--Re: drooling/birthmarks-

[Guest guest]

, Another absolutely wonderful message of hope, and thank you

so much for sharing this latest update on the miraculous recovery

ph has made. It really does my heart good to read about this, and

I am so happy for you and for ph. Words just fail me.

You didn't mention how much ProEFA and ProEPA ph is on at this

time, and I know you are keeping to yourself exactly how much Vit E he

is on. A while ago you said you were going to try decreasing some of

these supplements to see whether or not there would be any regression.

Hopefully I haven't missed your posts on this--I am hoping that you

still plan to share this information with us as you see what happens

here. I am breathless waiting for your results.

I can't thank you enough for all you have been doing and your

tremendous generosity in sharing with all of us. I savor everything

you write.

God bless you.

Suzanne

>

> Excellent that he is improving. It is true that maternal nutrition

> can affect generations.

>

> I don't think the nutritional deficiencies in my son are the result

> of diet however. I suspect that this really it a SYNDROME...and

> someday we will understand why these children have an increased

> requirement for antioxidants...whether its malabsorption due to gut

> inflammation/allergy, increased oxidative stress, and abnormal

> enzyme(s) in fatty acid processing or abnormal transport of vitamin

> E into key organs like brain...or a combo of the above (most likely).

>

> In the meantime we have said goodbye and many grateful thanks to our

> ST (who made the apraxia diagnosis in the first place)...and done

> with OT as well. What will I do with all that extra time???

>

> We have surpassed " normal " and are hitting above average in some

> catagories in recent testing prior to ending services (like visual-

> motor!!!!...an area he had so much difficulty early on...and tested

> in the 99th percentile in sentence structure!!!! We laughed about

> this with our ST - an apraxic child scoring in the 99th %). We have

> seen exponential improvement in all areas since we started the

> vitamin E less than 6 months ago. Sentences are getting more

> mature/complex, and nearly 100% intelligible. He is really quite

> sassy, has a lot to say, and is a bit of a handful in the way 3 year

> olds should be. I love it! This is really a happier outcome than I

> ever imagined possible.

>

> I will be spending more time focusing on getting a grant together

> looking at a trial of omega 3/vit E in apraxia and apraxic/PDD

> children...so everyone will probably hear less from me in the near

> future. The best way for me to spend my (limited) time is to bring

> some science to all of this - and even a small pilot study will

> increase apraxia awareness. When there are zero clinical

> trials...even one small one is a huge step in the right direction.

>

> But I owe alot of thanks to