. They arrived

Wednesday. I haven't seen yet to give them to him but when we

discussed following this course, he was very interested. It's almost

no big deal for him -- whatever I've tried in the past for him works.

And this past year what we've been doing has worked better than what

his doctor has been doing -- so I know we're on the right track!

Kim

Mom to (23 1/2 with asthma and CF) and (20 asthma no CF)

> Thanks to all of you who were excited to hear about Tristan. I am

disappointed with our clinic response. At the Iowa City Clinic I

talked to one of the nurses. Here was her response --

> Very interesting!!

> I'll share with Dr. W and with the dietician.

> The telling factor will be his long term growth.

> See you in the spring!!

> Beth

>

> I guess I was hoping for more than " very interesting "

>

> Also at our local clinic, the nurse didn't sound impressed in the

least bit. in fact she sounded sceptical and more or less cautioned us

to be careful and as long as we know what to look for if it is not

working b/c " some of that stuff works for awhile you know " and also

you could tell she didn't want us telling anybody b/c she repeated

more than once that just b/c it works for him doesn't mean it would

work for other people with cf and specifically mentioned the names of

some of the other children in our area who use the clinic.

>

> It is just frustrating. I would expect them to be more happy to hear

that we have found something that helps so significantly.

>

> Anyway, thanks again for all your encouragement. Otherwise, I would

have been bummed.

>

> Amy

>

>

>

>

> 4 great results with aloe vera juice

>

>

> Hi to all! Just wanted to post about some really great results

that we have

> had using aloe vera juice for our son with cf. We read about

the benefits to

> the digestive system from aloe vera juice and decided to try

it. Here is our

> son's enzyme intake prior to using aloe vera juice: Meals

and snacks --

> Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3

capsules) Even on this

> he still had really mushy bowel movements and still pretty

frequent After

> using the aloe vera juice. He is 2 /12 years old and drinks

about 3-5 ounces

> per day. We waited for 3 weeks before we started reducing

enzymes and here

> is his current intake: Snacks -- no enzymes or 1 Creon 5

Meals -- 1 Creon

> 5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid,

well-formed

> bowel movements and 1 or 2 per day and not in the large

amounts as before.

> We have just been really amazed at such drastic results, but

obviously very

> happy about it. We didnt' tell our doctor we were trying this

until we knew

> if it worked. We just emailed him today and will probably hear

back

> tomorrow. It will be interesting to get his response. Just

wanted to share

> the good news. Thanks, Amy

> -------------------------------------------

> The opinions and information exchanged on this list should IN

NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS

OR TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

Hi Amy,

I beleive that's why we're here... We were all searching for

validation when we follow our hearts and the results work, or need an

understanding shoulder to cry on when our hearts are breaking under

the strain.

I'm not at all surprised at the lukewarm response you got from the

nurses. It's not the first time and won't be the last.

But I'm so excited for your good results!

I just ordered some Mannatech products last Sunday. They arrived

Wednesday. I haven't seen yet to give them to him but when we

discussed following this course, he was very interested. It's almost

no big deal for him -- whatever I've tried in the past for him works.

And this past year what we've been doing has worked better than what

his doctor has been doing -- so I know we're on the right track!

Kim

Mom to (23 1/2 with asthma and CF) and (20 asthma no CF)

> Thanks to all of you who were excited to hear about Tristan. I am

disappointed with our clinic response. At the Iowa City Clinic I

talked to one of the nurses. Here was her response --

> Very interesting!!

> I'll share with Dr. W and with the dietician.

> The telling factor will be his long term growth.

> See you in the spring!!

> Beth

>

> I guess I was hoping for more than " very interesting "

>

> Also at our local clinic, the nurse didn't sound impressed in the

least bit. in fact she sounded sceptical and more or less cautioned us

to be careful and as long as we know what to look for if it is not

working b/c " some of that stuff works for awhile you know " and also

you could tell she didn't want us telling anybody b/c she repeated

more than once that just b/c it works for him doesn't mean it would

work for other people with cf and specifically mentioned the names of

some of the other children in our area who use the clinic.

>

> It is just frustrating. I would expect them to be more happy to hear

that we have found something that helps so significantly.

>

> Anyway, thanks again for all your encouragement. Otherwise, I would

have been bummed.

>

> Amy

>

>

>

>

> 4 great results with aloe vera juice

>

>

> Hi to all! Just wanted to post about some really great results

that we have

> had using aloe vera juice for our son with cf. We read about

the benefits to

> the digestive system from aloe vera juice and decided to try

it. Here is our

> son's enzyme intake prior to using aloe vera juice: Meals

and snacks --

> Creon 10 (2-3 capsules) with Pediasure -- Creon 10 (3

capsules) Even on this

> he still had really mushy bowel movements and still pretty

frequent After

> using the aloe vera juice. He is 2 /12 years old and drinks

about 3-5 ounces

> per day. We waited for 3 weeks before we started reducing

enzymes and here

> is his current intake: Snacks -- no enzymes or 1 Creon 5

Meals -- 1 Creon

> 5 or 1 Creon 10 with Pediasure -- 1 Creon 10 Now he has solid,

well-formed

> bowel movements and 1 or 2 per day and not in the large

amounts as before.

> We have just been really amazed at such drastic results, but

obviously very

> happy about it. We didnt' tell our doctor we were trying this

until we knew

> if it worked. We just emailed him today and will probably hear

back

> tomorrow. It will be interesting to get his response. Just

wanted to share

> the good news. Thanks, Amy

> -------------------------------------------

> The opinions and information exchanged on this list should IN

NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS

OR TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

This sounds great and definately worth a try. Can I ask what mutations for

the CF gene your two and a half year old son has.

Best wishes

Lucinda Fleming-, son Dylan 22 months with cf from Durham in the UK

Reply-To: cfparents

To: cfparents >

Subject: great results with aloe vera juice

Date: Thu, 9 Jan 2003 22:17:32 -0600

Hi to all! Just wanted to post about some really great results that we have

had using aloe vera juice for our son with cf. We read about the benefits to

the digestive system from aloe vera juice and decided to try it. Here is our

son's enzyme intake prior to using aloe vera juice:

Meals and snacks -- Creon 10 (2-3 capsules)

with Pediasure -- Creon 10 (3 capsules)

Even on this he still had really mushy bowel movements and still pretty

frequent

After using the aloe vera juice. He is 2 /12 years old and drinks about 3-5

ounces per day. We waited for 3 weeks before we started reducing enzymes and

here is his current intake:

Snacks -- no enzymes or 1 Creon 5

Meals -- 1 Creon 5 or 1 Creon 10

with Pediasure -- 1 Creon 10

Now he has solid, well-formed bowel movements and 1 or 2 per day and not in

the large amounts as before.

We have just been really amazed at such drastic results, but obviously very

happy about it. We didnt' tell our doctor we were trying this until we knew

if it worked. We just emailed him today and will probably hear back

tomorrow. It will be interesting to get his response.

Just wanted to share the good news.

Thanks,

Amy

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