12 months and just starting.

August 4, 2006

Hi, everyone. We just had our little boy fitted for the Starband. I

am so worried that we started too late and that we are waisting our

time. I feel like we have gotten the run around from the Medical

Community and are basically on our own. We have a orthotist that we

like okay, but I didn't know we could shop around. It took me

several days to find one, and he has probably been the most helpful

doctor we have had, but I am not sure if he is any good.

I noticed that Noah had a flat head when he was around three months,

and our doctor just said to try and reposition. We tried and nothing

worked so at five months I just started letting him sleep on his

stomach, and that didn't work. We were then sent to a Neurosurgeon

and she did the CT which showed that he did not have craniostynosis

(sp), and that was that. Mind you we met the the neurosurgeon at 10

months. When I called back the next day, her assistant told me not

to worry, Noah's head will round out with time, and if not his hair

will cover it. I finally got so tired of waking up in the middle of

the night to make sure he wasn't on that side, that I called around

to find an orthotist. When we met with him, he said we were getting

to the end of the treatment period. I called my neurosurgeon again,

and played phone tag for a couple of days. When her assitant called

me back I told them, we wanted to get the helmet and I didn't care if

the insurance company paid for it or not. They sent me a

prescription in the mail, and we had the molding done the next day,

and had the helmet a week later.

I appologize for rambling, but I am really down on the Medical

community. None of my doctors brought up any of the issues of

developemental problems, or vision impairments which really

aggrivates me because, I look back now and feel like this could have

been prevented.

In any event I am wondering if any of you have had a child this old

start helmet therapy, and was it helpful? Also, the helmet it really

musty smelling. I clean it everyday, and wash my sons hair and head

thuroughly each time, but it is really yucky.

Noah, has been a really good sport about the whole thing and my three

year old wants a helmet too.

Recommended Posts