Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Char I had absolutely no pain from my mastectomy. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Comedo Type DCIS I have had my cyst removed and tested and the results on my left breast it DCIS. I think I mentioned this in an earlier post. The margin was 3cm? But Doctor said he perfers 5 so they may go in later to clean out more? The DCIS is the " Comedo " type and I was wondering if anyone had this type, and from what I am understanding it is a High Risk type of having invasive cancer? If you have it or had it, what decision did you make in treatment? (I have my right breast done on Tuesday the 17th on three areas using Large Core Needle Biopsy.) Theres just so much out there to read and learn about its overwhelming. Oh and also, when the took out my two cyst/lumps in my surgery I am having some shooting pains in my armpit, does anyone know why? My breast is very sensitive too, I hate my shirts touching it. If I have to have a mastectomy of some type or lumpectomy, will I be experienceing this pain more so? hugs char ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 10/11/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Hi Char, 3cm sounds like pretty large margins. I thought (at least for lumpectomies) 2mm was considered a clean margin. Was it 3mm or 3cm? I'm not sure if comedo in and of itself tells you anything. Your pathology report should list the grade of the cancer. The higher the grade, the more aggressive it is. take care, starshinespedestal wrote on 10/12/2006, 10:07 AM: > I have had my cyst removed and tested and the results on my left breast > it DCIS. I think I mentioned this in an earlier post. The margin was > 3cm? But Doctor said he perfers 5 so they may go in later to clean out > more? > > The DCIS is the " Comedo " type and I was wondering if anyone had this > type, and from what I am understanding it is a High Risk type of having > invasive cancer? If you have it or had it, what decision did you make > in treatment? > > (I have my right breast done on Tuesday the 17th on three areas using > Large Core Needle Biopsy.) > > Theres just so much out there to read and learn about its overwhelming. > > Oh and also, when the took out my two cyst/lumps in my surgery I am > having some shooting pains in my armpit, does anyone know why? My > breast is very sensitive too, I hate my shirts touching it. If I have > to have a mastectomy of some type or lumpectomy, will I be > experienceing this pain more so? > > hugs > char > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 > I meant to say 3mm sorry. I dont see the grade on the pathology report. When I asked the surgeon on my follow-up he didnt see it on there either. I do however see something listed as this: Nuclear Pleomorphism:3 Also he said I was Estrogen Receptor Positive, which I dont see that on the report either. What I see is estrogen receptors: to be performed and reported later. So I dont know if I have a full report or not a current one or something. Definantion of Comedo:(But I dont know if this refers to the grade) Comedo type DCIS. Comedo looks and acts differently from other in situ subtypes. Comedo tends to be slightly more aggressive than other forms of DCIS. These cells are closer to invasive breast cancer cells in how they look and behave than other forms of DCIS. Comedo cells look different under the microscope because the center of the duct is plugged with dead cellular debris, known as necrosis. Necrosis seen under a microscope in DCIS usually means that the cells are fast- growing and are generally more aggressive or high-grade. Also, microcalcifications (small abnormal calcium deposits) are frequently seen in the areas of necrosis. Hugs char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Pathology reports " evolve " . Not all the tests are performed, initially. You will have to keep asking for the most current report untill all the information is there. My Her2 test was not performed until 2 months after the mastectomy, thanks to the fact that the hospital does not do it routenely and the surgeon neglected to ask for it. I had to remind him twice before he did. You really have to be on the ball. Ruth > > > > > I meant to say 3mm sorry. I dont see the grade on the pathology > report. When I asked the surgeon on my follow-up he didnt see it on > there either. I do however see something listed as this: Nuclear > Pleomorphism:3 > > Also he said I was Estrogen Receptor Positive, which I dont see that > on the report either. What I see is estrogen receptors: to be > performed and reported later. > > So I dont know if I have a full report or not a current one or > something. > > Definantion of Comedo:(But I dont know if this refers to the grade) > > Comedo type DCIS. Comedo looks and acts differently from other in > situ subtypes. Comedo tends to be slightly more aggressive than other > forms of DCIS. These cells are closer to invasive breast cancer cells > in how they look and behave than other forms of DCIS. Comedo cells > look different under the microscope because the center of the duct is > plugged with dead cellular debris, known as necrosis. Necrosis seen > under a microscope in DCIS usually means that the cells are fast- > growing and are generally more aggressive or high-grade. Also, > microcalcifications (small abnormal calcium deposits) are frequently > seen in the areas of necrosis. > > Hugs > char > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Char - Sounds like a Grade 3 which means the cells are " poorly differentiated " in nature and could be invasive. I'm cetainly no Dr. - but would highly recommend that you call either your oncologist or maybe his/her assistant and " go over " your path reports with them. What you are looking for is Stage, Grade, margin, lymph node involvement, est. recep pos or neg and Her2nu pos or neg. There may be something else, but I can't think of it right now. At least the markers I gave you above will give you a better understanding of your " make-up " and help you make decisions. I've said this before, I know, but I used Dr. Love's Breast Cancer book to help me decifer all the numbers when I got them. I'm sure there is someone in the oncologist's office who could take the time to sit with you, even over the phone, and go over these items. It's important that you be as clear about everything as possible. There are big decisions which will impact you and you sure are entitled to know everything there is to know. Hope this helps. Hugs, Ellen > > > > > I meant to say 3mm sorry. I dont see the grade on the pathology > report. When I asked the surgeon on my follow-up he didnt see it on > there either. I do however see something listed as this: Nuclear > Pleomorphism:3 > > Also he said I was Estrogen Receptor Positive, which I dont see that > on the report either. What I see is estrogen receptors: to be > performed and reported later. > > So I dont know if I have a full report or not a current one or > something. > > Definantion of Comedo:(But I dont know if this refers to the grade) > > Comedo type DCIS. Comedo looks and acts differently from other in > situ subtypes. Comedo tends to be slightly more aggressive than other > forms of DCIS. These cells are closer to invasive breast cancer cells > in how they look and behave than other forms of DCIS. Comedo cells > look different under the microscope because the center of the duct is > plugged with dead cellular debris, known as necrosis. Necrosis seen > under a microscope in DCIS usually means that the cells are fast- > growing and are generally more aggressive or high-grade. Also, > microcalcifications (small abnormal calcium deposits) are frequently > seen in the areas of necrosis. > > Hugs > char > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Char - Sounds like a Grade 3 which means the cells are " poorly differentiated " in nature and could be invasive. I'm cetainly no Dr. - but would highly recommend that you call either your oncologist or maybe his/her assistant and " go over " your path reports with them. What you are looking for is Stage, Grade, margin, lymph node involvement, est. recep pos or neg and Her2nu pos or neg. There may be something else, but I can't think of it right now. At least the markers I gave you above will give you a better understanding of your " make-up " and help you make decisions. I've said this before, I know, but I used Dr. Love's Breast Cancer book to help me decifer all the numbers when I got them. I'm sure there is someone in the oncologist's office who could take the time to sit with you, even over the phone, and go over these items. It's important that you be as clear about everything as possible. There are big decisions which will impact you and you sure are entitled to know everything there is to know. Hope this helps. Hugs, Ellen > > > > > I meant to say 3mm sorry. I dont see the grade on the pathology > report. When I asked the surgeon on my follow-up he didnt see it on > there either. I do however see something listed as this: Nuclear > Pleomorphism:3 > > Also he said I was Estrogen Receptor Positive, which I dont see that > on the report either. What I see is estrogen receptors: to be > performed and reported later. > > So I dont know if I have a full report or not a current one or > something. > > Definantion of Comedo:(But I dont know if this refers to the grade) > > Comedo type DCIS. Comedo looks and acts differently from other in > situ subtypes. Comedo tends to be slightly more aggressive than other > forms of DCIS. These cells are closer to invasive breast cancer cells > in how they look and behave than other forms of DCIS. Comedo cells > look different under the microscope because the center of the duct is > plugged with dead cellular debris, known as necrosis. Necrosis seen > under a microscope in DCIS usually means that the cells are fast- > growing and are generally more aggressive or high-grade. Also, > microcalcifications (small abnormal calcium deposits) are frequently > seen in the areas of necrosis. > > Hugs > char > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Char - Sounds like a Grade 3 which means the cells are " poorly differentiated " in nature and could be invasive. I'm cetainly no Dr. - but would highly recommend that you call either your oncologist or maybe his/her assistant and " go over " your path reports with them. What you are looking for is Stage, Grade, margin, lymph node involvement, est. recep pos or neg and Her2nu pos or neg. There may be something else, but I can't think of it right now. At least the markers I gave you above will give you a better understanding of your " make-up " and help you make decisions. I've said this before, I know, but I used Dr. Love's Breast Cancer book to help me decifer all the numbers when I got them. I'm sure there is someone in the oncologist's office who could take the time to sit with you, even over the phone, and go over these items. It's important that you be as clear about everything as possible. There are big decisions which will impact you and you sure are entitled to know everything there is to know. Hope this helps. Hugs, Ellen > > > > > I meant to say 3mm sorry. I dont see the grade on the pathology > report. When I asked the surgeon on my follow-up he didnt see it on > there either. I do however see something listed as this: Nuclear > Pleomorphism:3 > > Also he said I was Estrogen Receptor Positive, which I dont see that > on the report either. What I see is estrogen receptors: to be > performed and reported later. > > So I dont know if I have a full report or not a current one or > something. > > Definantion of Comedo:(But I dont know if this refers to the grade) > > Comedo type DCIS. Comedo looks and acts differently from other in > situ subtypes. Comedo tends to be slightly more aggressive than other > forms of DCIS. These cells are closer to invasive breast cancer cells > in how they look and behave than other forms of DCIS. Comedo cells > look different under the microscope because the center of the duct is > plugged with dead cellular debris, known as necrosis. Necrosis seen > under a microscope in DCIS usually means that the cells are fast- > growing and are generally more aggressive or high-grade. Also, > microcalcifications (small abnormal calcium deposits) are frequently > seen in the areas of necrosis. > > Hugs > char > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 >Ellen, They did tell me I was at Stage 0,which is definantly a good thing. I am still waiting for an oncologists to call for my appointment. I called the office and they are sending another part of the report I didnt get. Lymth nodes I wont know about until they go back in for more removeal. I dont know the grade, I am estrogen recep.positive at 75%. Wow have alot of estrogen flowing through me at 45years old...LOL Thanks char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 >Ellen, They did tell me I was at Stage 0,which is definantly a good thing. I am still waiting for an oncologists to call for my appointment. I called the office and they are sending another part of the report I didnt get. Lymth nodes I wont know about until they go back in for more removeal. I dont know the grade, I am estrogen recep.positive at 75%. Wow have alot of estrogen flowing through me at 45years old...LOL Thanks char Quote Link to comment Share on other sites More sharing options...
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