Re: Two year implant and no benefit - any one with the same problem

[Guest guest]

Dear Nedal,

I am not well versed on CIs. However, I noticed no one has yet

responded to your inquiry. Is it possible that the CI is not working

properly? Or that there is another issue other than a SNHL at play? I

have never read anything to date on the question you raised.

[Guest guest]

Nedal

My daughter was implanted at 10 - quite old and at 13 she will use

her implant and her voice - so roughly 3, going on 4, years. Is your

son receiving any therapy to teach him how to hear? You may need to

take him in for a mapping. He may be learning more than you think.

That being said, I do know of a boy who was implanted twice and for

some reason it never worked; the company even was there for his

surgeries. I have not seen him for some years though. Did your

son's auditory nerve work when the implant was done?

Where are you?

>

> Dear all;

>

> My son has profound hearing loss since he was 3. He was

implanted at the age of 5, with Clarion Auria. He is 7 now, and no

chage noticed.

>

> Any one faced the same problem? Any suggestion?

>

> Best regards

> Nedal

>

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Nedal,

I also know very little about CIs, my son does not have one. You didn't

write anything about whether you use sign language with your son. I just

wanted to bring up the importance of language, I would use sign with him

while you're problem solving what's going on with the implant. I do know

some kids who just didn't get much benefit from CIs, but that doesn't mean

that's the case with your son.

Pam

My son has profound hearing loss since he was 3. He was implanted at the

age of 5, with Clarion Auria. He is 7 now, and no chage noticed.

Any one faced the same problem? Any suggestion?

Best regards

Nedal

[Guest guest]

Nedal,

I also know very little about CIs, my son does not have one. You didn't

write anything about whether you use sign language with your son. I just

wanted to bring up the importance of language, I would use sign with him

while you're problem solving what's going on with the implant. I do know

some kids who just didn't get much benefit from CIs, but that doesn't mean

that's the case with your son.

Pam

My son has profound hearing loss since he was 3. He was implanted at the

age of 5, with Clarion Auria. He is 7 now, and no chage noticed.

Any one faced the same problem? Any suggestion?

Best regards

Nedal

[Guest guest]

Thanks , Pam, ;

1. Yes, my son is attending speech therapy. He was heaing and talking until 3

years of age, so he still can pronounce the old words. But, he is not hearing

from the implant.

2. I don't know if his nerve is working. The doctors are telling it is

working, and that why they decided to opeate him.

3. I am located in Saudi Arabia. Dr. House - American doctor - checked my

son and recommended the implant.

The doctors now decided to reimplant on the other ear. I don't know what to

do. I actually does not have another choice.

Love to you all

Nedal

wrote:

Nedal

My daughter was implanted at 10 - quite old and at 13 she will use

her implant and her voice - so roughly 3, going on 4, years. Is your

son receiving any therapy to teach him how to hear? You may need to

take him in for a mapping. He may be learning more than you think.

That being said, I do know of a boy who was implanted twice and for

some reason it never worked; the company even was there for his

surgeries. I have not seen him for some years though. Did your

son's auditory nerve work when the implant was done?

Where are you?

>

> Dear all;

>

> My son has profound hearing loss since he was 3. He was

implanted at the age of 5, with Clarion Auria. He is 7 now, and no

chage noticed.

>

> Any one faced the same problem? Any suggestion?

>

> Best regards

> Nedal

>

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Thanks , Pam, ;

1. Yes, my son is attending speech therapy. He was heaing and talking until 3

years of age, so he still can pronounce the old words. But, he is not hearing

from the implant.

2. I don't know if his nerve is working. The doctors are telling it is

working, and that why they decided to opeate him.

3. I am located in Saudi Arabia. Dr. House - American doctor - checked my

son and recommended the implant.

The doctors now decided to reimplant on the other ear. I don't know what to

do. I actually does not have another choice.

Love to you all

Nedal

wrote:

Nedal

My daughter was implanted at 10 - quite old and at 13 she will use

her implant and her voice - so roughly 3, going on 4, years. Is your

son receiving any therapy to teach him how to hear? You may need to

take him in for a mapping. He may be learning more than you think.

That being said, I do know of a boy who was implanted twice and for

some reason it never worked; the company even was there for his

surgeries. I have not seen him for some years though. Did your

son's auditory nerve work when the implant was done?

Where are you?

>

> Dear all;

>

> My son has profound hearing loss since he was 3. He was

implanted at the age of 5, with Clarion Auria. He is 7 now, and no

chage noticed.

>

> Any one faced the same problem? Any suggestion?

>

> Best regards

> Nedal

>

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Thanks , Pam, ;

1. Yes, my son is attending speech therapy. He was heaing and talking until 3

years of age, so he still can pronounce the old words. But, he is not hearing

from the implant.

2. I don't know if his nerve is working. The doctors are telling it is

working, and that why they decided to opeate him.

3. I am located in Saudi Arabia. Dr. House - American doctor - checked my

son and recommended the implant.

The doctors now decided to reimplant on the other ear. I don't know what to

do. I actually does not have another choice.

Love to you all

Nedal

wrote:

Nedal

My daughter was implanted at 10 - quite old and at 13 she will use

her implant and her voice - so roughly 3, going on 4, years. Is your

son receiving any therapy to teach him how to hear? You may need to

take him in for a mapping. He may be learning more than you think.

That being said, I do know of a boy who was implanted twice and for

some reason it never worked; the company even was there for his

surgeries. I have not seen him for some years though. Did your

son's auditory nerve work when the implant was done?

Where are you?

>

> Dear all;

>

> My son has profound hearing loss since he was 3. He was

implanted at the age of 5, with Clarion Auria. He is 7 now, and no

chage noticed.

>

> Any one faced the same problem? Any suggestion?

>

> Best regards

> Nedal

>

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

I understand that Dr. House is the " rock star " of the CI world.

However, I would suggest getting a another opinion. What is Dr.

House saying could be the issue? There is a wonderful doctor at UCLA

that we met with early on--Dr. Akira A. Ishiyama. Also, within the

House Ear practice I have heard wonderful things about Dr.

M. Luxford. How frustrating!!! Please keep us posted.

Best,

> >

> > Dear all;

> >

> > My son has profound hearing loss since he was 3. He was

> implanted at the age of 5, with Clarion Auria. He is 7 now, and no

> chage noticed.

> >

> > Any one faced the same problem? Any suggestion?

> >

> > Best regards

> > Nedal

> >

> >

> > ---------------------------------

> > Yahoo! Mail

> > Bring photos to life! New PhotoMail makes sharing a breeze.

> >

> >

[Guest guest]

We did not go to Dr. House, in fact I never heard of him - because

House Ear would not accept Hayley as a patient. They said she would

never get thru the process so why bother. But we did see Dr.

Ishiyama at UCLA and he was Hayley's implant surgeon, so I agree

with you, - he is wonderful.

Nedal, I think I would go for the other ear option myself if I were

in your shoes. Also, I have to say - I support the parent who

recommended you make sure you communicate with your son, no matter

what the methodology. We ourselves sign primarily, although I know

it's hard and for other areas of the world may not be an appropriate

option. Will you be coming to America for the reimplantation?

Please keep us up to date.

Take care,

>> > 3. I am located in Saudi Arabia. Dr. House - American

> doctor - checked my son and recommended the implant.

> >

> > The doctors now decided to reimplant on the other ear. I don't

> know what to do. I actually does not have another choice.

> >

>