Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 as for #9 other supplement info, how about what is EPA, what does it do, how much to take? same with carnitine, magnesium, zinc, DHA, vitamin C, B vitamins. > > OK.... so far I have these ideas for FAQ's based on what seems to come > down the pike most frequently > > 1. What are EFA's/ProEFA etc > 2. What dosage of EFA > 3. What are " high dose " EFA's > 4. Why is everyone talking about vitamin e > 5. How do I start my child on vitamin e > 6. Side effects of EFA's > 7. Side effects of adding Vitamin e > 8. If I want blood tests first... what blood tests > 9. Other supplement info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 sounds great! I would suggest adding: Why/how the fish oils and vit. e work for so many of our kids? Clarify the vit. E recommendations (what's worked for our kids) including the high gamma, etc. (I find that very confusing.) In the book The Late Talker there is an explanation of what Pro-Efa seems to help the most, and what Pro-Epa seems to work best to help, the latter being the recommendation for verbal apraxia. This includes the break down of the fatty acids, etc. in the oils, with very specific recommendations of mg.s etc. for each type of fish oil combo. (I think it's important to explain that there are different types of fish oils sold, and not just any fish oil will necessarily have the best chance to benefit our kids.) Where can I get these fish oils and vit. E? Re: how to get them in our kids, which I think is such an important question to ask and answer: I asked someone re: cooking with the fish oils to get them into our children, and was told that heating them would damage the oils so not to do so by baking, etc. If that is indeed true, then I think it would be important to include with this question. Thanks again for doing this. Keep asking for ideas, help, etc. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 10. are there different doses for different ages/weights? > > OK.... so far I have these ideas for FAQ's based on what seems to come > down the pike most frequently > > 1. What are EFA's/ProEFA etc > 2. What dosage of EFA > 3. What are " high dose " EFA's > 4. Why is everyone talking about vitamin e > 5. How do I start my child on vitamin e > 6. Side effects of EFA's > 7. Side effects of adding Vitamin e > 8. If I want blood tests first... what blood tests > 9. Other supplement info > 10. How do you get your child to take these supplements > > > Any other ideas? > > Anything anyone wants to contribute to any of the above topics????? > > Thanks > Kris > Mom to Grace, age 2.5 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 In a message dated 10/6/2006 5:12:28 PM Eastern Standard Time, auntsusan@... writes: 10. are there different doses for different ages/weights? I would like to know this as well. I'm very interested in the ages of some of the members kids if anyone wants to volunteer that info. I have a 30 month old boy with a speech delay. No other diagnosis as of yet.... This topic is very interesting. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 11. Side effects of Borage oil ( ProEfa NN) auntsusan12345 <auntsusan@...> escribió: 10. are there different doses for different ages/weights? > > OK.... so far I have these ideas for FAQ's based on what seems to come > down the pike most frequently > > 1. What are EFA's/ProEFA etc > 2. What dosage of EFA > 3. What are " high dose " EFA's > 4. Why is everyone talking about vitamin e > 5. How do I start my child on vitamin e > 6. Side effects of EFA's > 7. Side effects of adding Vitamin e > 8. If I want blood tests first... what blood tests > 9. Other supplement info > 10. How do you get your child to take these supplements > > > Any other ideas? > > Anything anyone wants to contribute to any of the above topics????? > > Thanks > Kris > Mom to Grace, age 2.5 > __________________________________________________ Correo Espacio para todos tus mensajes, antivirus y antispam ¡gratis! RegÃstrate ya - http://correo.espanol./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 ---Re: 's question about our kids' ages. (And I too would like to know the answer to the question below re: doses/size of kid) My grandson (who's lived with me since June '05) is 28 months old. He's not been diagnosed with apraxia but his speech ther. agrees with me that it appears to be what's going on. She doesn't want to diagnose him until he's at least 30 months. Karyn In , rachelspartyof5@... wrote: > > > In a message dated 10/6/2006 5:12:28 PM Eastern Standard Time, > auntsusan@... writes: > > 10. are there different doses for different ages/weights? > > > > I would like to know this as well. > I'm very interested in the ages of some of the members kids if anyone wants > to volunteer that info. I have a 30 month old boy with a speech delay. No > other diagnosis as of yet.... > This topic is very interesting. > Thanks, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 OK.... I've got some time so I'm working on these some more. I'm sending these in. I figure we can work this out kinda like Wikipedia where anyone can edit, etc. It you want to add something just cut and paste into a new email/post and add your changes. If the info is accurate and no one has any problem with it then we'll just keep pressing forward. After it's made the rounds for a little while I'll clean it up and make a final copy. Sound like a plan????? Let's get started. I've divided this up by topic areas. The topic is in bold. Info in parenthesis is just my statements to y'all... in other words.... info that needs to be edited, removed or replaced. Essential Fatty Acid Supplements: 1. What is all this talk about EFA's/Fish Oils? EFA's or essential fatty acids are more commonly referred to as Omega 3, Omega 6 and/or Omega 9 supplements. These fatty acids can be obtained to some extent through our diet by eating fish, nuts, etc. Unfortunately in our society we do not consume adequate amounts of the foods that provide these nutrients. Many children, however, even if they were to consume adequate amounts, are not able to convert these fatty acids into a more useable form and therefore function as if they have a deficiency. Fatty acids, once consumed, assist our nervous system and brain to complete neurotransmissions. In other words, they assist our nervous system in sending messages throughout our body and help the nervous system to function more efficiently. EFA's help our brain send messages to the muscles of our mouth, arms, legs, etc more efficiently and assist those muscles in receiving these messages and acting upon them. The essential fatty acids are as follows: Docosahexaenoic acid = DHA Eicosapentaenoic acid = EPA Aracgudibuc acid = ARA Gamma-Linolenic acid = GLA Alpha-linolenic acid = ALA 2. What does this have to do with Apraxia and speech? Research has shown positive results with the use of EFA's for the treatment of many disorders including depression, ADHD, etc. Antidotal evidence suggested that giving EFA supplements to children with apraxia resulted in large surges in development or language explosions. Further research has supported these findings as does the reports of many parents who have given their child the supplements. These language surges occur between 7 days and 6 weeks after starting the EFA supplements. 3. Where do I get these EFA supplements? You can use whatever brand you would like. This FAQ will focus on three separate products. You may use one of these products or you may look for another that suits you. The important thing to note is what is the content of the product you choose. Not all Omega-3 supplements are alike and they all have differing ratios of fatty acids, etc. It is thought that the important thing is the ratio of the fatty acids, not the brand name that you use. The supplement you use should have a combination of DHA, EPA and GLA. Children with apraxia of speech seem to respond best to the following " recipe " of EFA's: 148 mg EPA 99 mg DHA 180 mg of borage oil which contains 40 mg of GLA This is the exact composition of Nordic Naturals ProEFA product. Families also use the brand names of Effalex and Coromega. The content of Coromega is as follows: (someone look on their coromega bottle and type in the ingredients per serving). Effalex contains the following amounts of essential fatty acids: (someone look on their effalex bottle and type it in). It is not paramount that you use only these brands. These brands have the recommended ratios of essential fatty acids. Use these as a guideline when evaluating other products and calculate whether the product you are considering has the same ratio of EFA's. It is theorized that the ratio of EFA's to each other is critical in the success of the treatment for apraxic children. 4. How much do I give my child per day? To start, give your child one ProEFA gel cap once or twice per day by mouth or (insert Effalex starting dose). If using Coromega your starting dose is (enter that dose). To administer the gel caps some children swallow them on their own. The capsules can also be punctured and the contents squirted into juice, applesauce, pudding, peanut butter, etc. You'll need to see what works best for your child. When using Nordic Naturals products you will add one capsule of ProEPA after about 6 months of using Pro EFA. You may also begin adding the ProEPA when your child begins to plateau. 5. Are using these supplements safe? Yes. Using these supplements is essentially the same as feeding your child fish every day for every meal. 6. What are some side effects? Some parents report that their kids get a little more emotional when first starting the supplements and when increasing the dosages. Others have reported initial diarrhea that faded in a day or two. 7. What are high dose fatty acids? Based on antidotal evidence some families began to give their child higher doses of the fatty acid supplements. These families saw very large surges in development, language acquisition, clarity, etc. High dose fatty acids are administered as follows: Nordic Naturals ProEFA: 2 capsules by mouth three times a day Nordic Naturals ProEPA: 1 capsule by mouth three times a day This amount of fish oil is the equivalent to your child eating one full can of sardines a day (or was that three cans of sardines? ?). (Effalex and Coromega people add in what your schedule is for high dose EFA's) 8. I can't find Nordic Naturals ProEFA at my health food store, now what? Nordic Naturals Pro EFA can only be bought online. In the stores ProEFA is labeled simply as EFA. The same is true for their ProEPA/EPA product. The " pro " line is for professionals and it is a bit cheaper than the non-pro line. The pro line can be purchased off of the CHERAB website. 9. What is the specific dose based on the weight of the child? (I put this on here because someone specifically asked for this but I don't think this exists. I don't think there is a recommendation by weight is there? If so, somebody add it in for me. Thanks). 10. Where can I read more about essential fatty acid supplements? The Late Talker by Marilyn Agin MD, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 well done - this is an excellent FAQ! [ ] FAQ's OK.... I've got some time so I'm working on these some more. I'm sending these in. I figure we can work this out kinda like Wikipedia where anyone can edit, etc. It you want to add something just cut and paste into a new email/post and add your changes. If the info is accurate and no one has any problem with it then we'll just keep pressing forward. After it's made the rounds for a little while I'll clean it up and make a final copy. Sound like a plan????? Let's get started. I've divided this up by topic areas. The topic is in bold. Info in parenthesis is just my statements to y'all... in other words.... info that needs to be edited, removed or replaced. Essential Fatty Acid Supplements: 1. What is all this talk about EFA's/Fish Oils? EFA's or essential fatty acids are more commonly referred to as Omega 3, Omega 6 and/or Omega 9 supplements. These fatty acids can be obtained to some extent through our diet by eating fish, nuts, etc. Unfortunately in our society we do not consume adequate amounts of the foods that provide these nutrients. Many children, however, even if they were to consume adequate amounts, are not able to convert these fatty acids into a more useable form and therefore function as if they have a deficiency. Fatty acids, once consumed, assist our nervous system and brain to complete neurotransmissions. In other words, they assist our nervous system in sending messages throughout our body and help the nervous system to function more efficiently. EFA's help our brain send messages to the muscles of our mouth, arms, legs, etc more efficiently and assist those muscles in receiving these messages and acting upon them. The essential fatty acids are as follows: Docosahexaenoic acid = DHA Eicosapentaenoic acid = EPA Aracgudibuc acid = ARA Gamma-Linolenic acid = GLA Alpha-linolenic acid = ALA 2. What does this have to do with Apraxia and speech? Research has shown positive results with the use of EFA's for the treatment of many disorders including depression, ADHD, etc. Antidotal evidence suggested that giving EFA supplements to children with apraxia resulted in large surges in development or language explosions. Further research has supported these findings as does the reports of many parents who have given their child the supplements. These language surges occur between 7 days and 6 weeks after starting the EFA supplements. 3. Where do I get these EFA supplements? You can use whatever brand you would like. This FAQ will focus on three separate products. You may use one of these products or you may look for another that suits you. The important thing to note is what is the content of the product you choose. Not all Omega-3 supplements are alike and they all have differing ratios of fatty acids, etc. It is thought that the important thing is the ratio of the fatty acids, not the brand name that you use. The supplement you use should have a combination of DHA, EPA and GLA. Children with apraxia of speech seem to respond best to the following " recipe " of EFA's: 148 mg EPA 99 mg DHA 180 mg of borage oil which contains 40 mg of GLA This is the exact composition of Nordic Naturals ProEFA product. Families also use the brand names of Effalex and Coromega. The content of Coromega is as follows: (someone look on their coromega bottle and type in the ingredients per serving). Effalex contains the following amounts of essential fatty acids: (someone look on their effalex bottle and type it in). It is not paramount that you use only these brands. These brands have the recommended ratios of essential fatty acids. Use these as a guideline when evaluating other products and calculate whether the product you are considering has the same ratio of EFA's. It is theorized that the ratio of EFA's to each other is critical in the success of the treatment for apraxic children. 4. How much do I give my child per day? To start, give your child one ProEFA gel cap once or twice per day by mouth or (insert Effalex starting dose). If using Coromega your starting dose is (enter that dose). To administer the gel caps some children swallow them on their own. The capsules can also be punctured and the contents squirted into juice, applesauce, pudding, peanut butter, etc. You'll need to see what works best for your child. When using Nordic Naturals products you will add one capsule of ProEPA after about 6 months of using Pro EFA. You may also begin adding the ProEPA when your child begins to plateau. 5. Are using these supplements safe? Yes. Using these supplements is essentially the same as feeding your child fish every day for every meal. 6. What are some side effects? Some parents report that their kids get a little more emotional when first starting the supplements and when increasing the dosages. Others have reported initial diarrhea that faded in a day or two. 7. What are high dose fatty acids? Based on antidotal evidence some families began to give their child higher doses of the fatty acid supplements. These families saw very large surges in development, language acquisition, clarity, etc. High dose fatty acids are administered as follows: Nordic Naturals ProEFA: 2 capsules by mouth three times a day Nordic Naturals ProEPA: 1 capsule by mouth three times a day This amount of fish oil is the equivalent to your child eating one full can of sardines a day (or was that three cans of sardines? ?). (Effalex and Coromega people add in what your schedule is for high dose EFA's) 8. I can't find Nordic Naturals ProEFA at my health food store, now what? Nordic Naturals Pro EFA can only be bought online. In the stores ProEFA is labeled simply as EFA. The same is true for their ProEPA/EPA product. The " pro " line is for professionals and it is a bit cheaper than the non-pro line. The pro line can be purchased off of the CHERAB website. 9. What is the specific dose based on the weight of the child? (I put this on here because someone specifically asked for this but I don't think this exists. I don't think there is a recommendation by weight is there? If so, somebody add it in for me. Thanks). 10. Where can I read more about essential fatty acid supplements? The Late Talker by Marilyn Agin MD, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Dear Kris, Thank you so very much for taking the time and energy to pull together info. for these FAQs! I found it very helpful, and I've been reading posts for several weeks now. You have done a great job summarizing the masses of posts and research so that one doesn't have to be faced with an overwhelming amount of info. I really appreciate that you've done this!! I have nothing to add. Just thanks, and as you continue to put this together, if I can add anything, I certainly will. I'm new, so still learning. Karyn Quote Link to comment Share on other sites More sharing options...
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