Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 thats fantastic Pete, looks like you did everything right. I hope you continue to improve. [low dose naltrexone] 12 Days on LDN I've been on 3mg of LDN for 12 days now. I found an LDN friendly doc, through this site, who does (and did in my case) phone consults. I got my prescription filled through Skip's, so I know it was compounded properly. The main thing I am after, of course, is to halt progression of my MS. I have only recently been diagnosed with MS, a little over 2 months ago. It was very hard to diagnose. The MRIs, even with contrast, were not definitive. It's only on the cervical that any demyelimation shows up and with no intensification with the contrast. My brain scan shows some white specs, but more the type that's consistent with the aging process, as I am 59. It wasn't till I got the LP that a diagnosis of MS was given. I'm one of the lucky one's; the only symptoms I have is drop foot (Right foot), spasticity in the legs, mainly right leg a little in the left, but not enough to cause any impairment and paresthesia (pins and needles) in both feet. I do have some difficulty with gait, due to my right leg, and have a pronounced limp, but that's it. I'm not bothered my the heat or getting overheated; I don't have the "Hugs"; no problems with my eyesight, no cognitive impairment, nothing else at all just my right leg and that's it. This is why it was so important to me to halt progression; if I could just stop its progression I could live out my life just fine. May be my skiing and dancing days were over, but I wouldn't be limited by anything else. However, I am happy to report that the paresthesia in my right foot is gone totally and it's been reduced in my left foot by 80 or 90 percent. Also my gait has improved. I can lift my foot in and out the car much easier than I could and climbing stairs has gotten easier. Hopefully I will continue to improve.I had an appointment with my neuro this past Monday. I asked him if her were familiar with LDN. He smiled and said he was. When I asked him why he was smiling he told me that he had been at a conference recently and had just asked a couple of the leading MS neuros in our area (Philadelphia) their opinion about LDN. One of them being Dr. Leist, who is the director of the MS clinic at the Jefferson University Hospital. They did not dismiss LDN out of hand. Although they weren't prescribing it, they are taking a wait and see attitude, with all the turn arounds that have occurred lately. My own neuro has an even more open attitude. He told me a story that helps explain his open attitude. When he was in Med School there was a doctor, just a GP, in Australia who came up with the theory that Peptic Ulcers were not cause by over acidity, as what was the conventional wisdom of the day, but by bacteria from evidence gathered during autopsies that he had preformed. He was dismissed out of hand; after all, the experts in the field said he was wrong and who was he as a mere GP to refute their beliefs. 10 years later he was proven to be 100% correct. Doctors now know that it is caused by the corkscrew-shaped bacterium Helicobacter pylori (H. pylori). He said this was a very valuable lesson learned early in his medical career; never discount anything just because it may go against current conventional wisdom. Today's wild theory may be tomorrow's conventional wisdom. I asked him if he'd be willing to write a prescription for me. He said he might, but wants to do a little more research first. The next day I dropped off the following documents at his office:1. An email that references the grant that the National Multiple Sclerosis Society (NMSS) funded to Dr. Ian Zagon to research LDN.2. The webpage from the NMSS site that shows the reversal of opinion where they now encourage clinical trials be conducted on LDN.3. The Article written by Y.P. Agrawal, MD, PhD, (Med Hypotheses. 2005;64(4):721-4), where Dr. Agrawal proposes that LDN reduces disease activity in MS by reducing the destruction of oligodendrocytes, the cells that manufacture myelin.4. Frequently Asked Questions about LDN that I found on the net.5. Survey of 267 Patients Using Low Dose Naltrexone for Multiple Sclerosis.Once he's digested these documents. I'll give him a call.Also today I had an appointment with my Primary care physician for my routine check up. During the exam he asked me how I was doing and I told him I was improving and asked him if he was familiar with Naltrexone. He said he was, primarily as it relates to substance abuse, but was aware that it was being used off label and why. I told him I was taking it and started by spiel. He was very interested. This time I had copies of what I had given my neuro with me and he seemed extremely interested in reviewing them. I asked him the magic question, "Would he be willing to write a prescription for LDN for me" and he said he didn't see why not. I know I could have pushed him and gotten it right there and then but thought best of it. I'll let him read and digest the documents I left with him and then call him in about a month. I figured by that time he'll become even more comfortable with prescribing it having review the documents I furnished him. It will give us one more LDN friendly doctor in our corner (In Bucks County, PA). By the way he's a D.O. not an M.D. D.O.'s seem to be more receptive to alternate treatments.I sorry I've rattled on, but I'm just so excited I couldn't contain myself.Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Pete! I am so happy for you! Yippee! I want to know, if it is okay, if I send this email to a nurse I know who works for a neurologists that would not prescribe LDN and if I could send it to the doctor who is the head of the MS Clinic in ville, Florida. I want him to see your story and see what his peers are thinking. May I use this on my website? You told it so well and I am so excited for you! Lets jump up and down! haha! Peace and Health Always To You Pete! Donna www.freewebs.com/lovelaugh/ > > thats fantastic Pete, looks like you did everything right. I hope you continue to improve. > [low dose naltrexone] 12 Days on LDN > > > I've been on 3mg of LDN for 12 days now. I found an LDN friendly > doc, through this site, who does (and did in my case) phone > consults. I got my prescription filled through Skip's, so I know it > was compounded properly. The main thing I am after, of course, is to > halt progression of my MS. I have only recently been diagnosed with > MS, a little over 2 months ago. It was very hard to diagnose. The > MRIs, even with contrast, were not definitive. It's only on the > cervical that any demyelimation shows up and with no intensification > with the contrast. My brain scan shows some white specs, but more > the type that's consistent with the aging process, as I am 59. It > wasn't till I got the LP that a diagnosis of MS was given. I'm one > of the lucky one's; the only symptoms I have is drop foot (Right > foot), spasticity in the legs, mainly right leg a little in the left, > but not enough to cause any impairment and paresthesia (pins and > needles) in both feet. I do have some difficulty with gait, due to > my right leg, and have a pronounced limp, but that's it. I'm not > bothered my the heat or getting overheated; I don't have the " Hugs " ; > no problems with my eyesight, no cognitive impairment, nothing else > at all just my right leg and that's it. This is why it was so > important to me to halt progression; if I could just stop its > progression I could live out my life just fine. May be my skiing and > dancing days were over, but I wouldn't be limited by anything else. > However, I am happy to report that the paresthesia in my right foot > is gone totally and it's been reduced in my left foot by 80 or 90 > percent. Also my gait has improved. I can lift my foot in and out > the car much easier than I could and climbing stairs has gotten > easier. Hopefully I will continue to improve. > > I had an appointment with my neuro this past Monday. I asked him if > her were familiar with LDN. He smiled and said he was. When I asked > him why he was smiling he told me that he had been at a conference > recently and had just asked a couple of the leading MS neuros in our > area (Philadelphia) their opinion about LDN. One of them being Dr. > Leist, who is the director of the MS clinic at the Jefferson > University Hospital. They did not dismiss LDN out of hand. Although > they weren't prescribing it, they are taking a wait and see attitude, > with all the turn arounds that have occurred lately. My own neuro > has an even more open attitude. He told me a story that helps > explain his open attitude. When he was in Med School there was a > doctor, just a GP, in Australia who came up with the theory that > Peptic Ulcers were not cause by over acidity, as what was the > conventional wisdom of the day, but by bacteria from evidence > gathered during autopsies that he had preformed. He was dismissed > out of hand; after all, the experts in the field said he was wrong > and who was he as a mere GP to refute their beliefs. 10 years later > he was proven to be 100% correct. Doctors now know that it is caused > by the corkscrew-shaped bacterium Helicobacter pylori (H. pylori). > He said this was a very valuable lesson learned early in his medical > career; never discount anything just because it may go against > current conventional wisdom. Today's wild theory may be tomorrow's > conventional wisdom. I asked him if he'd be willing to write a > prescription for me. He said he might, but wants to do a little more > research first. The next day I dropped off the following documents > at his office: > > 1. An email that references the grant that the National Multiple > Sclerosis Society (NMSS) funded to Dr. Ian Zagon to research LDN. > 2. The webpage from the NMSS site that shows the reversal of > opinion where they now encourage clinical trials be conducted on LDN. > 3. The Article written by Y.P. Agrawal, MD, PhD, (Med > Hypotheses. 2005;64(4):721-4), where Dr. Agrawal proposes that LDN > reduces disease activity in MS by reducing the destruction of > oligodendrocytes, the cells that manufacture myelin. > 4. Frequently Asked Questions about LDN that I found on the net. > 5. Survey of 267 Patients Using Low Dose Naltrexone for Multiple > Sclerosis. > > Once he's digested these documents. I'll give him a call. > > Also today I had an appointment with my Primary care physician for my > routine check up. During the exam he asked me how I was doing and I > told him I was improving and asked him if he was familiar with > Naltrexone. He said he was, primarily as it relates to substance > abuse, but was aware that it was being used off label and why. I > told him I was taking it and started by spiel. He was very > interested. This time I had copies of what I had given my neuro with > me and he seemed extremely interested in reviewing them. I asked him > the magic question, " Would he be willing to write a prescription for > LDN for me " and he said he didn't see why not. I know I could have > pushed him and gotten it right there and then but thought best of > it. I'll let him read and digest the documents I left with him and > then call him in about a month. I figured by that time he'll become > even more comfortable with prescribing it having review the documents > I furnished him. It will give us one more LDN friendly doctor in our > corner (In Bucks County, PA). By the way he's a D.O. not an M.D. > D.O.'s seem to be more receptive to alternate treatments. > > I sorry I've rattled on, but I'm just so excited I couldn't contain > myself. > > Pete > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Pete! I am so happy for you! Yippee! I want to know, if it is okay, if I send this email to a nurse I know who works for a neurologists that would not prescribe LDN and if I could send it to the doctor who is the head of the MS Clinic in ville, Florida. I want him to see your story and see what his peers are thinking. May I use this on my website? You told it so well and I am so excited for you! Lets jump up and down! haha! Peace and Health Always To You Pete! Donna www.freewebs.com/lovelaugh/ > > thats fantastic Pete, looks like you did everything right. I hope you continue to improve. > [low dose naltrexone] 12 Days on LDN > > > I've been on 3mg of LDN for 12 days now. I found an LDN friendly > doc, through this site, who does (and did in my case) phone > consults. I got my prescription filled through Skip's, so I know it > was compounded properly. The main thing I am after, of course, is to > halt progression of my MS. I have only recently been diagnosed with > MS, a little over 2 months ago. It was very hard to diagnose. The > MRIs, even with contrast, were not definitive. It's only on the > cervical that any demyelimation shows up and with no intensification > with the contrast. My brain scan shows some white specs, but more > the type that's consistent with the aging process, as I am 59. It > wasn't till I got the LP that a diagnosis of MS was given. I'm one > of the lucky one's; the only symptoms I have is drop foot (Right > foot), spasticity in the legs, mainly right leg a little in the left, > but not enough to cause any impairment and paresthesia (pins and > needles) in both feet. I do have some difficulty with gait, due to > my right leg, and have a pronounced limp, but that's it. I'm not > bothered my the heat or getting overheated; I don't have the " Hugs " ; > no problems with my eyesight, no cognitive impairment, nothing else > at all just my right leg and that's it. This is why it was so > important to me to halt progression; if I could just stop its > progression I could live out my life just fine. May be my skiing and > dancing days were over, but I wouldn't be limited by anything else. > However, I am happy to report that the paresthesia in my right foot > is gone totally and it's been reduced in my left foot by 80 or 90 > percent. Also my gait has improved. I can lift my foot in and out > the car much easier than I could and climbing stairs has gotten > easier. Hopefully I will continue to improve. > > I had an appointment with my neuro this past Monday. I asked him if > her were familiar with LDN. He smiled and said he was. When I asked > him why he was smiling he told me that he had been at a conference > recently and had just asked a couple of the leading MS neuros in our > area (Philadelphia) their opinion about LDN. One of them being Dr. > Leist, who is the director of the MS clinic at the Jefferson > University Hospital. They did not dismiss LDN out of hand. Although > they weren't prescribing it, they are taking a wait and see attitude, > with all the turn arounds that have occurred lately. My own neuro > has an even more open attitude. He told me a story that helps > explain his open attitude. When he was in Med School there was a > doctor, just a GP, in Australia who came up with the theory that > Peptic Ulcers were not cause by over acidity, as what was the > conventional wisdom of the day, but by bacteria from evidence > gathered during autopsies that he had preformed. He was dismissed > out of hand; after all, the experts in the field said he was wrong > and who was he as a mere GP to refute their beliefs. 10 years later > he was proven to be 100% correct. Doctors now know that it is caused > by the corkscrew-shaped bacterium Helicobacter pylori (H. pylori). > He said this was a very valuable lesson learned early in his medical > career; never discount anything just because it may go against > current conventional wisdom. Today's wild theory may be tomorrow's > conventional wisdom. I asked him if he'd be willing to write a > prescription for me. He said he might, but wants to do a little more > research first. The next day I dropped off the following documents > at his office: > > 1. An email that references the grant that the National Multiple > Sclerosis Society (NMSS) funded to Dr. Ian Zagon to research LDN. > 2. The webpage from the NMSS site that shows the reversal of > opinion where they now encourage clinical trials be conducted on LDN. > 3. The Article written by Y.P. Agrawal, MD, PhD, (Med > Hypotheses. 2005;64(4):721-4), where Dr. Agrawal proposes that LDN > reduces disease activity in MS by reducing the destruction of > oligodendrocytes, the cells that manufacture myelin. > 4. Frequently Asked Questions about LDN that I found on the net. > 5. Survey of 267 Patients Using Low Dose Naltrexone for Multiple > Sclerosis. > > Once he's digested these documents. I'll give him a call. > > Also today I had an appointment with my Primary care physician for my > routine check up. During the exam he asked me how I was doing and I > told him I was improving and asked him if he was familiar with > Naltrexone. He said he was, primarily as it relates to substance > abuse, but was aware that it was being used off label and why. I > told him I was taking it and started by spiel. He was very > interested. This time I had copies of what I had given my neuro with > me and he seemed extremely interested in reviewing them. I asked him > the magic question, " Would he be willing to write a prescription for > LDN for me " and he said he didn't see why not. I know I could have > pushed him and gotten it right there and then but thought best of > it. I'll let him read and digest the documents I left with him and > then call him in about a month. I figured by that time he'll become > even more comfortable with prescribing it having review the documents > I furnished him. It will give us one more LDN friendly doctor in our > corner (In Bucks County, PA). By the way he's a D.O. not an M.D. > D.O.'s seem to be more receptive to alternate treatments. > > I sorry I've rattled on, but I'm just so excited I couldn't contain > myself. > > Pete > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Thanks for posting Pete. Your story is concise and relevant. Posting to this group makes your story part of the public domain, adding to the sum anecdotal evidence in favor of LDN, which is great. I'll give an unsolicited word of advice. My wife also had major improvements right away. She has since had a tendency to try to forget she has MS. She feels great compared to before, pushes herself too hard, MS knocks her back for a few days, repeat. A tough cycle to break, it seems. Pete Fuller wrote: > I've been on 3mg of LDN for 12 days now. I found an LDN friendly > doc, through this site, who does (and did in my case) phone > consults. I got my prescription filled through Skip's, so I know it > was compounded properly. The main thing I am after, of course, is to > halt progression of my MS. I have only recently been diagnosed with > MS, a little over 2 months ago. It was very hard to diagnose. The > MRIs, even with contrast, were not definitive. It's only on the > cervical that any demyelimation shows up and with no intensification > with the contrast. My brain scan shows some white specs, but more > the type that's consistent with the aging process, as I am 59. It > wasn't till I got the LP that a diagnosis of MS was given. I'm one > of the lucky one's; the only symptoms I have is drop foot (Right > foot), spasticity in the legs, mainly right leg a little in the left, > but not enough to cause any impairment and paresthesia (pins and > needles) in both feet. I do have some difficulty with gait, due to > my right leg, and have a pronounced limp, but that's it. I'm not > bothered my the heat or getting overheated; I don't have the " Hugs " ; > no problems with my eyesight, no cognitive impairment, nothing else > at all just my right leg and that's it. This is why it was so > important to me to halt progression; if I could just stop its > progression I could live out my life just fine. May be my skiing and > dancing days were over, but I wouldn't be limited by anything else. > However, I am happy to report that the paresthesia in my right foot > is gone totally and it's been reduced in my left foot by 80 or 90 > percent. Also my gait has improved. I can lift my foot in and out > the car much easier than I could and climbing stairs has gotten > easier. Hopefully I will continue to improve. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 I think if you watch your diet and stay on LDN, you will still ski and dance. It has worked for many of us. Best to you, Kathy [low dose naltrexone] 12 Days on LDN I've been on 3mg of LDN for 12 days now. I found an LDN friendly doc, through this site, who does (and did in my case) phone consults. I got my prescription filled through Skip's, so I know it was compounded properly. The main thing I am after, of course, is to halt progression of my MS. I have only recently been diagnosed with MS, a little over 2 months ago. It was very hard to diagnose. The MRIs, even with contrast, were not definitive. It's only on the cervical that any demyelimation shows up and with no intensification with the contrast. My brain scan shows some white specs, but more the type that's consistent with the aging process, as I am 59. It wasn't till I got the LP that a diagnosis of MS was given. I'm one of the lucky one's; the only symptoms I have is drop foot (Right foot), spasticity in the legs, mainly right leg a little in the left, but not enough to cause any impairment and paresthesia (pins and needles) in both feet. I do have some difficulty with gait, due to my right leg, and have a pronounced limp, but that's it. I'm not bothered my the heat or getting overheated; I don't have the "Hugs"; no problems with my eyesight, no cognitive impairment, nothing else at all just my right leg and that's it. This is why it was so important to me to halt progression; if I could just stop its progression I could live out my life just fine. May be my skiing and dancing days were over, but I wouldn't be limited by anything else. However, I am happy to report that the paresthesia in my right foot is gone totally and it's been reduced in my left foot by 80 or 90 percent. Also my gait has improved. I can lift my foot in and out the car much easier than I could and climbing stairs has gotten easier. Hopefully I will continue to improve.I had an appointment with my neuro this past Monday. I asked him if her were familiar with LDN. He smiled and said he was. When I asked him why he was smiling he told me that he had been at a conference recently and had just asked a couple of the leading MS neuros in our area (Philadelphia) their opinion about LDN. One of them being Dr. Leist, who is the director of the MS clinic at the Jefferson University Hospital. They did not dismiss LDN out of hand. Although they weren't prescribing it, they are taking a wait and see attitude, with all the turn arounds that have occurred lately. My own neuro has an even more open attitude. He told me a story that helps explain his open attitude. When he was in Med School there was a doctor, just a GP, in Australia who came up with the theory that Peptic Ulcers were not cause by over acidity, as what was the conventional wisdom of the day, but by bacteria from evidence gathered during autopsies that he had preformed. He was dismissed out of hand; after all, the experts in the field said he was wrong and who was he as a mere GP to refute their beliefs. 10 years later he was proven to be 100% correct. Doctors now know that it is caused by the corkscrew-shaped bacterium Helicobacter pylori (H. pylori). He said this was a very valuable lesson learned early in his medical career; never discount anything just because it may go against current conventional wisdom. Today's wild theory may be tomorrow's conventional wisdom. I asked him if he'd be willing to write a prescription for me. He said he might, but wants to do a little more research first. The next day I dropped off the following documents at his office:1. An email that references the grant that the National Multiple Sclerosis Society (NMSS) funded to Dr. Ian Zagon to research LDN.2. The webpage from the NMSS site that shows the reversal of opinion where they now encourage clinical trials be conducted on LDN.3. The Article written by Y.P. Agrawal, MD, PhD, (Med Hypotheses. 2005;64(4):721-4), where Dr. Agrawal proposes that LDN reduces disease activity in MS by reducing the destruction of oligodendrocytes, the cells that manufacture myelin.4. Frequently Asked Questions about LDN that I found on the net.5. Survey of 267 Patients Using Low Dose Naltrexone for Multiple Sclerosis.Once he's digested these documents. I'll give him a call.Also today I had an appointment with my Primary care physician for my routine check up. During the exam he asked me how I was doing and I told him I was improving and asked him if he was familiar with Naltrexone. He said he was, primarily as it relates to substance abuse, but was aware that it was being used off label and why. I told him I was taking it and started by spiel. He was very interested. This time I had copies of what I had given my neuro with me and he seemed extremely interested in reviewing them. I asked him the magic question, "Would he be willing to write a prescription for LDN for me" and he said he didn't see why not. I know I could have pushed him and gotten it right there and then but thought best of it. I'll let him read and digest the documents I left with him and then call him in about a month. I figured by that time he'll become even more comfortable with prescribing it having review the documents I furnished him. It will give us one more LDN friendly doctor in our corner (In Bucks County, PA). By the way he's a D.O. not an M.D. D.O.'s seem to be more receptive to alternate treatments.I sorry I've rattled on, but I'm just so excited I couldn't contain myself.Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Wewly, Thanks for your advise, I will take it to heart. Pete Re: [low dose naltrexone] 12 Days on LDN Thanks for posting Pete. Your story is concise and relevant. Posting to this group makes your story part of the public domain, adding to the sum anecdotal evidence in favor of LDN, which is great.I'll give an unsolicited word of advice. My wife also had major improvements right away. She has since had a tendency to try to forget she has MS. She feels great compared to before, pushes herself too hard, MS knocks her back for a few days, repeat. A tough cycle to break, it seems.Pete Fuller wrote:> I've been on 3mg of LDN for 12 days now. I found an LDN friendly> doc, through this site, who does (and did in my case) phone> consults. I got my prescription filled through Skip's, so I know it> was compounded properly. The main thing I am after, of course, is to> halt progression of my MS. I have only recently been diagnosed with> MS, a little over 2 months ago. It was very hard to diagnose. The> MRIs, even with contrast, were not definitive. It's only on the> cervical that any demyelimation shows up and with no intensification> with the contrast. My brain scan shows some white specs, but more> the type that's consistent with the aging process, as I am 59. It> wasn't till I got the LP that a diagnosis of MS was given. I'm one> of the lucky one's; the only symptoms I have is drop foot (Right> foot), spasticity in the legs, mainly right leg a little in the left,> but not enough to cause any impairment and paresthesia (pins and> needles) in both feet. I do have some difficulty with gait, due to> my right leg, and have a pronounced limp, but that's it. I'm not> bothered my the heat or getting overheated; I don't have the "Hugs";> no problems with my eyesight, no cognitive impairment, nothing else> at all just my right leg and that's it. This is why it was so> important to me to halt progression; if I could just stop its> progression I could live out my life just fine. May be my skiing and> dancing days were over, but I wouldn't be limited by anything else.> However, I am happy to report that the paresthesia in my right foot> is gone totally and it's been reduced in my left foot by 80 or 90> percent. Also my gait has improved. I can lift my foot in and out> the car much easier than I could and climbing stairs has gotten> easier. Hopefully I will continue to improve.>>>> No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.7/435 - Release Date: 8/31/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Hi Again Donna, I take it you live in ville. I've visited your fair city several times. My sister lives in ville. The world is small, isn't it. Pete [low dose naltrexone] 12 Days on LDN> > > I've been on 3mg of LDN for 12 days now. I found an LDN friendly > doc, through this site, who does (and did in my case) phone > consults. I got my prescription filled through Skip's, so I know it > was compounded properly. The main thing I am after, of course, is to > halt progression of my MS. I have only recently been diagnosed with > MS, a little over 2 months ago. It was very hard to diagnose. The > MRIs, even with contrast, were not definitive. It's only on the > cervical that any demyelimation shows up and with no intensification > with the contrast. My brain scan shows some white specs, but more > the type that's consistent with the aging process, as I am 59. It > wasn't till I got the LP that a diagnosis of MS was given. I'm one > of the lucky one's; the only symptoms I have is drop foot (Right > foot), spasticity in the legs, mainly right leg a little in the left, > but not enough to cause any impairment and paresthesia (pins and > needles) in both feet. I do have some difficulty with gait, due to > my right leg, and have a pronounced limp, but that's it. I'm not > bothered my the heat or getting overheated; I don't have the "Hugs"; > no problems with my eyesight, no cognitive impairment, nothing else > at all just my right leg and that's it. This is why it was so > important to me to halt progression; if I could just stop its > progression I could live out my life just fine. May be my skiing and > dancing days were over, but I wouldn't be limited by anything else. > However, I am happy to report that the paresthesia in my right foot > is gone totally and it's been reduced in my left foot by 80 or 90 > percent. Also my gait has improved. I can lift my foot in and out > the car much easier than I could and climbing stairs has gotten > easier. Hopefully I will continue to improve.> > I had an appointment with my neuro this past Monday. I asked him if > her were familiar with LDN. He smiled and said he was. When I asked > him why he was smiling he told me that he had been at a conference > recently and had just asked a couple of the leading MS neuros in our > area (Philadelphia) their opinion about LDN. One of them being Dr. > Leist, who is the director of the MS clinic at the Jefferson > University Hospital. They did not dismiss LDN out of hand. Although > they weren't prescribing it, they are taking a wait and see attitude, > with all the turn arounds that have occurred lately. My own neuro > has an even more open attitude. He told me a story that helps > explain his open attitude. When he was in Med School there was a > doctor, just a GP, in Australia who came up with the theory that > Peptic Ulcers were not cause by over acidity, as what was the > conventional wisdom of the day, but by bacteria from evidence > gathered during autopsies that he had preformed. He was dismissed > out of hand; after all, the experts in the field said he was wrong > and who was he as a mere GP to refute their beliefs. 10 years later > he was proven to be 100% correct. Doctors now know that it is caused > by the corkscrew-shaped bacterium Helicobacter pylori (H. pylori). > He said this was a very valuable lesson learned early in his medical > career; never discount anything just because it may go against > current conventional wisdom. Today's wild theory may be tomorrow's > conventional wisdom. I asked him if he'd be willing to write a > prescription for me. He said he might, but wants to do a little more > research first. The next day I dropped off the following documents > at his office:> > 1. An email that references the grant that the National Multiple > Sclerosis Society (NMSS) funded to Dr. Ian Zagon to research LDN.> 2. The webpage from the NMSS site that shows the reversal of > opinion where they now encourage clinical trials be conducted on LDN.> 3. The Article written by Y.P. Agrawal, MD, PhD, (Med > Hypotheses. 2005;64(4):721-4), where Dr. Agrawal proposes that LDN > reduces disease activity in MS by reducing the destruction of > oligodendrocytes, the cells that manufacture myelin.> 4. Frequently Asked Questions about LDN that I found on the net.> 5. Survey of 267 Patients Using Low Dose Naltrexone for Multiple > Sclerosis.> > Once he's digested these documents. I'll give him a call.> > Also today I had an appointment with my Primary care physician for my > routine check up. During the exam he asked me how I was doing and I > told him I was improving and asked him if he was familiar with > Naltrexone. He said he was, primarily as it relates to substance > abuse, but was aware that it was being used off label and why. I > told him I was taking it and started by spiel. He was very > interested. This time I had copies of what I had given my neuro with > me and he seemed extremely interested in reviewing them. I asked him > the magic question, "Would he be willing to write a prescription for > LDN for me" and he said he didn't see why not. I know I could have > pushed him and gotten it right there and then but thought best of > it. I'll let him read and digest the documents I left with him and > then call him in about a month. I figured by that time he'll become > even more comfortable with prescribing it having review the documents > I furnished him. It will give us one more LDN friendly doctor in our > corner (In Bucks County, PA). By the way he's a D.O. not an M.D. > D.O.'s seem to be more receptive to alternate treatments.> > I sorry I've rattled on, but I'm just so excited I couldn't contain > myself.> > Pete> No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.7/435 - Release Date: 8/31/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Donna, Are you referring to the MS Clinic at St. Luke's/ Mayo Clinic? I went there for awhile....was curious who heads it now.....that was the only MS clinic that I knew of in ville. nancy > > > > thats fantastic Pete, looks like you did everything right. I hope > you continue to improve. > > [low dose naltrexone] 12 Days on LDN > > > > > > I've been on 3mg of LDN for 12 days now. I found an LDN friendly > > doc, through this site, who does (and did in my case) phone > > consults. I got my prescription filled through Skip's, so I know > it > > was compounded properly. The main thing I am after, of course, is > to > > halt progression of my MS. I have only recently been diagnosed > with > > MS, a little over 2 months ago. It was very hard to diagnose. The > > MRIs, even with contrast, were not definitive. It's only on the > > cervical that any demyelimation shows up and with no > intensification > > with the contrast. My brain scan shows some white specs, but more > > the type that's consistent with the aging process, as I am 59. It > > wasn't till I got the LP that a diagnosis of MS was given. I'm > one > > of the lucky one's; the only symptoms I have is drop foot (Right > > foot), spasticity in the legs, mainly right leg a little in the > left, > > but not enough to cause any impairment and paresthesia (pins and > > needles) in both feet. I do have some difficulty with gait, due > to > > my right leg, and have a pronounced limp, but that's it. I'm not > > bothered my the heat or getting overheated; I don't have > the " Hugs " ; > > no problems with my eyesight, no cognitive impairment, nothing > else > > at all just my right leg and that's it. This is why it was so > > important to me to halt progression; if I could just stop its > > progression I could live out my life just fine. May be my skiing > and > > dancing days were over, but I wouldn't be limited by anything > else. > > However, I am happy to report that the paresthesia in my right > foot > > is gone totally and it's been reduced in my left foot by 80 or 90 > > percent. Also my gait has improved. I can lift my foot in and out > > the car much easier than I could and climbing stairs has gotten > > easier. Hopefully I will continue to improve. > > > > I had an appointment with my neuro this past Monday. I asked him > if > > her were familiar with LDN. He smiled and said he was. When I > asked > > him why he was smiling he told me that he had been at a > conference > > recently and had just asked a couple of the leading MS neuros in > our > > area (Philadelphia) their opinion about LDN. One of them being > Dr. > > Leist, who is the director of the MS clinic at the > Jefferson > > University Hospital. They did not dismiss LDN out of hand. > Although > > they weren't prescribing it, they are taking a wait and see > attitude, > > with all the turn arounds that have occurred lately. My own neuro > > has an even more open attitude. He told me a story that helps > > explain his open attitude. When he was in Med School there was a > > doctor, just a GP, in Australia who came up with the theory that > > Peptic Ulcers were not cause by over acidity, as what was the > > conventional wisdom of the day, but by bacteria from evidence > > gathered during autopsies that he had preformed. He was dismissed > > out of hand; after all, the experts in the field said he was > wrong > > and who was he as a mere GP to refute their beliefs. 10 years > later > > he was proven to be 100% correct. Doctors now know that it is > caused > > by the corkscrew-shaped bacterium Helicobacter pylori (H. > pylori). > > He said this was a very valuable lesson learned early in his > medical > > career; never discount anything just because it may go against > > current conventional wisdom. Today's wild theory may be > tomorrow's > > conventional wisdom. I asked him if he'd be willing to write a > > prescription for me. He said he might, but wants to do a little > more > > research first. The next day I dropped off the following > documents > > at his office: > > > > 1. An email that references the grant that the National Multiple > > Sclerosis Society (NMSS) funded to Dr. Ian Zagon to research LDN. > > 2. The webpage from the NMSS site that shows the reversal of > > opinion where they now encourage clinical trials be conducted on > LDN. > > 3. The Article written by Y.P. Agrawal, MD, PhD, (Med > > Hypotheses. 2005;64(4):721-4), where Dr. Agrawal proposes that > LDN > > reduces disease activity in MS by reducing the destruction of > > oligodendrocytes, the cells that manufacture myelin. > > 4. Frequently Asked Questions about LDN that I found on the net. > > 5. Survey of 267 Patients Using Low Dose Naltrexone for Multiple > > Sclerosis. > > > > Once he's digested these documents. I'll give him a call. > > > > Also today I had an appointment with my Primary care physician > for my > > routine check up. During the exam he asked me how I was doing and > I > > told him I was improving and asked him if he was familiar with > > Naltrexone. He said he was, primarily as it relates to substance > > abuse, but was aware that it was being used off label and why. I > > told him I was taking it and started by spiel. He was very > > interested. This time I had copies of what I had given my neuro > with > > me and he seemed extremely interested in reviewing them. I asked > him > > the magic question, " Would he be willing to write a prescription > for > > LDN for me " and he said he didn't see why not. I know I could > have > > pushed him and gotten it right there and then but thought best of > > it. I'll let him read and digest the documents I left with him > and > > then call him in about a month. I figured by that time he'll > become > > even more comfortable with prescribing it having review the > documents > > I furnished him. It will give us one more LDN friendly doctor in > our > > corner (In Bucks County, PA). By the way he's a D.O. not an M.D. > > D.O.'s seem to be more receptive to alternate treatments. > > > > I sorry I've rattled on, but I'm just so excited I couldn't > contain > > myself. > > > > Pete > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 , He said he was the head of the MS Clinic in ville...I think it is related to Shands Teaching Hospital in Gainesville. I don't know. It is 580 West 8th St., Plaza 1, 9th Floor, ville....what does that mean? You live in ville, Florida? Take care, God Bless, Donna www.freewebs.com/lovelaugh/ > > > > > > thats fantastic Pete, looks like you did everything right. I > hope > > you continue to improve. > > > [low dose naltrexone] 12 Days on LDN > > > > > > > > > I've been on 3mg of LDN for 12 days now. I found an LDN > friendly > > > doc, through this site, who does (and did in my case) phone > > > consults. I got my prescription filled through Skip's, so I > know > > it > > > was compounded properly. The main thing I am after, of course, > is > > to > > > halt progression of my MS. I have only recently been diagnosed > > with > > > MS, a little over 2 months ago. It was very hard to diagnose. > The > > > MRIs, even with contrast, were not definitive. It's only on > the > > > cervical that any demyelimation shows up and with no > > intensification > > > with the contrast. My brain scan shows some white specs, but > more > > > the type that's consistent with the aging process, as I am 59. > It > > > wasn't till I got the LP that a diagnosis of MS was given. I'm > > one > > > of the lucky one's; the only symptoms I have is drop foot > (Right > > > foot), spasticity in the legs, mainly right leg a little in > the > > left, > > > but not enough to cause any impairment and paresthesia (pins > and > > > needles) in both feet. I do have some difficulty with gait, > due > > to > > > my right leg, and have a pronounced limp, but that's it. I'm > not > > > bothered my the heat or getting overheated; I don't have > > the " Hugs " ; > > > no problems with my eyesight, no cognitive impairment, nothing > > else > > > at all just my right leg and that's it. This is why it was so > > > important to me to halt progression; if I could just stop its > > > progression I could live out my life just fine. May be my > skiing > > and > > > dancing days were over, but I wouldn't be limited by anything > > else. > > > However, I am happy to report that the paresthesia in my right > > foot > > > is gone totally and it's been reduced in my left foot by 80 or > 90 > > > percent. Also my gait has improved. I can lift my foot in and > out > > > the car much easier than I could and climbing stairs has > gotten > > > easier. Hopefully I will continue to improve. > > > > > > I had an appointment with my neuro this past Monday. I asked > him > > if > > > her were familiar with LDN. He smiled and said he was. When I > > asked > > > him why he was smiling he told me that he had been at a > > conference > > > recently and had just asked a couple of the leading MS neuros > in > > our > > > area (Philadelphia) their opinion about LDN. One of them being > > Dr. > > > Leist, who is the director of the MS clinic at the > > Jefferson > > > University Hospital. They did not dismiss LDN out of hand. > > Although > > > they weren't prescribing it, they are taking a wait and see > > attitude, > > > with all the turn arounds that have occurred lately. My own > neuro > > > has an even more open attitude. He told me a story that helps > > > explain his open attitude. When he was in Med School there was > a > > > doctor, just a GP, in Australia who came up with the theory > that > > > Peptic Ulcers were not cause by over acidity, as what was the > > > conventional wisdom of the day, but by bacteria from evidence > > > gathered during autopsies that he had preformed. He was > dismissed > > > out of hand; after all, the experts in the field said he was > > wrong > > > and who was he as a mere GP to refute their beliefs. 10 years > > later > > > he was proven to be 100% correct. Doctors now know that it is > > caused > > > by the corkscrew-shaped bacterium Helicobacter pylori (H. > > pylori). > > > He said this was a very valuable lesson learned early in his > > medical > > > career; never discount anything just because it may go against > > > current conventional wisdom. Today's wild theory may be > > tomorrow's > > > conventional wisdom. I asked him if he'd be willing to write a > > > prescription for me. He said he might, but wants to do a > little > > more > > > research first. The next day I dropped off the following > > documents > > > at his office: > > > > > > 1. An email that references the grant that the National > Multiple > > > Sclerosis Society (NMSS) funded to Dr. Ian Zagon to research > LDN. > > > 2. The webpage from the NMSS site that shows the reversal of > > > opinion where they now encourage clinical trials be conducted > on > > LDN. > > > 3. The Article written by Y.P. Agrawal, MD, PhD, (Med > > > Hypotheses. 2005;64(4):721-4), where Dr. Agrawal proposes that > > LDN > > > reduces disease activity in MS by reducing the destruction of > > > oligodendrocytes, the cells that manufacture myelin. > > > 4. Frequently Asked Questions about LDN that I found on the > net. > > > 5. Survey of 267 Patients Using Low Dose Naltrexone for > Multiple > > > Sclerosis. > > > > > > Once he's digested these documents. I'll give him a call. > > > > > > Also today I had an appointment with my Primary care physician > > for my > > > routine check up. During the exam he asked me how I was doing > and > > I > > > told him I was improving and asked him if he was familiar with > > > Naltrexone. He said he was, primarily as it relates to > substance > > > abuse, but was aware that it was being used off label and why. > I > > > told him I was taking it and started by spiel. He was very > > > interested. This time I had copies of what I had given my > neuro > > with > > > me and he seemed extremely interested in reviewing them. I > asked > > him > > > the magic question, " Would he be willing to write a > prescription > > for > > > LDN for me " and he said he didn't see why not. I know I could > > have > > > pushed him and gotten it right there and then but thought best > of > > > it. I'll let him read and digest the documents I left with him > > and > > > then call him in about a month. I figured by that time he'll > > become > > > even more comfortable with prescribing it having review the > > documents > > > I furnished him. It will give us one more LDN friendly doctor > in > > our > > > corner (In Bucks County, PA). By the way he's a D.O. not an > M.D. > > > D.O.'s seem to be more receptive to alternate treatments. > > > > > > I sorry I've rattled on, but I'm just so excited I couldn't > > contain > > > myself. > > > > > > Pete > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Donna, There must be two MS clinics?? My husband was transferred to ville in 1997. We got a place in Ponte Vedra Beach on the coast. .....I stayed here...I am in polis, MD. We travelled back and forth for 5 years. I had to find a neurologist down there too. I found one at Mayo Clinic...Dr. Shuster. She had been a researcher in MS...I think at Mayo in Minnesota.... she was the head of the MS Clinic at St. Lukes Hospital. She sent me over to the clinic one time. I liked her...and I was wondering what she or the clinic thought about LDN. It sounded like the clinic that you were referring to needed convincing. They must have an MS clinic at Shands Hospital...I think that was downtown. I take it that you live in FLA...nancy - -- In low dose naltrexone , " doofus117 " <doofus117@...> wrote: > > , He said he was the head of the MS Clinic in ville...I > think it is related to Shands Teaching Hospital in Gainesville. I > don't know. It is 580 West 8th St., Plaza 1, 9th Floor, > ville....what does that mean? You live in ville, > Florida? > Take care, God Bless, Donna > > www.freewebs.com/lovelaugh/ > > > > > > > > > > > > > thats fantastic Pete, looks like you did everything right. I > > hope > > > you continue to improve. > > > > [low dose naltrexone] 12 Days on LDN > > > > > > > > > > > > I've been on 3mg of LDN for 12 days now. I found an LDN > > friendly > > > > doc, through this site, who does (and did in my case) phone > > > > consults. I got my prescription filled through Skip's, so I > > know > > > it > > > > was compounded properly. The main thing I am after, of > course, > > is > > > to > > > > halt progression of my MS. I have only recently been > diagnosed > > > with > > > > MS, a little over 2 months ago. It was very hard to diagnose. > > The > > > > MRIs, even with contrast, were not definitive. It's only on > > the > > > > cervical that any demyelimation shows up and with no > > > intensification > > > > with the contrast. My brain scan shows some white specs, but > > more > > > > the type that's consistent with the aging process, as I am > 59. > > It > > > > wasn't till I got the LP that a diagnosis of MS was given. > I'm > > > one > > > > of the lucky one's; the only symptoms I have is drop foot > > (Right > > > > foot), spasticity in the legs, mainly right leg a little in > > the > > > left, > > > > but not enough to cause any impairment and paresthesia (pins > > and > > > > needles) in both feet. I do have some difficulty with gait, > > due > > > to > > > > my right leg, and have a pronounced limp, but that's it. I'm > > not > > > > bothered my the heat or getting overheated; I don't have > > > the " Hugs " ; > > > > no problems with my eyesight, no cognitive impairment, > nothing > > > else > > > > at all just my right leg and that's it. This is why it was so > > > > important to me to halt progression; if I could just stop its > > > > progression I could live out my life just fine. May be my > > skiing > > > and > > > > dancing days were over, but I wouldn't be limited by anything > > > else. > > > > However, I am happy to report that the paresthesia in my > right > > > foot > > > > is gone totally and it's been reduced in my left foot by 80 > or > > 90 > > > > percent. Also my gait has improved. I can lift my foot in and > > out > > > > the car much easier than I could and climbing stairs has > > gotten > > > > easier. Hopefully I will continue to improve. > > > > > > > > I had an appointment with my neuro this past Monday. I asked > > him > > > if > > > > her were familiar with LDN. He smiled and said he was. When I > > > asked > > > > him why he was smiling he told me that he had been at a > > > conference > > > > recently and had just asked a couple of the leading MS neuros > > in > > > our > > > > area (Philadelphia) their opinion about LDN. One of them > being > > > Dr. > > > > Leist, who is the director of the MS clinic at the > > > Jefferson > > > > University Hospital. They did not dismiss LDN out of hand. > > > Although > > > > they weren't prescribing it, they are taking a wait and see > > > attitude, > > > > with all the turn arounds that have occurred lately. My own > > neuro > > > > has an even more open attitude. He told me a story that helps > > > > explain his open attitude. When he was in Med School there > was > > a > > > > doctor, just a GP, in Australia who came up with the theory > > that > > > > Peptic Ulcers were not cause by over acidity, as what was the > > > > conventional wisdom of the day, but by bacteria from evidence > > > > gathered during autopsies that he had preformed. He was > > dismissed > > > > out of hand; after all, the experts in the field said he was > > > wrong > > > > and who was he as a mere GP to refute their beliefs. 10 years > > > later > > > > he was proven to be 100% correct. Doctors now know that it is > > > caused > > > > by the corkscrew-shaped bacterium Helicobacter pylori (H. > > > pylori). > > > > He said this was a very valuable lesson learned early in his > > > medical > > > > career; never discount anything just because it may go > against > > > > current conventional wisdom. Today's wild theory may be > > > tomorrow's > > > > conventional wisdom. I asked him if he'd be willing to write > a > > > > prescription for me. He said he might, but wants to do a > > little > > > more > > > > research first. The next day I dropped off the following > > > documents > > > > at his office: > > > > > > > > 1. An email that references the grant that the National > > Multiple > > > > Sclerosis Society (NMSS) funded to Dr. Ian Zagon to research > > LDN. > > > > 2. The webpage from the NMSS site that shows the reversal of > > > > opinion where they now encourage clinical trials be conducted > > on > > > LDN. > > > > 3. The Article written by Y.P. Agrawal, MD, PhD, (Med > > > > Hypotheses. 2005;64(4):721-4), where Dr. Agrawal proposes > that > > > LDN > > > > reduces disease activity in MS by reducing the destruction of > > > > oligodendrocytes, the cells that manufacture myelin. > > > > 4. Frequently Asked Questions about LDN that I found on the > > net. > > > > 5. Survey of 267 Patients Using Low Dose Naltrexone for > > Multiple > > > > Sclerosis. > > > > > > > > Once he's digested these documents. I'll give him a call. > > > > > > > > Also today I had an appointment with my Primary care > physician > > > for my > > > > routine check up. During the exam he asked me how I was doing > > and > > > I > > > > told him I was improving and asked him if he was familiar > with > > > > Naltrexone. He said he was, primarily as it relates to > > substance > > > > abuse, but was aware that it was being used off label and > why. > > I > > > > told him I was taking it and started by spiel. He was very > > > > interested. This time I had copies of what I had given my > > neuro > > > with > > > > me and he seemed extremely interested in reviewing them. I > > asked > > > him > > > > the magic question, " Would he be willing to write a > > prescription > > > for > > > > LDN for me " and he said he didn't see why not. I know I could > > > have > > > > pushed him and gotten it right there and then but thought > best > > of > > > > it. I'll let him read and digest the documents I left with > him > > > and > > > > then call him in about a month. I figured by that time he'll > > > become > > > > even more comfortable with prescribing it having review the > > > documents > > > > I furnished him. It will give us one more LDN friendly doctor > > in > > > our > > > > corner (In Bucks County, PA). By the way he's a D.O. not an > > M.D. > > > > D.O.'s seem to be more receptive to alternate treatments. > > > > > > > > I sorry I've rattled on, but I'm just so excited I couldn't > > > contain > > > > myself. > > > > > > > > Pete > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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