Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 In a message dated 7/13/2006 12:24:36 A.M. Eastern Daylight Time, saraandchadd@... writes: What is going on? Is it just because he isn't use to the new " noise " or are there other things going on. Just FYI - I'm scared of autism - although he showed no signs that I could put a finger on this has always been something I've feared because of relatives. Is this a sign? No clue about the autism, but my guess is that your son now has a lot of new input to process and doesn't need to add more noise to entertain himself. How long has he been wearing the aids. Does he seem to hear you better now with them in -- does he respond, turn towards noises ... the usual little things that indicate he is hearing things? Is Jake receiving services? Does he work (vocalize) with the service provider? If all those signs are good, then I'd give him a little time to get use to the new sounds going on around him. We keep telling our hearing daughter that she needs to stop talking so she can hear what is happening around her. She talks non-stop and listens far worse than our D/HOH son, Ian. He is attentive and quiet, trying to catch as much as possible of what is happening around him -- she sings, chatters, talks to herself and asks " what " constantly. She asks " what " so often, we've taken to calling her a " deaf poser. " If he continues being so silent, then I'd bring it up to the audi/doctor. But for our son, he can go hours without uttering a single syllable, just like his father. Both of them are very careful listeners, and as a result, are very good judges of character. Perhaps Jake is merely listening to a whole new world of sounds that weren't there for him not-so-long-ago. Best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 In a message dated 7/13/2006 8:16:08 A.M. Eastern Daylight Time, laura@... writes: If you look at some of the preliminary checklists that seem to be published every so often in parenting magazines for " does your kid have autism? " many of them are the same as a checklist for " does your kid have a hearing loss? " I have to chime in and agree here. According to our school (at the beginning of our D/HOH journey), they identified Ian's hearing loss as ADD and insisted that they were right. Yet all of our doctors said that was NOT the case. The symptoms for hearing loss can be deceptively similar. Same with autism. If I went by those checklists alone, Ian is deaf, autistic and has ADD. Yet only one of those three is accurate. If you really are worried about autism, then you need to seek out someone who is good and specializes in this. But for now, I'd chalk it up to having a lot of very new input for his brain to get accustomed to hearing. Best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 How long has he had the aids? I would expect an adjustment period. My daughter has picked up and lost some words along the way and then picked them up again, so I don't think that is a problem. Of course, I think that when our daughter lost some words it was mostly due to having ear infections nearly nonstop for about six months. I am personally very leery of the whole autism diagnosis. I know there are kids who definitely have it, but it is also easy for someone who is not really an expert, but who you think should be, to give that diagnosis to a kid with a group of symptoms. If you look at some of the preliminary checklists that seem to be published every so often in parenting magazines for " does your kid have autism? " many of them are the same as a checklist for " does your kid have a hearing loss? " in Manassas, VA > So this is a little strange - I was expecting Jake to become a > nonstop > talker like his sister once he got his aids. After all the kid was > screeching at the top of his lungs for most of the day. But now he is > very quiet? He rarely says mama anymore and he use to say it all the > time when he wanted me. He isn't even uttering dada anymore which he > did occasionally. He has also lost " down " but has picked up " da " for > dog. What is going on? Is it just because he isn't use to the > new " noise " or are there other things going on. > > Just FYI - I'm scared of autism - although he showed no signs that I > could put a finger on this has always been something I've feared > because of relatives. Is this a sign? > > > > > -- Letiecq laura@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Hi Sara - Sam, who is my " easy " child (he's " only deaf " - no ADHD) quieted down also right after getting his hearing aids. Sam actually was incredibly LOUD before getting them - again I think trying to hear himself. So it got much quieter for a time after his hearing aids. Now he won't shut up! :-) Barbara saraandchadd wrote: > So this is a little strange - I was expecting Jake to become a nonstop > talker like his sister once he got his aids. After all the kid was > screeching at the top of his lungs for most of the day. But now he is > very quiet? He rarely says mama anymore and he use to say it all the > time when he wanted me. He isn't even uttering dada anymore which he > did occasionally. He has also lost " down " but has picked up " da " for > dog. What is going on? Is it just because he isn't use to the > new " noise " or are there other things going on. > > Just FYI - I'm scared of autism - although he showed no signs that I > could put a finger on this has always been something I've feared > because of relatives. Is this a sign? > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Some kids stop developing in one area while they " do " one developmental step at a time. For instance, as a child learns to walk, they might not be talking, or they would be crawling rather than sitting and babbling. If this behavior started when he got the hearing aids, he is probably listening intently to this new world. It has got to be quite a difference for him, and it sounds like he is wearing the aids all the time?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 - ditto for ADHD and its symptoms. For a time, we thought my older son's focus problems were because of hearing loss - you don't hear well, you don't focus, right? Turns out Tom *does* have ADHD - we had it verified by a neuropsych who specializes in ADHD and Deaf/hoh kids... On the other hand, deaf kids can also have ADHD and other things. it's so confusing! Barbara Letiecq wrote: > How long has he had the aids? I would expect an adjustment period. > > My daughter has picked up and lost some words along the way and then > picked them up again, so I don't think that is a problem. Of course, I > think that when our daughter lost some words it was mostly due to having > ear infections nearly nonstop for about six months. > > I am personally very leery of the whole autism diagnosis. I know there > are kids who definitely have it, but it is also easy for someone who is > not really an expert, but who you think should be, to give that > diagnosis to a kid with a group of symptoms. If you look at some of the > preliminary checklists that seem to be published every so often in > parenting magazines for " does your kid have autism? " many of them are > the same as a checklist for " does your kid have a hearing loss? " > > in Manassas, VA > > > >> So this is a little strange - I was expecting Jake to become a >> nonstop >> talker like his sister once he got his aids. After all the kid was >> screeching at the top of his lungs for most of the day. But now he is >> very quiet? He rarely says mama anymore and he use to say it all the >> time when he wanted me. He isn't even uttering dada anymore which he >> did occasionally. He has also lost " down " but has picked up " da " for >> dog. What is going on? Is it just because he isn't use to the >> new " noise " or are there other things going on. >> >> Just FYI - I'm scared of autism - although he showed no signs that I >> could put a finger on this has always been something I've feared >> because of relatives. Is this a sign? >> >> >> >> >> >> -- **************** Barbara Mellert Manager, Social Science Computing Kiewit Computing Services Dartmouth College 13A Silsby Hall, HB 6121 Hanover NH 03755 Telephone: 603/646-2877 URL: http://www.dartmouth.edu/~ssc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 > - ditto for ADHD and its symptoms. For a time, we thought my > older son's focus problems were because of hearing loss - you don't > hear > well, you don't focus, right? Turns out Tom *does* have ADHD - we had > it verified by a neuropsych who specializes in ADHD and Deaf/hoh > kids... > > On the other hand, deaf kids can also have ADHD and other things. > it's > so confusing! > > Barbara > I know about the ADHD too; it is frustrating. Especially since some kids get an ADHD diagnosis or an autism diagnosis and never had their hearing tested. That is my personal BIG frustration. It seems like it would make sense to check hearing first for these symptoms since hearing issues are a concrete medical issue as opposed to a diagnosis for a bunch of symptoms that involves the brain that even the experts don't fully understand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 I know the developmental pediatricians here check hearing as one of the first things. Much easier to rule in/rule out a hearing loss I think! >> > I know about the ADHD too; it is frustrating. Especially since some > kids get an ADHD diagnosis or an autism diagnosis and never had their > hearing tested. That is my personal BIG frustration. It seems like it > would make sense to check hearing first for these symptoms since hearing > issues are a concrete medical issue as opposed to a diagnosis for a > bunch of symptoms that involves the brain that even the experts don't > fully understand. > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 On the CICircle chat group there were several posts from parents whose children did not spontaneously talk after they were implanted/aided - meaning they did responded when asked a question but did not just create conversation around them. The consensus from those parents was that there is a period of time when children are learning to listen and then at some point they transition into full time talkers -- Obviously, I don't know if this is the case with your son but wanted to share that I have heard similar stories. . . Emylie San , TX Mother of Kaiden, 6yrs Hearing, and Donovan 7mos Moderate HL > > > In a message dated 7/13/2006 8:16:08 A.M. Eastern Daylight Time, > laura@... writes: > > If you look at some of the > preliminary checklists that seem to be published every so often in > parenting magazines for " does your kid have autism? " many of them are > the same as a checklist for " does your kid have a hearing loss? " > > > > > > I have to chime in and agree here. According to our school (at the beginning > of our D/HOH journey), they identified Ian's hearing loss as ADD and > insisted that they were right. Yet all of our doctors said that was NOT the case. > The symptoms for hearing loss can be deceptively similar. Same with autism. > > If I went by those checklists alone, Ian is deaf, autistic and has ADD. Yet > only one of those three is accurate. > > If you really are worried about autism, then you need to seek out someone > who is good and specializes in this. But for now, I'd chalk it up to having a > lot of very new input for his brain to get accustomed to hearing. > > Best -- Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Something I had forgotten from our AV days - the concept of " hearing age. " You don't hear about this as much now since more kids are diagnosed early. But when a child hasn't been able to hear well, or at all, once they get the aids or CI they are like a newborn listening skill wise. So they need to listen for a number of months before they start producing output - speech. Babies with typical hearing usually say their first recognizable word at about a year give or take a month or two. Since he did have some language already it will probably not take that long, especially if you are getting some intervention. But input has to proceed output so keep pumping him full of language! Re autism - my big message is NOT to be concerned with that at this point. If this quieter behavior came at the same time as the hearing aids, it is probably the hearing aids. There is a saying in medicine, if you hear hoofbeats you don't assume its zebras - we are in the US so it would be more likelly to be a horse. Same thing here, got hearing aids and got quiet - probably related. Is he social? Does he look at people and interact with people? Snuggle? We thought Maggie might have been autistic when she was little because she flapped her arms and watched ceiling fans. But she was also very social which ruled out autism, and she put a door knob back together before she was two so that ruled out MR. So we had several years of an enigma! Quote Link to comment Share on other sites More sharing options...
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