Re: To band or not - Looking for your experience

[Guest guest]

Hi Bobbi,

I would band. Only because I wouldn't want to second guess myself

later on down the road. I know I'd always " what if " myself. Your baby

is at a great age to recieve awesome correction. Good luck making your

decicion. Let us know what you decide.

>

> My son is 5 mos. and we went for our eval at CT. The PT said that

> his facial assym is not much at all. And his head is not " too

> bad " . His measurements were about 4 mm on all the face assym. and

> 10 mm on the head. She said not to only go by measurements because

> they are hard to get accurately.

>

> She said it was almost more brachy than plagio. She also said he

> was still young enough that I could try the repo for another 4 weeks

> and then make a decision. It was weird that she didn't really push

> the band on us. I don't think the repo will do anything, he is way

> to strong and active. I keep him off his back except sleep. The

> only thing that might help is that he just started rolling onto his

> side at night but it isn't consistent yet.

>

> He wasn't diagnosed with tort and plagio until 4 mos. and no one

> ever told me about repo until I started research. I don't think it

> will get worse now that I am aware, but I don't think it will get

> any better. I guess I want to know what the veterans would do.

> Would you band?

>

> I know it is a personal decision but I just thought I would ask. I

> know most of the pros and cons. Husband and I are just thinking it

> over for a couple weeks since she said it was early enough. She

> thought he would take about 8 weeks. Thanks in advance.

>

> Bobbi H.

> son to 5 months April 10

> Phoenix

>

[Guest guest]

If you don't choose to band yet and want to try to repo I'd really

make sure the torticollis is looked after. Tort can make repo so

hard.

Haylee

mom to andre doc band grad

>

> My son is 5 mos. and we went for our eval at CT. The PT said that

> his facial assym is not much at all. And his head is not " too

> bad " . His measurements were about 4 mm on all the face assym. and

> 10 mm on the head. She said not to only go by measurements

because

> they are hard to get accurately.

>

> She said it was almost more brachy than plagio. She also said he

> was still young enough that I could try the repo for another 4

weeks

> and then make a decision. It was weird that she didn't really

push

> the band on us. I don't think the repo will do anything, he is

way

> to strong and active. I keep him off his back except sleep. The

> only thing that might help is that he just started rolling onto

his

> side at night but it isn't consistent yet.

>

> He wasn't diagnosed with tort and plagio until 4 mos. and no one

> ever told me about repo until I started research. I don't think

it

> will get worse now that I am aware, but I don't think it will get

> any better. I guess I want to know what the veterans would do.

> Would you band?

>

> I know it is a personal decision but I just thought I would ask. I

> know most of the pros and cons. Husband and I are just thinking

it

> over for a couple weeks since she said it was early enough. She

> thought he would take about 8 weeks. Thanks in advance.

>

> Bobbi H.

> son to 5 months April 10

> Phoenix

>

[Guest guest]

Your son sounds like he's in the " gray zone " like my son...Max's was

12mm off on the head. I did band b/c we could afford it and I just

knew that I would probably NOT look back and say " now why did I band

him? " but I probably WOULD say " why didn't I? " Honestly, I think with

measurements like those it really comes down to cost...will insurance

pay or can you afford to pay for it. If the answer is yes, then I'd do it.

I would've said to definitely see how repo goes, but with Tort, it may

not help as much as you'd like. It's a tough decision...keep us

posted! Bye, (MaxDOCbanded 2/7)

>

> My son is 5 mos. and we went for our eval at CT. The PT said that

> his facial assym is not much at all. And his head is not " too

> bad " . His measurements were about 4 mm on all the face assym. and

> 10 mm on the head. She said not to only go by measurements because

> they are hard to get accurately.

>

> She said it was almost more brachy than plagio. She also said he

> was still young enough that I could try the repo for another 4 weeks

> and then make a decision. It was weird that she didn't really push

> the band on us. I don't think the repo will do anything, he is way

> to strong and active. I keep him off his back except sleep. The

> only thing that might help is that he just started rolling onto his

> side at night but it isn't consistent yet.

>

> He wasn't diagnosed with tort and plagio until 4 mos. and no one

> ever told me about repo until I started research. I don't think it

> will get worse now that I am aware, but I don't think it will get

> any better. I guess I want to know what the veterans would do.

> Would you band?

>

> I know it is a personal decision but I just thought I would ask. I

> know most of the pros and cons. Husband and I are just thinking it

> over for a couple weeks since she said it was early enough. She

> thought he would take about 8 weeks. Thanks in advance.

>

> Bobbi H.

> son to 5 months April 10

> Phoenix

>

[Guest guest]

,Thanks. How old was he when you banded him? Yes, we can

afford it so I think you are right. I will regret it if I don't. I

agree about repo. Plus he is getting so strong and active, I can't

really keep him in one position. I think my husband will agree with

some gentle pursuasion. So, you have been happy with your decision

now that you are in the middle of it? How long do you think he will

have it on? Thanks, Bobbi H. /PHX

Your son sounds like he's in the " gray zone " like my son...Max's was

> 12mm off on the head. I did band b/c we could afford it and I just

> knew that I would probably NOT look back and say " now why did I and

> him? " but I probably WOULD say " why didn't I? " Honestly, I think

with> measurements like those it really comes down to cost...will

insurance> pay or can you afford to pay for it. If the answer is

yes, then I'd do it.> I would've said to definitely see how repo

goes, but with Tort, it may> not help as much as you'd like. It's a

tough decision...keep us> posted! Bye, (MaxDOCbanded 2/7)

My son is 5 mos. and we went for our eval at CT. The PT said that

> > his facial assym is not much at all. And his head is not " too

> > bad " . His measurements were about 4 mm on all the face assym.

and > > 10 mm on the head. She said not to only go by measurements

because > > they are hard to get accurately.

> > > > She said it was almost more brachy than plagio. She also

said he > > was still young enough that I could try the repo for

another 4 weeks > > and then make a decision. It was weird that she

didn't really push > > the band on us. I don't think the repo will

do anything, he is way > > to strong and active. I keep him off his

back except sleep. The > > only thing that might help is that he

just started rolling onto his > > side at night but it isn't

consistent yet.> > > > He wasn't diagnosed with tort and plagio

until 4 mos. and no one > > ever told me about repo until I started

research. I don't think it > > will get worse now that I am aware,

but I don't think it will get > > any better. I guess I want to

know what the veterans would do. > > Would you band? > >

> > I know it is a personal decision but I just thought I would ask.

I > > know most of the pros and cons. Husband and I are just

thinking it > > over for a couple weeks since she said it was early

enough. She > > thought he would take about 8 weeks. Thanks in

advance.

> >

> > Bobbi H.

> > son to 5 months April 10

> > Phoenix

> >

>

[Guest guest]

Thanks Haylee, Yes, he is in PT for the tort and I am trying to get

lots of exercises in even though he doesn't like them. I guess that

is a very good point, that repo is even harder with tort.

Bobbi

son 5 mos.

Phoenix

> If you don't choose to band yet and want to try to repo I'd really

> make sure the torticollis is looked after. Tort can make repo so

> hard.

>

> Haylee

> mom to andre doc band grad

>

>

> >

> > My son is 5 mos. and we went for our eval at CT. The PT said

that

> > his facial assym is not much at all. And his head is not " too

> > bad " . His measurements were about 4 mm on all the face assym.

and

> > 10 mm on the head. She said not to only go by measurements

> because

> > they are hard to get accurately.

> >

> > She said it was almost more brachy than plagio. She also said

he

> > was still young enough that I could try the repo for another 4

> weeks

> > and then make a decision. It was weird that she didn't really

> push

> > the band on us. I don't think the repo will do anything, he is

> way

> > to strong and active. I keep him off his back except sleep. The

> > only thing that might help is that he just started rolling onto

> his

> > side at night but it isn't consistent yet.

> >

> > He wasn't diagnosed with tort and plagio until 4 mos. and no one

> > ever told me about repo until I started research. I don't think

> it

> > will get worse now that I am aware, but I don't think it will

get

> > any better. I guess I want to know what the veterans would do.

> > Would you band?

> >

> > I know it is a personal decision but I just thought I would ask.

I

> > know most of the pros and cons. Husband and I are just thinking

> it

> > over for a couple weeks since she said it was early enough. She

> > thought he would take about 8 weeks. Thanks in advance.

> >

> > Bobbi H.

> > son to 5 months April 10

> > Phoenix

> >

>

[Guest guest]

Hello Bobbi

Welcome to the group. I would, and did band. My daughter was 12 mm

off, but that is actually moderate already and not mild. at 1.0 you

are right there at the boarder between mild and moderate. You will

not be able to go back and change your mind, so that is what made me

decide for it. Basicly I'm a proactive kind of person.

Let us know how you decide, either way you will find tons of support

here.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

>

> My son is 5 mos. and we went for our eval at CT. The PT said that

> his facial assym is not much at all. And his head is not " too

> bad " . His measurements were about 4 mm on all the face assym. and

> 10 mm on the head. She said not to only go by measurements

because

> they are hard to get accurately.

>

> She said it was almost more brachy than plagio. She also said he

> was still young enough that I could try the repo for another 4

weeks

> and then make a decision. It was weird that she didn't really

push

> the band on us. I don't think the repo will do anything, he is

way

> to strong and active. I keep him off his back except sleep. The

> only thing that might help is that he just started rolling onto

his

> side at night but it isn't consistent yet.

>

> He wasn't diagnosed with tort and plagio until 4 mos. and no one

> ever told me about repo until I started research. I don't think

it

> will get worse now that I am aware, but I don't think it will get

> any better. I guess I want to know what the veterans would do.

> Would you band?

>

> I know it is a personal decision but I just thought I would ask. I

> know most of the pros and cons. Husband and I are just thinking

it

> over for a couple weeks since she said it was early enough. She

> thought he would take about 8 weeks. Thanks in advance.

>

> Bobbi H.

> son to 5 months April 10

> Phoenix

>

[Guest guest]

Bobbi,

Your son has similar measurements to my two girls. na started

at 11 mm cva and 9 mm ears while Kiersten started at 10 mm cva and 8

mm ears. So their ears were more involved and you could see it in

their faces (especially in hindsight). With na we banded at 4

1/2 months. However, with Kiersten we banded at 7 months. We had

to get her tort under control. If you really don't think the repo

is going to work or you just can't do it 24/7 due to whatever

constraint AND you are not happy with his head hsape then go for it

now. If you want to try everything possible to avoid the band then

repo for another 4 weeks. The AAP does recommend repo attempts

until 6 months. It's a really personal decision. 6 months

(probably 6 1/2-7 months when banded) is still a great time to start

treatment. I would start the insurance and approvals process now

cause that can take 4 weeks.

na, DOC Grad X2 Feb 04, Tort Resolved

Kiersten, DOC Grad 4/4/06, Tort Resolved

www.thefilyaws.com/plagio/plagio.html

>

> My son is 5 mos. and we went for our eval at CT. The PT said that

> his facial assym is not much at all. And his head is not " too

> bad " . His measurements were about 4 mm on all the face assym. and

> 10 mm on the head. She said not to only go by measurements

because

> they are hard to get accurately.

>

> She said it was almost more brachy than plagio. She also said he

> was still young enough that I could try the repo for another 4

weeks

> and then make a decision. It was weird that she didn't really

push

> the band on us. I don't think the repo will do anything, he is

way

> to strong and active. I keep him off his back except sleep. The

> only thing that might help is that he just started rolling onto

his

> side at night but it isn't consistent yet.

>

> He wasn't diagnosed with tort and plagio until 4 mos. and no one

> ever told me about repo until I started research. I don't think

it

> will get worse now that I am aware, but I don't think it will get

> any better. I guess I want to know what the veterans would do.

> Would you band?

>

> I know it is a personal decision but I just thought I would ask. I

> know most of the pros and cons. Husband and I are just thinking

it

> over for a couple weeks since she said it was early enough. She

> thought he would take about 8 weeks. Thanks in advance.

>

> Bobbi H.

> son to 5 months April 10

> Phoenix

>

[Guest guest]

Bobbie,

how about this analogy. If he had crooked teeth would you get him

braces? Well he has a crooked head and needs a band Same

concept just most folks don't know about it yet. About the same

price too. Thankfully it's shorter treatment time

na, DOC Grad X2 Feb 04, Tort Resolved

Kiersten, DOC Grad 4/4/06, Tort Resolved

www.thefilyaws.com/plagio/plagio.html

>

> ,Thanks. How old was he when you banded him? Yes, we can

> afford it so I think you are right. I will regret it if I don't.

I

> agree about repo. Plus he is getting so strong and active, I

can't

> really keep him in one position. I think my husband will agree

with

> some gentle pursuasion. So, you have been happy with your

decision

> now that you are in the middle of it? How long do you think he

will

> have it on? Thanks, Bobbi H. /PHX

>

>

>

> Your son sounds like he's in the " gray zone " like my son...Max's

was

> > 12mm off on the head. I did band b/c we could afford it and I

just

> > knew that I would probably NOT look back and say " now why did I

and

> > him? " but I probably WOULD say " why didn't I? " Honestly, I think

> with> measurements like those it really comes down to cost...will

> insurance> pay or can you afford to pay for it. If the answer is

> yes, then I'd do it.> I would've said to definitely see how repo

> goes, but with Tort, it may> not help as much as you'd like. It's

a

> tough decision...keep us> posted! Bye, (MaxDOCbanded 2/7)

>

>

>

> My son is 5 mos. and we went for our eval at CT. The PT said that

> > > his facial assym is not much at all. And his head is not " too

> > > bad " . His measurements were about 4 mm on all the face assym.

> and > > 10 mm on the head. She said not to only go by

measurements

> because > > they are hard to get accurately.

> > > > > She said it was almost more brachy than plagio. She also

> said he > > was still young enough that I could try the repo for

> another 4 weeks > > and then make a decision. It was weird that

she

> didn't really push > > the band on us. I don't think the repo

will

> do anything, he is way > > to strong and active. I keep him off

his

> back except sleep. The > > only thing that might help is that he

> just started rolling onto his > > side at night but it isn't

> consistent yet.> > > > He wasn't diagnosed with tort and plagio

> until 4 mos. and no one > > ever told me about repo until I

started

> research. I don't think it > > will get worse now that I am

aware,

> but I don't think it will get > > any better. I guess I want to

> know what the veterans would do. > > Would you band? > >

> > > I know it is a personal decision but I just thought I would

ask.

> I > > know most of the pros and cons. Husband and I are just

> thinking it > > over for a couple weeks since she said it was

early

> enough. She > > thought he would take about 8 weeks. Thanks in

> advance.

> > >

> > > Bobbi H.

> > > son to 5 months April 10

> > > Phoenix

> > >

> >

>

[Guest guest]

Bobbi-Max was 8 mo by the time we actually got the band. I am happy

with our decision. I was really worried b/c Max was a Colic/extremely

fussy infant and is a very willfull 10mo old(get's it from Daddy-HA!).

He's very particular about things and I was worried we would spend all

that money for him to not even WEAR it!! But I was very surprised on

how he just accepted it and didn't have ANY problems! Since he didn't

have any issues, I've been very strict about him wearing it 23hrs a

day and looks like he'll graduate in about 1mo(3mos total) YEAH!

I think when their measurements are mild/mod it makes the decision a

little harder b/c you think, " Do I really need to put him thru that? "

But, for myself, I knew that I would always notice it and wish I'd

done something when I could. Good luck! Keep us posted on what y'all

decide to do! Bye, (Max DOCbanded 2/7)

>

> ,Thanks. How old was he when you banded him? Yes, we can

> afford it so I think you are right. I will regret it if I don't. I

> agree about repo. Plus he is getting so strong and active, I can't

> really keep him in one position. I think my husband will agree with

> some gentle pursuasion. So, you have been happy with your decision

> now that you are in the middle of it? How long do you think he will

> have it on? Thanks, Bobbi H. /PHX

>

>

>

> Your son sounds like he's in the " gray zone " like my son...Max's was

> > 12mm off on the head. I did band b/c we could afford it and I just

> > knew that I would probably NOT look back and say " now why did I and

> > him? " but I probably WOULD say " why didn't I? " Honestly, I think

> with> measurements like those it really comes down to cost...will

> insurance> pay or can you afford to pay for it. If the answer is

> yes, then I'd do it.> I would've said to definitely see how repo

> goes, but with Tort, it may> not help as much as you'd like. It's a

> tough decision...keep us> posted! Bye, (MaxDOCbanded 2/7)

>

>

>

> My son is 5 mos. and we went for our eval at CT. The PT said that

> > > his facial assym is not much at all. And his head is not " too

> > > bad " . His measurements were about 4 mm on all the face assym.

> and > > 10 mm on the head. She said not to only go by measurements

> because > > they are hard to get accurately.

> > > > > She said it was almost more brachy than plagio. She also

> said he > > was still young enough that I could try the repo for

> another 4 weeks > > and then make a decision. It was weird that she

> didn't really push > > the band on us. I don't think the repo will

> do anything, he is way > > to strong and active. I keep him off his

> back except sleep. The > > only thing that might help is that he

> just started rolling onto his > > side at night but it isn't

> consistent yet.> > > > He wasn't diagnosed with tort and plagio

> until 4 mos. and no one > > ever told me about repo until I started

> research. I don't think it > > will get worse now that I am aware,

> but I don't think it will get > > any better. I guess I want to

> know what the veterans would do. > > Would you band? > >

> > > I know it is a personal decision but I just thought I would ask.

> I > > know most of the pros and cons. Husband and I are just

> thinking it > > over for a couple weeks since she said it was early

> enough. She > > thought he would take about 8 weeks. Thanks in

> advance.

> > >

> > > Bobbi H.

> > > son to 5 months April 10

> > > Phoenix

> > >

> >

>