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Hi Jacque!

Welcome to the list. Wow! Dr. Sudan must be swamped if you're

having to wait until the end of Oct. Do you have an insurance that

will allow you to travel out of state? If so, you should be able to

get in with one of the other DS surgeons before Oct. If not, I'll be

praying that Dr. Sudan will have a cancellation and be able to get

you in sooner (not sure I want to pray that you have a diseased

gallbladder though. *LOL*)

Hang in there!

Regards,

Dorian

BPD/DS 02/06/01

Dr. Elariny

United Healthcare Options PPO

Approved in less than 24 hours

-60 pounds at last count

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Hi Jacque!

Welcome to the list. Wow! Dr. Sudan must be swamped if you're

having to wait until the end of Oct. Do you have an insurance that

will allow you to travel out of state? If so, you should be able to

get in with one of the other DS surgeons before Oct. If not, I'll be

praying that Dr. Sudan will have a cancellation and be able to get

you in sooner (not sure I want to pray that you have a diseased

gallbladder though. *LOL*)

Hang in there!

Regards,

Dorian

BPD/DS 02/06/01

Dr. Elariny

United Healthcare Options PPO

Approved in less than 24 hours

-60 pounds at last count

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Hi Jacque!

Welcome to the list. Wow! Dr. Sudan must be swamped if you're

having to wait until the end of Oct. Do you have an insurance that

will allow you to travel out of state? If so, you should be able to

get in with one of the other DS surgeons before Oct. If not, I'll be

praying that Dr. Sudan will have a cancellation and be able to get

you in sooner (not sure I want to pray that you have a diseased

gallbladder though. *LOL*)

Hang in there!

Regards,

Dorian

BPD/DS 02/06/01

Dr. Elariny

United Healthcare Options PPO

Approved in less than 24 hours

-60 pounds at last count

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Jacque:

Welcome to the list. We are full of information - among other things. Feel free to ask any questions you might have and if we don't know the answer we'll make something up. Seriously, hang around a while and you'll find many of your questions answered. We have a pretty broad range of experience here.

It sounds like you have all the qualifications (co-morbidities) necessary for the surgeon to tell your insurance company that yes, you really do need the surgery. That is a big part of the battle. You didn't mention your insurance. Do you feel it is likely to fund the surgery? That they often say they won't pay for treatment for obesity is not an impediment as morbid obesity is something entirely different. Again, stick around for a while and you'll learn plenty. And maybe we'll learn something from you.

Regards.

Joe Frost, old gentleman, not old fartSan , TX, 60 years oldSurgery 11/29/00 by Dr. Welker Lateral Gastrectomy with Duodenal Switch340 starting weight, currently 250http://www.duodenalswitch.com/Patients/Joe/joe.html

Newbie

> Hi, my name is Jacque, and I have an appointment Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the BPD. I have > been overweight for much of my life, but the past 5-6 years I am > putting it on something fierce. Monday I had the dubious distinction > of passing the 300 lb mark -- 303 to be exact. Tuesday I had an > ultrasound on my gallbladder and am waiting for the results. I hope > and pray they tell me it needs to come out so my initial consult can > be bumped up. I don't know how I'm going to be able to get through > another summer feeling as awful as I do.> > I am married, no children, 2 chows, and 3 cats. I am a secretary at > a university, but wish to join my husband in working from home as a > computer consultant. I also have fibromyalgia, osteoarthritis, > hypertension, unexplained skin rash on my arms and chest, IBS, sleep > apnea, & restless legs syndrome.> > Monday evening I attended an informative session at UNMC in Omaha > with Dr. Sudan and a plastic surgeon. I think it made me feel like > yes, this is really going to happen. I have two friends who have had > the surgery and they are doing great. One has even gone off any > diabetic medication. They are reclaiming their lives and I want to > do the same!> > Thanks,> > Jacque> > > > ---------------------------------------------------------------------->

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Jacque,

Hi my name is Angel and I too am working on having the

DS. This is an awesome group and I know you'll get a

lot of good hints and tips from everyone. I hope you

have an easy time of getting approved for the surgery

as that's seems to be the biggest hurdle for most

people. I noticed in your post that you mentioned

restless leg syndrome. What is that? I have trouble

with my legs and that is the perfect name for how they

feel sometimes. Could you describe how this syndrome

makes your legs feel and what can be done about it? I

hope I haven't over stepped my bounds by asking and if

you'd rather reply privately, that's ok (or not at all

if you'd rather). My e-mail address is

angelquilt1@... Thanks and I wish you all the

best, Angel

--- Jacquelyn R Keller jinxs@...> wrote:

> Hi, my name is Jacque, and I have an appointment

> Oct. 27th for my

> initial consult with Dr. Sudan in Omaha, NE, for the

> BPD. I have

> been overweight for much of my life, but the past

> 5-6 years I am

> putting it on something fierce. Monday I had the

> dubious distinction

> of passing the 300 lb mark -- 303 to be exact.

> Tuesday I had an

> ultrasound on my gallbladder and am waiting for the

> results. I hope

> and pray they tell me it needs to come out so my

> initial consult can

> be bumped up. I don't know how I'm going to be able

> to get through

> another summer feeling as awful as I do.

>

> I am married, no children, 2 chows, and 3 cats. I

> am a secretary at

> a university, but wish to join my husband in working

> from home as a

> computer consultant. I also have fibromyalgia,

> osteoarthritis,

> hypertension, unexplained skin rash on my arms and

> chest, IBS, sleep

> apnea, & restless legs syndrome.

>

> Monday evening I attended an informative session at

> UNMC in Omaha

> with Dr. Sudan and a plastic surgeon. I think it

> made me feel like

> yes, this is really going to happen. I have two

> friends who have had

> the surgery and they are doing great. One has even

> gone off any

> diabetic medication. They are reclaiming their

> lives and I want to

> do the same!

>

> Thanks,

>

> Jacque

>

>

>

>

----------------------------------------------------------------------

>

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Jacque,

Hi my name is Angel and I too am working on having the

DS. This is an awesome group and I know you'll get a

lot of good hints and tips from everyone. I hope you

have an easy time of getting approved for the surgery

as that's seems to be the biggest hurdle for most

people. I noticed in your post that you mentioned

restless leg syndrome. What is that? I have trouble

with my legs and that is the perfect name for how they

feel sometimes. Could you describe how this syndrome

makes your legs feel and what can be done about it? I

hope I haven't over stepped my bounds by asking and if

you'd rather reply privately, that's ok (or not at all

if you'd rather). My e-mail address is

angelquilt1@... Thanks and I wish you all the

best, Angel

--- Jacquelyn R Keller jinxs@...> wrote:

> Hi, my name is Jacque, and I have an appointment

> Oct. 27th for my

> initial consult with Dr. Sudan in Omaha, NE, for the

> BPD. I have

> been overweight for much of my life, but the past

> 5-6 years I am

> putting it on something fierce. Monday I had the

> dubious distinction

> of passing the 300 lb mark -- 303 to be exact.

> Tuesday I had an

> ultrasound on my gallbladder and am waiting for the

> results. I hope

> and pray they tell me it needs to come out so my

> initial consult can

> be bumped up. I don't know how I'm going to be able

> to get through

> another summer feeling as awful as I do.

>

> I am married, no children, 2 chows, and 3 cats. I

> am a secretary at

> a university, but wish to join my husband in working

> from home as a

> computer consultant. I also have fibromyalgia,

> osteoarthritis,

> hypertension, unexplained skin rash on my arms and

> chest, IBS, sleep

> apnea, & restless legs syndrome.

>

> Monday evening I attended an informative session at

> UNMC in Omaha

> with Dr. Sudan and a plastic surgeon. I think it

> made me feel like

> yes, this is really going to happen. I have two

> friends who have had

> the surgery and they are doing great. One has even

> gone off any

> diabetic medication. They are reclaiming their

> lives and I want to

> do the same!

>

> Thanks,

>

> Jacque

>

>

>

>

----------------------------------------------------------------------

>

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Guest guest

Jacque,

Hi my name is Angel and I too am working on having the

DS. This is an awesome group and I know you'll get a

lot of good hints and tips from everyone. I hope you

have an easy time of getting approved for the surgery

as that's seems to be the biggest hurdle for most

people. I noticed in your post that you mentioned

restless leg syndrome. What is that? I have trouble

with my legs and that is the perfect name for how they

feel sometimes. Could you describe how this syndrome

makes your legs feel and what can be done about it? I

hope I haven't over stepped my bounds by asking and if

you'd rather reply privately, that's ok (or not at all

if you'd rather). My e-mail address is

angelquilt1@... Thanks and I wish you all the

best, Angel

--- Jacquelyn R Keller jinxs@...> wrote:

> Hi, my name is Jacque, and I have an appointment

> Oct. 27th for my

> initial consult with Dr. Sudan in Omaha, NE, for the

> BPD. I have

> been overweight for much of my life, but the past

> 5-6 years I am

> putting it on something fierce. Monday I had the

> dubious distinction

> of passing the 300 lb mark -- 303 to be exact.

> Tuesday I had an

> ultrasound on my gallbladder and am waiting for the

> results. I hope

> and pray they tell me it needs to come out so my

> initial consult can

> be bumped up. I don't know how I'm going to be able

> to get through

> another summer feeling as awful as I do.

>

> I am married, no children, 2 chows, and 3 cats. I

> am a secretary at

> a university, but wish to join my husband in working

> from home as a

> computer consultant. I also have fibromyalgia,

> osteoarthritis,

> hypertension, unexplained skin rash on my arms and

> chest, IBS, sleep

> apnea, & restless legs syndrome.

>

> Monday evening I attended an informative session at

> UNMC in Omaha

> with Dr. Sudan and a plastic surgeon. I think it

> made me feel like

> yes, this is really going to happen. I have two

> friends who have had

> the surgery and they are doing great. One has even

> gone off any

> diabetic medication. They are reclaiming their

> lives and I want to

> do the same!

>

> Thanks,

>

> Jacque

>

>

>

>

----------------------------------------------------------------------

>

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Guest guest

Hello All,

I have been lurking for quite a while and I have

really enjoyed reading all of your posts. I have a

question and if anyone can help out I would really

appreciate it. I have an initial consultation in 2

weeks with who is Dr. Macura's nutritionist. I

would like to get any feedback on (up until now

she has been very nice and prompt and has really

worked with me) but I would like to know what to

expect from the initial consultation with her, and

what the next step is? if you do not want to email the

group back you can email me privately at

raina28@... again thanks for all of your help

ww,

Lisbeth

__________________________________________________

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Guest guest

Hello All,

I have been lurking for quite a while and I have

really enjoyed reading all of your posts. I have a

question and if anyone can help out I would really

appreciate it. I have an initial consultation in 2

weeks with who is Dr. Macura's nutritionist. I

would like to get any feedback on (up until now

she has been very nice and prompt and has really

worked with me) but I would like to know what to

expect from the initial consultation with her, and

what the next step is? if you do not want to email the

group back you can email me privately at

raina28@... again thanks for all of your help

ww,

Lisbeth

__________________________________________________

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Guest guest

Just wanted to say welcome to the group Jacque. I

understand what you mean about summer. I've had the

air conditioner on already!

--- Jacquelyn R Keller jinxs@...> wrote:

> Hi, my name is Jacque, and I have an appointment

> Oct. 27th for my

> initial consult with Dr. Sudan in Omaha, NE, for the

> BPD. I have

> been overweight for much of my life, but the past

> 5-6 years I am

> putting it on something fierce. Monday I had the

> dubious distinction

> of passing the 300 lb mark -- 303 to be exact.

> Tuesday I had an

> ultrasound on my gallbladder and am waiting for the

> results. I hope

> and pray they tell me it needs to come out so my

> initial consult can

> be bumped up. I don't know how I'm going to be able

> to get through

> another summer feeling as awful as I do.

>

> I am married, no children, 2 chows, and 3 cats. I

> am a secretary at

> a university, but wish to join my husband in working

> from home as a

> computer consultant. I also have fibromyalgia,

> osteoarthritis,

> hypertension, unexplained skin rash on my arms and

> chest, IBS, sleep

> apnea, & restless legs syndrome.

>

> Monday evening I attended an informative session at

> UNMC in Omaha

> with Dr. Sudan and a plastic surgeon. I think it

> made me feel like

> yes, this is really going to happen. I have two

> friends who have had

> the surgery and they are doing great. One has even

> gone off any

> diabetic medication. They are reclaiming their

> lives and I want to

> do the same!

>

> Thanks,

>

> Jacque

>

>

>

>

----------------------------------------------------------------------

>

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Guest guest

Just wanted to say welcome to the group Jacque. I

understand what you mean about summer. I've had the

air conditioner on already!

--- Jacquelyn R Keller jinxs@...> wrote:

> Hi, my name is Jacque, and I have an appointment

> Oct. 27th for my

> initial consult with Dr. Sudan in Omaha, NE, for the

> BPD. I have

> been overweight for much of my life, but the past

> 5-6 years I am

> putting it on something fierce. Monday I had the

> dubious distinction

> of passing the 300 lb mark -- 303 to be exact.

> Tuesday I had an

> ultrasound on my gallbladder and am waiting for the

> results. I hope

> and pray they tell me it needs to come out so my

> initial consult can

> be bumped up. I don't know how I'm going to be able

> to get through

> another summer feeling as awful as I do.

>

> I am married, no children, 2 chows, and 3 cats. I

> am a secretary at

> a university, but wish to join my husband in working

> from home as a

> computer consultant. I also have fibromyalgia,

> osteoarthritis,

> hypertension, unexplained skin rash on my arms and

> chest, IBS, sleep

> apnea, & restless legs syndrome.

>

> Monday evening I attended an informative session at

> UNMC in Omaha

> with Dr. Sudan and a plastic surgeon. I think it

> made me feel like

> yes, this is really going to happen. I have two

> friends who have had

> the surgery and they are doing great. One has even

> gone off any

> diabetic medication. They are reclaiming their

> lives and I want to

> do the same!

>

> Thanks,

>

> Jacque

>

>

>

>

----------------------------------------------------------------------

>

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Hi, Dolores.

As usual, I am very sorry to hear you have reason to join our group but let

me bid you a very hearty welcome.

Unless we have someone in our group who is from Las Vegas I can recommend a

very easy method of finding a good local doc. Contact the head of the

Gastroenterology section at UNLV Medical School and ask who is the best doc

in the area for hepatobiliary problems. That approach usually works pretty

well.

To answer your questions, yes, Chronic Pancreatitis is a progressive

disease. If your lipase levels are still going through the roof then you

are still in the early stages of the disease and may have a long time of a

pretty normal life. Make sure your doc has you on enzymes and gives you a

prescription for pain meds for the breakthrough sub-clinical (or even full

clinical) acute attacks.

Once your pancreas has been damaged to a certain point it remains inflamed

and causes you incessant pain. High serum amylase and/or lipase levels

indicate an attack of Acute Pancreatitis. We have been taught that

recurring acute attacks will cause progressive damage to the pancreas and

lead to Chronic Pancreatitis. Usually a good GI doc will seek the cause of

the recurrent attacks to see if there is any way to slow or stop the

progression of the disease.

I hope you can find a good doc. It can make all the difference in the

world. I have a great one here in Houston. He's the head of

Gastroenterology at the hospital. The staff stops whatever they are doing

to respond to his requests. Once the ER staff sees who my GI doc is I have

instant credibility. Hopefully by going through the top GI doc at UNLV you

can find a similar Gastroenterologist.

Best of luck to you.

Chuck

At 05:59 AM 5/18/2002 +0000, you wrote:

>Hi, just newly diagnosed with CP, but I'm pretty sure I've had for

>sometime. High lipase off and on since 1997 with continuous pain

>which I attributed to kidney problems. I live in Las Vegas, Nevada

>and was wondering how to I find a specialist for this disease? From

>what I have been reading not every gastro dr. has experience treating

>this disease. Can anyone answer some questions or direct me to info.

>

>1. Is CP progressive?

>2. Why constant pain? is my pancreas being destroyed because of high

>lipase levels?

>

>Any info would be appreciated.

>

>

>Dolores

>

>Lola567@...

>

>

>

Chuck Sullivan

" When in command, Take charge. When faced with a decision, do what is

right. Nothing else matters. " - Gen. Norman Schwarzkopf

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Dolores,

I am sure you will get many responses to your questions from people that have CP

a lot longer than I have. I was diagnosed in January 2002 with CP with 2 prior

(known) acute attacks. Yes mam, CP is progressive, but in everyone it is

different. There are many reasons for the pain. That is something for a doctor

to try and find (if he/she can). Sometimes a medical procedure can give you

some relief for the pain, others have to take pain meds their whole life. I

know there are some wonderful people in here that will give you some real

direction and some very good advice. This place has really helped me keep my

sanity and the wealth of knowledge here is unbelievable. So welcome to our

world and here is a great big hug!

Take care and ask allot of questions,

Joy, El Paso,TX

newbie

Hi, just newly diagnosed with CP, but I'm pretty sure I've had for

sometime. High lipase off and on since 1997 with continuous pain

which I attributed to kidney problems. I live in Las Vegas, Nevada

and was wondering how to I find a specialist for this disease? From

what I have been reading not every gastro dr. has experience treating

this disease. Can anyone answer some questions or direct me to info.

1. Is CP progressive?

2. Why constant pain? is my pancreas being destroyed because of high

lipase levels?

Any info would be appreciated.

Dolores

Lola567@...

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Dolores,

I am sure you will get many responses to your questions from people that have CP

a lot longer than I have. I was diagnosed in January 2002 with CP with 2 prior

(known) acute attacks. Yes mam, CP is progressive, but in everyone it is

different. There are many reasons for the pain. That is something for a doctor

to try and find (if he/she can). Sometimes a medical procedure can give you

some relief for the pain, others have to take pain meds their whole life. I

know there are some wonderful people in here that will give you some real

direction and some very good advice. This place has really helped me keep my

sanity and the wealth of knowledge here is unbelievable. So welcome to our

world and here is a great big hug!

Take care and ask allot of questions,

Joy, El Paso,TX

newbie

Hi, just newly diagnosed with CP, but I'm pretty sure I've had for

sometime. High lipase off and on since 1997 with continuous pain

which I attributed to kidney problems. I live in Las Vegas, Nevada

and was wondering how to I find a specialist for this disease? From

what I have been reading not every gastro dr. has experience treating

this disease. Can anyone answer some questions or direct me to info.

1. Is CP progressive?

2. Why constant pain? is my pancreas being destroyed because of high

lipase levels?

Any info would be appreciated.

Dolores

Lola567@...

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Guest guest

Dolores,

I am sure you will get many responses to your questions from people that have CP

a lot longer than I have. I was diagnosed in January 2002 with CP with 2 prior

(known) acute attacks. Yes mam, CP is progressive, but in everyone it is

different. There are many reasons for the pain. That is something for a doctor

to try and find (if he/she can). Sometimes a medical procedure can give you

some relief for the pain, others have to take pain meds their whole life. I

know there are some wonderful people in here that will give you some real

direction and some very good advice. This place has really helped me keep my

sanity and the wealth of knowledge here is unbelievable. So welcome to our

world and here is a great big hug!

Take care and ask allot of questions,

Joy, El Paso,TX

newbie

Hi, just newly diagnosed with CP, but I'm pretty sure I've had for

sometime. High lipase off and on since 1997 with continuous pain

which I attributed to kidney problems. I live in Las Vegas, Nevada

and was wondering how to I find a specialist for this disease? From

what I have been reading not every gastro dr. has experience treating

this disease. Can anyone answer some questions or direct me to info.

1. Is CP progressive?

2. Why constant pain? is my pancreas being destroyed because of high

lipase levels?

Any info would be appreciated.

Dolores

Lola567@...

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Dolores,

I'm sure that someone else has answered your questions, so I

wanted to welcome you to the group. I've been catching up on

my emails as I wasn't able to check them all last week due

to big work load and then was out of town Saturday and

recovering from Sat. on Sun. So, I'm very behind in my

messages. Hope you find this group as wonderful and

informative as I have. I don't know where I'd be without

them. Sorry to see you got CP, but glad you found us.

Looking forward to hearing more from you.

Kimber

--

Kimber

hominid2@...

Southwest Representative

Pancreatitis Association, International

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Guest guest

, Welcome to the group I have two kids with CF and one that does not

have CF. This is a great group. Where do you live? We are in Iowa. Deb A

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Hi Deb,

We live in Tampa Florida. I'm glad to be part of this group. It sounds like you

guys know your stuff, and we have so many questions!!! Thanks for being here.

, grandmother to Taygan born 1-26-02, diagnosed w/CF 6/17/02

gdattig5@... wrote: , Welcome to the group I have two kids with CF

and one that does not

have CF. This is a great group. Where do you live? We are in Iowa. Deb A

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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Thanks!!! Looking forward to meeting all of you!!

Tysidtan2@... wrote: WELCOME !

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Thanks!!! Looking forward to meeting all of you!!

Tysidtan2@... wrote: WELCOME !

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Thanks!!! Looking forward to meeting all of you!!

Tysidtan2@... wrote: WELCOME !

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Hi ,

I'm rather new to this group too, been here since April. My son is 4

months old, he was diagnosed at 3 weeks because my husband asked the

doctors to see if he was a carrier. (My husband lost a sister in 1970

to cf). The doctor had the unfortunate task of informing us that Adam

has cf. So within a month he started the enzymes and the cpt (I call

it clapping). He weighed 5#11 at birth and had reflux, spent a month

in NICU. He now weighs 10#6.5, so I'd say we are doing okay. I spent

a couple of weeks crying each time I openned the book they gave us to

read about cf. It really helps being part of this list. I only post

something about every week or so. But it really helps to read what

the others are posting.

I can only imagine what my mother-in-law is going through, having

lost one of her children and now to know that the same disease is

affecting her youngest grandson. There are a couple of other Grandmas

on this list too. You'll get to know them well.

Again, Welcome. While we can't physically hold each other's hands,

I'd say this list does a pretty good imitation of that!

Crystal

mom to Adam 4 mo wcf, le 2 1/2 yr nocf

>

> Hello everyone.

>

> My name is , and my 5 month old grandaughter was just

diagnosed with CF. We are just getting over the shock of the news,

and

now we would like to get to know other people who have these special

children. I am thankful to find this group, and I am looking forward

to sharing information, and support. Thanks!

>

>

>

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Hi ,

I'm rather new to this group too, been here since April. My son is 4

months old, he was diagnosed at 3 weeks because my husband asked the

doctors to see if he was a carrier. (My husband lost a sister in 1970

to cf). The doctor had the unfortunate task of informing us that Adam

has cf. So within a month he started the enzymes and the cpt (I call

it clapping). He weighed 5#11 at birth and had reflux, spent a month

in NICU. He now weighs 10#6.5, so I'd say we are doing okay. I spent

a couple of weeks crying each time I openned the book they gave us to

read about cf. It really helps being part of this list. I only post

something about every week or so. But it really helps to read what

the others are posting.

I can only imagine what my mother-in-law is going through, having

lost one of her children and now to know that the same disease is

affecting her youngest grandson. There are a couple of other Grandmas

on this list too. You'll get to know them well.

Again, Welcome. While we can't physically hold each other's hands,

I'd say this list does a pretty good imitation of that!

Crystal

mom to Adam 4 mo wcf, le 2 1/2 yr nocf

>

> Hello everyone.

>

> My name is , and my 5 month old grandaughter was just

diagnosed with CF. We are just getting over the shock of the news,

and

now we would like to get to know other people who have these special

children. I am thankful to find this group, and I am looking forward

to sharing information, and support. Thanks!

>

>

>

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Hi ,

I'm rather new to this group too, been here since April. My son is 4

months old, he was diagnosed at 3 weeks because my husband asked the

doctors to see if he was a carrier. (My husband lost a sister in 1970

to cf). The doctor had the unfortunate task of informing us that Adam

has cf. So within a month he started the enzymes and the cpt (I call

it clapping). He weighed 5#11 at birth and had reflux, spent a month

in NICU. He now weighs 10#6.5, so I'd say we are doing okay. I spent

a couple of weeks crying each time I openned the book they gave us to

read about cf. It really helps being part of this list. I only post

something about every week or so. But it really helps to read what

the others are posting.

I can only imagine what my mother-in-law is going through, having

lost one of her children and now to know that the same disease is

affecting her youngest grandson. There are a couple of other Grandmas

on this list too. You'll get to know them well.

Again, Welcome. While we can't physically hold each other's hands,

I'd say this list does a pretty good imitation of that!

Crystal

mom to Adam 4 mo wcf, le 2 1/2 yr nocf

>

> Hello everyone.

>

> My name is , and my 5 month old grandaughter was just

diagnosed with CF. We are just getting over the shock of the news,

and

now we would like to get to know other people who have these special

children. I am thankful to find this group, and I am looking forward

to sharing information, and support. Thanks!

>

>

>

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