Re: Reyerse Database for PLS/HSP/ALS

[Guest guest]

,

Checked the site (couldn't remember if I was registered) and I do remember

helped me with this (registering). So, folks, I'm on the list! How

about you ?

Thank you,

Take care,

Donna ~ PLS ~ Iowa

Reyerse Database for PLS/HSP/ALS

> Hi All,

>

> If you've had a chance to read the current issue of the Synapse

Newsletter,

> you will see that 's many many years of work will not be forgotten.

In

> the Synapse article it says the PLS database but when our communities

merged to

> form SPF, graciously opened the database to include HSP and ALS. As

you

> will see when you sign on, there are a lot of people with PLS, that is

> because started it when he was first diagnosed with PLS.

>

> Now is a good time to include your information and to make any changes for

> those of you whose information is no longer current or if there is a

mistake in

> your address. I have noticed errors, old addresses, etc., so Thurza and

Jim

> will correct them as they are notified.

>

> This database is not an SPF database and the information provided comes

> directly from you. If you want to expand this database so we all can find

people

> with our disorders easier, please register.

>

> REGISTER NOW to help us all find each other. Someone might live in your

area

> and you don't even know it.

> http://www.geocities.com/freyerse/plsdb.html

>

> Gentner

>

>

>

[Guest guest]

Alper,

I, too, have gotten that message a few times but then it goes through other

times. I don't understand it but Geocities is a free site and I honestly

don't understand. Jim did call someone there so hopefully it will be

resolved soon...but keep trying.

[Guest guest]

,

I tried to checked the site whether my info registered or not. It returned

message like below:

Sorry, this GeoCities site is currently unavailable.

The GeoCities web site you were trying to view has temporarily exceeded its

data transfer limit. Please try again later.

Are you the site owner? Avoid service interruptions in the future by

increasing your data transfer limit! Find out how.

Learn more about data transfer.

Best wishes

Alper Kaya

Alper Kaya MD

Ophthalmologist

44 M

PALS dx 1990, limb onset

PWC(1999), Trach, BIPAP(2004)

Onscreen keyboard (ScreenDoors/Madentec) for typing

Eating, speaking still ;-)

Izmir/Turkey

So far so good ;-)

---------------------------------

Yahoo! kullaniyor musunuz?

Istenmeyen postadan biktiniz mi? Istenmeyen postadan en iyi korunma Yahoo!

Posta’da

http://tr.mail.yahoo.com

[Guest guest]

,

I tried to checked the site whether my info registered or not. It returned

message like below:

Sorry, this GeoCities site is currently unavailable.

The GeoCities web site you were trying to view has temporarily exceeded its

data transfer limit. Please try again later.

Are you the site owner? Avoid service interruptions in the future by

increasing your data transfer limit! Find out how.

Learn more about data transfer.

Best wishes

Alper Kaya

Alper Kaya MD

Ophthalmologist

44 M

PALS dx 1990, limb onset

PWC(1999), Trach, BIPAP(2004)

Onscreen keyboard (ScreenDoors/Madentec) for typing

Eating, speaking still ;-)

Izmir/Turkey

So far so good ;-)

---------------------------------

Yahoo! kullaniyor musunuz?

Istenmeyen postadan biktiniz mi? Istenmeyen postadan en iyi korunma Yahoo!

Posta’da

http://tr.mail.yahoo.com

[Guest guest]

Alper and others who have contacted me....Yes, we have a problem and now

know what we have to do and how to get it fixed. As you can appreciate, we

couldn't go to the source (). Jim will contact Geocities next week and

get

their recommendation also...of course, I'm sure their recommendation will be

to start paying for more capacity. I now understand why had requested

donations. I'll assume any costs. I really want to see this database grow

and serve our community. Stay tuned and don't give up; we'll get it solved --

no way are we going to let all 's work go in vain.

Gentner

[Guest guest]

Dolores wrote: It's too good a site

to lose. I wish we could encourage everyone to include their photograph,

too. It's so nice to put a " face with the name " .

Dolores "

-------------

I agree, Dolores. As soon as we know the site has more capacity, we can

really encourage people to send in their photos. I have several that we have

taken at various Connections that I plan to submit (with their permission).

Thanks for your reply.

[Guest guest]

I made a donation to and will do likewise to you. It's too good a site

to lose. I wish we could encourage everyone to include their photograph,

too. It's so nice to put a " face with the name " .

Dolores

----- Original Message -----

I'm sure their recommendation will be

> to start paying for more capacity. I now understand why had

> requested

> donations. I'll assume any costs. I really want to see this database

> grow

> and serve our community. Stay tuned and don't give up; we'll get it

> solved --

> no way are we going to let all 's work go in vain.

> Gentner

[Guest guest]

- What data base are you talking about? I note that

has not updated the PLS data base for a year now. -- Dorothy

>

> Alper and others who have contacted me....Yes, we have a problem

and now

> know what we have to do and how to get it fixed. As you can

appreciate, we

> couldn't go to the source (). Jim will contact Geocities next

week and get

> their recommendation also...of course, I'm sure their

recommendation will be

> to start paying for more capacity. I now understand why had

requested

> donations. I'll assume any costs. I really want to see this

database grow

> and serve our community. Stay tuned and don't give up; we'll get

it solved --

> no way are we going to let all 's work go in vain.

>

> Gentner

>

>

>

[Guest guest]

- What data base are you talking about? I note that

has not updated the PLS data base for a year now. -- Dorothy

>

> Alper and others who have contacted me....Yes, we have a problem

and now

> know what we have to do and how to get it fixed. As you can

appreciate, we

> couldn't go to the source (). Jim will contact Geocities next

week and get

> their recommendation also...of course, I'm sure their

recommendation will be

> to start paying for more capacity. I now understand why had

requested

> donations. I'll assume any costs. I really want to see this

database grow

> and serve our community. Stay tuned and don't give up; we'll get

it solved --

> no way are we going to let all 's work go in vain.

>

> Gentner

>

>

>