FAQ's

[Guest guest]

as for #9 other supplement info, how about what is EPA, what does it do, how

much to take?

same with carnitine, magnesium, zinc, DHA, vitamin C, B vitamins.

>

> OK.... so far I have these ideas for FAQ's based on what seems to come

> down the pike most frequently

>

> 1. What are EFA's/ProEFA etc

> 2. What dosage of EFA

> 3. What are " high dose " EFA's

> 4. Why is everyone talking about vitamin e

> 5. How do I start my child on vitamin e

> 6. Side effects of EFA's

> 7. Side effects of adding Vitamin e

> 8. If I want blood tests first... what blood tests

> 9. Other supplement info

[Guest guest]

sounds great! I would suggest adding:

Why/how the fish oils and vit. e work for so many of our kids?

Clarify the vit. E recommendations (what's worked for our kids) including

the high gamma, etc. (I find that very confusing.)

In the book The Late Talker there is an explanation of what Pro-Efa seems to

help the most, and what Pro-Epa seems to work best to help, the latter being

the recommendation for verbal apraxia. This includes the break down of the

fatty acids, etc. in the oils, with very specific recommendations of mg.s

etc. for each type of fish oil combo.

(I think it's important to explain that there are different types of

fish oils sold, and not just any fish oil will necessarily have the best

chance to benefit our kids.)

Where can I get these fish oils and vit. E?

Re: how to get them in our kids, which I think is such an important question

to ask and answer: I asked someone re: cooking with the fish oils to get

them into our children, and was told that heating them would damage the oils so

not to do so by baking, etc. If that is indeed true, then I think it would

be important to include with this question.

Thanks again for doing this. Keep asking for ideas, help, etc.

Karyn

[Guest guest]

10. are there different doses for different ages/weights?

>

> OK.... so far I have these ideas for FAQ's based on what seems to come

> down the pike most frequently

>

> 1. What are EFA's/ProEFA etc

> 2. What dosage of EFA

> 3. What are " high dose " EFA's

> 4. Why is everyone talking about vitamin e

> 5. How do I start my child on vitamin e

> 6. Side effects of EFA's

> 7. Side effects of adding Vitamin e

> 8. If I want blood tests first... what blood tests

> 9. Other supplement info

> 10. How do you get your child to take these supplements

>

>

> Any other ideas?

>

> Anything anyone wants to contribute to any of the above topics?????

>

> Thanks

> Kris

> Mom to Grace, age 2.5

>

[Guest guest]

In a message dated 10/6/2006 5:12:28 PM Eastern Standard Time,

auntsusan@... writes:

10. are there different doses for different ages/weights?

I would like to know this as well.

I'm very interested in the ages of some of the members kids if anyone wants

to volunteer that info. I have a 30 month old boy with a speech delay. No

other diagnosis as of yet....

This topic is very interesting.

Thanks,

[Guest guest]

11. Side effects of Borage oil ( ProEfa NN)

auntsusan12345 <auntsusan@...> escribió: 10. are there

different doses for different ages/weights?

>

> OK.... so far I have these ideas for FAQ's based on what seems to come

> down the pike most frequently

>

> 1. What are EFA's/ProEFA etc

> 2. What dosage of EFA

> 3. What are " high dose " EFA's

> 4. Why is everyone talking about vitamin e

> 5. How do I start my child on vitamin e

> 6. Side effects of EFA's

> 7. Side effects of adding Vitamin e

> 8. If I want blood tests first... what blood tests

> 9. Other supplement info

> 10. How do you get your child to take these supplements

>

>

> Any other ideas?

>

> Anything anyone wants to contribute to any of the above topics?????

>

> Thanks

> Kris

> Mom to Grace, age 2.5

>

__________________________________________________

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Espacio para todos tus mensajes, antivirus y antispam ¡gratis!

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[Guest guest]

---Re: 's question about our kids' ages. (And I too would like

to know the answer to the question below re: doses/size of kid)

My grandson (who's lived with me since June '05) is 28 months old.

He's not been diagnosed with apraxia but his speech ther. agrees with

me that it appears to be what's going on. She doesn't want to

diagnose him until he's at least 30 months.

Karyn

In , rachelspartyof5@... wrote:

>

>

> In a message dated 10/6/2006 5:12:28 PM Eastern Standard Time,

> auntsusan@... writes:

>

> 10. are there different doses for different ages/weights?

>

>

>

> I would like to know this as well.

> I'm very interested in the ages of some of the members kids if

anyone wants

> to volunteer that info. I have a 30 month old boy with a speech

delay. No

> other diagnosis as of yet....

> This topic is very interesting.

> Thanks,

>

>

>

>

>

>

>

>

[Guest guest]

OK.... I've got some time so I'm working on these some more. I'm

sending these in. I figure we can work this out kinda like Wikipedia

where anyone can edit, etc. It you want to add something just cut and

paste into a new email/post and add your changes. If the info is

accurate and no one has any problem with it then we'll just keep

pressing forward. After it's made the rounds for a little while I'll

clean it up and make a final copy. Sound like a plan?????

Let's get started. I've divided this up by topic areas. The topic is

in bold. Info in parenthesis is just my statements to y'all... in

other words.... info that needs to be edited, removed or replaced.

Essential Fatty Acid Supplements:

1. What is all this talk about EFA's/Fish Oils?

EFA's or essential fatty acids are more commonly referred to as Omega

3, Omega 6 and/or Omega 9 supplements. These fatty acids can be

obtained to some extent through our diet by eating fish, nuts, etc.

Unfortunately in our society we do not consume adequate amounts of the

foods that provide these nutrients. Many children, however, even if

they were to consume adequate amounts, are not able to convert these

fatty acids into a more useable form and therefore function as if they

have a deficiency.

Fatty acids, once consumed, assist our nervous system and brain to

complete neurotransmissions. In other words, they assist our nervous

system in sending messages throughout our body and help the nervous

system to function more efficiently. EFA's help our brain send

messages to the muscles of our mouth, arms, legs, etc more efficiently

and assist those muscles in receiving these messages and acting upon

them.

The essential fatty acids are as follows:

Docosahexaenoic acid = DHA

Eicosapentaenoic acid = EPA

Aracgudibuc acid = ARA

Gamma-Linolenic acid = GLA

Alpha-linolenic acid = ALA

2. What does this have to do with Apraxia and speech?

Research has shown positive results with the use of EFA's for the

treatment of many disorders including depression, ADHD, etc. Antidotal

evidence suggested that giving EFA supplements to children with apraxia

resulted in large surges in development or language explosions.

Further research has supported these findings as does the reports of

many parents who have given their child the supplements. These

language surges occur between 7 days and 6 weeks after starting the EFA

supplements.

3. Where do I get these EFA supplements?

You can use whatever brand you would like. This FAQ will focus on

three separate products. You may use one of these products or you may

look for another that suits you. The important thing to note is what

is the content of the product you choose. Not all Omega-3 supplements

are alike and they all have differing ratios of fatty acids, etc. It

is thought that the important thing is the ratio of the fatty acids,

not the brand name that you use.

The supplement you use should have a combination of DHA, EPA and GLA.

Children with apraxia of speech seem to respond best to the following

" recipe " of EFA's:

148 mg EPA

99 mg DHA

180 mg of borage oil which contains 40 mg of GLA

This is the exact composition of Nordic Naturals ProEFA product.

Families also use the brand names of Effalex and Coromega. The content

of Coromega is as follows:

(someone look on their coromega bottle and type in the ingredients per

serving).

Effalex contains the following amounts of essential fatty acids:

(someone look on their effalex bottle and type it in).

It is not paramount that you use only these brands. These brands have

the recommended ratios of essential fatty acids. Use these as a

guideline when evaluating other products and calculate whether the

product you are considering has the same ratio of EFA's. It is

theorized that the ratio of EFA's to each other is critical in the

success of the treatment for apraxic children.

4. How much do I give my child per day?

To start, give your child one ProEFA gel cap once or twice per day by

mouth or (insert Effalex starting dose). If using Coromega your

starting dose is (enter that dose). To administer the gel caps some

children swallow them on their own. The capsules can also be punctured

and the contents squirted into juice, applesauce, pudding, peanut

butter, etc. You'll need to see what works best for your child.

When using Nordic Naturals products you will add one capsule of ProEPA

after about 6 months of using Pro EFA. You may also begin adding the

ProEPA when your child begins to plateau.

5. Are using these supplements safe?

Yes. Using these supplements is essentially the same as feeding your

child fish every day for every meal.

6. What are some side effects?

Some parents report that their kids get a little more emotional when

first starting the supplements and when increasing the dosages. Others

have reported initial diarrhea that faded in a day or two.

7. What are high dose fatty acids?

Based on antidotal evidence some families began to give their child

higher doses of the fatty acid supplements. These families saw very

large surges in development, language acquisition, clarity, etc. High

dose fatty acids are administered as follows:

Nordic Naturals ProEFA: 2 capsules by mouth three times a day

Nordic Naturals ProEPA: 1 capsule by mouth three times a day

This amount of fish oil is the equivalent to your child eating one full

can of sardines a day (or was that three cans of sardines? ?).

(Effalex and Coromega people add in what your schedule is for high dose

EFA's)

8. I can't find Nordic Naturals ProEFA at my health food store, now

what?

Nordic Naturals Pro EFA can only be bought online. In the stores

ProEFA is labeled simply as EFA. The same is true for their ProEPA/EPA

product. The " pro " line is for professionals and it is a bit cheaper

than the non-pro line. The pro line can be purchased off of the

CHERAB website.

9. What is the specific dose based on the weight of the child?

(I put this on here because someone specifically asked for this but I

don't think this exists. I don't think there is a recommendation by

weight is there? If so, somebody add it in for me. Thanks).

10. Where can I read more about essential fatty acid supplements?

The Late Talker by Marilyn Agin MD,

[Guest guest]

well done - this is an excellent FAQ!

[ ] FAQ's

OK.... I've got some time so I'm working on these some more. I'm

sending these in. I figure we can work this out kinda like Wikipedia

where anyone can edit, etc. It you want to add something just cut and

paste into a new email/post and add your changes. If the info is

accurate and no one has any problem with it then we'll just keep

pressing forward. After it's made the rounds for a little while I'll

clean it up and make a final copy. Sound like a plan?????

Let's get started. I've divided this up by topic areas. The topic is

in bold. Info in parenthesis is just my statements to y'all... in

other words.... info that needs to be edited, removed or replaced.

Essential Fatty Acid Supplements:

1. What is all this talk about EFA's/Fish Oils?

EFA's or essential fatty acids are more commonly referred to as Omega

3, Omega 6 and/or Omega 9 supplements. These fatty acids can be

obtained to some extent through our diet by eating fish, nuts, etc.

Unfortunately in our society we do not consume adequate amounts of the

foods that provide these nutrients. Many children, however, even if

they were to consume adequate amounts, are not able to convert these

fatty acids into a more useable form and therefore function as if they

have a deficiency.

Fatty acids, once consumed, assist our nervous system and brain to

complete neurotransmissions. In other words, they assist our nervous

system in sending messages throughout our body and help the nervous

system to function more efficiently. EFA's help our brain send

messages to the muscles of our mouth, arms, legs, etc more efficiently

and assist those muscles in receiving these messages and acting upon

them.

The essential fatty acids are as follows:

Docosahexaenoic acid = DHA

Eicosapentaenoic acid = EPA

Aracgudibuc acid = ARA

Gamma-Linolenic acid = GLA

Alpha-linolenic acid = ALA

2. What does this have to do with Apraxia and speech?

Research has shown positive results with the use of EFA's for the

treatment of many disorders including depression, ADHD, etc. Antidotal

evidence suggested that giving EFA supplements to children with apraxia

resulted in large surges in development or language explosions.

Further research has supported these findings as does the reports of

many parents who have given their child the supplements. These

language surges occur between 7 days and 6 weeks after starting the EFA

supplements.

3. Where do I get these EFA supplements?

You can use whatever brand you would like. This FAQ will focus on

three separate products. You may use one of these products or you may

look for another that suits you. The important thing to note is what

is the content of the product you choose. Not all Omega-3 supplements

are alike and they all have differing ratios of fatty acids, etc. It

is thought that the important thing is the ratio of the fatty acids,

not the brand name that you use.

The supplement you use should have a combination of DHA, EPA and GLA.

Children with apraxia of speech seem to respond best to the following

" recipe " of EFA's:

148 mg EPA

99 mg DHA

180 mg of borage oil which contains 40 mg of GLA

This is the exact composition of Nordic Naturals ProEFA product.

Families also use the brand names of Effalex and Coromega. The content

of Coromega is as follows:

(someone look on their coromega bottle and type in the ingredients per

serving).

Effalex contains the following amounts of essential fatty acids:

(someone look on their effalex bottle and type it in).

It is not paramount that you use only these brands. These brands have

the recommended ratios of essential fatty acids. Use these as a

guideline when evaluating other products and calculate whether the

product you are considering has the same ratio of EFA's. It is

theorized that the ratio of EFA's to each other is critical in the

success of the treatment for apraxic children.

4. How much do I give my child per day?

To start, give your child one ProEFA gel cap once or twice per day by

mouth or (insert Effalex starting dose). If using Coromega your

starting dose is (enter that dose). To administer the gel caps some

children swallow them on their own. The capsules can also be punctured

and the contents squirted into juice, applesauce, pudding, peanut

butter, etc. You'll need to see what works best for your child.

When using Nordic Naturals products you will add one capsule of ProEPA

after about 6 months of using Pro EFA. You may also begin adding the

ProEPA when your child begins to plateau.

5. Are using these supplements safe?

Yes. Using these supplements is essentially the same as feeding your

child fish every day for every meal.

6. What are some side effects?

Some parents report that their kids get a little more emotional when

first starting the supplements and when increasing the dosages. Others

have reported initial diarrhea that faded in a day or two.

7. What are high dose fatty acids?

Based on antidotal evidence some families began to give their child

higher doses of the fatty acid supplements. These families saw very

large surges in development, language acquisition, clarity, etc. High

dose fatty acids are administered as follows:

Nordic Naturals ProEFA: 2 capsules by mouth three times a day

Nordic Naturals ProEPA: 1 capsule by mouth three times a day

This amount of fish oil is the equivalent to your child eating one full

can of sardines a day (or was that three cans of sardines? ?).

(Effalex and Coromega people add in what your schedule is for high dose

EFA's)

8. I can't find Nordic Naturals ProEFA at my health food store, now

what?

Nordic Naturals Pro EFA can only be bought online. In the stores

ProEFA is labeled simply as EFA. The same is true for their ProEPA/EPA

product. The " pro " line is for professionals and it is a bit cheaper

than the non-pro line. The pro line can be purchased off of the

CHERAB website.

9. What is the specific dose based on the weight of the child?

(I put this on here because someone specifically asked for this but I

don't think this exists. I don't think there is a recommendation by

weight is there? If so, somebody add it in for me. Thanks).

10. Where can I read more about essential fatty acid supplements?

The Late Talker by Marilyn Agin MD,

[Guest guest]

Dear Kris,

Thank you so very much for taking the time and energy to pull together

info. for these FAQs! I found it very helpful, and I've been reading posts

for several weeks now. You have done a great job summarizing the masses of

posts and research so that one doesn't have to be faced with an overwhelming

amount of info. I really appreciate that you've done this!!

I have nothing to add. Just thanks, and as you continue to put this

together, if I can add anything, I certainly will. I'm new, so still learning.

Karyn