A different helmet mid treatment... kinda long

[Guest guest]

Hi all,

Eli has been in his STARband for 3.5 months now. I have had MANY

problems with the place he got this from, usually with the

receptionist/scheduler when there is an issue with the helmet. Two

weeks ago I had to cancel because Eli had strep, RSV and an ear

infection. She said she'd call me back when she got him rescheduled.

WELL, she didn't, and 2 days later they called asking me why we

weren't there for his appointment. I never knew there was one, and

if she would have thought, he wasn't done being sick yet!

Yesterday was the last straw... Eli has been getting a very nasty

red mark on his forehead where he is bossing -- it's been a chronic

problem for him. Yesterday at therapy his PT said she didn't think

he was getting circulation to that part of his head, and said we

should be seen ASAP to get it adjusted. But of course, they weren't

available to do it yesterday or today-- the ortho that does them was

out of town yesterday and booked full today.

As it is, we run at least 3 and sometimes 4 times a week for

appointments between Eli and Jax, so I tell the woman which days I

can be there and the times. The dimwit tells me times that are at

least 2 hours PAST the times I said I could be there.. hello, I work

TOO!! Sheesh. So, they said 2 weeks from yesterday was the best they

could. Good gawl. By this time I'm ready to pull my hair out, or

hers.

So, I decided that's it. I'm done. I called the neuro's office that

referred him for the helmet and said he is either getting out of the

helmet (though given what Jax went through, I'm not too happy about

that)or, we go somewhere else. The neuro called me back, then called

the ortho and then the ortho called me. Of course now that the neuro

got on him about it, they are willing to see him whenever I can get

there.

However, I'm fed up. I want to change to a different helmet now.

Eli has to be casted for a new helmet anyway, which they've been

saying for a month or more now -- but he is going in on the 17th of

this month for an MRI and a botox injection, so I thought maybe

switch to a hanger...

Am I nuts for changing mid-treatment? I swear I have at least a

dozen gray hairs from the people w/the STARband.

UGH --

Kim

mom to 3 Kaela 11-- no issues

Jax- 2.5 tort resolved, brachial plexus injury resolved, wore

CranioCap then had Craniotomy @ 17 months to correct plagio.

Eli -- 8 months, tort (been in pt 4 months, tort being stubborn)

STARband since Dec 05

[Guest guest]

Hi Kim

You are absolutely right to go elswhere if you are getting bad tx

for Eli. Good for you to put your foot down. )

Let us know how it goes

Sandy Willow's mom

Torticollis resolved

Cranio Germany Grad

>

> Hi all,

> Eli has been in his STARband for 3.5 months now. I have had MANY

> problems with the place he got this from, usually with the

> receptionist/scheduler when there is an issue with the helmet. Two

> weeks ago I had to cancel because Eli had strep, RSV and an ear

> infection. She said she'd call me back when she got him

rescheduled.

> WELL, she didn't, and 2 days later they called asking me why we

> weren't there for his appointment. I never knew there was one, and

> if she would have thought, he wasn't done being sick yet!

>

> Yesterday was the last straw... Eli has been getting a very nasty

> red mark on his forehead where he is bossing -- it's been a

chronic

> problem for him. Yesterday at therapy his PT said she didn't think

> he was getting circulation to that part of his head, and said we

> should be seen ASAP to get it adjusted. But of course, they

weren't

> available to do it yesterday or today-- the ortho that does them

was

> out of town yesterday and booked full today.

>

> As it is, we run at least 3 and sometimes 4 times a week for

> appointments between Eli and Jax, so I tell the woman which days I

> can be there and the times. The dimwit tells me times that are at

> least 2 hours PAST the times I said I could be there.. hello, I

work

> TOO!! Sheesh. So, they said 2 weeks from yesterday was the best

they

> could. Good gawl. By this time I'm ready to pull my hair out, or

> hers.

>

> So, I decided that's it. I'm done. I called the neuro's office

that

> referred him for the helmet and said he is either getting out of

the

> helmet (though given what Jax went through, I'm not too happy

about

> that)or, we go somewhere else. The neuro called me back, then

called

> the ortho and then the ortho called me. Of course now that the

neuro

> got on him about it, they are willing to see him whenever I can

get

> there.

> However, I'm fed up. I want to change to a different helmet now.

> Eli has to be casted for a new helmet anyway, which they've been

> saying for a month or more now -- but he is going in on the 17th

of

> this month for an MRI and a botox injection, so I thought maybe

> switch to a hanger...

>

> Am I nuts for changing mid-treatment? I swear I have at least a

> dozen gray hairs from the people w/the STARband.

>

> UGH --

>

> Kim

> mom to 3 Kaela 11-- no issues

> Jax- 2.5 tort resolved, brachial plexus injury resolved, wore

> CranioCap then had Craniotomy @ 17 months to correct plagio.

> Eli -- 8 months, tort (been in pt 4 months, tort being stubborn)

> STARband since Dec 05

>

[Guest guest]

Hi Kim,

Well first of all I want to say that my daughter is in a STARband as

well. Personally I think it sounds like you should definatly go some

other place. I think for STARband users ( since our ortho's do more

than bands ) that it is really important that we feel comfortable

with our orthos, also that our baby is important to them as well as

all of their other clients. I think if you feel as though your and

Eli's needs are not being met and if you feel like you are just

getting brushed off then go to some other place. It shouldn't take a

call from the neuro to get your ortho involved with Eli's treatment.

Go with your gut instinct and what you think Eli would benefit from

the most.

Isabelle 8 mos STARband 1/31/06

>

> Hi all,

> Eli has been in his STARband for 3.5 months now. I have had MANY

> problems with the place he got this from, usually with the

> receptionist/scheduler when there is an issue with the helmet. Two

> weeks ago I had to cancel because Eli had strep, RSV and an ear

> infection. She said she'd call me back when she got him

rescheduled.

> WELL, she didn't, and 2 days later they called asking me why we

> weren't there for his appointment. I never knew there was one, and

> if she would have thought, he wasn't done being sick yet!

>

> Yesterday was the last straw... Eli has been getting a very nasty

> red mark on his forehead where he is bossing -- it's been a

chronic

> problem for him. Yesterday at therapy his PT said she didn't think

> he was getting circulation to that part of his head, and said we

> should be seen ASAP to get it adjusted. But of course, they

weren't

> available to do it yesterday or today-- the ortho that does them

was

> out of town yesterday and booked full today.

>

> As it is, we run at least 3 and sometimes 4 times a week for

> appointments between Eli and Jax, so I tell the woman which days I

> can be there and the times. The dimwit tells me times that are at

> least 2 hours PAST the times I said I could be there.. hello, I

work

> TOO!! Sheesh. So, they said 2 weeks from yesterday was the best

they

> could. Good gawl. By this time I'm ready to pull my hair out, or

> hers.

>

> So, I decided that's it. I'm done. I called the neuro's office

that

> referred him for the helmet and said he is either getting out of

the

> helmet (though given what Jax went through, I'm not too happy

about

> that)or, we go somewhere else. The neuro called me back, then

called

> the ortho and then the ortho called me. Of course now that the

neuro

> got on him about it, they are willing to see him whenever I can

get

> there.

> However, I'm fed up. I want to change to a different helmet now.

> Eli has to be casted for a new helmet anyway, which they've been

> saying for a month or more now -- but he is going in on the 17th

of

> this month for an MRI and a botox injection, so I thought maybe

> switch to a hanger...

>

> Am I nuts for changing mid-treatment? I swear I have at least a

> dozen gray hairs from the people w/the STARband.

>

> UGH --

>

> Kim

> mom to 3 Kaela 11-- no issues

> Jax- 2.5 tort resolved, brachial plexus injury resolved, wore

> CranioCap then had Craniotomy @ 17 months to correct plagio.

> Eli -- 8 months, tort (been in pt 4 months, tort being stubborn)

> STARband since Dec 05

>

[Guest guest]

hi Kim,

You are not crazy. I would switch too. talk to the neuor, just

tell him you can't deal with these people anymore. good luck and

keep us psoted.

na, DOC Grad X2, Feb 04, tort resolved

Kiersten, DOC Grad, 4/4/06, tort resolved

www.thefilyaws.com/plagio/plagio.html

>

> Hi all,

> Eli has been in his STARband for 3.5 months now. I have had MANY

> problems with the place he got this from, usually with the

> receptionist/scheduler when there is an issue with the helmet. Two

> weeks ago I had to cancel because Eli had strep, RSV and an ear

> infection. She said she'd call me back when she got him

rescheduled.

> WELL, she didn't, and 2 days later they called asking me why we

> weren't there for his appointment. I never knew there was one, and

> if she would have thought, he wasn't done being sick yet!

>

> Yesterday was the last straw... Eli has been getting a very nasty

> red mark on his forehead where he is bossing -- it's been a

chronic

> problem for him. Yesterday at therapy his PT said she didn't think

> he was getting circulation to that part of his head, and said we

> should be seen ASAP to get it adjusted. But of course, they

weren't

> available to do it yesterday or today-- the ortho that does them

was

> out of town yesterday and booked full today.

>

> As it is, we run at least 3 and sometimes 4 times a week for

> appointments between Eli and Jax, so I tell the woman which days I

> can be there and the times. The dimwit tells me times that are at

> least 2 hours PAST the times I said I could be there.. hello, I

work

> TOO!! Sheesh. So, they said 2 weeks from yesterday was the best

they

> could. Good gawl. By this time I'm ready to pull my hair out, or

> hers.

>

> So, I decided that's it. I'm done. I called the neuro's office

that

> referred him for the helmet and said he is either getting out of

the

> helmet (though given what Jax went through, I'm not too happy

about

> that)or, we go somewhere else. The neuro called me back, then

called

> the ortho and then the ortho called me. Of course now that the

neuro

> got on him about it, they are willing to see him whenever I can

get

> there.

> However, I'm fed up. I want to change to a different helmet now.

> Eli has to be casted for a new helmet anyway, which they've been

> saying for a month or more now -- but he is going in on the 17th

of

> this month for an MRI and a botox injection, so I thought maybe

> switch to a hanger...

>

> Am I nuts for changing mid-treatment? I swear I have at least a

> dozen gray hairs from the people w/the STARband.

>

> UGH --

>

> Kim

> mom to 3 Kaela 11-- no issues

> Jax- 2.5 tort resolved, brachial plexus injury resolved, wore

> CranioCap then had Craniotomy @ 17 months to correct plagio.

> Eli -- 8 months, tort (been in pt 4 months, tort being stubborn)

> STARband since Dec 05

>

[Guest guest]

I don't blame you for wanting to switch. The scheduler sounds like

an idiot. And you've got to be an idiot to hire an idiot soooo,

they all sound like idiots. Hopefully Hanger will be better or

these people stragten up.

Haylee

mom to andre doc band grad

>

> Hi all,

> Eli has been in his STARband for 3.5 months now. I have had MANY

> problems with the place he got this from, usually with the

> receptionist/scheduler when there is an issue with the helmet. Two

> weeks ago I had to cancel because Eli had strep, RSV and an ear

> infection. She said she'd call me back when she got him

rescheduled.

> WELL, she didn't, and 2 days later they called asking me why we

> weren't there for his appointment. I never knew there was one, and

> if she would have thought, he wasn't done being sick yet!

>

> Yesterday was the last straw... Eli has been getting a very nasty

> red mark on his forehead where he is bossing -- it's been a

chronic

> problem for him. Yesterday at therapy his PT said she didn't think

> he was getting circulation to that part of his head, and said we

> should be seen ASAP to get it adjusted. But of course, they

weren't

> available to do it yesterday or today-- the ortho that does them

was

> out of town yesterday and booked full today.

>

> As it is, we run at least 3 and sometimes 4 times a week for

> appointments between Eli and Jax, so I tell the woman which days I

> can be there and the times. The dimwit tells me times that are at

> least 2 hours PAST the times I said I could be there.. hello, I

work

> TOO!! Sheesh. So, they said 2 weeks from yesterday was the best

they

> could. Good gawl. By this time I'm ready to pull my hair out, or

> hers.

>

> So, I decided that's it. I'm done. I called the neuro's office

that

> referred him for the helmet and said he is either getting out of

the

> helmet (though given what Jax went through, I'm not too happy

about

> that)or, we go somewhere else. The neuro called me back, then

called

> the ortho and then the ortho called me. Of course now that the

neuro

> got on him about it, they are willing to see him whenever I can

get

> there.

> However, I'm fed up. I want to change to a different helmet now.

> Eli has to be casted for a new helmet anyway, which they've been

> saying for a month or more now -- but he is going in on the 17th

of

> this month for an MRI and a botox injection, so I thought maybe

> switch to a hanger...

>

> Am I nuts for changing mid-treatment? I swear I have at least a

> dozen gray hairs from the people w/the STARband.

>

> UGH --

>

> Kim

> mom to 3 Kaela 11-- no issues

> Jax- 2.5 tort resolved, brachial plexus injury resolved, wore

> CranioCap then had Craniotomy @ 17 months to correct plagio.

> Eli -- 8 months, tort (been in pt 4 months, tort being stubborn)

> STARband since Dec 05

>