Re: Re: [HSP] Dale's Lyme doctor

[Guest guest]

Yes, I have been officially diagnosed with Lyme instead of PLS. However, I

could still have an Upper Motor Neuron disease, we have to wait until the

Lymes is treated, expected 2-3 years because of my poor condition.

dale

Re: [HSP] Dale's Lyme doctor

> Dale, Frances here, Have they diagnosed you with Lyme Disease instead of

> HSP

> or FSP? I am new back on the list after being away for months so am just

> getting caught up.

>

> ---------

> The HSP-L List is a service provided by the Spastic Paraplegia Foundation

> for individuals concerned with HSP or PLS. To help us help one another and

> find the cure, send an email to: info@.... Post messages:

> HSP-L@.... Reach list owner: HSP-L-Request@....

> Read

> archives

> or manage subscription options:

> http://listserv.uga.edu/archives/hsp-l.html

> Frequently Asked Questions: http://sp-foundation.org/list-faq.htm

>

[Guest guest]

often times, with what i have read anyway, there are more than one processes

going on other than pls

dale dalerutschow@...> wrote: Yes, I have been officially diagnosed

with Lyme instead of PLS. However, I

could still have an Upper Motor Neuron disease, we have to wait until the

Lymes is treated, expected 2-3 years because of my poor condition.

dale

Re: [HSP] Dale's Lyme doctor

> Dale, Frances here, Have they diagnosed you with Lyme Disease instead of

> HSP

> or FSP? I am new back on the list after being away for months so am just

> getting caught up.

>

> ---------

> The HSP-L List is a service provided by the Spastic Paraplegia Foundation

> for individuals concerned with HSP or PLS. To help us help one another and

> find the cure, send an email to: info@.... Post messages:

> HSP-L@.... Reach list owner: HSP-L-Request@....

> Read

> archives

> or manage subscription options:

> http://listserv.uga.edu/archives/hsp-l.html

> Frequently Asked Questions: http://sp-foundation.org/list-faq.htm

>

[Guest guest]

That's the thing with Lyme, it inflames the nerve endings and can cause

permanent damage... I am not bedridden but can't do much, need help

dressing, eating, almost everything so am pretty housebound.

dale

Re: [HSP] Dale's Lyme doctor

> Dale, Frances here, I have heard that Lyme Disease is indeed a bad one to

> have. Are you bed ridden like some are? Boy that's a long time to be

> treated, hope that it turns out that you don't have the upper motor neuron

> disease. You have really gone through a ruff time. Will be thinking of

> you.

> Keep in touch.

>

[Guest guest]

Each person is different, but the longer untreated the more CHANCE of

permanent problems. The rough average is you get back 50-70% of what you

lost...

dale

Re: [HSP] Dale's Lyme doctor

> My mother wants to know when the effects of spastic paraplegia start to

> take

> a toll on you. She was just diagnosed with it here recently, but has had

> symptoms of it for the last 5 years not knowing what it was.

>

>

[Guest guest]

long-term, IV, antibiotics.

Re: [HSP] Dale's Lyme doctor

>

[Guest guest]

In a message dated 2/27/2006 7:54:09 P.M. Eastern Standard Time,

dalerutschow@... writes:

Lymes is treated, expected 2-3 years because of my poor condition.

dale, Just what type of treatment is planned??? Connie

[Guest guest]

long-term, IV, antibiotics and PT

Re: Re: Re: [HSP] Dale's Lyme doctor

>

> In a message dated 2/27/2006 7:54:09 P.M. Eastern Standard Time,

> dalerutschow@... writes:

>

> Lymes is treated, expected 2-3 years because of my poor condition.

>

>

>

>

> dale, Just what type of treatment is planned??? Connie

>