Re: Bobbi-Severe Brachy question

[Guest guest]

Thanks Janie, That is encouraging that you saw 10% correction with

band 1. After 4.5 weeks Nate has gone from 95% to 92%. Sometimes I

look at his head and feel like it is getting better and then other

times I am discouraged by how flat it still seems. I know it has

only been 5 weeks but I always wonder if 1 band will be enough. I

can't wait to see 's pics. Best of luck on your home stretch.

Bobbi H.

7 months tort/brachy/plagio

DOC band 5/8/06

Phx

> Bobbi

>

> I went to CT today and asked what 's Cepalic Index was

before treatment, and it was 102.2. He was wider from ear to ear

than he was long. He had a rectangle shaped head. After Doc Band

#1, his cepalic Index was 92.9. I have seen much improvement w/ Doc

band #2, and he graduates on June 27 after 7 mos. of wearing time.

I will post before/after pics after the 27th.

>

> Janie

> Doc Band 7 mos.

>

> Bobbi <heybobbisox@...> wrote:

> 's band looks great in the pics. He has beautiful blue

eyes.

> If you find out his cephalic index before and after DOC band #1

and

> then maybe at the end of #2 that would be great. Just curious how

> he has done by the numbers. Of course my concern is that Nate

will

> need another band and we are paying out of pocket. Oh well, it

> really doesn't matter in the grand scheme. Lots of luck to you at

> the end of the month.

>

> Bobbi H.

> 7 months tor/brachy/plagio

> DOC Band 5/8/06

> PHX

>

>

> >

> > 's pics are on the 7th page of the J's. It's under

P.

> These were taken the third day he got his band on Nov. 24, 2005.

My

> husband painted the band and applied stickers to it.

> >

> > Janie

> >

> > " Janie P. " <rjjpencek@> wrote:

> > Bobbi,

> >

> > I looked at 's pics ( he sure is cute), but I will have

to

> look back at 's pics they took at CT, But I think my sons

head

> was higher and flatter that your son was.

> > I will post bfore/after pics when they do the exit pics at the

> end of June.

> >

> > Janie

> >

> > Bobbi <heybobbisox@> wrote:

> > I just read your second post about having his second band

coming

> to

> > an end soon. My son got his DOC band 2 days before he turned 6

> > months. His pics are at the end of the N album ( H) if

you

> > want to take a look to compare to you son. Thanks again for

your

> > help.

> >

> > Bobbi H.

> > 7 months/tort/brachy/plagio

> > DOC band 5/8/06

> > PHX

> >

> >

> > >

> > > Janie, I read your post and my son also has severe brachy.

His

> > > cephalic index is 95%. I was just wondering where you are in

> the

> > > process and what results you have seen so far if you wouldn't

> mind

> > > sharing. He has been in his DOC band 4 weeks. I noticed at

one

> > > week the bottom portion where his occipital bone is has popped

> out

> > > across the back. But since then not too much, excpet maybe

that

> > > popped out a little more. The top back is still very flat. I

> > know

> > > brachy is very hard to correct. I was just wondering about

your

> > > experience. Thanks in advance.

> > >

> > > Bobbi H.

> > > tort/brachy/plagio

> > > DOC band 5/8/06

> > > PHX

> > >

> > >

> > >

> > > > My son had severe brachy that his pedi said at 3 mos and at

6

> > mos

> > > would round out when he sits up. I didn't believe her and

> wanted

> > a

> > > second opinion from a neurologist and a neursurgeon. Boyh

> agreed

> > > that he needed to have a band. I went to the Plagio clinic at

> > > Children's Medical Center in Dallas. The did some measurement

> and

> > > said that he was in range for a band. They wrote the RX and

we

> > went

> > > to cranial tech to get a band. The whole process took about a

> > month.

> > > > Try to go to a neurosurgeon or a hospital that has a

plagio

> > > clinic.

> > > >

> > > > I hope this helps.

> > > >

> > > > Janie

> > > >

> > > > carolyn fox <cdfox@> wrote:

> > > > You're story breaks my heart. I'm very sorry to hear that

> > > you've had to

> > > > live with plagio. Please continue to post here so others my

> > > benefit from

> > > > your plagio. Best.

> > > >

> > > > Carolyn in NYC

> > > > Mum to Malcolm - 7 mos - Doc band 3/27, Doc band #2 6/9

> > > >

> > > > Re: Will it really go away on its own?

> > > >

> > > > Hi,

> > > >

> > > > I'm an adult with plagio. The docs told my parents the same

> > thing

> > > > when I was an infant. They also said that if it didnt go

away

> on

> > > > it's own, we could pursue surgery (if that's what I chose to

> > do),

> > > > when I was done growing.

> > > >

> > > > I've lived with the plagio my whole life. It is not

something

> I

> > > > chose for myself, and it is not something I've enjoyed

dealing

> > > with.

> > > > I too wish the docs would have been more proactive with my

> > > > situation. I grew up with the same hairstyle in hopes to

hide

> > the

> > > > shape of my head from the world. Are you kidding me? You

can't

> > > make

> > > > the shape of your head any less conspicuous. I grew very

tired

> > of

> > > > hiding behind my hair. With that mentality, I also hid away

> from

> > > > other activities in life that I would enjoy.

> > > >

> > > > I say, this is your child, this is your life, this is your

> > > decision.

> > > > Do not allow the doctors to dictate what you know in your

> heart

> > is

> > > > best for your child. For whatever reason, they are being

> > > > unaccommodating with your needs. Keep persisting, and be

firm.

> > > They

> > > > must comply once they see how strongly you feel about it.

> > > Eventually

> > > > you will find a doc who is compassionate and understanding

of

> > your

> > > > situation. Dont give up until you feel you have exhausted

all

> > your

> > > > resources.

> > > >

> > > > Best wishes,

> > > >

> > > >

> > > >

> > > > >

> > > > > Hi, i'm new to this whole group thing so if someone

already

> > > asked

> > > > the

> > > > > question, please let me know where I can find the answer.

> > > > >

> > > > > My daughter is four months old has moderate

> plagio.

> > I

> > > > have

> > > > > been taking her to the doctor regarding her head shape

since

> > she

> > > > was 6

> > > > > weeks old and they keep telling me that it will go away.

> Well

> > it

> > > > > hasen't and it doesn't seem to be getting any better. I

keep

> > > going

> > > > to

> > > > > different doctors to see if they will give me a different

> > > response

> > > > and

> > > > > they all have the same answer. " Lots of tummy time,

> > reposintion,

> > > > and

> > > > > it will all go away after she starts to sit up on her

own " .

> > The

> > > > whole

> > > > > tummy time thing isn't working because she can only stand

it

> > for

> > > > about

> > > > > 15 min at a time before she starts to cry uncontrolably. I

> > feel

> > > > like I

> > > > > am the only one concerned about my babys head shape. One

> > doctor

> > > > even

> > > > > had the nerve to tell me that if it didn't go away it was

> okay

> > > > because

> > > > > I had a girl and her hair could cover it up. What a jerk!

> Oh,

> > > and

> > > > to

> > > > > top it all off I go to a miltary hospital.... not the best

> > > service

> > > > in

> > > > > the world. What can I do to make them take action??

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > For more plagio info