Re: Another TX question-cy

[Guest guest]

Cy, I was surprised when did the pred pulse 3x week. My neph told me

they could only be done every 6-8 weeks. I am just wondering about my sons tx.

I know he doesn't expect his protein numbers to diminish the way we would all

like it to. was on imuran for 3 months as well.

Cy Webb wrote:It sounds like you guys had a

nightmare of a summer. I know we had a run of

blind terror - and yours sounds much worse. never had to do albumin

transfusions. There's a kid on NephKids with FSGS who has gone that route -

if you have questions, you might want to check on that list.

was first treated with cyclosporine, which did a great job getting

the urine protein under control - almost immediately. went from a

protein:creatinine ratio of 6.0 to about 2.5 in less than a week.

Unfortunately, the cyclo didn't touch other aspects of the disease so we

went the pred pulse route (three times/week for two weeks) followed by 60 mg

EOD and 1000 mg Cellcept (mycophenylate mofitil) twice a day. It took about

2 months after the start of the pred pulses for the urine protein to hit

bottom - where it's stayed for almost two years. Presently, he's off pred

and still on cellcept. Urine protein has been creeping back up lately - but

nothing like it used to be. Other treatment includes 20 mg lisinopril & 10

mg norvasc, both twice a day. The docs anticipate more pred pulses when

the proteinuria gets out of control.

Cy

Re: Another TX question

> >

> >

> > >

> > >

> > > Cy,

> > >

> > > Thanks for the reply but you lost me with acronyms MPGN and FSGS.

> > >

> > > Phil

> > >

> > >

> > > > >

> > > > > I've read that the TX kidney can become scarred with IgAN. Does

> > > the

> > > > > disease in the TX kidney follow the same course as the biological

> > > > > kidney? i.e. if you lost kidney function due to the rapidily

> > > > > progressive form of IgAN will the TX kidney die just as quickly?

> > > > >

> > > > > Phil

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > To edit your settings for the group, go to our Yahoo Group

> > > > > home page:

> > > > > http://groups.yahoo.com/group/iga-nephropathy/

> > > > >

> > > > > To unsubcribe via email,

> > > > > iga-nephropathy-unsubscribe

> > > > > Visit our companion website at www.igan.ca. The site is entirely

> > > supported

> > > > by donations. If you would like to help, go to:

> > > > > http://www.igan.ca/id62.htm

> > > > >

> > > > > Thank you

> > > > >

> > > > >

> > > > >