Re: sensory integration disorder

September 1, 2006

Yes, please test her. I had perfectly normal bowel movements, but developed dermatitis herpetiformis when I was 13. The intestinal part came much-much later after a lot of damage to my systems. Testing would be good.. In fact, I would put her on a gluten free diet after the testing was done, just to see the results of her behaviour. Shirley in San Diegonostorystory wrote: Hi list,I'm posting on behalf of my sister. Her 6 year-old daughter has been diagnosed with

sensory integration disorder. She gets overwhelmed by stimuli, is fearful of closed in spaces and is anxious in general, clinging to her mother, is a bit developmentally delayed, has difficulty attending to auditory instructions, and is hesitant to join in with other children. I have a gluten-sensitivity gene, so I've been encouraging her to get my niece tested. The child's bowel movements *are* normal, though. There are my questions:Do you all think there could be a gluten component, even if her bowels are normal?Besides testing, what might be the best resources I could share with my sister for learning more about the connection between gluten and sensory integration disorder?Many thanks in advance,Molly

September 1, 2006

I have 2 friends who have children with sensory integration, neither

has Celiac Disease, one is on a gf diet, the other one takes riddilin

(?sp it is a ADHD drug). Both had improvement in behavior. Both

friends were told that sensory integration is a form of autism. I

have read that many people feel a gf diet helps and improves symptoms

of autism. THey also both have the birth to three program come in to

their home to do therapy and give councling/advice. They both have

expressed that this is a big help. I will ask them today if they know

of any other good resources for you.

>

> Hi list,

>

> I'm posting on behalf of my sister. Her 6 year-old daughter has

been

> diagnosed with sensory integration disorder. She gets overwhelmed

by

> stimuli, is fearful of closed in spaces and is anxious in general,

> clinging to her mother, is a bit developmentally delayed, has

> difficulty attending to auditory instructions, and is hesitant to

> join in with other children. I have a gluten-sensitivity gene, so

> I've been encouraging her to get my niece tested. The child's

bowel

> movements *are* normal, though. There are my questions:

>

> Do you all think there could be a gluten component, even if her

> bowels are normal?

>

> Besides testing, what might be the best resources I could share

with

> my sister for learning more about the connection between gluten

and

> sensory integration disorder?

>

> Many thanks in advance,

> Molly

>

September 1, 2006

Most definitely get this child tested. BUT, if the test results do not show anything, I would still try the GF diet. Many children with various developmental disorders, especially autism and asbergers find the GF diet has a very postive influence on the child's health and behaviors. Good Luck. Sonja

Get your own web address for just $1.99/1st yr. We'll help. Yahoo! Small Business.

September 1, 2006

Most definitely get this child tested. BUT, if the test results do not show anything, I would still try the GF diet. Many children with various developmental disorders, especially autism and asbergers find the GF diet has a very postive influence on the child's health and behaviors. Good Luck. Sonja

Get your own web address for just $1.99/1st yr. We'll help. Yahoo! Small Business.

September 1, 2006

Most definitely get this child tested. BUT, if the test results do not show anything, I would still try the GF diet. Many children with various developmental disorders, especially autism and asbergers find the GF diet has a very postive influence on the child's health and behaviors. Good Luck. Sonja

Get your own web address for just $1.99/1st yr. We'll help. Yahoo! Small Business.

September 1, 2006

It's my understanding that sensory integrations problems are on the same spectrum with autism....don't panic, it's a broad spectrum. My oldest is Pervasive Developmental Disorder, Not otherwise specified (PDD-NOS), but was originally diagnosed full blown autism. The difference is the PDD-NOS is much milder. When we discovered he was autistic, I did lots of research. My research told me that a gf diet would help him. that's actually how we discovered he was celiac ALSO, because he made such DRAMATIC progress they almost dropped the autism diagnosis altogether, but instead lowered it. He had no other symptoms physically, bowels were normal, a little gas-y, but other than that, asymptomatic. After being gf for 7 months, they had us put him back on gluten, to get the celiac diagnosis. He didn't even lose the ground he gained. At the time we were doing this, he had LOTS of sensory issues. Light, sound, touch, easily over s

timulated. I used to brush him, and do joint compressions. All that stopped when he went gf.

I can't say for sure if your niece will have the same benefits, just giving our story. My youngest has been "diagnosed" with Asperger's Syndrome (the psychiatrist said he had enough symptoms to be affected, but not enough to warrant an official diagnosis), is without symptoms, but very skinny. I'm not going through the putting him back on gluten, so I'm waiting for him to lose, or quit gaining weight, but I'm sure he'll be celiac as well. I'm also celiac (now we know which parent they got it from), with no one else in my family testing positive (though I suspect my dad might be).

--loriann aka Victree the Christian clown

-------------- Original message --------------

Hi list,I'm posting on behalf of my sister. Her 6 year-old daughter has been diagnosed with sensory integration disorder. She gets overwhelmed by stimuli, is fearful of closed in spaces and is anxious in general, clinging to her mother, is a bit developmentally delayed, has difficulty attending to auditory instructions, and is hesitant to join in with other children. I have a gluten-sensitivity gene, so I've been encouraging her to get my niece tested. The child's bowel movements *are* normal, though. There are my questions:Do you all think there could be a gluten component, even if her bowels are normal?Besides testing, what might be the best resources I could share with my sister for learning more about the connection between gluten and sensory integration disorder?Many thanks in advance,Molly

September 1, 2006

It's my understanding that sensory integrations problems are on the same spectrum with autism....don't panic, it's a broad spectrum. My oldest is Pervasive Developmental Disorder, Not otherwise specified (PDD-NOS), but was originally diagnosed full blown autism. The difference is the PDD-NOS is much milder. When we discovered he was autistic, I did lots of research. My research told me that a gf diet would help him. that's actually how we discovered he was celiac ALSO, because he made such DRAMATIC progress they almost dropped the autism diagnosis altogether, but instead lowered it. He had no other symptoms physically, bowels were normal, a little gas-y, but other than that, asymptomatic. After being gf for 7 months, they had us put him back on gluten, to get the celiac diagnosis. He didn't even lose the ground he gained. At the time we were doing this, he had LOTS of sensory issues. Light, sound, touch, easily over s

timulated. I used to brush him, and do joint compressions. All that stopped when he went gf.

I can't say for sure if your niece will have the same benefits, just giving our story. My youngest has been "diagnosed" with Asperger's Syndrome (the psychiatrist said he had enough symptoms to be affected, but not enough to warrant an official diagnosis), is without symptoms, but very skinny. I'm not going through the putting him back on gluten, so I'm waiting for him to lose, or quit gaining weight, but I'm sure he'll be celiac as well. I'm also celiac (now we know which parent they got it from), with no one else in my family testing positive (though I suspect my dad might be).

--loriann aka Victree the Christian clown

-------------- Original message --------------

Hi list,I'm posting on behalf of my sister. Her 6 year-old daughter has been diagnosed with sensory integration disorder. She gets overwhelmed by stimuli, is fearful of closed in spaces and is anxious in general, clinging to her mother, is a bit developmentally delayed, has difficulty attending to auditory instructions, and is hesitant to join in with other children. I have a gluten-sensitivity gene, so I've been encouraging her to get my niece tested. The child's bowel movements *are* normal, though. There are my questions:Do you all think there could be a gluten component, even if her bowels are normal?Besides testing, what might be the best resources I could share with my sister for learning more about the connection between gluten and sensory integration disorder?Many thanks in advance,Molly

September 1, 2006

It's my understanding that sensory integrations problems are on the same spectrum with autism....don't panic, it's a broad spectrum. My oldest is Pervasive Developmental Disorder, Not otherwise specified (PDD-NOS), but was originally diagnosed full blown autism. The difference is the PDD-NOS is much milder. When we discovered he was autistic, I did lots of research. My research told me that a gf diet would help him. that's actually how we discovered he was celiac ALSO, because he made such DRAMATIC progress they almost dropped the autism diagnosis altogether, but instead lowered it. He had no other symptoms physically, bowels were normal, a little gas-y, but other than that, asymptomatic. After being gf for 7 months, they had us put him back on gluten, to get the celiac diagnosis. He didn't even lose the ground he gained. At the time we were doing this, he had LOTS of sensory issues. Light, sound, touch, easily over s

timulated. I used to brush him, and do joint compressions. All that stopped when he went gf.

I can't say for sure if your niece will have the same benefits, just giving our story. My youngest has been "diagnosed" with Asperger's Syndrome (the psychiatrist said he had enough symptoms to be affected, but not enough to warrant an official diagnosis), is without symptoms, but very skinny. I'm not going through the putting him back on gluten, so I'm waiting for him to lose, or quit gaining weight, but I'm sure he'll be celiac as well. I'm also celiac (now we know which parent they got it from), with no one else in my family testing positive (though I suspect my dad might be).

--loriann aka Victree the Christian clown

-------------- Original message --------------

Hi list,I'm posting on behalf of my sister. Her 6 year-old daughter has been diagnosed with sensory integration disorder. She gets overwhelmed by stimuli, is fearful of closed in spaces and is anxious in general, clinging to her mother, is a bit developmentally delayed, has difficulty attending to auditory instructions, and is hesitant to join in with other children. I have a gluten-sensitivity gene, so I've been encouraging her to get my niece tested. The child's bowel movements *are* normal, though. There are my questions:Do you all think there could be a gluten component, even if her bowels are normal?Besides testing, what might be the best resources I could share with my sister for learning more about the connection between gluten and sensory integration disorder?Many thanks in advance,Molly

September 1, 2006

Molly,

I think sensory integration disorder is under the autism umbrella. I would have

her tested just to be sure, but if she doesn't test positive, the diet has been

proven to work on these children. She sounds a bit like my son. He was finally

diagosed with autism at the age of six.

If she is in the public school system, her school has to provide her a safe and

productive education. If they cannot do that, they have to send her somewhere

that can, on their dime. My son goes to another school, 15 miles away. We have

one right near us, but this other elementary school has a program specifically

for autism. He is bused from our house to the school-curb to curb-every day.

We pay for bus passes in our district, but we don't have to pay for his, since

his school had to send him there. There is a child in his class that has SID

also.

I wish her well. I know how tough this can be. For the longest time, we

thought we were doing something wrong because our son was so out of control.

Funny thing, his sister was very well behaved, raised by the same parents in the

same house with the same rules. It was very hard until he got into a school

that knew how to deal with him.

Have your sister request testing from the school. Put it in writing. In our

state, they have 30 days to comply. If they don't they can face fines. I am

not sure if that is the same in every state but it wouldn't hurt. Have her mail

it to the principal in a certified letter with receipt so that the principal HAS

to sign for it and you will get a letter with receipt stated that fact.

Our son was so bad that they couldn't keep him in class. His behaviours when

around stimuli where pretty bad. He was hitting the kids, the teachers,

throwing things, hiding from the teachers. They called me everyday to pick him

up. Finally they got his testing done and put him in the special day classes

that he is in and he is doing exceptionally well there. I did have to do home

schooling for a few weeks during the transition. I didn't want him to continue

to hurt other children and the teachers.

Hugs,

Zanna

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September 1, 2006