Introducing myself and my son

[Guest guest]

HI! My name is Amy and I would like to join this group. I have

four children and have dealt wtih Plagio before but I am dealing

with it again with my youngest son.

My son, Nolan, is now three and a half and had moderate plagio (I

thought 7mm but just found paperwork and it was 10mm). Through

aggressive physical therapy (torticollis) and repositioning we were

able to decrease the plagio greatly. his head is great now with

very minimal flattening-I think I am the only one who sees it.

I now have another son, Brennan, who is 10 weeks old. At birth I

noticed that his head was a TINY bit flat on the left and that his

ears were not equal. He was 10lbs at birth and I figured he must

have been positioned odd. Well, over the last few weeks I have

noticed the left side of his forehead bulge a bit and the back

flatten more. Our ped wants us to wait until 4 months before

referring to our early intervention for PT-he has a touch of tort as

well. In the meantime I have been doing repositioning. I am not

seeing a difference-actually it is still getting worse. Do I wait

or call for a referral to EI now? He also had a ridge at the suture

on his left side. Is this normal with plagio or should I worry

about cranio?

Even though I have dealt with this before I am forgetting I guess

and getting very worried. Any information would be great. I have

taken a few pics but don't have them to be uploaded-that should be

in a few days. I would love opinions. THanks for any feedback!

Amy

[Guest guest]

Personally I wouldn't wait on a referral to PT for the tort. The

earlier you get started on it the better. Having said that, it's

recommended that x-rays are done before starting PT, just to rule out

any bony abnormalities. If you are concerned about the ridge, they

could also do x-rays to make sure his sutures are still open.

Connor (PPO helmet grad 8/04, tort resolved, mild craniofacia microsomia)

>

> HI! My name is Amy and I would like to join this group. I have

> four children and have dealt wtih Plagio before but I am dealing

> with it again with my youngest son.

>

> My son, Nolan, is now three and a half and had moderate plagio (I

> thought 7mm but just found paperwork and it was 10mm). Through

> aggressive physical therapy (torticollis) and repositioning we were

> able to decrease the plagio greatly. his head is great now with

> very minimal flattening-I think I am the only one who sees it.

>

> I now have another son, Brennan, who is 10 weeks old. At birth I

> noticed that his head was a TINY bit flat on the left and that his

> ears were not equal. He was 10lbs at birth and I figured he must

> have been positioned odd. Well, over the last few weeks I have

> noticed the left side of his forehead bulge a bit and the back

> flatten more. Our ped wants us to wait until 4 months before

> referring to our early intervention for PT-he has a touch of tort as

> well. In the meantime I have been doing repositioning. I am not

> seeing a difference-actually it is still getting worse. Do I wait

> or call for a referral to EI now? He also had a ridge at the suture

> on his left side. Is this normal with plagio or should I worry

> about cranio?

>

> Even though I have dealt with this before I am forgetting I guess

> and getting very worried. Any information would be great. I have

> taken a few pics but don't have them to be uploaded-that should be

> in a few days. I would love opinions. THanks for any feedback!

>

> Amy

>

[Guest guest]

Hi Amy,

Personally, I would seek pt/ot services for your son Brennan asap. I would

also try repo for 2-3 months, but then look into helmet therapy if I saw

little to no improvements with his head.

My son Malcolm was born breech with plagio/tort/hypotonia. We started pt

when he was 2 months old and the Doc Band #1 when he was 4 months old. I've

never regretted either treatment as it's made a world of difference. The

remaining plagio (ears and right cheek are still a tad offset) is negligible

and not noticeable to untrained eyes.

Plagio/tort/hypotonia due to uterine constraints (like Malcolm and Brennan's

cases) are more intractable and seldom correctable without medical

treatment. By all means, try repo, but don't kill yourself. Take photos to

see if his head improves and then turn the photos upside down (I noticed

Malcolm's parallelogram-shaped head more this way). Call EI for pt/ot

services as well as privately if you have insurance coverage. Be diligent

about neck exercises and any others. Get second and third opinions.

You really can't leave your son's plagio or tort treatment to a

pediatrician. A pediatrician is not expert in plagio or tort and often ill

equipped to deal with it. You really have to be advocate with your son with

this and take a pro-active stand.

Good luck!

Carolyn in NYC

Mum to Malcolm - 10 mos - Doc Band #2 6/9

Introducing myself and my son

HI! My name is Amy and I would like to join this group. I have

four children and have dealt wtih Plagio before but I am dealing

with it again with my youngest son.

My son, Nolan, is now three and a half and had moderate plagio (I

thought 7mm but just found paperwork and it was 10mm). Through

aggressive physical therapy (torticollis) and repositioning we were

able to decrease the plagio greatly. his head is great now with

very minimal flattening-I think I am the only one who sees it.

I now have another son, Brennan, who is 10 weeks old. At birth I

noticed that his head was a TINY bit flat on the left and that his

ears were not equal. He was 10lbs at birth and I figured he must

have been positioned odd. Well, over the last few weeks I have

noticed the left side of his forehead bulge a bit and the back

flatten more. Our ped wants us to wait until 4 months before

referring to our early intervention for PT-he has a touch of tort as

well. In the meantime I have been doing repositioning. I am not

seeing a difference-actually it is still getting worse. Do I wait

or call for a referral to EI now? He also had a ridge at the suture

on his left side. Is this normal with plagio or should I worry

about cranio?

Even though I have dealt with this before I am forgetting I guess

and getting very worried. Any information would be great. I have

taken a few pics but don't have them to be uploaded-that should be

in a few days. I would love opinions. THanks for any feedback!

Amy

For more plagio info

[Guest guest]

Amy--If you are wanting to utilize EI--it would be best to call now--

it can take a month to get in and get all the paperwork/visits down

before PT is started. We ended up doing PT through our insurance

because it was going to take so long to get in with EI

Mommy to , 4 months

Plagio and Tort

Due to be casted 9/20/06

>

> HI! My name is Amy and I would like to join this group. I have

> four children and have dealt wtih Plagio before but I am dealing

> with it again with my youngest son.

>

> My son, Nolan, is now three and a half and had moderate plagio (I

> thought 7mm but just found paperwork and it was 10mm). Through

> aggressive physical therapy (torticollis) and repositioning we were

> able to decrease the plagio greatly. his head is great now with

> very minimal flattening-I think I am the only one who sees it.

>

> I now have another son, Brennan, who is 10 weeks old. At birth I

> noticed that his head was a TINY bit flat on the left and that his

> ears were not equal. He was 10lbs at birth and I figured he must

> have been positioned odd. Well, over the last few weeks I have

> noticed the left side of his forehead bulge a bit and the back

> flatten more. Our ped wants us to wait until 4 months before

> referring to our early intervention for PT-he has a touch of tort

as

> well. In the meantime I have been doing repositioning. I am not

> seeing a difference-actually it is still getting worse. Do I wait

> or call for a referral to EI now? He also had a ridge at the

suture

> on his left side. Is this normal with plagio or should I worry

> about cranio?

>

> Even though I have dealt with this before I am forgetting I guess

> and getting very worried. Any information would be great. I have

> taken a few pics but don't have them to be uploaded-that should be

> in a few days. I would love opinions. THanks for any feedback!

>

> Amy

>

[Guest guest]

Welcome to our group. Jump in any

time. My son will be 18 in a few months but was not diagnosed until he

was 15; had been diagnosed with ADHD at age 5 and then got the Aspergers

diagnosis at 15. I am just amazed at how young some kids are now when

they get a diagnosis. I think public awareness has improved which has

helped with earlier diagnosis.

CIndy

From: [mailto: ] On Behalf Of Wertz

Sent: Tuesday, February 26, 2008

8:33 PM

Subject: ( )

Introducing myself and my son

Hi, so glad I found this group.

My son's name is , he's 10 years old and he's our first child out

of three.

He was diagnosed with Asperger's 2 years ago. Yes he was 8 before we

finally had him diagnosed. Perhaps a little bit of denial on our part. That,

and we chose to homeschool so we didn't deal with the typical issues that come

with assimilating into the classroom routine.

We're so proud of . He is learning piano very quickly. He even

has perfect pitch. For those of you non-musical types, that means he can hear a

note and tell you what note it is. Or ask him to sing a specific note and

he'll sing it right on pitch.

For Christmas he was in a play at church and did remarkably well.

He really seemed to concentrate better than I've ever seen him concentrate.

He's also doing very well in his studies and tests well on his

achievement tests.

Well anyway I could go on and on about how proud we are of him. Yes we

deal with issues too. He has his tantrums but it really seems they have been

getting better lately. We really wish we could get a handle on the table

manners, they are just awful. The hand wringing and the echolalya are issues too.

And of course he has a hard time making friends, but he tries his best and

doesn't shy away from social situations. Well I guess these are all issues that

many of you are dealing with as well.

I have read some of your posts in the last day or two and I know

already this is a good group.

Just to add my .02 to the McCarthy discussion going on, my son

had a bunch of immunizations at one time and was sick for several days. This

very well may have been the cause. But this is the situation God has given us

so we're dealing with it as best we can.

Anyway, glad to be here.

--

Wertz

Garner, NC

[Guest guest]

Thanks for the welcome all. Had no idea I would be one of very few dads on here. Let's just say I kind of take the lead between me and my wife when it comes to studying how to help . I was the one who started researching when I realized there must be a reason why he was not like the other kids. My former boss had a son with Aspergers but he never said what he had, just told us anecdotal things about his son, such as he talked in the third person when he was younger, etc. When I started researching and thought must have Aspergers, I called him and it was then that he told me the whole story. So I persuaded my wife that we should take him to the psychologist for the dx.

Oh one more fascinating thing about that I didn't mention before, he has an affinity for dates. He can remember the exact date that we did something he enjoyed, such as going to see a movie or going to Disney World. Also he comes in handy often when we need to know what day of the week a date is. Such as, " what day of the week is June 30th? " " Oh! That would be a....Monday! " Is this a common talent among kids with Aspergers?

KW

On 2/27/08, sherry burford <superchick0770@...> wrote:

Hi , and again welcome. I liked you response to the jenny thing as well, My son who just turned 10 was only dx last yr, so don't feel bad on that count,he is my youngest of three and my only son. And sounds wonderful, oh by the way i used to live in Burlington, NC it is not to far from you but we live in Pa now. maybe one day we will get back home.Sherry

Wertz <wertzee@...> wrote:

Hi, so glad I found this group.

My son's name is , he's 10 years old and he's our first child out of three.

He was diagnosed with Asperger's 2 years ago. Yes he was 8 before we finally had him diagnosed. Perhaps a little bit of denial on our part. That, and we chose to homeschool so we didn't deal with the typical issues that come with assimilating into the classroom routine.

We're so proud of . He is learning piano very quickly. He even has perfect pitch. For those of you non-musical types, that means he can hear a note and tell you what note it is. Or ask him to sing a specific note and he'll sing it right on pitch.

For Christmas he was in a play at church and did remarkably well. He really seemed to concentrate better than I've ever seen him concentrate.

He's also doing very well in his studies and tests well on his achievement tests.

Well anyway I could go on and on about how proud we are of him. Yes we deal with issues too. He has his tantrums but it really seems they have been getting better lately. We really wish we could get a handle on the table manners, they are just awful. The hand wringing and the echolalya are issues too. And of course he has a hard time making friends, but he tries his best and doesn't shy away from social situations. Well I guess these are all issues that many of you are dealing with as well.

I have read some of your posts in the last day or two and I know already this is a good group.

Just to add my .02 to the McCarthy discussion going on, my son had a bunch of immunizations at one time and was sick for several days. This very well may have been the cause. But this is the situation God has given us so we're dealing with it as best we can.

Anyway, glad to be here.-- WertzGarner, NC

Looking for last minute shopping deals? Find them fast with Search.

-- WertzGarner, NC

[Guest guest]

Hi ,

I missed your intro post and went back to read it. has quite

a few talents, great!!

I'm a single mom, my AS son is now 19. We're in NC too. I didn't

get him evaluated until 8th grade! I always felt he had some

autistic traits, but " not enough " to fit criteria for a diagnosis.

Well apparently wrong on that, when evaluators (TEACCH) took in all

his history over the years.

My son has always done well in school so far as grades,

gifted/advanced classes. He does have an amazing memory (amazing to

me, considering my own) and when he was younger I wondered if it was

photographic or something. It's not.

I know of one adult person with Aspergers who has an amazing memory

for directions. I guess he studies maps or maybe learns as he goes

(he does love to ride around). But, per others, he can tell you

driving directions to anywhere.

's in his first year at community college, doing well. He's

planning to go into medical research for diseases. He's got the

mind for it!

-- In , " Wertz " <wertzee@...>

wrote:

>

> Thanks for the welcome all. Had no idea I would be one of very few

dads on

> here. Let's just say I kind of take the lead between me and my

wife when it

> comes to studying how to help . I was the one who started

[Guest guest]

, my husband and I have gone back and forth between the researching. I'm primarily the one who handles the issues though. I've handled school issues forever and am the one who takes my son to counseling. I have nudged my husband to take a more active role as my son got older. I figured he needed more of that male model rather than always getting the female take on things. So far, so good! Your son sounds like a gem! I find their "talents" very interesting. When my son was just a baby, he developed a fascination with numbers. He loved to watch the microwave count down. I think he learned to count backwards before he could count forward. He also developed a love of the Weather Channel very early. Even when the news was on, he'd' cry when his favorite weatherman went off the air. Now his special talent is

movies. He can tell you when a movie was made, who appears in it, the producer, soundtrack info, what the rating is and how many stars it got. Then he does something like the Six Degrees of Separation between movies or one of the stars in it. Now he's thinking he wants to be a movie critic and go to college for film studies. UGH! I just want him to go for something that will give him a living! Who knows? Maybe he'll be the next Scorsese or the next Coen brother? Mims Wertz <wertzee@...> wrote: Thanks for the welcome all. Had no idea I would be one of very few dads on here. Let's just say I kind of take the lead between me and my wife when it comes to studying how to help . I was the one who started researching when I realized there must be a reason why he was not like the other kids. My former boss had a son with Aspergers but he never said what he had, just told us anecdotal things about his son, such as he talked in the third person when he was younger, etc. When I started researching and thought must have Aspergers, I called him and it was then that he told me the whole story. So I persuaded my wife that we should take him to the psychologist for the dx. Oh one more fascinating thing about that I didn't mention before, he has an affinity for dates. He can remember the exact date that we did something he enjoyed,

such as going to see a movie or going to Disney World. Also he comes in handy often when we need to know what day of the week a date is. Such as, " what day of the week is June 30th?" "Oh! That would be a....Monday!" Is this a common talent among kids with Aspergers? KW On 2/27/08, sherry burford <superchick0770 > wrote: Hi , and again welcome. I liked you response to the jenny thing as well, My son who just turned 10 was only dx last yr, so don't feel bad on that count,he is my youngest of three and my only son. And sounds wonderful, oh by the way i used to live in Burlington, NC it is not to far from you but we live in Pa now. maybe one

day we will get back home.Sherry Wertz <wertzeegmail> wrote: Hi, so glad I found this group. My son's name is , he's 10 years old and he's our first child out of three. He was diagnosed with Asperger's 2 years ago. Yes he was 8 before we finally had him diagnosed. Perhaps a little bit of denial on our part. That, and we chose to homeschool so we didn't deal with the typical issues that come with assimilating into the classroom routine. We're so proud of . He is learning piano very quickly. He even has perfect pitch. For those of you non-musical types, that means he can hear a note and tell you what note it is. Or ask him to sing a specific note and he'll sing it right on pitch. For Christmas he was in a play at church and did remarkably well. He really seemed to concentrate better than I've ever seen him concentrate. He's also doing very well in his studies and tests well on his achievement tests. Well anyway I could go on and on about how proud we are of him. Yes we deal with issues too. He has his tantrums but it really seems they have been getting better lately. We really wish we could get a handle on the table manners, they are just awful. The hand wringing and the echolalya are issues too. And of course he has a hard time making friends, but he tries his best and doesn't shy away from social situations. Well I guess these are all issues that many of you are dealing with as well. I have read some of your posts in the last day or two and I know already this is a good group. Just to add my .02

to the McCarthy discussion going on, my son had a bunch of immunizations at one time and was sick for several days. This very well may have been the cause. But this is the situation God has given us so we're dealing with it as best we can. Anyway, glad to be here.-- WertzGarner, NC Looking for last minute shopping deals? Find them fast with Search. -- WertzGarner, NC

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

- one thing about these lists is it's so nice to know there are others out there like us! My son started the same way with his movie interest. He devours the movie credits. Occasionally, a comedy will run an amusing clip at the end of the credits. At first, I thought this is what my son was waiting for. I figured he'd seen it once and figured there might be one at the end of every film, but I was wrong. He reads every bit of the credits. also loves the DVDs because of the special features. IMDB is also a favorite. He's got me hooked on it now, too. Mims Wertz <wertzee@...> wrote: Ah yes, movies. isn't interested in as many items as your son, but he loves to see who played what parts and then see what other movies they have been in. The IMDB is his favorite website I think. 's favorite part of the movie is the credits, I think mainly because of his love of music, but also because he likes to see the cast. When we get DVDs he goes straight to the scene selections and runs the credits. However when we go to the movies, we had to put our foot down about staying to the end of the credits. He didn't like it at first but it gives him something to look forward to when we rent the DVD. KW On 2/28/08, Mims Batts <mimsnj > wrote: , my husband and I have gone back and forth between the researching. I'm primarily the one who handles the issues though. I've handled school issues forever and am the one who takes my son to counseling. I have nudged my husband to take a more active role as my son got older. I figured he needed more of that male model rather than always getting the female take on things. So far, so good! Your son sounds like a gem! I find their "talents" very interesting. When my son was just a baby, he developed a fascination with numbers. He loved to watch the microwave count down. I think he learned to count backwards before he could count

forward. He also developed a love of the Weather Channel very early. Even when the news was on, he'd' cry when his favorite weatherman went off the air. Now his special talent is movies. He can tell you when a movie was made, who appears in it, the producer, soundtrack info, what the rating is and how many stars it got. Then he does something like the Six Degrees of Separation between movies or one of the stars in it. Now he's thinking he wants to be a movie critic and go to college for film studies. UGH! I just want him to go for something that will give him a living! Who knows? Maybe he'll be the next Scorsese or the next Coen brother? Mims Wertz <wertzeegmail> wrote: Thanks for the welcome all. Had no idea I would be one of very few dads on here. Let's just say I kind of take the lead between me and my wife when it comes to studying how to help . I was the one who started researching when I realized there must be a reason why he was not like the other kids. My former boss had a son with Aspergers but he never said what he had, just told us anecdotal things about his son, such as he talked in the third person when he was younger, etc. When I started researching and thought must have Aspergers, I called him and it was then that he told me the whole story. So I persuaded my wife that we should take him to the psychologist for the dx. Oh one more fascinating thing about that I didn't mention before, he has an affinity for dates. He can remember the exact date that we did something he enjoyed, such as going

to see a movie or going to Disney World. Also he comes in handy often when we need to know what day of the week a date is. Such as, " what day of the week is June 30th?" "Oh! That would be a....Monday!" Is this a common talent among kids with Aspergers? KW On 2/27/08, sherry burford <superchick0770 > wrote: Hi , and again welcome. I liked you response to the jenny thing as well, My son who just turned 10 was only dx last yr, so don't feel bad on that count,he is my youngest of three and my only son. And sounds wonderful, oh by the way i used to live in Burlington, NC it is not to far from you but we live in Pa now. maybe one

day we will get back home.Sherry Wertz <wertzeegmail> wrote: Hi, so glad I found this group. My son's name is , he's 10 years old and he's our first child out of three. He was diagnosed with Asperger's 2 years ago. Yes he was 8 before we finally had him diagnosed. Perhaps a little bit of denial on our part. That, and we chose to homeschool so we didn't deal with the typical issues that come with assimilating into the classroom routine. We're so proud of . He is learning piano very quickly. He even has perfect pitch. For those of you non-musical types, that means he can hear a note and tell you what note it is. Or ask him to sing a specific note and he'll sing it right on pitch. For Christmas he was in a play at church and did remarkably well. He really seemed to concentrate better than I've ever seen him concentrate. He's also doing very well in his studies and tests well on his achievement tests. Well anyway I could go on and on about how proud we are of him. Yes we deal with issues too. He has his tantrums but it really seems they have been getting better lately. We really wish we could get a handle on the table manners, they are just awful. The hand wringing and the echolalya are issues too. And of course he has a hard time making friends, but he tries his best and doesn't shy away from social situations. Well I guess these are all issues that many of you are dealing with as well. I have read some of your posts in the last day or two and I know already this is a good group. Just to add my .02

to the McCarthy discussion going on, my son had a bunch of immunizations at one time and was sick for several days. This very well may have been the cause. But this is the situation God has given us so we're dealing with it as best we can. Anyway, glad to be here.-- WertzGarner, NC Looking for last minute shopping deals? Find them fast with Search. -- WertzGarner, NC Be a better friend, newshound, and know-it-all with Mobile. Try it now. -- WertzGarner, NC

Be a better friend, newshound, and know-it-all with Mobile. Try it now.