Re: I GET to go to Mayo Clinic now

[Guest guest]

Eva, that's where you should of gone from the very beginning instead of your

local neurogolist. That's great news at least you'll find someone that's a

whole lot smarter then the first 21 neuro's. My doctor here in St sburg

was taught by one of the Mayo clinic doctors there he was his mentor in

medical school. I've forgotten his name but I could find out if you're

interested. He told me I could go to him if I felt I needed a second opinion.

i

just stuck with him and got a second from another associate there in his

office. Well when do you go? soon I hope, this has to end for

you............................Flora

[Guest guest]

In 1997, after symptoms for 4 years, I was diagnosed with Probable PLS at

Mayo Clinic in Rochester. Went all the way from CA to MN just to go to Mayo

and had the works -- of course, I'd had them all before except the spinal tap.

It was great getting all of the tests done in two days and they were super

efficient.

G.

[Guest guest]

Thats great news Eva!! One neuro told me that they will poke you and

prod you there until the cows come home to find an answer to your

problems.

aussie maureen

>

> Shake your head, laugh, or cry as I did. Neuro #20 feels inept to

> treat PLS, withe EBV cerebellitis and adrenal insufficiency. Being

> angry at Shands for scolding him on not keeping up on PLS, he is

> referring me to Mayo=ville.

> enough said

> Eva

>

[Guest guest]

Eva,

I've heard Mayo is very good. We have one up north in Rochester, Minn.

Do you have an appt. yet?

I do hope they are able to help you & I HOPE you can make the drive ok.

Please keep in touch, Eva.

Take care,

Donna ~ PLS ~ Iowa

I GET to go to Mayo Clinic now

> Shake your head, laugh, or cry as I did. Neuro #20 feels inept to

> treat PLS, withe EBV cerebellitis and adrenal insufficiency. Being

> angry at Shands for scolding him on not keeping up on PLS, he is

> referring me to Mayo=ville.

> enough said

> Eva

>

>

>

>

>

>

>

[Guest guest]

eva,

this is wonderful, wonderful news.

sarah-

-- In PLS-FRIENDS , " briteeyestwo "

wrote:

>

> Shake your head, laugh, or cry as I did. Neuro #20 feels inept to

> treat PLS, withe EBV cerebellitis and adrenal insufficiency. Being

> angry at Shands for scolding him on not keeping up on PLS, he is

> referring me to Mayo=ville.

> enough said

> Eva

>

[Guest guest]

Eva, Do you know who you will see?? They have a bunch of good ones. The one

saw for 3-4 times was Dr Boylan, I think. He was good and took his

time and listened. If he don't know your situation, he will call in whom ever

you need. He finally recomended MDA . Good Luck

and Byron.

[Guest guest]

yippee is my reaction!! when do you go? i think you'd be better off coming

down and over to see my doc or going to USF but then i cannot get you over here

to do that, so i am happy with mayo!! were it not for doc franklin i was headed

there myself!

tawny

briteeyestwo briteeyestwo@...> wrote:

Shake your head, laugh, or cry as I did. Neuro #20 feels inept to

treat PLS, withe EBV cerebellitis and adrenal insufficiency. Being

angry at Shands for scolding him on not keeping up on PLS, he is

referring me to Mayo=ville.

enough said

Eva

[Guest guest]

Good Luck Eva! I hope something good comes out of your visit. Connie

[Guest guest]

Yaaaaay!!!!! Way to go Eva! Eva,,...if THAT doen't work...we'll fly

you up here to Foothills Neurological centre in Calgary and you can

see my neuros. One in particular is really up on PLS. What we will

do....is smudge out my picture on my medical coverage card and put

yours on there. Of course....you will then have to practice signing my

full name which....with PLS....may be cruel : Rosina

Montague-. But hey....might be worth the hand cramps!

I am happy that you get to go to Mayo Eva. I'm with ya!

Love Di..............Canada

>

> Shake your head, laugh, or cry as I did. Neuro #20 feels inept to

> treat PLS, withe EBV cerebellitis and adrenal insufficiency. Being

> angry at Shands for scolding him on not keeping up on PLS, he is

> referring me to Mayo=ville.

> enough said

> Eva

>