Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 I think all of the treatment options - traditional or alternative - are all iffy as to whether or not they will work long term... we are all gambling on remission here aren't we? (except those of us who do RAI or surgery - they have pretty much guaranteed a life time of replacement hormones.) Yet regardless of treatment choice, we are all supposed to have the same goal - to get our health back - so does it really matter if some of us want to try different ways to reach that goal? Or that we are willing to find ways to make that happen? But a *luxury of the upper classes* to do alt med? I really doubt that alt med is a luxury based on class, and so would you if you went and sat in the waiting room at my natural health clinic or another of my ND's offices - you will see all walks of life there, believe me. I'm fortunate in that my health insurance (now there is a luxury of the upper class) covers visits to naturopaths. Realistically though, if I didn't have insurance at all, alt med would cost LESS than traditional med - because most NDs charge less than most MDs and, if everything goes as planned, alt med is going to heal ALL of me, and remission is going to stick for a very long time, and I won't have to do this all over again any time soon. And if you really want to get into the details, a lot of the lifestyle changes we are talking about are FREE (yoga, meditation, relaxation, etc.), and cooking whole foods cost less that buying prepared, processed foods, etc etc etc. But this is *my* gamble, not yours, so why is it you seem to have a problem with it? Pam B. -- RE: Re: How safe is homeopathy anyway? Experiences? yours is a luxury of the upper classes; not everyone, in fact very few, have an opportunity to spend lots o' money on something that may or may not work, over a long period of time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Talking about foods... are there foods that are better for people with GD? RE: Re: How safe is homeopathy anyway? Experiences? yours is a luxury of the upper classes; not everyone, in fact very few, have an opportunity to spend lots o' money on something that may or may not work, over a long period of time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Talking about foods... are there foods that are better for people with GD? RE: Re: How safe is homeopathy anyway? Experiences? yours is a luxury of the upper classes; not everyone, in fact very few, have an opportunity to spend lots o' money on something that may or may not work, over a long period of time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 chocolate - in particular - is a rquested e.g.! Velvet - who has felt really rotten all day and wishes she had some Chocolate of Consulation! RE: Re: How safe is homeopathy anyway? Experiences? yours is a luxury of the upper classes; not everyone, in fact very few, have an opportunity to spend lots o' money on something that may or may not work, over a long period of time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Oh, I have to agree that traditional medicine can be a luxury of the upper classes. The one endocrinologist I saw in Iowa cost $350 just for the appointment - it was another $250+ for labwork. The med school student took all the history and preliminary stuff (wonder if she gets any pay for that) so the endo was with me for maybe a total of 10 minutes. And all I got was a confirmation of diagnosis and " just have RAI and you'll be fine " speech. Thank whatever higher power you believe in that I had insurance to cover that. I could get a whole lotta alternative treatment for that kind of money. Gee, in fact I do! I spend about $20 - $30 on vitamins and such and that lasts me anywhere from 2-4 months, depending on the size of the bottle. And that's done a whole hell of a lot more for me than the endocrinologist ever did. And then there's the rhuematologist that I saw for another $250 because my regular doc freaked out at a positive ANA titer and thought I had lupus, even though I had no symptoms. Had he done some relatively simple research that I did, he might have found out that a low ANA titer can be common in AI diseases with Graves'. So I went to the rhuemy and had $200 more labwork done to confirm what I already knew - that I didn't have lupus. Yes, it's better to know for sure, but I'd have been comfortable being fairly certain and saving the money had I not had the _luxury_ of health insurance. And then the absolutely ridiculous bills ($5000 just for the hospital alone!) for my daughter's broken arm. She didn't stay in the hospital she didn't need surgery, but because they used *the surgical room* while they casted her, we had to pay outrageous sums for that. I went through those bills and some of the charges - if that's not an example of traditional medicine waste, I don't know what is. Then you have to go to the orthopedic doctor (charge for the visit) to have it X-rayed every few weeks (charge for that) and then have the doctor look at the X-ray and tell you that " yes, it's healing " . Wish there was a homeopathic rememdy for broken arms. And we pay for our own private insuance because my husband was self-employed. It's damn expensive, but now it's no longer a " luxury " , it's a necessity. With my Graves' and his diabetes and 3 children and doctor bills like that, we can't afford to _not_ have insurance. We scrape to make the payment, but we don't really have much choice. If we ever lose this insurance, my husband's diabetes and any ailments _related_ to diabetes (which could be just about anything) would not likely be covered under any other insurance because of the evil " pre-existing conditions " clauses. If there were any reliable alternative med treatment for diabetes, I'd have him do it in a minute. It would be _far cheaper_. Now, I don't want to get off on a rant here...oops, too late, I already did! , who considered deleting this after she wrote it because it's so OT now, but figured that most people can relate/agree at the tragedy that is the health care system. RE: Re: How safe is homeopathy anyway? > Experiences? > > yours is a luxury of the upper classes; not everyone, in fact very few, have > an opportunity to spend lots o' money on something that may or may not work, > over a long period of time > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Oh, I have to agree that traditional medicine can be a luxury of the upper classes. The one endocrinologist I saw in Iowa cost $350 just for the appointment - it was another $250+ for labwork. The med school student took all the history and preliminary stuff (wonder if she gets any pay for that) so the endo was with me for maybe a total of 10 minutes. And all I got was a confirmation of diagnosis and " just have RAI and you'll be fine " speech. Thank whatever higher power you believe in that I had insurance to cover that. I could get a whole lotta alternative treatment for that kind of money. Gee, in fact I do! I spend about $20 - $30 on vitamins and such and that lasts me anywhere from 2-4 months, depending on the size of the bottle. And that's done a whole hell of a lot more for me than the endocrinologist ever did. And then there's the rhuematologist that I saw for another $250 because my regular doc freaked out at a positive ANA titer and thought I had lupus, even though I had no symptoms. Had he done some relatively simple research that I did, he might have found out that a low ANA titer can be common in AI diseases with Graves'. So I went to the rhuemy and had $200 more labwork done to confirm what I already knew - that I didn't have lupus. Yes, it's better to know for sure, but I'd have been comfortable being fairly certain and saving the money had I not had the _luxury_ of health insurance. And then the absolutely ridiculous bills ($5000 just for the hospital alone!) for my daughter's broken arm. She didn't stay in the hospital she didn't need surgery, but because they used *the surgical room* while they casted her, we had to pay outrageous sums for that. I went through those bills and some of the charges - if that's not an example of traditional medicine waste, I don't know what is. Then you have to go to the orthopedic doctor (charge for the visit) to have it X-rayed every few weeks (charge for that) and then have the doctor look at the X-ray and tell you that " yes, it's healing " . Wish there was a homeopathic rememdy for broken arms. And we pay for our own private insuance because my husband was self-employed. It's damn expensive, but now it's no longer a " luxury " , it's a necessity. With my Graves' and his diabetes and 3 children and doctor bills like that, we can't afford to _not_ have insurance. We scrape to make the payment, but we don't really have much choice. If we ever lose this insurance, my husband's diabetes and any ailments _related_ to diabetes (which could be just about anything) would not likely be covered under any other insurance because of the evil " pre-existing conditions " clauses. If there were any reliable alternative med treatment for diabetes, I'd have him do it in a minute. It would be _far cheaper_. Now, I don't want to get off on a rant here...oops, too late, I already did! , who considered deleting this after she wrote it because it's so OT now, but figured that most people can relate/agree at the tragedy that is the health care system. RE: Re: How safe is homeopathy anyway? > Experiences? > > yours is a luxury of the upper classes; not everyone, in fact very few, have > an opportunity to spend lots o' money on something that may or may not work, > over a long period of time > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 Pam B wrote: > I think all of the treatment options - traditional or alternative - are all > iffy as to whether or not they will work long term... we are all gambling on > remission here aren't we? (except those of us who do RAI or surgery - they > have pretty much guaranteed a life time of replacement hormones.) I've pretty much abandoned any hope of remission. I don't know how other who were diagnosed a decade or more ago feel, but apart from the gap after surgery, I've had this for the majority of my life with no evidence that I'll ever be able to stop the ATD even for short periods. On that basis I'm more hopeful of improvements in treatment than achieving lasting remission through ATD. My main concerns over RAI are risk to the eyes (heck if the hyper bits is aggressive what hope if I trigger infiltrative eye disease), and (probable) subsequence hypothyroidism. I just know the day I swallow 10 microcuries, they'll announce that Graves is caused by; sitting too close to computers / helicobacter pylori or similar. I'm also pessimistic on my chances of escaping other autoimmune diseases. Just I seem to have the " hyper " bit of Graves more aggressively than other family members, and from what I can gather quite a few others. Afraid I also tend to ponder my family history, and although there aren't many examples to draw on, I do wonder if paying into a pension scheme is the rational thing to do. Some reassurance has been offered by various antibody tests, but I can't really convince myself these doctors really have much of a clue about genuine causes. > Yet > regardless of treatment choice, we are all supposed to have the same goal - > to get our health back - so does it really matter if some of us want to try > different ways to reach that goal? Or that we are willing to find ways to > make that happen? On the basis I want a break through in treatment - I suppose I should be encouraging you all to join up to risky drug trials, or to try out radical alternative therapies ;-) > But a *luxury of the upper classes* to do alt med? I think the original poster said a luxury to try treatments that might not work. I can't see what class has to do with it either, but then us Brits tend to regard class and money as almost completely unrelated. I agree with the sentiment on suspect treatments. Since I'm convinced some alternative treatments do work I didn't read it as a reference to alternative medicine, just the less convincing treatments of all sorts - orbital radiation treatment anyone? > alt med would cost LESS than traditional med - > because most NDs charge less than most MDs Have you ever pondered why? Although I don't think it is a simple answer, I've had this debate with my GP, who had some fascinating comment to make on the " cliche " nature of medical qualifications, and market forces. Of course market forces take a battering in the UK due to the nationalise system of healthcare. -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+XmegGFXfHI9FVgYRAmqgAJ9F5SCMIC8R9K96YeGgUjE4XldRWACg1zSo Xw2zMHtnMaM7iS3yKkxOTIE= =iOwe -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 Pam B wrote: > I think all of the treatment options - traditional or alternative - are all > iffy as to whether or not they will work long term... we are all gambling on > remission here aren't we? (except those of us who do RAI or surgery - they > have pretty much guaranteed a life time of replacement hormones.) I've pretty much abandoned any hope of remission. I don't know how other who were diagnosed a decade or more ago feel, but apart from the gap after surgery, I've had this for the majority of my life with no evidence that I'll ever be able to stop the ATD even for short periods. On that basis I'm more hopeful of improvements in treatment than achieving lasting remission through ATD. My main concerns over RAI are risk to the eyes (heck if the hyper bits is aggressive what hope if I trigger infiltrative eye disease), and (probable) subsequence hypothyroidism. I just know the day I swallow 10 microcuries, they'll announce that Graves is caused by; sitting too close to computers / helicobacter pylori or similar. I'm also pessimistic on my chances of escaping other autoimmune diseases. Just I seem to have the " hyper " bit of Graves more aggressively than other family members, and from what I can gather quite a few others. Afraid I also tend to ponder my family history, and although there aren't many examples to draw on, I do wonder if paying into a pension scheme is the rational thing to do. Some reassurance has been offered by various antibody tests, but I can't really convince myself these doctors really have much of a clue about genuine causes. > Yet > regardless of treatment choice, we are all supposed to have the same goal - > to get our health back - so does it really matter if some of us want to try > different ways to reach that goal? Or that we are willing to find ways to > make that happen? On the basis I want a break through in treatment - I suppose I should be encouraging you all to join up to risky drug trials, or to try out radical alternative therapies ;-) > But a *luxury of the upper classes* to do alt med? I think the original poster said a luxury to try treatments that might not work. I can't see what class has to do with it either, but then us Brits tend to regard class and money as almost completely unrelated. I agree with the sentiment on suspect treatments. Since I'm convinced some alternative treatments do work I didn't read it as a reference to alternative medicine, just the less convincing treatments of all sorts - orbital radiation treatment anyone? > alt med would cost LESS than traditional med - > because most NDs charge less than most MDs Have you ever pondered why? Although I don't think it is a simple answer, I've had this debate with my GP, who had some fascinating comment to make on the " cliche " nature of medical qualifications, and market forces. Of course market forces take a battering in the UK due to the nationalise system of healthcare. -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+XmegGFXfHI9FVgYRAmqgAJ9F5SCMIC8R9K96YeGgUjE4XldRWACg1zSo Xw2zMHtnMaM7iS3yKkxOTIE= =iOwe -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 I have to say here that I don't believe that chocolate is anti anybody and that if a miracle cure is going to come from anywhere I wouldn't put it passed that miraculous substance to be as ripe as any to prove the - end - of it all Velvet - who rather approves of the Belgiums all things being equal! Re: Re: How safe is homeopathy anyway? Experiences? -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 Pam B wrote: > I think all of the treatment options - traditional or alternative - are all > iffy as to whether or not they will work long term... we are all gambling on > remission here aren't we? (except those of us who do RAI or surgery - they > have pretty much guaranteed a life time of replacement hormones.) I've pretty much abandoned any hope of remission. I don't know how other who were diagnosed a decade or more ago feel, but apart from the gap after surgery, I've had this for the majority of my life with no evidence that I'll ever be able to stop the ATD even for short periods. On that basis I'm more hopeful of improvements in treatment than achieving lasting remission through ATD. My main concerns over RAI are risk to the eyes (heck if the hyper bits is aggressive what hope if I trigger infiltrative eye disease), and (probable) subsequence hypothyroidism. I just know the day I swallow 10 microcuries, they'll announce that Graves is caused by; sitting too close to computers / helicobacter pylori or similar. I'm also pessimistic on my chances of escaping other autoimmune diseases. Just I seem to have the " hyper " bit of Graves more aggressively than other family members, and from what I can gather quite a few others. Afraid I also tend to ponder my family history, and although there aren't many examples to draw on, I do wonder if paying into a pension scheme is the rational thing to do. Some reassurance has been offered by various antibody tests, but I can't really convince myself these doctors really have much of a clue about genuine causes. > Yet > regardless of treatment choice, we are all supposed to have the same goal - > to get our health back - so does it really matter if some of us want to try > different ways to reach that goal? Or that we are willing to find ways to > make that happen? On the basis I want a break through in treatment - I suppose I should be encouraging you all to join up to risky drug trials, or to try out radical alternative therapies ;-) > But a *luxury of the upper classes* to do alt med? I think the original poster said a luxury to try treatments that might not work. I can't see what class has to do with it either, but then us Brits tend to regard class and money as almost completely unrelated. I agree with the sentiment on suspect treatments. Since I'm convinced some alternative treatments do work I didn't read it as a reference to alternative medicine, just the less convincing treatments of all sorts - orbital radiation treatment anyone? > alt med would cost LESS than traditional med - > because most NDs charge less than most MDs Have you ever pondered why? Although I don't think it is a simple answer, I've had this debate with my GP, who had some fascinating comment to make on the " cliche " nature of medical qualifications, and market forces. Of course market forces take a battering in the UK due to the nationalise system of healthcare. -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+XmegGFXfHI9FVgYRAmqgAJ9F5SCMIC8R9K96YeGgUjE4XldRWACg1zSo Xw2zMHtnMaM7iS3yKkxOTIE= =iOwe -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 I sincerely hope I dont have to put up with this for the rest of my life I have a major business I want to build. Actually - sod it - WILL build despite all. But I wonder if I have something in addition to Graves as I don't seem to feel much better despite medication and offers of RAI (which I won't now have) . Surely there is more to this than feeling rotten for large chunks of the day or night in no particular order or sense? Velvet - who thinks she will research antibodies ...and wonders if dialysis wouldn't clean some of 'em out of the blood...on a regular basis until the body learned to cool down and relax its innards why only kidney stuff treatable by that method - when one comes to think of it? Re: Re: How safe is homeopathy anyway? Experiences? -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 Pam B wrote: > I think all of the treatment options - traditional or alternative - are all > iffy as to whether or not they will work long term... we are all gambling on > remission here aren't we? (except those of us who do RAI or surgery - they > have pretty much guaranteed a life time of replacement hormones.) I've pretty much abandoned any hope of remission. I don't know how other who were diagnosed a decade or more ago feel, but apart from the gap after surgery, I've had this for the majority of my life with no evidence that I'll ever be able to stop the ATD even for short periods. On that basis I'm more hopeful of improvements in treatment than achieving lasting remission through ATD. My main concerns over RAI are risk to the eyes (heck if the hyper bits is aggressive what hope if I trigger infiltrative eye disease), and (probable) subsequence hypothyroidism. I just know the day I swallow 10 microcuries, they'll announce that Graves is caused by; sitting too close to computers / helicobacter pylori or similar. I'm also pessimistic on my chances of escaping other autoimmune diseases. Just I seem to have the " hyper " bit of Graves more aggressively than other family members, and from what I can gather quite a few others. Afraid I also tend to ponder my family history, and although there aren't many examples to draw on, I do wonder if paying into a pension scheme is the rational thing to do. Some reassurance has been offered by various antibody tests, but I can't really convince myself these doctors really have much of a clue about genuine causes. > Yet > regardless of treatment choice, we are all supposed to have the same goal - > to get our health back - so does it really matter if some of us want to try > different ways to reach that goal? Or that we are willing to find ways to > make that happen? On the basis I want a break through in treatment - I suppose I should be encouraging you all to join up to risky drug trials, or to try out radical alternative therapies ;-) > But a *luxury of the upper classes* to do alt med? I think the original poster said a luxury to try treatments that might not work. I can't see what class has to do with it either, but then us Brits tend to regard class and money as almost completely unrelated. I agree with the sentiment on suspect treatments. Since I'm convinced some alternative treatments do work I didn't read it as a reference to alternative medicine, just the less convincing treatments of all sorts - orbital radiation treatment anyone? > alt med would cost LESS than traditional med - > because most NDs charge less than most MDs Have you ever pondered why? Although I don't think it is a simple answer, I've had this debate with my GP, who had some fascinating comment to make on the " cliche " nature of medical qualifications, and market forces. Of course market forces take a battering in the UK due to the nationalise system of healthcare. -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+XmegGFXfHI9FVgYRAmqgAJ9F5SCMIC8R9K96YeGgUjE4XldRWACg1zSo Xw2zMHtnMaM7iS3yKkxOTIE= =iOwe -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 why are you even considering censoring yourself m'dear? don't your illness do enough of that fer your life already? FILL your day with you! if you must - you simply - must RE: Re: How safe is homeopathy anyway? > Experiences? > > yours is a luxury of the upper classes; not everyone, in fact very few, have > an opportunity to spend lots o' money on something that may or may not work, > over a long period of time > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 The big flaw here is thinking that RAI studies are scientific. They are not really. Too many variables are uncontrolled. And true scientists would recognize and criticize that. In a study that's peer reviewed by scientists, that fact would be commented on by editorials or letters if that study made it far enough to get published. Traditional medicine, like alternative medicine is more an art than science. Physicians are not scientists. The problem with traditional medicine studies is how the studies are interpreted not whether or not they're valid. And like anything else, people see what they want to see. As far as being safe and effective, if the only purpose of RAI is to destroy the thyroid gland in hyperthyroid patients then it's very effective. And if the only worry about it vs. surgery is that it avoids the immediate risks of surgery, then it's very safe. Anyhow, I'm no proponent of RAI. I've suffered the after-effects of it for years. Take care, dx & RAI 1987 (at age 24) " Scientific studies support the *myth*, in my opinion, that RAI is *safe*, effective, the only way to go...that the very limited downsides of it are downplayed...if I had the energy and time I would do everything I could to find out where the money comes from for funding of these studies, the ones that support this, is probaby from drug companies...they like the studies to support *their* line of thinking. " Quote Link to comment Share on other sites More sharing options...
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