Re: Re: Need advice - a bit long

April 7, 2003

I actually have more probalems with people understanding and accepting Greggory

than I do with Alec. Greggory just seems whiney and annoying and pesty. People

don't like that. Alec is way too obviously affected for someone to be as

unsympathetic. And it does seem that people know more about Alec's autism than

Greggory's HF autism. Just my experience.

Jacquie H

Re: Need advice - a bit long

> They show

> the severely affected individuals but rarely show the high

> functioning ones. Most people equate autism with Rainman.>

You know, it's funny...I always think that the media portrays kids

with " higher functioning " autism...I would be thrilled if was

able to function as well as Rainman, or the kid in " Gilbert Grape " .

I guess it's all in perspective...most folks don't even know kids

like mine exist.

Raena

April 7, 2003

> is still pretty young though isn't he? I'm just thinking that

> he has a lot of time still to develop.

>

He's not that young. Eight or nine? I lose track, but I know he is older

than Putter who is seven.

Salli

April 7, 2003

> is still pretty young though isn't he? I'm just thinking that

> he has a lot of time still to develop.

>

He's not that young. Eight or nine? I lose track, but I know he is older

than Putter who is seven.

Salli

April 7, 2003

> I think it's because of the way the media portrays autism. They show

> the severely affected individuals but rarely show the high

> functioning ones.

I absolutely agree. Very little is known to the general public about ANY

asd, but expecially the higher end of the specturm.

> Sometimes it helps them understand, sometimes it doesn't. I never

> take the time to try to explain unless they manage to show a bit of

> interest. I hate it when their eyes glaze over and I've said 5 words

> or less.

I don't even bother! They say, " no, " or " I never would've guessed, " and I

just say, " Well, he is. " and leave it at that. I can't be bothered to try

to educate. If they ASK, I explain.

LOL.

Jacquie

April 7, 2003

> I think it's because of the way the media portrays autism. They show

> the severely affected individuals but rarely show the high

> functioning ones.

I absolutely agree. Very little is known to the general public about ANY

asd, but expecially the higher end of the specturm.

> Sometimes it helps them understand, sometimes it doesn't. I never

> take the time to try to explain unless they manage to show a bit of

> interest. I hate it when their eyes glaze over and I've said 5 words

> or less.

I don't even bother! They say, " no, " or " I never would've guessed, " and I

just say, " Well, he is. " and leave it at that. I can't be bothered to try

to educate. If they ASK, I explain.

LOL.

Jacquie

April 7, 2003

> I think that part of the problem is that a person can be

> quite " severely autistic " and still function fairly well...

Yes, this would probably describe Putter...

Salli

April 7, 2003

I've said it before and i'll say it again, i think autism is more about

challenging our own perceptions of what autism is than anything else.

Someone recently posted that their doctor needed years of exposure to wrap

her mind around the spectrum, and I second that.

My son is also like this, definately not NT, but also rather social. It is

an enigma. And I am reminded of this since my MIL was just recently in

town. Now before I continue, I should say that I love my MIL, she is a

wonderful woman. But my husband made a point of telling me this evening,

after dropping her off from the airport that: " I asked Mom and she said that

she didn't think n is a crazy. And Mom would tell me the truth. "

Argh. I'm running out of allies. I realize that most people have a

sterotypical ideal of what autism is, and I realize that many people feel

that it is controversial that at some point the upper end of the ASD

spectrum is going to merge with the weirder end of the NT spectrum ... but

why *why* WHY! WHY! WHY! does " autism " have to be a pejorative label???

especially if it entitles these kids to therapies that they need?

I'm rambling and I'm drunk. but I'm tired of being alone in all of this.

sorry,

(SAHM in GA)

MSN elizabethloht@...

n 32, mo, no formal dx

Phoebe, 7 wks

April 8, 2003

It took my 6 months to confince my husband. My mom took closer to a year.

Just say this: whatever I am doing with him and his therapies can only help

him no matter what. Now you can either back me and I can share his triumphs

with you OR you can continue to make me feel isolated until I no longer share

things with you. It's your decision.

Hugs

April 8, 2003

If I remember correctly only 5% of the autistic population are savants. But

honestly I'm not certain what that means. Does it include the kids that can

read as well? I think that's savant also.

April 8, 2003

In a message dated 4/8/03 8:09:09 AM Eastern Daylight Time, njm6262@...

writes:

> , rachelle was up all last night throwing up...

Poor baby! If you can get out to the pharmacy there is something called cola

syrup that you can poor a teaspoon over ice. Works really well for an upset

tummy.

Hugs

April 8, 2003

In a message dated 4/8/03 8:09:09 AM Eastern Daylight Time, njm6262@...

writes:

> , rachelle was up all last night throwing up...

Poor baby! If you can get out to the pharmacy there is something called cola

syrup that you can poor a teaspoon over ice. Works really well for an upset

tummy.

Hugs

April 8, 2003

In a message dated 4/8/03 8:09:09 AM Eastern Daylight Time, njm6262@...

writes:

> , rachelle was up all last night throwing up...

Poor baby! If you can get out to the pharmacy there is something called cola

syrup that you can poor a teaspoon over ice. Works really well for an upset

tummy.

Hugs

April 8, 2003

Just have her sip it. The ice with dilute it a bit. Or you can crush the

ice. Wish you could have a nap

Hugs

April 8, 2003

>>>>>

" I asked Mom and she said that

she didn't think n is a crazy.

>>>>>

Well, for what's it's worth, I don't think n is a " crazy " either.

Geesh...

((((}}}}

Penny

April 8, 2003

> >>>>>

> " I asked Mom and she said that

> she didn't think n is a crazy.

> >>>>>

>

> Well, for what's it's worth, I don't think n is a " crazy " either.

>

> Geesh...

Neither is ERIC!

If our kids were 'crazy', then we could just get them on meds and into

therapy and then everything would be hunky dory.

Jacquie

April 8, 2003

> >>>>>

> " I asked Mom and she said that

> she didn't think n is a crazy.

> >>>>>

>

> Well, for what's it's worth, I don't think n is a " crazy " either.

>

> Geesh...

Neither is ERIC!

If our kids were 'crazy', then we could just get them on meds and into

therapy and then everything would be hunky dory.

Jacquie

April 8, 2003

> >>>>>

> " I asked Mom and she said that

> she didn't think n is a crazy.

> >>>>>

>

> Well, for what's it's worth, I don't think n is a " crazy " either.

>

> Geesh...

Neither is ERIC!

If our kids were 'crazy', then we could just get them on meds and into

therapy and then everything would be hunky dory.

Jacquie

April 8, 2003

Something else that works good is something called 'bitters'. You can get

it at any decent booze store. It's used for making various mixed drinks.

Georga Hackworth

Men, can't live with them, can't trade them in for their weight in

chocolate.

April is Autism Awareness Month!

Enter to win $50 in free books at www.ubah.com/F1549

Re: Re: Need advice - a bit long

> Just have her sip it. The ice with dilute it a bit. Or you can crush the

> ice. Wish you could have a nap

>

> Hugs

>

April 8, 2003

Something else that works good is something called 'bitters'. You can get

it at any decent booze store. It's used for making various mixed drinks.

Georga Hackworth

Men, can't live with them, can't trade them in for their weight in

chocolate.

April is Autism Awareness Month!

Enter to win $50 in free books at www.ubah.com/F1549

Re: Re: Need advice - a bit long

> Just have her sip it. The ice with dilute it a bit. Or you can crush the

> ice. Wish you could have a nap

>

> Hugs

>

April 8, 2003

Strangely, I think uses the word " crazy " sort of jokingly. I think it

is his way of avoiding use of the word " autism, " which I guess is still

stuck in his throat. The thing about this conversation was that my MIL

(reportedly) launched into how great our kids are and how we should just

feel lucky. And the thing is, I *know* that they're great kids. And n

is a great kid whether or not he is on the spectrum. But seriously, what

was she going to say? No one is going to tell you your child is anything

other than perfectly normal, let alone autistic. what am I going to

do with these people when the official diagnosis comes around? Does the

entire family think that I am insane?

Grrr.

(SAHM in GA)

MSN elizabethloht@...

n 32, mo, no formal dx

Phoebe, 8 wks

Re: Re: Need advice - a bit long

>

> > >>>>>

> > " I asked Mom and she said that

> > she didn't think n is a crazy.

> > >>>>>

> >

> > Well, for what's it's worth, I don't think n is a " crazy " either.

> >

> > Geesh...

>

> Neither is ERIC!

>

> If our kids were 'crazy', then we could just get them on meds and into

> therapy and then everything would be hunky dory.

>

> Jacquie

April 8, 2003