Re: PLS and esophagus/.breathing issues

[Guest guest]

Di I too have esophagus problems. Mine can go into a spasm when eating, sleeping

or doing nothing more than swallowing my on saliva. I have thought I would die

for sure b/c I wheeze like I am having a severe asthma attack. But, I have

learned not to panic when it happens now and it doesn't go into a full blown

spasm. I also have serious reflux which I take prilosec for. I also have to be

careful not to over eat as it can be hard to get a good breath after wards. I

find that often I do not take deep enough breaths without thinking about it too.

You are not alone. I too fear ALS diagnosis sometimes but have been told I have

PLS for sure. Just a really good case of PLS. Take care.

dianamj_canuck dianamj_canuck@...> wrote:

Hi guys,

Well...I HOPE I am not the exception here...I hate being the

exception! lol. AS i mentioned earlier...I have checked out OK for

reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro and

respirologist say my esophagues, diaphragm and muscles nesr stomach

ARE, in fact, being affected by my PLS.

Is there anyone else out there who has been told the same thing? I

think one of you mentioned something like that. The eating part has

gotten so bad I may have to look at a peg tube eventually....meals

are just too painful and difficult.

I guess we are all different. I am coping with these new

issues....but it helps to know that someone else has them and they

are part of their PLS.....OK...OK...I admit it! I am afraid that my

PLS may be ALS...although my Doc thinks no.

Hugs to all!!

Love Di....Canada

[Guest guest]

Di

I personally think your answer will be found in the Epstein barr

virus connection to anti-neuronal antibodies, its secondary

autoimmune response, the torso rigidity when it activates as

cerebellitis and the fact it loves to live dormancy in the pleural

fluid where it can immediately put pressure on the lungs and

esophagus at reactivation, But that's just me.

I now breath like a vacuum, dc'ed all asthma meds just by taking anti-

viral meds.

Eva

>

> Hi guys,

>

> Well...I HOPE I am not the exception here...I hate being the

> exception! lol. AS i mentioned earlier...I have checked out OK for

> reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro

and

> respirologist say my esophagues, diaphragm and muscles nesr stomach

> ARE, in fact, being affected by my PLS.

>

> Is there anyone else out there who has been told the same thing? I

> think one of you mentioned something like that. The eating part has

> gotten so bad I may have to look at a peg tube eventually....meals

> are just too painful and difficult.

>

> I guess we are all different. I am coping with these new

> issues....but it helps to know that someone else has them and they

> are part of their PLS.....OK...OK...I admit it! I am afraid that my

> PLS may be ALS...although my Doc thinks no.

>

> Hugs to all!!

>

> Love Di....Canada

>

[Guest guest]

Hi ya Di

I think that you should listen closely to what eva has to say. Your

repirologist may just " think " that your problems are being exacerbated

by your PLS because that is what she has been told you have. You may

have to get someone to look outside the square as to why you are

having all these extra problems that most of us dont have. Maybe see

another neuro, dont mention PLS and see what he/she comes up with.

Just like Eva, you may have more than one disorder happening with you.

(((Hugs)))

aussie maureen

> >

> > Hi guys,

> >

> > Well...I HOPE I am not the exception here...I hate being the

> > exception! lol. AS i mentioned earlier...I have checked out OK for

> > reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro

> and

> > respirologist say my esophagues, diaphragm and muscles nesr stomach

> > ARE, in fact, being affected by my PLS.

> >

> > Is there anyone else out there who has been told the same thing? I

> > think one of you mentioned something like that. The eating part has

> > gotten so bad I may have to look at a peg tube eventually....meals

> > are just too painful and difficult.

> >

> > I guess we are all different. I am coping with these new

> > issues....but it helps to know that someone else has them and they

> > are part of their PLS.....OK...OK...I admit it! I am afraid that my

> > PLS may be ALS...although my Doc thinks no.

> >

> > Hugs to all!!

> >

> > Love Di....Canada

> >

>

[Guest guest]

Thanks melissa! Sorry you have the same symptoms....but nice to not

feel alone. We shall overcome!!!!!!!!!!!!! Hugs1

Di.......Canada

> Hi guys,

>

> Well...I HOPE I am not the exception here...I hate being the

> exception! lol. AS i mentioned earlier...I have checked out OK for

> reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro

and

> respirologist say my esophagues, diaphragm and muscles nesr

stomach

> ARE, in fact, being affected by my PLS.

>

> Is there anyone else out there who has been told the same thing? I

> think one of you mentioned something like that. The eating part

has

> gotten so bad I may have to look at a peg tube eventually....meals

> are just too painful and difficult.

>

> I guess we are all different. I am coping with these new

> issues....but it helps to know that someone else has them and they

> are part of their PLS.....OK...OK...I admit it! I am afraid that

my

> PLS may be ALS...although my Doc thinks no.

>

> Hugs to all!!

>

> Love Di....Canada

>

>

>

>

>

>

[Guest guest]

Thanks melissa! Sorry you have the same symptoms....but nice to not

feel alone. We shall overcome!!!!!!!!!!!!! Hugs1

Di.......Canada

> Hi guys,

>

> Well...I HOPE I am not the exception here...I hate being the

> exception! lol. AS i mentioned earlier...I have checked out OK for

> reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro

and

> respirologist say my esophagues, diaphragm and muscles nesr

stomach

> ARE, in fact, being affected by my PLS.

>

> Is there anyone else out there who has been told the same thing? I

> think one of you mentioned something like that. The eating part

has

> gotten so bad I may have to look at a peg tube eventually....meals

> are just too painful and difficult.

>

> I guess we are all different. I am coping with these new

> issues....but it helps to know that someone else has them and they

> are part of their PLS.....OK...OK...I admit it! I am afraid that

my

> PLS may be ALS...although my Doc thinks no.

>

> Hugs to all!!

>

> Love Di....Canada

>

>

>

>

>

>

[Guest guest]

Thanks melissa! Sorry you have the same symptoms....but nice to not

feel alone. We shall overcome!!!!!!!!!!!!! Hugs1

Di.......Canada

> Hi guys,

>

> Well...I HOPE I am not the exception here...I hate being the

> exception! lol. AS i mentioned earlier...I have checked out OK for

> reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro

and

> respirologist say my esophagues, diaphragm and muscles nesr

stomach

> ARE, in fact, being affected by my PLS.

>

> Is there anyone else out there who has been told the same thing? I

> think one of you mentioned something like that. The eating part

has

> gotten so bad I may have to look at a peg tube eventually....meals

> are just too painful and difficult.

>

> I guess we are all different. I am coping with these new

> issues....but it helps to know that someone else has them and they

> are part of their PLS.....OK...OK...I admit it! I am afraid that

my

> PLS may be ALS...although my Doc thinks no.

>

> Hugs to all!!

>

> Love Di....Canada

>

>

>

>

>

>

[Guest guest]

I am looking into anti-viral meds actually.

A REAL GOOD belly laugh helps the immune system too! Ha ha.

Hugs!

Love Di

> >

> > Hi guys,

> >

> > Well...I HOPE I am not the exception here...I hate being the

> > exception! lol. AS i mentioned earlier...I have checked out OK

for

> > reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro

> and

> > respirologist say my esophagues, diaphragm and muscles nesr

stomach

> > ARE, in fact, being affected by my PLS.

> >

> > Is there anyone else out there who has been told the same thing?

I

> > think one of you mentioned something like that. The eating part

has

> > gotten so bad I may have to look at a peg tube

eventually....meals

> > are just too painful and difficult.

> >

> > I guess we are all different. I am coping with these new

> > issues....but it helps to know that someone else has them and

they

> > are part of their PLS.....OK...OK...I admit it! I am afraid that

my

> > PLS may be ALS...although my Doc thinks no.

> >

> > Hugs to all!!

> >

> > Love Di....Canada

> >

>

[Guest guest]

I am looking into anti-viral meds actually.

A REAL GOOD belly laugh helps the immune system too! Ha ha.

Hugs!

Love Di

> >

> > Hi guys,

> >

> > Well...I HOPE I am not the exception here...I hate being the

> > exception! lol. AS i mentioned earlier...I have checked out OK

for

> > reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro

> and

> > respirologist say my esophagues, diaphragm and muscles nesr

stomach

> > ARE, in fact, being affected by my PLS.

> >

> > Is there anyone else out there who has been told the same thing?

I

> > think one of you mentioned something like that. The eating part

has

> > gotten so bad I may have to look at a peg tube

eventually....meals

> > are just too painful and difficult.

> >

> > I guess we are all different. I am coping with these new

> > issues....but it helps to know that someone else has them and

they

> > are part of their PLS.....OK...OK...I admit it! I am afraid that

my

> > PLS may be ALS...although my Doc thinks no.

> >

> > Hugs to all!!

> >

> > Love Di....Canada

> >

>

[Guest guest]

I am looking into anti-viral meds actually.

A REAL GOOD belly laugh helps the immune system too! Ha ha.

Hugs!

Love Di

> >

> > Hi guys,

> >

> > Well...I HOPE I am not the exception here...I hate being the

> > exception! lol. AS i mentioned earlier...I have checked out OK

for

> > reflux, hiatal hernia, pulmonary and cardiac issues.....my neuro

> and

> > respirologist say my esophagues, diaphragm and muscles nesr

stomach

> > ARE, in fact, being affected by my PLS.

> >

> > Is there anyone else out there who has been told the same thing?

I

> > think one of you mentioned something like that. The eating part

has

> > gotten so bad I may have to look at a peg tube

eventually....meals

> > are just too painful and difficult.

> >

> > I guess we are all different. I am coping with these new

> > issues....but it helps to know that someone else has them and

they

> > are part of their PLS.....OK...OK...I admit it! I am afraid that

my

> > PLS may be ALS...although my Doc thinks no.

> >

> > Hugs to all!!

> >

> > Love Di....Canada

> >

>