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>HI

>MY NAME IS KATIE, I LIVE JUST OUTSIDE KNOXVILLE,TN. I'M 46 YEARS OLD,

Hi, !! See ya made it here! LOL, yes I'm sure you will enjoy this

nice group of people, they are helpful, kind, funny, and between all of us

we have a lot of CMT information! Nice to see you here, ~>Becky M.

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>HI

>MY NAME IS KATIE, I LIVE JUST OUTSIDE KNOXVILLE,TN. I'M 46 YEARS OLD,

Hi, !! See ya made it here! LOL, yes I'm sure you will enjoy this

nice group of people, they are helpful, kind, funny, and between all of us

we have a lot of CMT information! Nice to see you here, ~>Becky M.

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>HI

>MY NAME IS KATIE, I LIVE JUST OUTSIDE KNOXVILLE,TN. I'M 46 YEARS OLD,

Hi, !! See ya made it here! LOL, yes I'm sure you will enjoy this

nice group of people, they are helpful, kind, funny, and between all of us

we have a lot of CMT information! Nice to see you here, ~>Becky M.

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GLAD I FOUND OUT ABOUT THIS GROUP. I'M ENJOYING READING WHAT EVERYONE HAS TO

SAY. I'M ALSO EXPERIENCING COLD, BUT ONLY IN MY LEFT LEG. HAVING A LOT OF

TROUBLE WITH MY LEFT LEG, SCIATIC NERVE PAIN AND PAIN IN OUTER THIGH THAT

HURTS WORSE THE MORE I WALK. DOCTORS SAY IT'S ALL BECAUSE OF CMT.

I ALSO TAKE PROPRANOLOL FOR MY TREMORS. IT HELPS A LOT, BUT DOESN'T STOP THEM

COMPLETELY. AS LONG AS IT SLOWS THE TREMORS, I'M SATISFIED.

ANY SUGGESTIONS ON THE LEG PAIN, ANY ONE HAD SIMILAR PAIN?

KATIE

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MY CHILD WITH CMT IS DOING FINE. SHE IS 26 YRS. SHE NEVER HAD AS MUCH TROUBLE

GROWING UP AS I DID. NEVER HAD THE SPRAINED ANKLES. ME, THAT'S ANOTHER STORY.

I FELL OFF OF THE SCHOOL BUS SEVERAL TIMES, RIGHT ANKLE SPRAINED SO MANY

TIMES I LOST COUNT. FELL AT SCHOOL, JUST WALKING FROM CLASS TO CLASS. I'VE

HAD TRIPLE ARTHRODESIS ON RIGHT ANKLE IN 94. LAST DECEMBER HAD ANOTHER

SURGERY TO REMOVE CALLOUS AND CORN CAUSED BY TOO MUCH PRESSURE. HANDS HURT A

LOT. JUST PACE MYSELF, AM LEARNING WHEN TO QUIT INSTEAD OF JUST KEEP GOING

LIKE I USED TO DO. ALSO HAVING A LOT OF MUSCLE SPASMS IN UPPER LEGS.

KATIE

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MY CHILD WITH CMT IS DOING FINE. SHE IS 26 YRS. SHE NEVER HAD AS MUCH TROUBLE

GROWING UP AS I DID. NEVER HAD THE SPRAINED ANKLES. ME, THAT'S ANOTHER STORY.

I FELL OFF OF THE SCHOOL BUS SEVERAL TIMES, RIGHT ANKLE SPRAINED SO MANY

TIMES I LOST COUNT. FELL AT SCHOOL, JUST WALKING FROM CLASS TO CLASS. I'VE

HAD TRIPLE ARTHRODESIS ON RIGHT ANKLE IN 94. LAST DECEMBER HAD ANOTHER

SURGERY TO REMOVE CALLOUS AND CORN CAUSED BY TOO MUCH PRESSURE. HANDS HURT A

LOT. JUST PACE MYSELF, AM LEARNING WHEN TO QUIT INSTEAD OF JUST KEEP GOING

LIKE I USED TO DO. ALSO HAVING A LOT OF MUSCLE SPASMS IN UPPER LEGS.

KATIE

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I'M NOT FROM THE NASHVILLE AREA, I'M FROM KNOXVILLE AREA. BETWEEN KNOXVILLE

AND THE SMOKY MOUNTAINS. AS FAR AS I KNOW I'M NOT RELATED TO ANY MCGILLS.

NEITHER PARENT, SIBLINGS, AUNTS, UNCLES, OR COUSINS HAVE HIGH ARCHES OR ANY

REASON TO BELIEVE THEY HAVE CMT. I KNOW PEOPLE CAN HAVE IT AND NOT SHOW ANY

SYMPTOMS. BOY, DO I ENVY THEM. I WAS THE YOUNGEST OF 9 CHILDREN, THE ONLY ONE

WITH ANY WEAKNESS OR HIGH ARCHES. I HAVE 2 CHILDREN, THE FIRST HAS CMT

W/TREMORS, JUST LIKE ME. THE YOUNGEST DOES NOT. I WAS ALWAYS WEAK AS A CHILD,

COULDN'T RUN, COULDN'T THROW A BALL. REMEMBER MONKEY BARS AT THE PLAYGROUND?

I WANTED TO WALK THEM SO MUCH, BUT COULDN'T. ARMS JUST WOULDN'T LET ME.

KATIE

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Hello the House,

Welcome my friend to the most knowledgeable group you have ever

encountered.

If I may make a suggestion, lower case print is a lot easier to read then

upper case, at least from my prospective.

Again welcome aboard

E

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hi.my name is Candi ,i also suffer from cmt.i have alot of pain in my legs.i

take vicodin,doxipin,and

ms contin if the pain is worse.and this summer heat just drains me!!!anyway

im 44 and live in Ohio

have 1son,28 and he also is having syptoms.im also hard of hearing and read

lips.keep your chin up,

well all get thru this together.write soon!!Candi

Re: new member

> GLAD I FOUND OUT ABOUT THIS GROUP. I'M ENJOYING READING WHAT EVERYONE HAS

TO

> SAY. I'M ALSO EXPERIENCING COLD, BUT ONLY IN MY LEFT LEG. HAVING A LOT OF

> TROUBLE WITH MY LEFT LEG, SCIATIC NERVE PAIN AND PAIN IN OUTER THIGH THAT

> HURTS WORSE THE MORE I WALK. DOCTORS SAY IT'S ALL BECAUSE OF CMT.

> I ALSO TAKE PROPRANOLOL FOR MY TREMORS. IT HELPS A LOT, BUT DOESN'T STOP

THEM

> COMPLETELY. AS LONG AS IT SLOWS THE TREMORS, I'M SATISFIED.

> ANY SUGGESTIONS ON THE LEG PAIN, ANY ONE HAD SIMILAR PAIN?

> KATIE

>

> ------------------------------------------------------------------------

> To email plain text is conventional, to add graphics is divine.

> We'll show you how at www.supersig.com.

> http://click.egroups.com/1/6811/13/_/616793/_/963581401/

> ------------------------------------------------------------------------

>

>

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hi.my name is Candi ,i also suffer from cmt.i have alot of pain in my legs.i

take vicodin,doxipin,and

ms contin if the pain is worse.and this summer heat just drains me!!!anyway

im 44 and live in Ohio

have 1son,28 and he also is having syptoms.im also hard of hearing and read

lips.keep your chin up,

well all get thru this together.write soon!!Candi

Re: new member

> GLAD I FOUND OUT ABOUT THIS GROUP. I'M ENJOYING READING WHAT EVERYONE HAS

TO

> SAY. I'M ALSO EXPERIENCING COLD, BUT ONLY IN MY LEFT LEG. HAVING A LOT OF

> TROUBLE WITH MY LEFT LEG, SCIATIC NERVE PAIN AND PAIN IN OUTER THIGH THAT

> HURTS WORSE THE MORE I WALK. DOCTORS SAY IT'S ALL BECAUSE OF CMT.

> I ALSO TAKE PROPRANOLOL FOR MY TREMORS. IT HELPS A LOT, BUT DOESN'T STOP

THEM

> COMPLETELY. AS LONG AS IT SLOWS THE TREMORS, I'M SATISFIED.

> ANY SUGGESTIONS ON THE LEG PAIN, ANY ONE HAD SIMILAR PAIN?

> KATIE

>

> ------------------------------------------------------------------------

> To email plain text is conventional, to add graphics is divine.

> We'll show you how at www.supersig.com.

> http://click.egroups.com/1/6811/13/_/616793/_/963581401/

> ------------------------------------------------------------------------

>

>

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OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC

ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS.

MOST OF THE TIME I FELL DOWN THE STAIRS.

WHY IS IT EASIER TO READ LOWER CLASS SPELLING, JUST CURIOUS. IT'S EASIER FOR

ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF COURSE

NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND.

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Re: new member

REMEMBER MONKEY BARS AT THE PLAYGROUND?

>I WANTED TO WALK THEM SO MUCH, BUT COULDN'T. ARMS JUST WOULDN'T LET ME.

>KATIE

>

OH WOW ! You just brought back a memory for me, the monkey bars at

school! I could never play on them and I wanted to very much like the

other children, but never could, I didn't have the strength for it. Now at

least there was a reason for it (too little to late for hurt feelings as a

child) ~>Becky M.

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In a message dated 7/14/2000 2:46:52 PM Pacific Daylight Time,

ktbugg54@... writes:

<< IT'S EASIER FOR

ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF

COURSE

NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND.

>>

For the same reason sometimes I don't use any caps. You do what you feel

comfortable with.

Welcome

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In a message dated 7/14/2000 2:46:52 PM Pacific Daylight Time,

ktbugg54@... writes:

<< IT'S EASIER FOR

ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF

COURSE

NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND.

>>

For the same reason sometimes I don't use any caps. You do what you feel

comfortable with.

Welcome

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KTbugg54, Lamar here,

It is well proven that lower case is kinder on the eyes. It takes much less eye

strain than caps, with every letter the same size. In " computerese " all caps is

considered to be SCREAMING as well. LOL

Re: new member

OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC

ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS.

MOST OF THE TIME I FELL DOWN THE STAIRS.

WHY IS IT EASIER TO READ LOWER CLASS SPELLING, JUST CURIOUS. IT'S EASIER FOR

ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF COURSE

NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND.

------------------------------------------------------------------------------

------------------------------------------------------------------------------

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KTbugg54, Lamar here,

It is well proven that lower case is kinder on the eyes. It takes much less eye

strain than caps, with every letter the same size. In " computerese " all caps is

considered to be SCREAMING as well. LOL

Re: new member

OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC

ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS.

MOST OF THE TIME I FELL DOWN THE STAIRS.

WHY IS IT EASIER TO READ LOWER CLASS SPELLING, JUST CURIOUS. IT'S EASIER FOR

ME TO DO IT ALL THE SAME SINCE THE FINGERS DON'T WORK WELL. I CAN , OF COURSE

NOT CAPITALIZE ANY WORDS. IF IT HELPS, I DON'T MIND.

------------------------------------------------------------------------------

------------------------------------------------------------------------------

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Hi , nice to meet you....

I am I dream of Jeanie age 39. I've had CMT since age 5. I'm married with 2

kids and a cat.

I've also had triple arthodesis on both feet plus heal chords lengthed, right

lower leg straightened and right ankle fused solid. I wear an AFO on my left

foot and use 1 to 2 arm crutches to get around. I also have an electric

Wheelchair with a lift seat that has changed my life. I now can cook and

clean. I take Welbutrin for my depression and vicodin for my pain. My hands

are also affected, they get weak quickly and if I over use they will hurt and

I won't be able to grip anything. hey are not deformed though. I also see a

Therapeutic Massage Specialist that has changed my life. I went from very

very sever pain to pain.

By the way..... Thank-you to everyone on this list for always being there

when I fall apart. Jeanie

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Hi , nice to meet you....

I am I dream of Jeanie age 39. I've had CMT since age 5. I'm married with 2

kids and a cat.

I've also had triple arthodesis on both feet plus heal chords lengthed, right

lower leg straightened and right ankle fused solid. I wear an AFO on my left

foot and use 1 to 2 arm crutches to get around. I also have an electric

Wheelchair with a lift seat that has changed my life. I now can cook and

clean. I take Welbutrin for my depression and vicodin for my pain. My hands

are also affected, they get weak quickly and if I over use they will hurt and

I won't be able to grip anything. hey are not deformed though. I also see a

Therapeutic Massage Specialist that has changed my life. I went from very

very sever pain to pain.

By the way..... Thank-you to everyone on this list for always being there

when I fall apart. Jeanie

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Re: new member

>OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A

DRAMATIC

>ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3

FLOORS.

>MOST OF THE TIME I FELL DOWN THE STAIRS.

>

>I was the tallest in my class at the time, hum, coming to think of it maybe

I was the tallest in school at that time! So I was tagged, The jolly green

giant.

Well, that makes one feel good about them selves right? NOT! Then to top

it off, I was so clumsy, and sports were out, as I never could manage to

keep from tripping over my own feet. And I loved to play tennis, but was

very very bad at it! I too had those wonderful lets see the school from

this angle? The floor? Rolling down the slope from the school entrance!!!

Yikes! And I had to wear dress's or skirts back then eons ago. What fun!

Gee am I glad those days are over, (school) LOL, ~>Becky M.

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Re: new member

>OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A

DRAMATIC

>ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3

FLOORS.

>MOST OF THE TIME I FELL DOWN THE STAIRS.

>

>I was the tallest in my class at the time, hum, coming to think of it maybe

I was the tallest in school at that time! So I was tagged, The jolly green

giant.

Well, that makes one feel good about them selves right? NOT! Then to top

it off, I was so clumsy, and sports were out, as I never could manage to

keep from tripping over my own feet. And I loved to play tennis, but was

very very bad at it! I too had those wonderful lets see the school from

this angle? The floor? Rolling down the slope from the school entrance!!!

Yikes! And I had to wear dress's or skirts back then eons ago. What fun!

Gee am I glad those days are over, (school) LOL, ~>Becky M.

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Re: new member

>OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A

DRAMATIC

>ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3

FLOORS.

>MOST OF THE TIME I FELL DOWN THE STAIRS.

>

>I was the tallest in my class at the time, hum, coming to think of it maybe

I was the tallest in school at that time! So I was tagged, The jolly green

giant.

Well, that makes one feel good about them selves right? NOT! Then to top

it off, I was so clumsy, and sports were out, as I never could manage to

keep from tripping over my own feet. And I loved to play tennis, but was

very very bad at it! I too had those wonderful lets see the school from

this angle? The floor? Rolling down the slope from the school entrance!!!

Yikes! And I had to wear dress's or skirts back then eons ago. What fun!

Gee am I glad those days are over, (school) LOL, ~>Becky M.

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Re: new member

>KTbugg54, Lamar here,

>

>It is well proven that lower case is kinder on the eyes. It takes much

less eye strain than caps, with every letter the same size. In

" computerese " all caps is considered to be SCREAMING as well. LOL

> ----- So Lamar, quit screaming your laughter, Ha-Ha, gotcha,

lol~>Becky M.

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Re: new member

>KTbugg54, Lamar here,

>

>It is well proven that lower case is kinder on the eyes. It takes much

less eye strain than caps, with every letter the same size. In

" computerese " all caps is considered to be SCREAMING as well. LOL

> ----- So Lamar, quit screaming your laughter, Ha-Ha, gotcha,

lol~>Becky M.

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