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  • 2 weeks later...
  • 2 years later...

That's pretty cool. And it will also teach her the value of money and

how to handle it responsibly.

Kylie has always been good with money. We started giving her an allowance when she turned 5. We give one dollar for every year old she is. She is to buy all her 'treats'. When she started going to the roller rink and such, she had to pay. She has saved her money and bought things like a game boy, video games for her nintendo, new etnies (65.00 tennies), etc......now that she has more money, she is giving more to the church and thinking of things to do for others. She is a good kid with a big heart.

Zanna

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Hi, . Yep, the tacos were good. A sorry substitute for turkey and fixins,

but good nonetheless. :o) I do know of 2 people who have PM and both got their

Disability on their first go round. However, one is in his 60's and was a

labourer, so that's a given and the other one is in his 40's but his is so much

worse than mine. He's actually on death's door and he's had it for about 5

years. The idiot of a Rheumy I was seeing locally said that my pain was indeed

caused by fibromyalgia and myofascial pain syndrome, but I doubted him. Man,

will I ever feel stupid if this specialist in Montreal agrees with him! Oops!!

Regardless of what's causing the pain, the pain is very real and I want some

relief, if that's possible! And as for my disability case, you add FM and MPS

to

the PM and SS.....well, you've got that much more added to the mix and more of a

reason to approve me. We'll see. As for the Minocyclin, I took that for

several

years for my acne. Funny you should mention that, because that was the first

thing I thought of when hearing about the AP. Perhaps I should mention it to

the

Dr. for my acne and reap the benefits of it otherwise, as well. Thanks for your

advice and encouragement. Hope you're recovering from turkey day. :o)

Dawn

gide672@... wrote:

> Hiya Dawn,

> Enjoy your tacos yesterday? Our dinner was excellent and overabundant!

> I don't see why that letter wouldn't get you your disability. Have you

> been able to find other Canadians with PM or DM who have successfully gotten

> disability? There must be some around, somewhere.

> Here's a tip for your acne: minocycline antibiotic is used for acne for

> all ages by dermatologists. I forget whether you've said you've ever used a

> tetracycline antibiotic for acne treatment or not, or whether there's any

> other reason you couldn't use it. It works. Who knows? If you could take it

> for your acne, it just might have some other beneficial side effects:)

> Until all tests are in, there is a chance fibromyalgia or myofascial pain

> syndrome could be exacerbating your pain. It often seems to go along with

> myositis and rheumtatic diseases. Don't feel bad if that's the case. It sure

> doesn't mean it isn't real and very debilitating! It's so hard to tell

> sometimes. I wish you didn't have to take so much pain medication and hope

> one day you'll be much more pain free! Oddly enough, I actually had much more

> pain more often when I was taking the Celexa- supposedly that should not be

> the case, but I do have my questions! If you ever read the phamaceutical

> insert that comes with the drug, you will find listed musculoskeletal pain

> and I think weakness as one of the possible side effects of taking Celexa, as

> well as most of the other SSRIs. Love,

>

>

>

>

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Oooops......you're right. May I remind you that I've lived in Canada

now for 10 years?? Guess my memory failed me for once (HA!)

Dawn :oP

mrsxanadu@... wrote:

> In a message dated 11/29/02 8:50:16 AM Pacific Standard Time,

> dawn73@... writes:

>

>

>> as Thanksgiving was always the 3rd Thurs. in Nov

>

> I think it is the 4th Thurs. in November ; )

> Z

>

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  • 4 weeks later...

No, He didn't. At times I've felt like He has, but I know in my heart that He

hasn't. I intend to go back to my church the first of the year. There are so

many good people there that have never stopped praying for me and that care a

great deal about me. I also care about them, so I look forward to being a part

of that again (if my health allows me to).

Dawn

gide672@... wrote:

> Hi Dawn,

> You've got better reason than I for skipping church. I've found, though,

> that when I do go, I always need a nap in the middle of the day, or around

> noon, then that kind of ruins the day for anything like a family outing, or

> whatever else might be happening. But, that's a pitiful excuse to God. My

> kids really are at home in the church we go to and are members. My husband is

> comfortable with it, and has been going every Sunday with daughter. I,

> however, have not felt nutured or " fed " within our church- pastor is a very

> nice man, but I don't agree with him on many things. That's just one issue.

> When you feel better , one day, you'll start going again. Our pastor is

> retiring in July, so I'm hoping winds of change for the better might be

> heading toward our church and I'll rustle up the energy to go again. PS- I

> was " born again " way back when I was around 12-13 yrs old. In all those

> years, I have certainly strayed, but God never left :) J.

>

>

>

>

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What's a cigalert???

Traffic jam.

When I first moved out here from Wisconsin, I heard that on the radio and asked my hubby-then boyfriend- what that meant (I thought it had to do with cigarette's-LOL). He told me to just imagine that a herd of cows was blocking the road and the traffic was at a standstill. Funny guy huh???? Wisconsin is not ONLY cows and farming. Although not much else there it not the ONLY thing!!!

Zanna

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  • 2 weeks later...

Thanks Melita. I ended up paying $75 for a private room for 2 nights, as I

was taking an oral fleet and living on the comode chair/bathroom. That's

such a personal thing, I don't mind paying for the private room. Then I was

moved into a 3 bed ward where I stayed with a woman who was in her mid-80's

and didn't know a thing. Poor soul. I prayed for her regularly. Apparently

she's been like this for quite some time and her husband took care of her

24/7, however, he had passed away suddenly a week ago. She talked non-stop,

but to nobody in particular and couldn't do a thing for herself. She was a

nice Christian woman though (spoke much about Jesus) and I actually enjoyed

being in with her kinda over-seeing things. It wasn't as bad as I thought it

would be being in the ward, I guess.

Dawn

Melita wrote:

> Hey Dawn,

> I hope that you take extra special care of yourself and GET THEE TO

> THE HOSPITAL. I know that you don't want to be in a ward...but would

> you rather be in so much pain. Take care of yourself. Your family

> will understand.

>

> Big Huge Hugs

> Melita

>

>

>

>

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Thank goodness for that! You're still in our prayers, Dawn. Annette

-----Original Message-----From: Dawn Sent: Wednesday, January 01, 2003 7:58 AMTo: OurMyositis Subject: DawnAquick word to let all concerned know that Dawn is home and doing muchbetter. Happy New Year to everyone!

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Wow! I can't believe you got your package so fast! I am so glad.

Yes, I got mine on the 27th of Dec. I am slowly munching on the chocolate covered almonds. They are so yummmmy!!!

I love the mug! I don't drink coffee but will enjoy some hot cocoa in it in front of a fire maybe later tonight.

Thank you again!!

Lots of love,

Zanna

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Hi Dawn,

Welcome back, you sure had a bad year and I hope this year is THE ONE!

Sorry, can't talk now, but just wanted to say hello and hope you feel

better, particularly that lip,

Lesley

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: DAWN - depression

>Date: Wed, 01 Jan 2003 10:07:38 -0400

>

>Hi, Vicki. I'm so sorry to hear you're still suffering from depression.

>Perhaps you should think of taking something regularly for it again. It

>wouldn't hurt, that's for sure. Especially with this disease.

>

>Dawn

>

>anzavic@... wrote:

>

> > Hi Dawn....

> >

> > Not being able to do things or at least trying them only to suffer more

> > pain is getting to me big time. My shoulders feel like they are falling

> > out of there sockets.. they really hurt in the evening time so I use

> > both the heating pad and the rice bag to put on them. My neck, which

> > has OA in it.. is really giving me fits. It makes my whole back side

> > hurt. I've been taking my Clonazepam every night now and that is the

> > one thing that has helped me get to sleep without the neck pain.

> >

> > I've had bouts of depression before and have taken something for it for

> > about a month.. then I was fine. This time, it's lasting much longer

> > and really has me down in the dump land. I'm by no means a quiter

> > mainly because it would mean the disease won. But, there are many times

> > I just lay here and say " Oh crap, just do what you want to do and get it

> > over with " ... lol I know, I know... bad attitude.

> >

> > The pain in my hands is also terrible. My gosh, it just never ends....

> > When I was talking to Penny the other day (that's the gal who also has

> > PM with JO-1) she made a comment that I sounded so chipper and I didn't

> > even sound like I was sick or had this disease. HA! I told her that I

> > still get very sick at times and it does get old. She's the lucky one

> > though, she didn't get this until she was in her 70's....

> >

> > Take care,

> > Vicki

> >

> >

> >

> >

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Quit worrying about your parcel not being very big. As my friend Robin always says, 'friends don't keep track of deeds'. So stop it already!! I was glad to do it and would do it for anyone of my friends. Trust me, send me chocolate, and we are friends for life!! Send me butterscotch fudge and-well, no telling what I will do-HA!

Zanna

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Yes, it must be. The part of my calf that was affected is still a

blackish/purplish colour. Not very attractive but much better looking than

it was.

Dawn

TeddiFromOK@... wrote:

> Hi Dawn

>

> So glad you are home and doing better.

> Take it easy and don't overdo.

>

> I still have 2 white circles on my leg where

> I had cellulitis over 3 yrs ago. They don't

> hurt or anything.....just there. I know of

> several people with myositis that have

> had cellulitis so it must be another of

> those things we are prone to.

>

>

> Teddi

> mailto:teddifromok@...

>

>

>

>

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You can make chocolate fudge really easy. I will look up the recipe. You don't need a thermometor for that one either. My mom makes me butterscotch fudge. I tried but it never comes out like hers so I look forward to hers every year.

I am glad you are using your stuff and that Marlee is keeping check on you!

I am still in severe pain. I am thinking about going tonight. I want to sleep. I am always afraid that it is something serious and it will be bad news that I can't take or that the doctor's will say 'it's all in your head, go home'. I hate going to the hosp, ER, or doc.

Zanna

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LOL. Well, since I've never attempted to make fudge, I think it best we

leave it at the store-bought stuff. Ha! I love chocolate fudge and

have often wanted to make it, but I've heard you need a candy

thermometer to make sure it's the right temp. before pouring it into

your pan, and I don't have one. Others have told me that's nonsense, so

I don't know. Anyway, glad you enjoyed your chocolate and mug. I've

used the Proactive for 3 nights now and every morning Marlee quizzes me

to make sure I'm using it. Ever since she saw the commercial on TV,

she's insisted that I try it, so once you sent me some, she was very

excited! She thinks I'm beautiful but doesn't like the pimples so

much. And she's only 6!! Hopefully genetics are kinder to her than

they were to me.

Dawn

mrsxanadu@... wrote:

> Quit worrying about your parcel not being very big. As my friend

> Robin always says, 'friends don't keep track of deeds'. So stop it

> already!! I was glad to do it and would do it for anyone of my

> friends. Trust me, send me chocolate, and we are friends for life!!

> Send me butterscotch fudge and-well, no telling what I will do-HA!

>

> Zanna

>

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Dawn,

Making fudge is so easy and you don't need a candy thermometer! The secret is to drop a few drops of the fudge in cold water after it starts to boil. If it makes a soft ball it is ready. At the stage where it is forming a ball, you have to test about every minute to get it just right, but then it is off with the heat and beat until it is almost set up.

Vickie

LOL. Well, since I've never attempted to make fudge, I think it best we

leave it at the store-bought stuff. Ha! I love chocolate fudge and

have often wanted to make it, but I've heard you need a candy

thermometer to make sure it's the right temp. before pouring it into

your pan, and I don't have one. Others have told me that's nonsense, so

I don't know. Anyway, glad you enjoyed your chocolate and mug. I've

used the Proactive for 3 nights now and every morning Marlee quizzes me

to make sure I'm using it. Ever since she saw the commercial on TV,

she's insisted that I try it, so once you sent me some, she was very

excited! She thinks I'm beautiful but doesn't like the pimples so

much. And she's only 6!! Hopefully genetics are kinder to her than

they were to me.

Dawn

Check out my website: http//:www.vickieenkoff.com

Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/

New Years Resolution Group: http://groups.yahoo.com/group/creativechoices/promote  

CreativeChaos group: http://groups.yahoo.com/group/creativechaos/promote  

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Hi Zanna! I'm sorry you are still feeling so bad. I hate going to the ER too. I had an IVIg treatment today and my face broke out with redness and a little swelling. I called to ask them if I needed to come in and they said only if my throat felt like it was closing or I had trouble breathing. So I took some Benedryl and went to bed! The swelling and redness are gone now and I am so relieved I didn't have to go back! I just hope I don't have anymore flare-ups with the redness and swelling.

Hope you get better soon! Vickie

You can make chocolate fudge really easy. I will look up the recipe. You don't need a thermometor for that one either. My mom makes me butterscotch fudge. I tried but it never comes out like hers so I look forward to hers every year.

I am glad you are using your stuff and that Marlee is keeping check on you!

I am still in severe pain. I am thinking about going tonight. I want to sleep. I am always afraid that it is something serious and it will be bad news that I can't take or that the doctor's will say 'it's all in your head, go home'. I hate going to the hosp, ER, or doc.

Zanna

Check out my website: http//:www.vickieenkoff.com

Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/

New Years Resolution Group: http://groups.yahoo.com/group/creativechoices/promote  

CreativeChaos group: http://groups.yahoo.com/group/creativechaos/promote  

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Sure, send me the recipe for your fudge, please. I have one here that's

supposedly very easy and uses a can of marshmallow fluff. Is this the

same as yours? You should definately go see about your back and not

worry about what the Dr's. have to tell you. You need some relief and

the fact that you have a fever doesn't sound right at all to me. Stop

being so stubborn, you hear me!??

Dawn

mrsxanadu@... wrote:

> You can make chocolate fudge really easy. I will look up the recipe.

> You don't need a thermometor for that one either. My mom makes me

> butterscotch fudge. I tried but it never comes out like hers so I

> look forward to hers every year.

>

> I am glad you are using your stuff and that Marlee is keeping check on

> you!

>

> I am still in severe pain. I am thinking about going tonight. I want

> to sleep. I am always afraid that it is something serious and it will

> be bad news that I can't take or that the doctor's will say 'it's all

> in your head, go home'. I hate going to the hosp, ER, or doc.

>

> Zanna

>

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Yep, I really am. LOL. Actually, my Dr. was supposed to increase it to

60 mg., but she forgot about it. I'm feeling much better mentally-wise,

so I'm sure it was just the sickness that was making me so upset.

Dawn

mrsxanadu@... wrote:

> Wow, I am only on 20 mg of celexa/day. You must've been really messed

> up!! LOLROTF :oP

>

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Yes, I've read those tips before but it still sounds complicated to me.

I have an easy, supposedly fool-proof recipe here, so maybe I'll try

that. Although, I really don't need any fudge in the house. :o)

Dawn

chaosposte@... wrote:

> Dawn,

>

> Making fudge is so easy and you don't need a candy thermometer! The

> secret is to drop a few drops of the fudge in cold water after it

> starts to boil. If it makes a soft ball it is ready. At the stage

> where it is forming a ball, you have to test about every minute to get

> it just right, but then it is off with the heat and beat until it is

> almost set up.

>

> Vickie

>

> In a message dated 1/3/2003 4:33:31 PM Pacific Standard Time,

> dawn73@... writes:

>

>

>> LOL. Well, since I've never attempted to make fudge, I think it

>> best we

>> leave it at the store-bought stuff. Ha! I love chocolate fudge and

>>

>> have often wanted to make it, but I've heard you need a candy

>> thermometer to make sure it's the right temp. before pouring it into

>>

>> your pan, and I don't have one. Others have told me that's

>> nonsense, so

>> I don't know. Anyway, glad you enjoyed your chocolate and mug.

>> I've

>> used the Proactive for 3 nights now and every morning Marlee quizzes

>> me

>> to make sure I'm using it. Ever since she saw the commercial on TV,

>>

>> she's insisted that I try it, so once you sent me some, she was very

>>

>> excited! She thinks I'm beautiful but doesn't like the pimples so

>> much. And she's only 6!! Hopefully genetics are kinder to her than

>>

>> they were to me.

>>

>> Dawn

>

>

>

>

> Check out my website: http//:www.vickieenkoff.com

> Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/

>

> New Years Resolution Group:

> http://groups.yahoo.com/group/creativechoices/promote

> CreativeChaos group:

> http://groups.yahoo.com/group/creativechaos/promote

>

>

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I will admit that the visit was interesting, however, I don't think I'll

go back. Much of what he told me was just common sense. The proper

diet, for instance. I haven't checked out the Omega Zone diet yet, but

eating lots of fresh veggies and fruits and staying away from junk is

just good sense. I've also heard about the aspartame side-affects

before, as well. I think I'll continue taking the flaxseed, but

otherwise, I'm just going to stick with my meds. Yes, I know they're

not good for us in respect to all the side-affects they can have on a

person, but we also know that they're a necessity for our well-being

with this disease. My dilemma is this. My friend from church is such

an AVID believer of this stuff and this Dr. (they're personal friends as

well) and she's so positive this is the answer to all my health

problems, that now I don't know how to break the news to her that it's

just not for me. I know that she'll be hurt. I know it will cause ill

feelings and I've even considered to keep going just for her sake, but I

know that I can't do that. Also, he would like to see me a couple times

a week for my 'treatments' and it's an hour's drive, so I can't afford

the gas either. Oh well, I know I'll have to be brave and just level

with her, but I'm such a wimp!!

Dawn

mrsxanadu@... wrote:

> That doctor sounded interesting. I wouldn't mind just seeing what

> would happen like you did. I do hope that it makes you feel better.

> I used to be a sceptic of things like that but if it helps and you

> feel better, more power to it!!

>

> I hope you had fun with the girls. I am sure Emma liked having

> another one her age around.

>

> Zanna

>

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Dawn,

Just tell her that at this time, it isn't feasible for you to go to that guy. I know it's hard. I had a friend that insisted that the only reason I was sick was that I drank diet coke and if I only quit doing that, I would be cured. Her mom claims she cured her breast cancer lump with no surgery, chemo, or radiation. Just be changing her diet. When my other friend's daughter was dx with an inoperable brain tumor (on her brain stem) and was given only 8 months to live (she died after 2 at the age of 7), I had asked this friend to pray for her and her response was 'have her talk to my mom, she can cure her.....'. I didn't call her for a long time after that. It bothers me. I don't see anything wrong with exploring other options but I am all for modern medicine. It has come a long way and cured a million things. Anyway, that is how I feel....

Take care and if you lose her as a friend over a disagreement this minor, she really wasn't a friend to begin with..... : )

Zanna

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Well, I thought you all may be wondering, as I am so seldom quiet. :oP

I was wondering what it would take. HAHAHA!!! It actually worries me when you are quiet, I think you are sick. LOL.

Dawn

PS.......I don't want to hear any big sighs of relief, either!!

Ahhhhhhhhh. Oh, sorry, did you hear that??? LOL.

Luv ya!

Zanna

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