a new, angry, frustrated person to the board

[Guest guest]

Hey everybody,

I noticed my daughter's head shape and ear misalignment by 1-2 months.

Pediatrician finally sent me to neurosurgeon at 4 months. He told me

to reposition and went back at 6 months with no improvement. At that

visit the neurosurgeon told me if she didn't wear a helmet, she would

get the same improvements in the long run. He also told me that

helmets/bands have nothing to do with repositioning the ears. She is

now 11 months. I took her to Cranial Technologies in Charlotte, NC

last week. Her cranial vault asymmetry was 25 and her skull base

asymmetry was 15! We are waiting for insurance response before

starting the casting. Anybody have any experience with those numbers

and a later age starting the band? I am sick at my stomach to have

listened to that neurosurgeon, but am starting to feel better now that

something is about to be done about it...even though it is MONTHS later

than it should be. I'd really appreciate any thoughts/experiences.

-Beth

[Guest guest]

Hi Beth,

I'm sorry that you weren't taken seriously in the beginning, that is

an all too common story around here, myself included. At her age

would I would try and move forward as quickly as possible. And DOCs

do help the ears!

Natasha

>

> Hey everybody,

>

> I noticed my daughter's head shape and ear misalignment by 1-2

months.

> Pediatrician finally sent me to neurosurgeon at 4 months. He told

me

> to reposition and went back at 6 months with no improvement. At

that

> visit the neurosurgeon told me if she didn't wear a helmet, she

would

> get the same improvements in the long run. He also told me that

> helmets/bands have nothing to do with repositioning the ears. She

is

> now 11 months. I took her to Cranial Technologies in Charlotte,

NC

> last week. Her cranial vault asymmetry was 25 and her skull base

> asymmetry was 15! We are waiting for insurance response before

> starting the casting. Anybody have any experience with those

numbers

> and a later age starting the band? I am sick at my stomach to

have

> listened to that neurosurgeon, but am starting to feel better now

that

> something is about to be done about it...even though it is MONTHS

later

> than it should be. I'd really appreciate any thoughts/experiences.

>

> -Beth

>