update-RE appt today, depressed

March 11, 2003

oh good--you said you did

I think this will be the best for YOU

who cares what that Dr. says!!!! keep us posted

March 11, 2003

Haley -

You wrote:

> So here I am--living proof of why you don't let your regular RE or

OB do this surgery.

Good for you, standing up to the RE! I had a similar experience

yesterday with an RE, and reading what you just wrote reaffirms my

belief that I will forego any " treatment " (other than disgnostic

tests) from him, and seek out an A-list doctor (Isaacson in Boston),

even if it means paying for it myself (which it looks like I will

have to do).

As a general indication of how ignorant this RE was, when I asked him

whom he would recommend to perform any surgery I might need he

actually said, " I would refer you back to your original doctor. "

Yes, ladies, the one who caused my AS in the first place (and refused

to recognize my symptoms as AS)! And that's not the half of it, but

it is far too depressing for words to continue with this sad story -

his ignorance was actually breath-taking (and oh, so frustrating).

He was definitely a defensive doctor like you described yours to be,

especially when I became more agressive and it appeared I knew more

than he did about AS.

Good luck to you with an A-list!

Bethany

March 11, 2003

I know I'm pretty new to the group, but I truly am stunned at the ignorance to this issue amongst the medical community. How can doctors that perform D & C's (and other surgeries) every day not even be aware of the potential of this problem to occur any time they touch your uterus!?! I can't believe I had to tell my ob what AS was and when I told her that my symptoms matched AS exactly she still refused to admit it was even a possibility. I can't believe I have to be ridiculed for insisting that I at least be tested to rule out AS when they can't even think of anything else that would be causing my symptoms!!! It really is unfuriating!

Cz

March 11, 2003

,

The ob that caused my AS had to look at his college medical book (20 year old

copy!) to explain it to me. Then

proceeded to tell me " don't worry about it " . He told me he had never seen it. I

found a new obgyn and was diagnosed

within 8 weeks from my first appt. I don't think doctors are quick to admit they

could have caused this.

I had a conversation with Dr. Isaacson on the A-list. I never had any infections

or abnormal bleeding after my D&C and

yet I had a mild case. He thinks that yes it was an aggessive D&C, but most

likely it is something I am more prone to.

He said in the future if need be he could perform the D&C so I have the best

possible odds of it not happening again.

I would find a more compassionate obgyn. If you can get to someone on the A-list

I'm sure they would give you the

name of a good gyn. (((((()))))). We've all been there. The waiting is

the hardest part. Once you know what you

are dealing with, you can face it and move on.

March 11, 2003

I guess I understand that they are defensive about having caused it, but I can't tell if they really don't know what it is or just don't want to believe it... It just seems like a bad day to be absent from medical school (my ob is relatively young) when they tell you that the surgery they're performing could potentially scar the patient for life if they aren't careful.

I'm glad you said that about Dr. Isaacson thinking that you are more prone to it. My ob really has been great about all the problems I've had (2 miscarriages for genetic reasons), I've just recently lost faith in her due to her ignorance on this subject. It seemed like I was reading a lot about the "buthcher ob's" that had caused AS, but it seems that if a particular doctor tends to be very aggressive with their D & C's they would cause AS in many patients. As my doctor has never had anyone have these complications wouldn't that indicate that I'm somehow different (more prone?) than most patients?

I'm also confused about what seems to cause AS, D & C or D & E, or both? My doctor performed D & E's (dialation and evacuation) which is the suction technique, not the scraping approach. She said that is what most people have, but they still call it D & C. Does anyone have any insight as to if we're all talking about the same thing or not?

I'm seeing Dr. Palter (A list doc) on thursday - so hopefully soon I will know exactly what I'm dealing with.

Thanks! Cz

March 11, 2003

I guess I understand that they are defensive about having caused it, but I can't tell if they really don't know what it is or just don't want to believe it... It just seems like a bad day to be absent from medical school (my ob is relatively young) when they tell you that the surgery they're performing could potentially scar the patient for life if they aren't careful.

I'm glad you said that about Dr. Isaacson thinking that you are more prone to it. My ob really has been great about all the problems I've had (2 miscarriages for genetic reasons), I've just recently lost faith in her due to her ignorance on this subject. It seemed like I was reading a lot about the "buthcher ob's" that had caused AS, but it seems that if a particular doctor tends to be very aggressive with their D & C's they would cause AS in many patients. As my doctor has never had anyone have these complications wouldn't that indicate that I'm somehow different (more prone?) than most patients?

I'm also confused about what seems to cause AS, D & C or D & E, or both? My doctor performed D & E's (dialation and evacuation) which is the suction technique, not the scraping approach. She said that is what most people have, but they still call it D & C. Does anyone have any insight as to if we're all talking about the same thing or not?

I'm seeing Dr. Palter (A list doc) on thursday - so hopefully soon I will know exactly what I'm dealing with.

Thanks! Cz

March 11, 2003

I guess I understand that they are defensive about having caused it, but I can't tell if they really don't know what it is or just don't want to believe it... It just seems like a bad day to be absent from medical school (my ob is relatively young) when they tell you that the surgery they're performing could potentially scar the patient for life if they aren't careful.

I'm glad you said that about Dr. Isaacson thinking that you are more prone to it. My ob really has been great about all the problems I've had (2 miscarriages for genetic reasons), I've just recently lost faith in her due to her ignorance on this subject. It seemed like I was reading a lot about the "buthcher ob's" that had caused AS, but it seems that if a particular doctor tends to be very aggressive with their D & C's they would cause AS in many patients. As my doctor has never had anyone have these complications wouldn't that indicate that I'm somehow different (more prone?) than most patients?

I'm also confused about what seems to cause AS, D & C or D & E, or both? My doctor performed D & E's (dialation and evacuation) which is the suction technique, not the scraping approach. She said that is what most people have, but they still call it D & C. Does anyone have any insight as to if we're all talking about the same thing or not?

I'm seeing Dr. Palter (A list doc) on thursday - so hopefully soon I will know exactly what I'm dealing with.

Thanks! Cz

March 11, 2003

,

I have had both D&C's and a D&E. They are not the same. I had no

problems with the D&E. That is where they use suction and the D&C

uses scraping of the uterine walls. It would be rare that you would

have AS if you haven't had any scraping done to your uterus although

it does happen. I hate to even say rare just because I get tired of

hearing that myself. Did you take any antibiotics after your D&E's?

AS can result from an infection following a procedure too although I

think the most common way is when there is scraping involved on a

recently pregnant uterus especially if there is retained placenta

because there is probably already infection present. I also have

trouble with the excuse that some people are more prone to scarring.

That may be but I think it is usually an overly aggressive D&C. I had

a D&C many years ago and there were no problems. The one OB said that

if I were so prone to scarring then it would have happened then. I am

glad that you were able to get an appointment for Thursday and hope

that you get some answers. Take care and good luck.

Roxie

March 11, 2003

Dear ,

I decided to reply as soon as I can because I was down similar road

and would not want you to go through the same experience. Do not let

anyone deceive you that everything is okay. Some Gyns don't even know

much about ashermans not to talk of a nurse practitioner. I had

history of miscarriages and it took about 5 losses for them to find

out something was wrong. During the earlier losses I was always told

everything is okay. Thank God I found this site and last year I saw

an A list dr-dr palter in ny and had surgery to remove the scarring

that halved my uterus. I am now 14wks and some days pregnant and by

the grace of God is looking forward to full term pregnancy and safe

delivery. There is also Dr Copperman in NYC and had surgery

with him.

In essence try to get an appt with an A list dr. With your symptoms,

it is possible you have some scarring blocking the blood from coming

out. Have you tried to get a HSG or Sonohistogram done? Concerning

the insurance it is important you do not use the word infertility.

You talk abt the pain that is killing you and also the recurrent

miscarriage. You may search the archives to read abt members

experience on how to deal with insr People. Praying that you get help

soon. Best wishes…

Gladys

March 11, 2003