Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 I am wondering if anyone has used modern medicine to have additional children wocf? I know this is a very touchy subject, and I hesitate to ask, but am considering having another child. I have a 2.5 year old wcf and a sister wcf. It is NOT that I wouldn't WANT another child wcf, but let's face it, we are all looking for a cure so those living with CF have healthier longer lives. I just want to know if there are other ways of conceiving a child wocf other that using cvs or an amnio after the fact?! I really hope I am not offending anyone with this question. I am new to the group and hope I have posed the question so that no one is hurt. We all have different opinions on this, but I was just wondering from a medical stand point, what is available to us. Thank you for helping me research this very difficult decision for me and my husband. Melinda - mom of son wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 NO QUESTION should offend anyone.here.i bet you get some good answers here too :) LOVE , grandmomBEV more children I am wondering if anyone has used modern medicine to have additional children wocf? I know this is a very touchy subject, and I hesitate to ask, but am considering having another child. I have a 2.5 year old wcf and a sister wcf. It is NOT that I wouldn't WANT another child wcf, but let's face it, we are all looking for a cure so those living with CF have healthier longer lives. I just want to know if there are other ways of conceiving a child wocf other that using cvs or an amnio after the fact?! I really hope I am not offending anyone with this question. I am new to the group and hope I have posed the question so that no one is hurt. We all have different opinions on this, but I was just wondering from a medical stand point, what is available to us. Thank you for helping me research this very difficult decision for me and my husband. Melinda - mom of son wcf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Melinda - Don't ever apologize for asking questions - I'm new too and asking is the only way to find out, right? I'm actually really glad you asked because we are in a similar situation. I don't want to start trying to have more children any time soon but I know that I'd like to have another one eventually. We've just been " hit " so hard these last few months (Liam being diagnosed in March of this year) that this not been the top of my list. I've been thinking about it a lot the last few weeks though.... probably because Liam is at an age that we would normally think about starting to have another child. Having 3 is not possible right now in our situation but I'd like to know what options we have.....so I'm glad you asked. I'm just going to sit back and listen now! Best of luck to you - just wanted you to know you have someone else in the same boat. Hugs - Carey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 pre implantation screening Ask your OG Leon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 We are dealing with much the same thing. Glad you asked. Our son is 17months with cf and is our first. More children is a big thing for us. We really dont think our family could handle 2 or more kids with cf . So we have found a option called PGD. I'm not sure if its avaliable in other countries. Its a ivf type thing. If anyone wants more info let me know. We are in Austraila Kate mum of Jack w/cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Hi Melinda, I have two boys, one wcf and will hopefully be considering a third (girl) in five years time. We will be looking into IVF to rule out CF and feel totally comfortable about it. I know some people have issues with playing with nature but I'm not religious and I'm also the one who has to live with a child with Cf so I'll do what ever I have to to make sure my baby is healthy. Hopefully the cure will along by then anyway. We will be waiting to see how Connor goes because we might not cope with a third if he were sick a lot of the time. But I still want a girl - just have to convince hubby. After just writing that I feel like I'm contradicting myself. I'm always telling my family (not close) about how CF isn't as bad as they perceive so I dont get their pity. One side of my family is rushing out to get carrier tested so they'll know when they have kids or if they have more. That's all well and good but it's like they wont have kids or not with their husband/partner if they are a carrier. I try to get across that if you do have a child with cf it's not the end of the world and you shouldn't be putting relationships at risk because of that. And then I go and say I wont have another child with CF. I guess what I meant is that we are in a position to prevent CF in our next baby and we will because can. We live with CF and I am thankful that it is CF and not something much worse where as my family seem to think that CF is the end of the world. Sorry, got a bit off track........ Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Hi , I completely understand where you are coming from and would love more info. on the procedure you will undergo - you can email me at melinda@.... Thanks, Melinda - mom of 2.5 year old wcf Re: more children Hi Melinda, I have two boys, one wcf and will hopefully be considering a third (girl) in five years time. We will be looking into IVF to rule out CF and feel totally comfortable about it. I know some people have issues with playing with nature but I'm not religious and I'm also the one who has to live with a child with Cf so I'll do what ever I have to to make sure my baby is healthy. Hopefully the cure will along by then anyway. We will be waiting to see how Connor goes because we might not cope with a third if he were sick a lot of the time. But I still want a girl - just have to convince hubby. After just writing that I feel like I'm contradicting myself. I'm always telling my family (not close) about how CF isn't as bad as they perceive so I dont get their pity. One side of my family is rushing out to get carrier tested so they'll know when they have kids or if they have more. That's all well and good but it's like they wont have kids or not with their husband/partner if they are a carrier. I try to get across that if you do have a child with cf it's not the end of the world and you shouldn't be putting relationships at risk because of that. And then I go and say I wont have another child with CF. I guess what I meant is that we are in a position to prevent CF in our next baby and we will because can. We live with CF and I am thankful that it is CF and not something much worse where as my family seem to think that CF is the end of the world. Sorry, got a bit off track........ Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Carey, Thanks for your support. I just answered an email with my private email (in case others did not want to hear). I will not do that again. I think this is on the minds of a lot of us. My son spent 3 months in the NICU, before ever coming home. It was touch and go as to whether he would ever come home. I already knew he was to be born with CF, but I was not ready for this. Now that he is home and doing so well, I am afraid to chance it again. He is so in need of a sibbling. I stay home with him and protect him from all the possible germs - especially during the winter, and he really needs a companion right now. I can only play so much football, soccer and baseball in one day. He is just so lonely right now. He said the other day that he wanted a baby in our house. I asked if he would help take care of the baby and he replied, " Yes, I will give them enzymes and vitamins " . It was soooo sweet - I wanted to cry! Melinda - mom of 2.5 year old wcf Re: more children Melinda - Don't ever apologize for asking questions - I'm new too and asking is the only way to find out, right? I'm actually really glad you asked because we are in a similar situation. I don't want to start trying to have more children any time soon but I know that I'd like to have another one eventually. We've just been " hit " so hard these last few months (Liam being diagnosed in March of this year) that this not been the top of my list. I've been thinking about it a lot the last few weeks though.... probably because Liam is at an age that we would normally think about starting to have another child. Having 3 is not possible right now in our situation but I'd like to know what options we have.....so I'm glad you asked. I'm just going to sit back and listen now! Best of luck to you - just wanted you to know you have someone else in the same boat. Hugs - Carey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Kate, I would love any information you may have on this opton and from the emails I have received, I think many others will benefit too. Thank you! Melinda - mom of 2.5 year old wcf Re: Re: more children We are dealing with much the same thing. Glad you asked. Our son is 17months with cf and is our first. More children is a big thing for us. We really dont think our family could handle 2 or more kids with cf . So we have found a option called PGD. I'm not sure if its avaliable in other countries. Its a ivf type thing. If anyone wants more info let me know. We are in Austraila Kate mum of Jack w/cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Thank you! Melinda Re: more children pre implantation screening Ask your OG Leon Quote Link to comment Share on other sites More sharing options...
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